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40673

Description

ICHOM Pregnancy and Childbirth data collection Version 1.0.3 Published: 10th April 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. The Pregnancy and Childbirth Standard Set of ICHOM includes outcomes to evaluate maternity care for all women during pregnancy, labor and delivery, and up to six month postpartum. ICHOMs Standard Set also includes a list of case-mix factors to allow for comparisons of outcomes across this broad patient population. Conditions: All women during: Pregnancy | Labor and delivery | Up to six months postpartum This document contains the Birth - Patient reported Form. It has to be filled in prior to discharge from birth unit or within 3 days postpartum. Collecting Patient-Reported Outcome Measure: PROMIS-10. As there is an official distribution site for this questionnaire, only the total score will be included in this version of the standard set. For more information see: http://www.nihpromis.org/measures/translations International Consultation on Incontinence Questionnaire - Urinary Incontinence Short Form (ICIQ-UI SF). As permission is needed for use of this questionnaire, only the total score will be included in this version of the standard set. For more information see: http:// www.iciq.net/userpolicy.html, https://iciq.net/user-agreement Breastfeeding Self-Efficacy Scale - Short Form (BSES-SF). Free for use in clinical practice, routine outcomes measurement, and clinical research but requires permission from the developer. Please see Dennis, C-L. (2003) The Breastfeeding Self-Efficacy Scale: Psychometric assessment of the short form. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 32, 734-744. For more information see: http://www.cindyleedennis.ca/research/#1-breastfeeding Wexner Scale (Cleveland Clinic Florida Fecal Incontinence Score). Free for use. No license is required. For more information see: Table 2 of Vaizey et al. (1999) Prospective comparison of faecal incontinence grading systems. Gut 44:77-80. Original Publication: Jorge JM, Wexner SD. Etiology and management of fecal incontinence. Dis Colon Rectum. 1993 Jan;36(1):77–97. Mother-to-Infant Bonding Scale (MIBS). As license condition for use of this scale is insufficiently clarified, only the total score will be included in this version of the standard set. The complete scoring guide as well as information on clinical interpretation can be found at: http://www.ncbi.nlm.nih.gov/pubmed/15868385: Taylor, A., Atkins, R., Kumar, R. et al. Arch Womens Ment Health (2005) 8: 45. https://doi.org/10.1007/s00737-005-0074-z Patient Health Questionnaire-2 (PHQ-2). Free for use. No license is required. Scoring and clinical interpretation can be found at: http://www. cqaimh.org/pdf/tool_phq2.pdf For more information see: https://www.phqscreeners.com/ Edinburgh Postnatal Depression Scale (EPDS). Free for use. No license is required. Users may reproduce the scale without permissions provided they respect copyright by quoting the names of the authors, the title and the source of the paper in all reproduced copies. The scoring guide and clinical interpretation can be found in: Cox JL et al (1987) Detection of postnatal depression development of the 10-item Edinburgh Postnatal Depression Scale. Birth Satisfaction Scale - Revised (BSS-R). Free for use in clinical practice, routine outcomes measurement, and clinical research but requires permission from the developer. For more information see: Hollins Martin CJ et al (2014) Development and psychometric properties of the Birth Satisfaction Scale - Revised (BSS-R). Midwifery 30: 610-619 Reference: Nijagal MA, Wissig S, Stowell C, et al. Standardized outcome measures for pregnancy and childbirth, an ICHOM proposal. BMC Health Serv Res. 2018;18(1):953. Published 2018 Dec 11. doi:10.1186/s12913-018-3732-3 The Standard set of ICHOM was supported by the hoag, HCF Research Foundation, Karolinska University Hospital and the Government of South Australia. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

Versions (4)
  1. 10/28/19 10/28/19 -
  2. 10/28/19 10/28/19 -
  3. 10/29/19 10/29/19 - Sarah Riepenhausen
  4. 4/30/20 4/30/20 - Sarah Riepenhausen
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ICHOM

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April 30, 2020

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    ICHOM Pregnancy and Childbirth

