ID
40882
Descrição
You are caring for your partner, a family member, a friend or a loved one. This list contains questions about what this care means for you as a caregiver. Your answers will be used in research aimed at improving elderly care and informal care. The more information there is about these types of care, the more they can be taken into consideration. For example, when changing the facilities, regulations or legislation for care and wellbeing. Therefore, your experiences are also valuable for other caregivers. Instructions: - Completing this questionnaire will take approximately twenty minutes. - If you read ‘your loved one’, then the question refers to the person for whom you are a caregiver. - Read each question through completely before answering. - Some questions may appear to be ‘repeated’, but please answer all questions. They are intended to view your situation again from a different angle. - When you are done, please check that you have not forgotten any questions. The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and wellbeing of older persons and informal caregivers across the Netherlands. The database was developed in part to ensure uniform collection of outcomes measures, thus promoting comparability between studies. To date, 53 different research projects have contributed data to this initiative, resulting in a pooled dataset >44,000 older persons and >9,000 informal caregivers. This form contains the version of TOPICS-MDS 2017. More information can be found at https://topics-mds.eu
Link
Palavras-chave
Versões (5)
- 30/05/2020 30/05/2020 -
- 19/11/2020 19/11/2020 -
- 30/01/2021 30/01/2021 -
- 11/02/2021 11/02/2021 - Sarah Riepenhausen
- 11/02/2021 11/02/2021 - Sarah Riepenhausen
Titular dos direitos
Radboud University Medical Center, Department of Geriatric Medicine
Transferido a
30 de maio de 2020
DOI
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Licença
Creative Commons BY-NC 4.0
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TOPICS-MDS
TOPICS-MDS Caregiver
- StudyEvent: ODM
Descrição
Date of birth, gender and postal code of your loved one
Alias
- UMLS CUI-1
- C1320722
- UMLS CUI-2
- C0017313
- UMLS CUI-3
- C1551356
Descrição
Date of birth care receiver
Tipo de dados
date
Alias
- UMLS CUI [1,1]
- C0421451
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Descrição
Gender of care receiver
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C0079399
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Descrição
Four numbers
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C1514254
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Descrição
Relation to your loved one
Alias
- UMLS CUI-1
- C0439849
- UMLS CUI-2
- C0017313
- UMLS CUI-3
- C1551356
Descrição
Relationship to care receiver
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C0439849
- UMLS CUI [1,2]
- C0085537
- UMLS CUI [1,3]
- C0017313
- UMLS CUI [1,4]
- C1551356
Descrição
Specification of relationship
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C2348235
- UMLS CUI [1,2]
- C0439849
- UMLS CUI [1,3]
- C0085537
- UMLS CUI [1,4]
- C0017313
- UMLS CUI [1,5]
- C1551356
Descrição
Living situation with care receiver
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0682072
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Descrição
Your health
Alias
- UMLS CUI-1
- C0018759
- UMLS CUI-2
- C0085537
Descrição
Health status
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C0424575
- UMLS CUI [1,2]
- C0449438
Descrição
Health comparison to past year
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C1707455
- UMLS CUI [1,2]
- C0018759
- UMLS CUI [1,3]
- C3898100
Descrição
Time spent caring for your loved one
Alias
- UMLS CUI-1
- C0040223
- UMLS CUI-2
- C0680968
- UMLS CUI-3
- C1947933
Descrição
The following questions are about the amount of time that you spend caring for your loved one. You will be asked to write down whether you have given your loved one assistance for various activities of daily life. With ‘assistance’, we mean that you have supported your loved one in the task or have taken over the task entirely. Please fill in as accurately as possible the amount of time that you spend on all activities. For somecaregiversitfeelsliketheyspendthewholedaycaringfortheir lovedone.For example, because the care is very hard work. Even so, try to indicate as precisely as possible how much time you really spend caring for your loved one. There are questions further on in this questionnaire about how hard the care feels to you. Complete the questions based on how the previous week has been. Choose another week if your time expenditure in the previous week has been very different to the average week, for example due to illness or vacation.
