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Informações:
Falhas:
ID
40882
Descrição
You are caring for your partner, a family member, a friend or a loved one. This list contains questions about what this care means for you as a caregiver. Your answers will be used in research aimed at improving elderly care and informal care. The more information there is about these types of care, the more they can be taken into consideration. For example, when changing the facilities, regulations or legislation for care and wellbeing. Therefore, your experiences are also valuable for other caregivers. Instructions: - Completing this questionnaire will take approximately twenty minutes. - If you read ‘your loved one’, then the question refers to the person for whom you are a caregiver. - Read each question through completely before answering. - Some questions may appear to be ‘repeated’, but please answer all questions. They are intended to view your situation again from a different angle. - When you are done, please check that you have not forgotten any questions. The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and wellbeing of older persons and informal caregivers across the Netherlands. The database was developed in part to ensure uniform collection of outcomes measures, thus promoting comparability between studies. To date, 53 different research projects have contributed data to this initiative, resulting in a pooled dataset >44,000 older persons and >9,000 informal caregivers. This form contains the version of TOPICS-MDS 2017. More information can be found at https://topics-mds.eu
Link
Palavras-chave
Versões (5)
- 30/05/2020 30/05/2020 -
- 19/11/2020 19/11/2020 -
- 30/01/2021 30/01/2021 -
- 11/02/2021 11/02/2021 - Sarah Riepenhausen
- 11/02/2021 11/02/2021 - Sarah Riepenhausen
Titular dos direitos
Radboud University Medical Center, Department of Geriatric Medicine
Transferido a
30 de maio de 2020
DOI
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Licença
Creative Commons BY-NC 4.0
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TOPICS-MDS
Similar models
TOPICS-MDS Caregiver
- StudyEvent: ODM
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Date of birth of caregiver
Item
Geboortedatum
date
C2348576 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,2])
CL Item
Man (1)
CL Item
Vrouw (2)
Postal code
Item
Postcode (4 cijfers):
integer
C1514254 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,2])
Item Group
C1320722 (UMLS CUI-1)
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
Date of birth care receiver
Item
Geboortedatum van uw naaste:
date
C0421451 (UMLS CUI [1,1])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
Item
Geslacht van uw naaste:
text
C0079399 (UMLS CUI [1,1])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
CL Item
Man (1)
CL Item
Vrouw (2)
Postal code of care receiver
Item
Postcode van uw naaste: (4 cijfers)
integer
C1514254 (UMLS CUI [1,1])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
Item Group
C0439849 (UMLS CUI-1)
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
Item
Wat is uw relatie met uw naaste?
text
C0439849 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
CL Item
Ik ben Echtgenoot / echtgenote / levenspartner (1)
CL Item
Ik ben (Schoon)zus, broer, zwager (2)
CL Item
Ik ben (Schoon)dochter / (schoon)zoon (3)
CL Item
Anders (4)
Specification of relationship
Item
Als u "Andere" hebt aangevinkt, geef dan aan:
text
C2348235 (UMLS CUI [1,1])
C0439849 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,4])
C1551356 (UMLS CUI [1,5])
C0439849 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,4])
C1551356 (UMLS CUI [1,5])
Living situation with care receiver
Item
Woont u samen met uw naaste?
boolean
C0682072 (UMLS CUI [1,1])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
Item
Hoe is in het algemeen uw gezondheid?
text
C0424575 (UMLS CUI [1,1])
C0449438 (UMLS CUI [1,2])
C0449438 (UMLS CUI [1,2])
CL Item
Uitstekend (1)
CL Item
Erg goed (2)
CL Item
Goed (3)
CL Item
Redelijk (4)
CL Item
Slecht (5)
Item
Hoe is in het algemeen uw gezondheid, in vergelijking met een jaar geleden?
text
C1707455 (UMLS CUI [1,1])
C0018759 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])
C0018759 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])
Code List
Hoe is in het algemeen uw gezondheid, in vergelijking met een jaar geleden?
