ID

40669

Description

ICHOM Paediatric Facial Palsy data collection Version 1.0.0 Revised: August 31st, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Paediatric Facial Palsy, the following conditions and treatment approaches (or interventions) are covered by ICHOM‘s Standard Set. Conditions: Congenital/Syndromic | Acquired Unilateral (single- and multi-territory) | Bilateral (single- and multi-territory) Treatment approaches: Medical treatment | Surgery | Eye care Physiotherapy/Occupational therapy | Botulinum toxin | Psychological support This document contains the Baseline - Clinical Form. It has to be filled in at Patient's first encounter/visit. Collecting Patient-Reported Outcome Measure: eFACE – Clinician. For more information see: Banks CA, Bhama PK, Park J, Hadlock CR, Hadlock TA. Clinician-Graded Electronic Facial Paralysis Assessment: The eFACE, August 2015. doi: 10.1097/PRS.0000000000001447 FACE-Q Kids. As there is a license for use of this questionnaire, the questions will not be included in this version of the standard set, only subscores. Snellen Chart – Clinician. PROMIS Paediatric Global Health 7 and PROMIS Pediatric Peer Relationships SF 8a. As there is an official distribution site, only the total score of these questionnaires will be included in this version of the standard set. For more information see: http://www. healthmeasures.net/explore-measurement-systems/promis/ obtain-administer-measures Reference: Butler DP, De la Torre A, Borschel GH, et al. An International Collaborative Standardizing Patient-Centered Outcome Measures in Pediatric Facial Palsy. JAMA Facial Plast Surg. Published online May 09, 2019. doi:10.1001/jamafacial.2019.0224 The Standard set of ICHOM was supported by the royal free charity and the Dianne and Michael Bienes Charitable Foundation Inc. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

Versions (3)
  1. 8/20/19 8/20/19 -
  2. 8/28/19 8/28/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Paediatric Facial Palsy

English

Baseline - Clinical Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

text

Alias
UMLS CUI [1]
C1269815
Patient Demographic Factors
Description

Patient Demographic Factors

Alias
UMLS CUI-1
C1704791
Indicate the age at each clinical evaluation
Description

Inclusion Criteria: All patients Timing: On all forms Data Source: Clinical, parent-reported, or patient-reported Type: Single answer Response Options: Years and fractions

Data type

text

Measurement units
  • years
Alias
UMLS CUI [1]
C0001779
years
Indicate the patient’s sex at birth
Description

Inclusion Criteria: All patients Inclusion Criteria: All patients Timing: Baseline Data Source: Clinical, parent-reported, or patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0079399
Indicate the patient’s insurance status
Description

Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1548070
Baseline Clinical Status
Description

Baseline Clinical Status

Alias
UMLS CUI-1
C0449440
UMLS CUI-2
C1442488
Indicate the cause of the facial paralysis using the following groupings:
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C1314792
Indicate whether the facial paralysis is unilateral or bilateral
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C0925205
Indicate whether the facial paralysis involves multiple or a single facial nerve branch territory
Description

Inclusion Criteria: If "1 = Unilateral" to FP_LAT Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C0205092
UMLS CUI [1,3]
C0205146
Indicate whether the facial nerve branch territory is symetrical or asymetrical
Description

Inclusion Criteria: If "2 = Bilateral" to FP_LAT Timing: Baseline Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0427055
UMLS CUI [1,2]
C0238767
UMLS CUI [1,3]
C0205146
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
Description

Supporting Definition: Based on eFACE Inclusion Criteria: All patients >3y Timing: Baseline Data Source: Clinician Type: Single answer Response Options: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C3846158
UMLS CUI [1,2]
C0427055
UMLS CUI [1,3]
C0439793
UMLS CUI [1,4]
C0034394
UMLS CUI [1,5]
C0449820
Indicate whether the patient has any comorbidities
Description