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C1269765
- UMLS CUI [1,2]
- C1521827
- UMLS CUI [1,3]
- C0524819
- UMLS CUI [1,4]
- C2987125
- UMLS CUI [2,1]
- C1269765
- UMLS CUI [2,2]
- C1947930
- UMLS CUI [2,3]
- C2987125
- UMLS CUI [3,1]
- C1269765
- UMLS CUI [3,2]
- C0441648
- UMLS CUI [3,3]
- C2987125
- UMLS CUI [4,1]
- C1269765
- UMLS CUI [4,2]
- C2713000
- UMLS CUI [4,3]
- C2987125
- UMLS CUI [5,1]
- C1269765
- UMLS CUI [5,2]
- C2977585
- UMLS CUI [5,3]
- C2987125
- UMLS CUI [6,1]
- C1269765
- UMLS CUI [6,2]
- C0150768
- UMLS CUI [6,3]
- C2987125
- UMLS CUI [7,1]
- C1269765
- UMLS CUI [7,2]
- C0521114
- UMLS CUI [7,3]
- C0043227
- UMLS CUI [7,4]
- C3843862
- UMLS CUI [7,5]
- C2987125
- UMLS CUI [8,1]
- C1269765
- UMLS CUI [8,2]
- C0521114
- UMLS CUI [8,3]
- C0868963
- UMLS CUI [8,4]
- C2987125
Descrição
Hours/week of assistance in household activities
Tipo de dados
integer
Unidades de medida
- Hours/week
Alias
- UMLS CUI [1,1]
- C0001288
- UMLS CUI [1,2]
- C1269765
- UMLS CUI [1,3]
- C2987125
- UMLS CUI [1,4]
- C0556976
Descrição
Please fill in as accurately as possible the amount of time that you spend on all activities. For some caregivers it feels like they spend the whole day caring for their loved one. For example, because the care is very hard work. Even so, try to indicate as precisely as possible how much time you really spend caring for your loved one. There are questions further on in this questionnaire about how hard the care feels to you. Complete the questions based on how the previous week has been. Choose another week if your time expenditure in the previous week has been very different to the average week, for example due to illness or vacation.
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0476651
- UMLS CUI [1,2]
- C2987125
- UMLS CUI [2,1]
- C0686904
- UMLS CUI [2,2]
- C1822189
- UMLS CUI [2,3]
- C2987125
- UMLS CUI [3,1]
- C1269765
- UMLS CUI [3,2]
- C2371429
- UMLS CUI [3,3]
- C2987125
- UMLS CUI [4,1]
- C1279813
- UMLS CUI [4,2]
- C2987125
- UMLS CUI [5,1]
- C3469597
- UMLS CUI [5,2]
- C3828841
- UMLS CUI [5,3]
- C2987125
Descrição
Hours/week of assistance in personal care
Tipo de dados
integer
Unidades de medida
- Hours/week
Alias
- UMLS CUI [1,1]
- C0476651
- UMLS CUI [1,2]
- C2987125
- UMLS CUI [1,3]
- C0556976
Descrição
Please fill in as accurately as possible the amount of time that you spend on all activities. For somecaregiversitfeelsliketheyspendthewholedaycaringfortheir lovedone.For example, because the care is very hard work. Even so, try to indicate as precisely as possible how much time you really spend caring for your loved one. There are questions further on in this questionnaire about how hard the care feels to you. Complete the questions based on how the previous week has been. Choose another week if your time expenditure in the previous week has been very different to the average week, for example due to illness or vacation.
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C1269765
- UMLS CUI [1,2]
- C2371431
- UMLS CUI [1,3]
- C2987125
- UMLS CUI [2,1]
- C1269765
- UMLS CUI [2,2]
- C3842924
- UMLS CUI [2,3]
- C1269765
- UMLS CUI [2,4]
- C2987125
- UMLS CUI [3,1]
- C1269765
- UMLS CUI [3,2]
- C0332158
- UMLS CUI [3,3]
- C0086388
- UMLS CUI [3,4]
- C2987125
- UMLS CUI [4,1]
- C1269765
- UMLS CUI [4,2]
- C0420305
- UMLS CUI [4,3]
- C2987125
- UMLS CUI [5,1]
- C1269765
- UMLS CUI [5,2]
- C0025080
- UMLS CUI [5,3]
- C2987125
- UMLS CUI [6,1]
- C1269765
- UMLS CUI [6,2]
- C0850398
- UMLS CUI [6,3]
- C2987125
- UMLS CUI [7,1]
- C1269765
- UMLS CUI [7,2]
- C0016114
- UMLS CUI [7,3]
- C2987125
- UMLS CUI [8,1]
- C1269765
- UMLS CUI [8,2]
- C1292785
- UMLS CUI [8,3]
- C2987125
- UMLS CUI [9,1]
- C1300196
- UMLS CUI [9,2]
- C1822167
- UMLS CUI [9,3]
- C2987125
Descrição
Hours/week of assistance in moving around outside the house, going on outings and visiting family or friends, contacts with healthcare, arranging assistance, devices and/or home modifications and organising financial and administrative matters
Tipo de dados
integer
Unidades de medida
- hours/week
Alias
- UMLS CUI [1,1]
- C1269765
- UMLS CUI [1,2]
- C2987125
- UMLS CUI [1,3]
- C0556976
Descrição
Other support than the caregiver
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C1521721
- UMLS CUI [2,1]
- C0205394
- UMLS CUI [2,2]
- C2367294
Descrição
Other support than the caregiver
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0085537
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C1521721
- UMLS CUI [1,4]
- C2584953
- UMLS CUI [2,1]
- C0085537
- UMLS CUI [2,2]
- C0205394
- UMLS CUI [2,3]
- C2367294
- UMLS CUI [2,4]
- C2584953
Descrição
How difficult is the care for you
Alias
- UMLS CUI-1
- C1299586
- UMLS CUI-2
- C1171174
Descrição
How difficult is the care for you
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C1299586
- UMLS CUI [1,2]
- C1171174
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0242428
- UMLS CUI [1,2]
- C0597198
- UMLS CUI [1,3]
- C1947933
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0425168
- UMLS CUI [1,2]
- C0085537
- UMLS CUI [1,3]
- C0017313
- UMLS CUI [1,4]
- C1551356
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1]
- C1446377
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0033213
- UMLS CUI [1,2]
- C0517226
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0740765
- UMLS CUI [1,2]
- C0678226
- UMLS CUI [1,3]
- C1947933
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0549106
- UMLS CUI [1,2]
- C1947933
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C1514756
- UMLS CUI [1,2]
- C1521721
- UMLS CUI [1,3]
- C1947933
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0018592
- UMLS CUI [1,2]
- C0521116
Descrição
The following questions are about your situation as a caregiver.