CL Item
Veel beter (1)
CL Item
Iets beter (2)
CL Item
Ongeveer hetzelfde (3)
CL Item
Iets slechter (4)
CL Item
Veel slechter (5)
Item Group
C0040223 (UMLS CUI-1)
C0680968 (UMLS CUI-2)
C1947933 (UMLS CUI-3)
C0680968 (UMLS CUI-2)
C1947933 (UMLS CUI-3)
Assisted in preparing food/drinks, cleaning the house, washing, ironing, sewing clothing, shopping for groceries, odd jobs in the house or garden
Item
Heeft u uw naaste in de afgelopen week door zijn/haar gezondheidsproblemen moeten helpen bij huishoudelijke taken zoals klaarmaken van eten en drinken, schoonmaken van het huis, wassen, strijken en naaien van kleding, boodschappen doen of kleine klussen in huis of in de tuin?
boolean
C1269765 (UMLS CUI [1,1])
C1521827 (UMLS CUI [1,2])
C0524819 (UMLS CUI [1,3])
C2987125 (UMLS CUI [1,4])
C1269765 (UMLS CUI [2,1])
C1947930 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C0441648 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1269765 (UMLS CUI [4,1])
C2713000 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C2977585 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0150768 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0521114 (UMLS CUI [7,2])
C0043227 (UMLS CUI [7,3])
C3843862 (UMLS CUI [7,4])
C2987125 (UMLS CUI [7,5])
C1269765 (UMLS CUI [8,1])
C0521114 (UMLS CUI [8,2])
C0868963 (UMLS CUI [8,3])
C2987125 (UMLS CUI [8,4])
C1521827 (UMLS CUI [1,2])
C0524819 (UMLS CUI [1,3])
C2987125 (UMLS CUI [1,4])
C1269765 (UMLS CUI [2,1])
C1947930 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C0441648 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1269765 (UMLS CUI [4,1])
C2713000 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C2977585 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0150768 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0521114 (UMLS CUI [7,2])
C0043227 (UMLS CUI [7,3])
C3843862 (UMLS CUI [7,4])
C2987125 (UMLS CUI [7,5])
C1269765 (UMLS CUI [8,1])
C0521114 (UMLS CUI [8,2])
C0868963 (UMLS CUI [8,3])
C2987125 (UMLS CUI [8,4])
Hours/week of assistance in household activities
Item
Als je "Ja" hebt aangevinkt, hoeveel uur heb je dan je geliefde moeten helpen met huishoudelijke taken?
integer
C0001288 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C0556976 (UMLS CUI [1,4])
C1269765 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C0556976 (UMLS CUI [1,4])
Assisted with personal care, going to the toilet, moving around the house, eating, drinking or administering medication
Item
Heeft u uw naaste in de afgelopen week door zijn/haar gezondheidsproblemen moeten helpen bij persoonlijke verzorging (aan- en uitkleden, wassen, kammen, scheren), naar het toilet gaan, verplaatsen binnenshuis, eten, drinken of toedienen medicatie?
boolean
C0476651 (UMLS CUI [1,1])
C2987125 (UMLS CUI [1,2])
C0686904 (UMLS CUI [2,1])
C1822189 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C2371429 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1279813 (UMLS CUI [4,1])
C2987125 (UMLS CUI [4,2])
C3469597 (UMLS CUI [5,1])
C3828841 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C2987125 (UMLS CUI [1,2])
C0686904 (UMLS CUI [2,1])
C1822189 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C2371429 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1279813 (UMLS CUI [4,1])
C2987125 (UMLS CUI [4,2])
C3469597 (UMLS CUI [5,1])
C3828841 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
Hours/week of assistance in personal care
Item
Als je "Ja" hebt aangevinkt, hoeveel uur heb je dan je geliefde moeten helpen met persoonlijke verzorging?
integer
C0476651 (UMLS CUI [1,1])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
Assisting in moving around outside the house, going on outings and visiting family or friends, contacts with healthcare, arranging assistance, devices/home modifications and organising financial and administrative matters
Item
Heeft u uw naaste in de afgelopen week door zijn/haar gezondheidsproblemen moeten helpen bij verplaatsen buitenshuis, maken van uitstapjes en bezoekjes aan familie of vrienden, contacten met de gezondheidszorg (mee naar bijvoorbeeld de huisarts, het ziekenhuis, eentherapie),het regelen van hulp, hulp middelen en/of woningaanpassingen, en het regelen van financiële en administratieve zaken?