Inclusion Criteria: All patients Timing: On all forms Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0009488
Indicate if the patient has any of the following comorbidities 0 = No other diseases
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C2359476
Indicate if the patient has any of the following comorbidities 1 = Cardiac anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C3277906
UMLS CUI [3,1]
C0018787
UMLS CUI [3,2]
C1704258
Indicate if the patient has any of the following comorbidities 2 = GU anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0042066
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0042066
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 3 = Developmental delay or learning difficulty
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0424605
UMLS CUI [3]
C0851265
Indicate if the patient has any of the following comorbidities 4 = Psychiatric or behavior disorder
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0004936
UMLS CUI [3]
C0004930
Indicate if the patient has any of the following comorbidities 5 = Infection or toxin mediated disease
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2]
C0009450
UMLS CUI [3,1]
C0040549
UMLS CUI [3,2]
C0012634
Indicate if the patient has any of the following comorbidities 6 = GI anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0521362
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0521362
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 7 = Other musculoskeletal anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0026860
UMLS CUI [2,2]
C3887504
UMLS CUI [3,1]
C0026860
UMLS CUI [3,2]
C1704258
Indicate if the patient has any of the following comorbidities 8 = Other craniomaxillofacial anomalies
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0205394
UMLS CUI [2,2]
C0037303
UMLS CUI [2,3]
C0024947
UMLS CUI [2,4]
C1704258
Indicate if the patient has any of the following comorbidities 9 = Pulmonary anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C2709248
UMLS CUI [2,2]
C1704258
UMLS CUI [3]
C1709770
Indicate if the patient has any of the following comorbidities 10 = Hematological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0279810
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0279810
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 11 = Immunological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0205470
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0205470
UMLS CUI [3,2]
C3887504
Indicate if the patient has any of the following comorbidities 12 = Neurological anomalies or dysfunction
Description

Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"

Data type

boolean

Alias
UMLS CUI [1,1]
C1521725
UMLS CUI [1,2]
C0009488
UMLS CUI [2,1]
C0027853
UMLS CUI [2,2]
C1704258
UMLS CUI [3,1]
C0027853
UMLS CUI [3,2]
C3887504
Other
Description

Other

Alias
UMLS CUI-1
C0205394
Indicate if the patient has been transferred to your institution after care was begun elsewhere
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Clinician/Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0184681
Indicate the age of transfer into your institution
Description

Inclusion Criteria: If "1 = Yes" to TOCIN Timing: T0 Data Source: Clinician/Administrative data Type: Numerical value Response Options: Numerical value of years and fractions

Data type

integer

Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0439786
UMLS CUI [1,3]
C0001779
Degree of Health
Description

Degree of Health

Alias
UMLS CUI-1
C0018759
Indicate who is completing the PROMs
Description

Supporting Definition: PROMs refer to patient-, parent- or proxy-reported tools Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4038447
UMLS CUI [1,2]
C4277735
Indicate the distance visual acuity measured uncorrected in the right eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C4072785
UMLS CUI [1,4]
C0229089
Indicate the distance visual acuity measured best corrected in the right eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C1690532
UMLS CUI [1,4]
C0229089
Indicate the distance visual acuity measured uncorrected in the left eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C4072785
UMLS CUI [1,4]
C0229090
Indicate the distance visual acuity measured best corrected in the left eye
Description

Supporting Definition: Use Snellen Chart to measure visual acuity Inclusion Criteria: Age >6y Timing: Baseline, 5 and 11 ages Follow-up, End of study Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0183370
UMLS CUI [1,2]
C0429537
UMLS CUI [1,3]
C1690532
UMLS CUI [1,4]
C0229090
Has the patient been evaluated to rule out ambliopia?
Description

Inclusion Criteria: All patients Timing: Baseline, 5 and 11 ages Follow-up Data Source: Clinician Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0002418
UMLS CUI [1,2]
C0220825
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
Description

Supporting Definition: Based on eFACE Inclusion Criteria: Age >3y Timing: On all forms Data Source: Clinician/Administrative data Type: Numerical value Response Options: Numerical

Data type

integer

Alias
UMLS CUI [1,1]
C3846158
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0439793
UMLS CUI [1,4]
C0015469
UMLS CUI [2]
C0517048
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Similar models