    English

    Birth - Patient reported

    1 forms  
    Administrative Data
    Description

    Administrative Data

    Alias
    UMLS CUI-1
    C1320722
    Indicate the patient's medical record number
    Description

    SUPPORTING DEFINITION: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution. INCLUSION CRITERIA: All women TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

    Data type

    integer

    Alias
    UMLS CUI [1]
    C1269815
    Patient-reported health status
    Description

    Patient-reported health status

    Alias
    UMLS CUI-1
    C0018759
    UMLS CUI-2
    C2987124
    PROMIS-10 Global health, total score
    Description

    As there is an official distribution site, the actual 10 questions of this questionnaire are not part of this verions of the standard set. ICHOM OIDs are: Global01 to Global10 INCLUSION CRITERIA: All women TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C3836333
    UMLS CUI [1,2]
    C2964552
    In the past month, have you leaked urine, leaked stool or passed gas by accident?
    Description

    INCLUSION CRITERIA: All women TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0021167
    ICIQ-SF, total score
    Description

    As permission is needed for use of this questionnaire, the actual 4 questions are not included in this version of the standard set. ICHOM OIDs are: UI01* to UI04* INCLUSION CRITERIA: *women scoring a 1 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester,Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C4544471
    UMLS CUI [1,2]
    C2964552
    How often do you have accidents to solid, well-formed stool?
    Description

    INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0681889
    UMLS CUI [1,2]
    C0015732
    UMLS CUI [1,3]
    C0205208
    UMLS CUI [1,4]
    C3898838
    How often do you have accidents to liquid stool/diarrhea?
    Description

    INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0681889
    UMLS CUI [1,2]
    C0015732
    UMLS CUI [1,3]
    C2129214
    UMLS CUI [1,4]
    C3898838
    How often does the gas escape without your knowledge or control?
    Description

    INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0681889
    UMLS CUI [1,2]
    C4087409
    UMLS CUI [1,3]
    C3898838
    How often do you wear a pad/depends or change underwear?
    Description

    INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0681889
    UMLS CUI [1,2]
    C0182158
    UMLS CUI [1,3]
    C3898838
    UMLS CUI [1,4]
    C0443172
    UMLS CUI [1,5]
    C0453880
    How much do the above answers alter your lifestyle or activities?
    Description

    INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0681889
    UMLS CUI [1,2]
    C3829612
    UMLS CUI [1,3]
    C0015732
    In the past 30 days, how much has pain affected your satisfaction with your sex life?
    Description

    This question is based on a question from PROMIS SFFAC102 INCLUSION CRITERIA: All women TIMING: Entry to prenatal care Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C2984060
    UMLS CUI [1,2]
    C0030193
    Breastfeeding
    Description

    Breastfeeding

    Alias
    UMLS CUI-1
    C0006147
    How confident do you feel about breast feeding?
    Description

    INCLUSION CRITERIA: *women scoring a 1 on BFINTENT in 3rd trimester OR 1 or 2 on BFSUCCESS at birth, postpartum check-up or 6 month postpartum TIMING: 3rd trimester, birth Postpartum check-up REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C1704726
    Please indicate how you are feeding your baby:
    Description