boolean
C1269765 (UMLS CUI [1,1])
C2371431 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C1269765 (UMLS CUI [2,1])
C3842924 (UMLS CUI [2,2])
C1269765 (UMLS CUI [2,3])
C2987125 (UMLS CUI [2,4])
C1269765 (UMLS CUI [3,1])
C0332158 (UMLS CUI [3,2])
C0086388 (UMLS CUI [3,3])
C2987125 (UMLS CUI [3,4])
C1269765 (UMLS CUI [4,1])
C0420305 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C0025080 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0850398 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0016114 (UMLS CUI [7,2])
C2987125 (UMLS CUI [7,3])
C1269765 (UMLS CUI [8,1])
C1292785 (UMLS CUI [8,2])
C2987125 (UMLS CUI [8,3])
C1300196 (UMLS CUI [9,1])
C1822167 (UMLS CUI [9,2])
C2987125 (UMLS CUI [9,3])
C2371431 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C1269765 (UMLS CUI [2,1])
C3842924 (UMLS CUI [2,2])
C1269765 (UMLS CUI [2,3])
C2987125 (UMLS CUI [2,4])
C1269765 (UMLS CUI [3,1])
C0332158 (UMLS CUI [3,2])
C0086388 (UMLS CUI [3,3])
C2987125 (UMLS CUI [3,4])
C1269765 (UMLS CUI [4,1])
C0420305 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C0025080 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0850398 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0016114 (UMLS CUI [7,2])
C2987125 (UMLS CUI [7,3])
C1269765 (UMLS CUI [8,1])
C1292785 (UMLS CUI [8,2])
C2987125 (UMLS CUI [8,3])
C1300196 (UMLS CUI [9,1])
C1822167 (UMLS CUI [9,2])
C2987125 (UMLS CUI [9,3])
Hours/week of assistance in moving around outside the house, going on outings and visiting family or friends, contacts with healthcare, arranging assistance, devices and/or home modifications and organising financial and administrative matters
Item
Als u "Ja" heeft aangevinkt, hoeveel uur heeft u dan in de afgelopen week uw geliefde moeten helpen met het verplaatsen van de woning, het maken van uitstapjes en het bezoeken van familie of vrienden, contacten met de gezondheidszorg (het begeleiden van de huisarts, het ziekenhuis, de therapie), het regelen van hulp, apparaten en/of aanpassingen aan het huis en het organiseren van financiële en administratieve zaken?
integer
C1269765 (UMLS CUI [1,1])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
Other support than the caregiver
Item
Krijgt uw naaste behalve van u ook hulp van andere mantelzorgers of vrijwilligers?
boolean
C0205394 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C2367294 (UMLS CUI [2,2])
C1521721 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C2367294 (UMLS CUI [2,2])
Other support than the caregiver
Item
Als u "Ja" heeft aangevinkt, hoeveel uur per week heeft uw geliefde dan hulp gekregen van andere zorgverleners of vrijwilligers naast u?
integer
C0085537 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C2584953 (UMLS CUI [1,4])
C0085537 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
C2367294 (UMLS CUI [2,3])
C2584953 (UMLS CUI [2,4])
C0205394 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C2584953 (UMLS CUI [1,4])
C0085537 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
C2367294 (UMLS CUI [2,3])
C2584953 (UMLS CUI [2,4])
How difficult is the care for you
Item
Geef met een kruisje op de meetlat aan hoe zwaar u het vindt om zorg aan uw naaste te geven. Hoe dichter bij de ‘0’, hoe minder zwaar u de zorg vindt. En hoe dichter bij de ‘10’, hoe zwaarder u de zorg vindt.
integer
C1299586 (UMLS CUI [1,1])
C1171174 (UMLS CUI [1,2])
C1171174 (UMLS CUI [1,2])
Item
Ik heb ... voldoening van het verrichten van mijn zorgtaken.
integer
C0242428 (UMLS CUI [1,1])
C0597198 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C0597198 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
Code List
Ik heb ... voldoening van het verrichten van mijn zorgtaken.
CL Item
geen (1)
CL Item
enige (2)
CL Item
veel (3)
Item
Ik heb ... problemen met mijn naaste (bijvoorbeeld zij/hij is veeleisend, we hebben communicatieproblemen, zij/hij is zich anders gaan gedragen).
integer
C0425168 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
Code List
Ik heb ... problemen met mijn naaste (bijvoorbeeld zij/hij is veeleisend, we hebben communicatieproblemen, zij/hij is zich anders gaan gedragen).
CL Item
geen (1)
CL Item
enige (2)
CL Item
veel (3)
Item
Ik heb ... problemen met mijn eigen geestelijke gezondheid (bijvoorbeeld stress, angst, somberheid, bezorgdheid over de toekomst).
integer
C1446377 (UMLS CUI [1])
Code List
Ik heb ... problemen met mijn eigen geestelijke gezondheid (bijvoorbeeld stress, angst, somberheid, bezorgdheid over de toekomst).