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C1527305
- UMLS CUI [1,2]
- C1947933
- UMLS CUI [1,3]
- C1301771
Descrição
Quality of life for yourself
Alias
- UMLS CUI-1
- C0034380
- UMLS CUI-2
- C0085537
Descrição
Quality of life in general
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0034380
- UMLS CUI [1,2]
- C0205246
Descrição
Enter a number between 0 and 10 here
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0441800
- UMLS CUI [1,2]
- C0034380
Descrição
Comparison of quality of life to one year ago
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C1707455
- UMLS CUI [1,2]
- C0034380
- UMLS CUI [1,3]
- C3898100
Descrição
Conclusion
Alias
- UMLS CUI-1
- C1707478
Similar models
TOPICS-MDS Caregiver
- StudyEvent: ODM
C0085537 (UMLS CUI-2)
C0085537 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
C0439849 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,4])
C1551356 (UMLS CUI [1,5])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0449438 (UMLS CUI [1,2])
C0018759 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])
C0680968 (UMLS CUI-2)
C1947933 (UMLS CUI-3)
C1521827 (UMLS CUI [1,2])
C0524819 (UMLS CUI [1,3])
C2987125 (UMLS CUI [1,4])
C1269765 (UMLS CUI [2,1])
C1947930 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C0441648 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1269765 (UMLS CUI [4,1])
C2713000 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C2977585 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0150768 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0521114 (UMLS CUI [7,2])
C0043227 (UMLS CUI [7,3])
C3843862 (UMLS CUI [7,4])
C2987125 (UMLS CUI [7,5])
C1269765 (UMLS CUI [8,1])
C0521114 (UMLS CUI [8,2])
C0868963 (UMLS CUI [8,3])
C2987125 (UMLS CUI [8,4])
C1269765 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C0556976 (UMLS CUI [1,4])
C2987125 (UMLS CUI [1,2])
C0686904 (UMLS CUI [2,1])
C1822189 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C2371429 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1279813 (UMLS CUI [4,1])
C2987125 (UMLS CUI [4,2])
C3469597 (UMLS CUI [5,1])
C3828841 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
C2371431 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C1269765 (UMLS CUI [2,1])
C3842924 (UMLS CUI [2,2])
C1269765 (UMLS CUI [2,3])
C2987125 (UMLS CUI [2,4])
C1269765 (UMLS CUI [3,1])
C0332158 (UMLS CUI [3,2])
C0086388 (UMLS CUI [3,3])
C2987125 (UMLS CUI [3,4])
C1269765 (UMLS CUI [4,1])
C0420305 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C0025080 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0850398 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0016114 (UMLS CUI [7,2])
C2987125 (UMLS CUI [7,3])
C1269765 (UMLS CUI [8,1])
C1292785 (UMLS CUI [8,2])
C2987125 (UMLS CUI [8,3])
C1300196 (UMLS CUI [9,1])
C1822167 (UMLS CUI [9,2])
C2987125 (UMLS CUI [9,3])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
C1521721 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C2367294 (UMLS CUI [2,2])
C0205394 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C2584953 (UMLS CUI [1,4])
C0085537 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
C2367294 (UMLS CUI [2,3])
C2584953 (UMLS CUI [2,4])
C1171174 (UMLS CUI-2)
C1171174 (UMLS CUI [1,2])
C0597198 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
C0517226 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C1947933 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C0521116 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,2])
C1301771 (UMLS CUI [1,3])
C0085537 (UMLS CUI-2)
C0205246 (UMLS CUI [1,2])
C0034380 (UMLS CUI [1,2])
C0034380 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])