    INCLUSION CRITERIA: All women TIMING: Birth, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0597535
    I can always determine that my baby is getting enough milk.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C1148554
    UMLS CUI [2,2]
    C0556182
    UMLS CUI [2,3]
    C0205410
    I can always successfully cope with breastfeeding like I have with other challenging tasks.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0009967
    I can always breastfeed my baby without using formula as a supplement.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C1298908
    UMLS CUI [2,3]
    C0150589
    UMLS CUI [2,4]
    C2348609
    I can always ensure that my baby is properly latched on for the whole feeding.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0021270
    UMLS CUI [2,3]
    C0733755
    UMLS CUI [2,4]
    C2349182
    I can always manage the breastfeeding situation to my satisfaction.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0242428
    I can always manage to breastfeed even if my baby is crying.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C3641650
    UMLS CUI [2,3]
    C0581876
    I can always keep wanting to breastfeed.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0042950
    I can always comfortably breastfeed with my family members present.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0015576
    UMLS CUI [2,3]
    C0150312
    I can always be satisfied with my breastfeeding experience.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0242428
    UMLS CUI [2,3]
    C0596545
    I can always deal with the fact that breastfeeding can be time-consuming.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0009967
    UMLS CUI [2,3]
    C3827829
    I can always finish feeding my baby on one breast before switching to the other breast.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0205197
    UMLS CUI [2,3]
    C0332152
    UMLS CUI [2,4]
    C0332270
    UMLS CUI [2,5]
    C0006141
    I can always continue to breastfeed my baby for every feeding.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0006147
    UMLS CUI [2,2]
    C0549178
    I can always manage to keep up with my baby's breastfeeding demands.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C1550543
    UMLS CUI [2,2]
    C0006147
    UMLS CUI [2,3]
    C0441516
    I can always tell when my baby is finished breastfeeding.
    Description

    INCLUSION CRITERIA: *Optional for women scoring a 3 or lower on BFCONFID TIMING: 3rd trimester, Birth, Postpartum check-up- > should apply to all BSES questions REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0006147
    UMLS CUI [1,2]
    C0600564
    UMLS CUI [1,3]
    C0681889
    UMLS CUI [2,1]
    C0030971
    UMLS CUI [2,2]
    C0556182
    UMLS CUI [2,3]
    C0444930
    Role transition
    Description

    Role transition

    Alias
    UMLS CUI-1
    C2700061
    UMLS CUI-2
    C3871154
    MIBS Scale, total score
    Description

    As a license is needed for use of this scale, the actual 8 questions are not included in this version of the standard set. ICHOM OIDs are: MIBS1 to MIBS8. INCLUSION CRITERIA: All women TIMING: Birth, Postpartum check-up REPORTING SOURCE: Patient-reported TYPE: Single Answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0026591
    UMLS CUI [1,2]
    C0021270
    UMLS CUI [1,3]
    C0028758
    UMLS CUI [1,4]
    C0681889
    UMLS CUI [1,5]
    C2964552
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    Similar models