CL Item
geen (1)
CL Item
enige (2)
CL Item
veel (3)
Item
Ik heb ... problemen met mijn eigen lichamelijke gezondheid (bijvoorbeeld vaker ziek, vermoeidheid, lichamelijke overbelasting).
integer
C0033213 (UMLS CUI [1,1])
C0517226 (UMLS CUI [1,2])
C0517226 (UMLS CUI [1,2])
Code List
Ik heb ... problemen met mijn eigen lichamelijke gezondheid (bijvoorbeeld vaker ziek, vermoeidheid, lichamelijke overbelasting).
CL Item
geen (1)
CL Item
enige (2)
CL Item
veel (3)
Item
Ik heb ... roblemen om mijn dagelijkse activiteiten (bijvoorbeeld werk, huishouden, studie, gezin en vrije tijd) te combineren met mijn zorgtaken.
integer
C0740765 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C0678226 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
Code List
Ik heb ... roblemen om mijn dagelijkse activiteiten (bijvoorbeeld werk, huishouden, studie, gezin en vrije tijd) te combineren met mijn zorgtaken.
CL Item
geen (1)
CL Item
enige (2)
CL Item
veel (3)
Item
Ik heb ... financiële problemen bij mijn zorgtaken.
integer
C0549106 (UMLS CUI [1,1])
C1947933 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,2])
CL Item
geen (1)
CL Item
enige (2)
CL Item
veel (3)
Item
I have ... steun (van familie/vrienden/buren/kennissen/vrijwilligers) bij het verrichten van mijn zorgtaken.
integer
C1514756 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C1521721 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
Code List
I have ... steun (van familie/vrienden/buren/kennissen/vrijwilligers) bij het verrichten van mijn zorgtaken.
CL Item
no (1)
CL Item
some (2)
CL Item
a lot (3)
Happy at the moment
Item
Geef met een kruisje op de meetlat aan hoe gelukkig u zichzelf op dit moment voelt. Hoe dichter bij "0", hoe ongelukkiger je je nu voelt. Hoe dichter bij "10", hoe gelukkiger je je nu voelt.
integer
C0018592 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
C0521116 (UMLS CUI [1,2])
Feeling a burden by care for the other one
Item
Stelt u zich voor: u en uw naaste mogen zelf iemand uitkiezen die al uw zorgtaken van u overneemt.Hetkostnietsextraendezepersoonverleentalleovergenomen zorgbijuw naaste thuis. Geef met een kruisje op de meetlat aan hoe gelukkig u zich zou voelen als deze persoon de zorg van u zou overnemen. Hoe dichter bij "0", hoe ongelukkiger je je zou voelen. Hoe dichter bij "10", hoe gelukkiger je je zou voelen.
integer
C1527305 (UMLS CUI [1,1])
C1947933 (UMLS CUI [1,2])
C1301771 (UMLS CUI [1,3])
C1947933 (UMLS CUI [1,2])
C1301771 (UMLS CUI [1,3])
Item
Hoe is in het algemeen uw kwaliteit van leven?
integer
C0034380 (UMLS CUI [1,1])
C0205246 (UMLS CUI [1,2])
C0205246 (UMLS CUI [1,2])
CL Item
Uitstekend (1)
CL Item
Erg goed (2)
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Goed (3)
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Redelijk (4)
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Slecht (5)
Report mark for quality of life
Item
Welk rapportcijfer geeft u uw leven op dit moment?
integer
C0441800 (UMLS CUI [1,1])
C0034380 (UMLS CUI [1,2])
C0034380 (UMLS CUI [1,2])
Item
Hoe is in het algemeen uw kwaliteit van leven, in vergelijking met een jaar geleden?
integer
C1707455 (UMLS CUI [1,1])
C0034380 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])
C0034380 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])
Code List
Hoe is in het algemeen uw kwaliteit van leven, in vergelijking met een jaar geleden?
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Veel beter (1)
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Iets beter (2)
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Ongeveer hetzelfde (3)
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Iets slechter (4)
CL Item
Veel slechter (5)
Comment
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Heeft u nog opmerkingen, schrijf ze dan hieronder op:
text
C0947611 (UMLS CUI [1])