ID
40660
Descrição
ICHOM Congenital Upper Limb Anomalies data collection Version 1.0.0 August 31st, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Congenital Upper Limb Anomalies, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Congenital Hand Anomaly | Congenital Upper Limb Anomaly | Apert | Cleft Hand | Constriction Ring | Polydactyly | Radial Ray Deficiency | Symbrachydactyly | Thumb Hypoplasia | Ulnar Dysplasia | Ulnar Ray Deficiency Treatment approaches: Surgery | Rehabilitation | Other This document contains the Follow-up - Parent Form. This form is for situations in which the patient is unable to respond to PROMIS CPGH7 (found in the patient reported follow-up form). It has to be filled in at 6, 8, 12, and 15 years of age. Additionally it has to be filled in at the end of pediatric care, if the patient is still under 18 years of age (If he/she is 18 years or older at that point, please fill in the PROMIS Global Health 10 instead). Collecting Patient-Reported Outcome Measures: Joint Mobility Questions. There are no licensing requirements to use these questions. PROMIS Upper Extremity, Global Health, Peer relationships, Anxiety, Depression. As there is an official distribution site, these questionnaires will not be included in this version of the standard set. For more information see: http://www.healthmeasures.net/exploremeasurement-systems/promis/obtain-administer-measures Goniometry, Dynamometry for Clinician. Follow the clinical assessment recommendations of the American Dynamometry - Clinician Society of Hand Therapists. Manual Muscle Strength Testing – Clinician. Use the Medical Research Council MMST grading. Oberg-Manske-Tonkin Classification. For more information see: Oberg KC, Feenstra JM, Manske PR, et al. Developmental biology and classification of congenital anomalies of the hand and upper extremity. J Hand Surg Am. 2010;35:2066. The Standard set of ICHOM was supported by the Great Ormond Stres Hospital, the Boston Children’s Hospital, the Erasmus MC, the Royal North Shore Hospital, the Texas Scottish Rite Hospital and the Loma Linda University. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Versões (2)
- 12/10/2019 12/10/2019 -
- 30/04/2020 30/04/2020 - Sarah Riepenhausen
Titular dos direitos
ICHOM
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30 de abril de 2020
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Creative Commons BY-NC 4.0
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ICHOM Congenital Upper Limb Anomalies
Follow-up - Parent Form
- StudyEvent: ODM
Descrição
Degree of Health
Alias
- UMLS CUI-1
- C0018759
Descrição
As there is an official distribution site, the actual 7 questions of this questionnaire are not part in this version of the standard set. The ICHOM OIDs are: PROMIS-PPGH7_Q01 to PROMIS-PPGH7_Q07. Supporting definition: Please contact license holder for the questionnaire. If you wish to participate in the ICHOM benchmarking program and have secured a licence to use the tool, ICHOM will provide you with the technical specifications on how to collect the data. Inclusion Criteria: Age 6-17 (if the patient is unable to respond to PROMIS CPGH7) Timing: 6Y, 8Y, 12Y, 15Y, EOC if <18 Data Source: Parent-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0600420
- UMLS CUI [1,2]
- C3693645
- UMLS CUI [1,3]
- C0030755
- UMLS CUI [1,4]
- C2964552
Similar models
Follow-up - Parent Form
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C3693645 (UMLS CUI [1,2])
C0030755 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])