    Birth - Patient reported

    1 forms
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Administrative Data
    C1320722 (UMLS CUI-1)
    Patient ID
    Item
    Indicate the patient's medical record number
    integer
    C1269815 (UMLS CUI [1])
    Item Group
    Patient-reported health status
    C0018759 (UMLS CUI-1)
    C2987124 (UMLS CUI-2)
    PROMIS-10 Global health, total score
    Item
    PROMIS-10 Global health, total score
    integer
    C3836333 (UMLS CUI [1,1])
    C2964552 (UMLS CUI [1,2])
    Item
    In the past month, have you leaked urine, leaked stool or passed gas by accident?
    integer
    C0021167 (UMLS CUI [1])
    Incontinence screening question
    Code List
    In the past month, have you leaked urine, leaked stool or passed gas by accident?
    CL Item
    Yes, I leaked urine (1)
    C0042024 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Yes, I leaked stool or passed gas by accident (2)
    C0015733 (UMLS CUI-1)
    C0428715 (UMLS CUI-2)
    (Comment:en)
    CL Item
    No, I did not leak urine, leak stool, or pass gas by accident (3)
    C1298908 (UMLS CUI-1)
    C0042024 (UMLS CUI-2)
    C1298908 (UMLS CUI-3)
    C0015733 (UMLS CUI-4)
    C1298908 (UMLS CUI-5)
    C0428715 (UMLS CUI-6)
    (Comment:en)
    ICIQ-SF, total score
    Item
    ICIQ-SF, total score
    integer
    C4544471 (UMLS CUI [1,1])
    C2964552 (UMLS CUI [1,2])
    Item
    How often do you have accidents to solid, well-formed stool?
    integer
    C0681889 (UMLS CUI [1,1])
    C0015732 (UMLS CUI [1,2])
    C0205208 (UMLS CUI [1,3])
    C3898838 (UMLS CUI [1,4])
    Question 1 of Wexner
    Code List
    How often do you have accidents to solid, well-formed stool?
    CL Item
    Less than once per month (1)
    C3841785 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Less than once/week and greater than once/month (2)
    C3845368 (UMLS CUI-1)
    C0439093 (UMLS CUI-2)
    C3845349 (UMLS CUI-3)
    (Comment:en)
    CL Item
    Less than once/day and greater than once/week (3)
    C3843156 (UMLS CUI-1)
    C0556983 (UMLS CUI-2)
    C0439093 (UMLS CUI-3)
    C0558293 (UMLS CUI-4)
    (Comment:en)
    CL Item
    Once a day or more than once a day (4)
    C0556983 (UMLS CUI-1)
    C3853132 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Never (0)
    C2003901 (UMLS CUI-1)
    (Comment:en)
    Item
    How often do you have accidents to liquid stool/diarrhea?
    integer
    C0681889 (UMLS CUI [1,1])
    C0015732 (UMLS CUI [1,2])
    C2129214 (UMLS CUI [1,3])
    C3898838 (UMLS CUI [1,4])
    Question 1 of Wexner
    Code List
    How often do you have accidents to liquid stool/diarrhea?
    CL Item
    Less than once per month (1)
    C3841785 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Less than once/week and greater than once/month (2)
    C3845368 (UMLS CUI-1)
    C0439093 (UMLS CUI-2)
    C3845349 (UMLS CUI-3)
    (Comment:en)
    CL Item
    Less than once/day and greater than once/week (3)
    C3843156 (UMLS CUI-1)
    C0556983 (UMLS CUI-2)
    C0439093 (UMLS CUI-3)
    C0558293 (UMLS CUI-4)
    (Comment:en)
    CL Item
    Once a day or more than once a day (4)
    C0556983 (UMLS CUI-1)
    C3853132 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Never (0)
    C2003901 (UMLS CUI-1)
    (Comment:en)
    Item
    How often does the gas escape without your knowledge or control?
    integer
    C0681889 (UMLS CUI [1,1])
    C4087409 (UMLS CUI [1,2])
    C3898838 (UMLS CUI [1,3])
    Question 1 of Wexner
    Code List
    How often does the gas escape without your knowledge or control?
    CL Item
    Less than once per month (1)
    C3841785 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Less than once/week and greater than once/month (2)
    C3845368 (UMLS CUI-1)
    C0439093 (UMLS CUI-2)
    C3845349 (UMLS CUI-3)
    (Comment:en)
    CL Item
    Less than once/day and greater than once/week (3)
    C3843156 (UMLS CUI-1)
    C0556983 (UMLS CUI-2)
    C0439093 (UMLS CUI-3)
    C0558293 (UMLS CUI-4)
    (Comment:en)
    CL Item
    Once a day or more than once a day (4)
    C0556983 (UMLS CUI-1)
    C3853132 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Never (0)
    C2003901 (UMLS CUI-1)
    (Comment:en)
    Item
    How often do you wear a pad/depends or change underwear?
    integer
    C0681889 (UMLS CUI [1,1])
    C0182158 (UMLS CUI [1,2])
    C3898838 (UMLS CUI [1,3])
    C0443172 (UMLS CUI [1,4])
    C0453880 (UMLS CUI [1,5])
    Question 1 of Wexner
    Code List
    How often do you wear a pad/depends or change underwear?
    CL Item
    Less than once per month (1)