Baseline - Clinical Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
text
C1269815 (UMLS CUI [1])
Item Group
Patient Demographic Factors
C1704791 (UMLS CUI-1)
Age
Item
Indicate the age at each clinical evaluation
text
C0001779 (UMLS CUI [1])
Item
Indicate the patient’s sex at birth
integer
C0079399 (UMLS CUI [1])
Sex at birth
Code List
Indicate the patient’s sex at birth
CL Item
Male (1)
C1706180 (UMLS CUI-1)
(Comment:en)
CL Item
Female (2)
C0086287 (UMLS CUI-1)
(Comment:en)
CL Item
Undisclosed (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate the patient’s insurance status
integer
C1548070 (UMLS CUI [1])
Education level
Code List
Indicate the patient’s insurance status
CL Item
Uninsured (0)
C0087134 (UMLS CUI-1)
(Comment:en)
CL Item
Private insurance (1)
C3845555 (UMLS CUI-1)
(Comment:en)
CL Item
Governmental insurance (2)
C0021682 (UMLS CUI-1)
(Comment:en)
Item Group
Baseline Clinical Status
C0449440 (UMLS CUI-1)
C1442488 (UMLS CUI-2)
Item
Indicate the cause of the facial paralysis using the following groupings:
integer
C0427055 (UMLS CUI [1,1])
C1314792 (UMLS CUI [1,2])
Facial palsy aetiology
Code List
Indicate the cause of the facial paralysis using the following groupings:
CL Item
Syndromic congenital (1)
C0039082 (UMLS CUI-1)
C0000768 (UMLS CUI-2)
(Comment:en)
CL Item
Isolated congenital (2)
C0205409 (UMLS CUI-1)
C0000768 (UMLS CUI-2)
(Comment:en)
CL Item
Infective acquired (3)
C0009450 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
(Comment:en)
CL Item
Traumatic acquired (4)
C3263723 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
(Comment:en)
CL Item
Neoplasm/compressive acquired (5)
C0027651 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
C0332459 (UMLS CUI-3)
C0439661 (UMLS CUI-4)
(Comment:en)
CL Item
Iatrogenic acquired (6)
C0439669 (UMLS CUI-1)
C0439661 (UMLS CUI-2)
(Comment:en)
CL Item
Bell’s acquired (7)
C0376175 (UMLS CUI-1)
(Comment:en)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the facial paralysis is unilateral or bilateral
integer
C0427055 (UMLS CUI [1,1])
C0925205 (UMLS CUI [1,2])
Facial palsy laterality
Code List
Indicate whether the facial paralysis is unilateral or bilateral
CL Item
Unilateral (1)
C0205092 (UMLS CUI-1)
(Comment:en)
CL Item
Bilateral (2)
C0238767 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the facial paralysis involves multiple or a single facial nerve branch territory
integer
C0427055 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])
C0205146 (UMLS CUI [1,3])
Facial palsy territory (unilateral)
Code List
Indicate whether the facial paralysis involves multiple or a single facial nerve branch territory
CL Item
Single (1)
C0205171 (UMLS CUI-1)
(Comment:en)
CL Item
Multi-territory (2)
C0439064 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the facial nerve branch territory is symetrical or asymetrical
integer
C0427055 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
C0205146 (UMLS CUI [1,3])
Facial palsy territory (unilateral)
Code List
Indicate whether the facial nerve branch territory is symetrical or asymetrical
CL Item
Symmetrical single (1)
C0332516 (UMLS CUI-1)
C0205171 (UMLS CUI-2)
(Comment:en)
CL Item
Symmetrical multi-territory (2)
C0332516 (UMLS CUI-1)
C0439064 (UMLS CUI-2)
(Comment:en)
CL Item
Asymmetrical (3)
C0332514 (UMLS CUI-1)
(Comment:en)
Facial palsy severity
Item
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
integer
C3846158 (UMLS CUI [1,1])
C0427055 (UMLS CUI [1,2])
C0439793 (UMLS CUI [1,3])
C0034394 (UMLS CUI [1,4])
C0449820 (UMLS CUI [1,5])
Item
Indicate whether the patient has any comorbidities
integer
C0009488 (UMLS CUI [1])
Patient Comorbidities
Code List
Indicate whether the patient has any comorbidities
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Comorbidities of paediatric patient: No other disease
Item
Indicate if the patient has any of the following comorbidities 0 = No other diseases
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C1298908 (UMLS CUI [2,1])
C2359476 (UMLS CUI [2,2])
Comorbidities of paediatric patient: Cardiac anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 1 = Cardiac anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C3277906 (UMLS CUI [2])
C0018787 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GU anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 2 = GU anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0042066 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0042066 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Developmental delay or learning difficulty
Item
Indicate if the patient has any of the following comorbidities 3 = Developmental delay or learning difficulty
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0424605 (UMLS CUI [2])
C0851265 (UMLS CUI [3])
Comorbidities of paediatric patient: Psychiatric or behavior disorder
Item
Indicate if the patient has any of the following comorbidities 4 = Psychiatric or behavior disorder
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2])
C0004930 (UMLS CUI [3])
Comorbidities of paediatric patient: Infection or toxin mediated disease
Item
Indicate if the patient has any of the following comorbidities 5 = Infection or toxin mediated disease
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0009450 (UMLS CUI [2])
C0040549 (UMLS CUI [3,1])
C0012634 (UMLS CUI [3,2])
Comorbidities of paediatric patient: GI anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 6 = GI anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0521362 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0521362 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other musculoskeletal anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 7 = Other musculoskeletal anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0026860 (UMLS CUI [2,1])
C3887504 (UMLS CUI [2,2])
C0026860 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Other craniomaxillofacial anomalies
Item
Indicate if the patient has any of the following comorbidities 8 = Other craniomaxillofacial anomalies
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C0037303 (UMLS CUI [2,2])
C0024947 (UMLS CUI [2,3])
C1704258 (UMLS CUI [2,4])
Comorbidities of paediatric patient: Pulmonary anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 9 = Pulmonary anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C2709248 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C1709770 (UMLS CUI [3])
Comorbidities of paediatric patient: Hematological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 10 = Hematological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0279810 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0279810 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Immunological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 11 = Immunological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0205470 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0205470 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Comorbidities of paediatric patient: Neurological anomalies or dysfunction
Item
Indicate if the patient has any of the following comorbidities 12 = Neurological anomalies or dysfunction
boolean
C1521725 (UMLS CUI [1,1])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0027853 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
Item Group
Other
C0205394 (UMLS CUI-1)
Item
Indicate if the patient has been transferred to your institution after care was begun elsewhere
integer
C0030704 (UMLS CUI [1,1])
C0184681 (UMLS CUI [1,2])
Patient Comorbidities
Code List
Indicate if the patient has been transferred to your institution after care was begun elsewhere
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Age of transfer into your institution
Item
Indicate the age of transfer into your institution
integer
C0030704 (UMLS CUI [1,1])
C0439786 (UMLS CUI [1,2])
C0001779 (UMLS CUI [1,3])
Item Group
Degree of Health
C0018759 (UMLS CUI-1)
Item
Indicate who is completing the PROMs
integer
C4038447 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Reporting source of PROM
Code List
Indicate who is completing the PROMs
CL Item
Patient (1)
C0030705 (UMLS CUI-1)
(Comment:en)
CL Item
Parent/proxy (2)
C0030551 (UMLS CUI-1)
C0600420 (UMLS CUI-2)
(Comment:en)
Visual acuity using Snellen chart, uncorrected right eye
Item
Indicate the distance visual acuity measured uncorrected in the right eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C4072785 (UMLS CUI [1,3])
C0229089 (UMLS CUI [1,4])
Visual acuity using Snellen chart, best corrected right eye
Item
Indicate the distance visual acuity measured best corrected in the right eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C1690532 (UMLS CUI [1,3])
C0229089 (UMLS CUI [1,4])
Visual acuity using Snellen chart, uncorrected left eye
Item
Indicate the distance visual acuity measured uncorrected in the left eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C4072785 (UMLS CUI [1,3])
C0229090 (UMLS CUI [1,4])
Visual acuity using Snellen chart, best corrected left eye
Item
Indicate the distance visual acuity measured best corrected in the left eye
integer
C0183370 (UMLS CUI [1,1])
C0429537 (UMLS CUI [1,2])
C1690532 (UMLS CUI [1,3])
C0229090 (UMLS CUI [1,4])
Item
Has the patient been evaluated to rule out ambliopia?
integer
C0002418 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
Patient Comorbidities
Code List
Has the patient been evaluated to rule out ambliopia?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
eFACE scoring
Item
Indicate the severity of the facial paralysis using the eFACE composite "Smile" score
integer
C3846158 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0439793 (UMLS CUI [1,3])
C0015469 (UMLS CUI [1,4])
C0517048 (UMLS CUI [2])
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