    C3841785 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Less than once/week and greater than once/month (2)
    C3845368 (UMLS CUI-1)
    C0439093 (UMLS CUI-2)
    C3845349 (UMLS CUI-3)
    (Comment:en)
    CL Item
    Less than once/day and greater than once/week (3)
    C3843156 (UMLS CUI-1)
    C0556983 (UMLS CUI-2)
    C0439093 (UMLS CUI-3)
    C0558293 (UMLS CUI-4)
    (Comment:en)
    CL Item
    Once a day or more than once a day (4)
    C0556983 (UMLS CUI-1)
    C3853132 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Never (0)
    C2003901 (UMLS CUI-1)
    (Comment:en)
    Item
    How much do the above answers alter your lifestyle or activities?
    integer
    C0681889 (UMLS CUI [1,1])
    C3829612 (UMLS CUI [1,2])
    C0015732 (UMLS CUI [1,3])
    Question 1 of Wexner
    Code List
    How much do the above answers alter your lifestyle or activities?
    CL Item
    Less than once per month (1)
    C3841785 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Less than once/week and greater than once/month (2)
    C3845368 (UMLS CUI-1)
    C0439093 (UMLS CUI-2)
    C3845349 (UMLS CUI-3)
    (Comment:en)
    CL Item
    Less than once/day and greater than once/week (3)
    C3843156 (UMLS CUI-1)
    C0556983 (UMLS CUI-2)
    C0439093 (UMLS CUI-3)
    C0558293 (UMLS CUI-4)
    (Comment:en)
    CL Item
    Once a day or more than once a day (4)
    C0556983 (UMLS CUI-1)
    C3853132 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Never (0)
    C2003901 (UMLS CUI-1)
    (Comment:en)
    Item
    In the past 30 days, how much has pain affected your satisfaction with your sex life?
    integer
    C2984060 (UMLS CUI [1,1])
    C0030193 (UMLS CUI [1,2])
    Pain with intercourse
    Code List
    In the past 30 days, how much has pain affected your satisfaction with your sex life?
    CL Item
    Have not had pain in the past 30 days  (0)
    C0234225 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Not at all  (1)
    C2003901 (UMLS CUI-1)
    (Comment:en)
    CL Item
    A little bit  (2)
    C2984078 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Somewhat  (3)
    C2984079 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Quite a bit  (4)
    C2984080 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very much (5)
    C2984081 (UMLS CUI-1)
    (Comment:en)
    Item Group
    Breastfeeding
    C0006147 (UMLS CUI-1)
    Item
    How confident do you feel about breast feeding?
    integer
    C0006147 (UMLS CUI [1,1])
    C1704726 (UMLS CUI [1,2])
    Confidence in role
    Code List
    How confident do you feel about breast feeding?
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    Please indicate how you are feeding your baby:
    integer
    C0006147 (UMLS CUI [1,1])
    C0597535 (UMLS CUI [1,2])
    Success with breastfeeding
    Code List
    Please indicate how you are feeding your baby:
    CL Item
    My baby has received only breast milk in the past 7 days. (1)
    C0205171 (UMLS CUI-1)
    C0026131 (UMLS CUI-2)
    C2987125 (UMLS CUI-3)
    (Comment:en)
    CL Item
    My baby has received a combination of breast milk, formula, or water in the past 7 days. (2)
    C0205195 (UMLS CUI-1)
    C0026131 (UMLS CUI-2)
    C0150589 (UMLS CUI-3)
    C0043047 (UMLS CUI-4)
    C2987125 (UMLS CUI-5)
    (Comment:en)
    CL Item
    My baby has received only formula, water, or other liquids but not breast milk in the past 7 days. (3)
    C0150589 (UMLS CUI-1)
    C0043047 (UMLS CUI-2)
    C0205394 (UMLS CUI-3)
    C0302908 (UMLS CUI-4)
    C0332300 (UMLS CUI-5)
    C0026131 (UMLS CUI-6)
    C2987125 (UMLS CUI-7)
    (Comment:en)
    Item
    I can always determine that my baby is getting enough milk.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C1148554 (UMLS CUI [2,1])
    C0556182 (UMLS CUI [2,2])
    C0205410 (UMLS CUI [2,3])
    Confidence in role
    Code List
    I can always determine that my baby is getting enough milk.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always successfully cope with breastfeeding like I have with other challenging tasks.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0009967 (UMLS CUI [2,2])
    Confidence in role
    Code List
    I can always successfully cope with breastfeeding like I have with other challenging tasks.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always breastfeed my baby without using formula as a supplement.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C1298908 (UMLS CUI [2,2])
    C0150589 (UMLS CUI [2,3])
    C2348609 (UMLS CUI [2,4])
    Confidence in role
    Code List
    I can always breastfeed my baby without using formula as a supplement.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always ensure that my baby is properly latched on for the whole feeding.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0021270 (UMLS CUI [2,2])
    C0733755 (UMLS CUI [2,3])
    C2349182 (UMLS CUI [2,4])
    Confidence in role
    Code List
    I can always ensure that my baby is properly latched on for the whole feeding.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always manage the breastfeeding situation to my satisfaction.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0242428 (UMLS CUI [2,2])
    Confidence in role
    Code List
    I can always manage the breastfeeding situation to my satisfaction.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always manage to breastfeed even if my baby is crying.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C3641650 (UMLS CUI [2,2])
    C0581876 (UMLS CUI [2,3])
    Confidence in role
    Code List
    I can always manage to breastfeed even if my baby is crying.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always keep wanting to breastfeed.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0042950 (UMLS CUI [2,2])
    Confidence in role
    Code List
    I can always keep wanting to breastfeed.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always comfortably breastfeed with my family members present.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0015576 (UMLS CUI [2,2])
    C0150312 (UMLS CUI [2,3])
    Confidence in role
    Code List
    I can always comfortably breastfeed with my family members present.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always be satisfied with my breastfeeding experience.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0242428 (UMLS CUI [2,2])
    C0596545 (UMLS CUI [2,3])
    Confidence in role
    Code List
    I can always be satisfied with my breastfeeding experience.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always deal with the fact that breastfeeding can be time-consuming.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0009967 (UMLS CUI [2,2])
    C3827829 (UMLS CUI [2,3])
    Confidence in role
    Code List
    I can always deal with the fact that breastfeeding can be time-consuming.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always finish feeding my baby on one breast before switching to the other breast.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0205197 (UMLS CUI [2,2])
    C0332152 (UMLS CUI [2,3])
    C0332270 (UMLS CUI [2,4])
    C0006141 (UMLS CUI [2,5])
    Confidence in role
    Code List
    I can always finish feeding my baby on one breast before switching to the other breast.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always continue to breastfeed my baby for every feeding.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0006147 (UMLS CUI [2,1])
    C0549178 (UMLS CUI [2,2])
    Confidence in role
    Code List
    I can always continue to breastfeed my baby for every feeding.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always manage to keep up with my baby's breastfeeding demands.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C1550543 (UMLS CUI [2,1])
    C0006147 (UMLS CUI [2,2])
    C0441516 (UMLS CUI [2,3])
    Confidence in role
    Code List
    I can always manage to keep up with my baby's breastfeeding demands.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item
    I can always tell when my baby is finished breastfeeding.
    integer
    C0006147 (UMLS CUI [1,1])
    C0600564 (UMLS CUI [1,2])
    C0681889 (UMLS CUI [1,3])
    C0030971 (UMLS CUI [2,1])
    C0556182 (UMLS CUI [2,2])
    C0444930 (UMLS CUI [2,3])
    Confidence in role
    Code List
    I can always tell when my baby is finished breastfeeding.
    CL Item
    Not at all confident (1)
    C2984077 (UMLS CUI-1)
    C1704726 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Not very confident (2)
    C1298908 (UMLS CUI-1)
    C4036200 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Somewhat confident (3)
    C2984079 (UMLS CUI-1)
    C0558095 (UMLS CUI-2)
    (Comment:en)
    CL Item
    Confident (4)
    C0558095 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Very confident (5)
    C4036200 (UMLS CUI-1)
    (Comment:en)
    Item Group
    Role transition
    C2700061 (UMLS CUI-1)
    C3871154 (UMLS CUI-2)
    MIBS Scale, total score
    Item
    MIBS Scale, total score
    integer
    C0026591 (UMLS CUI [1,1])
    C0021270 (UMLS CUI [1,2])
    C0028758 (UMLS CUI [1,3])
    C0681889 (UMLS CUI [1,4])
    C2964552 (UMLS CUI [1,5])
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