ID
40655
Beskrivning
ICHOM Atrial Fibrillation data collection Version 1.0.0 Published: 3rd April 2019 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. The following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Atrial Fibrillation Population: An adult (≥ 18 years) diagnosed with atrial fibrillation (including symptomatic patients) Treatment approaches: Management of cardiovascular risk factors and institution of preventive therapy | Pharmacological management| Non-Pharmacological management Excluded populations: Children and Young persons below 18 years Excluded conditions: Patients diagnosed with cardiotoxic acute atrial fibrillation This document contains the Annual – Clinical Form. It has to be filled in annually after index event. Collecting Patient-Reported Outcome Measure: PROMIS Global Health. As there is an official distribution site, the questions of this questionnaire will not be included in this version of the standard set. For more information see: https://bit.ly/29aOZu9 Alternatively Optum SF-12, AFEQT, AFSS or WPAI:GH may be used. Montreal Cognitive Assessment Test. For more information see: https://www.mocatest.org/ The Standard set of ICHOM was supported by the BigData@Heart organization. Publication: Seligman WH, Das-Gupta Z, Jobi-Odeneye AO, Arbelo E, Banerjee A, Bollmann A, et al. Development of an international standard set of outcome measures for patients with atrial fibrillation: a report of the International Consortium for Health Outcomes Measurement (ICHOM) atrial fibrillation working group. Eur Heart J. 2020 Jan 29; 10.1093/eurheartj/ehz871 For this version of the standard set, semantic annotation with UMLS CUIs has been added.
Länk
Nyckelord
Versioner (2)
- 2019-08-22 2019-08-22 -
- 2020-04-30 2020-04-30 - Sarah Riepenhausen
Rättsinnehavare
ICHOM
Uppladdad den
30 april 2020
DOI
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Creative Commons BY-NC 4.0
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ICHOM Atrial Fibrillation
Annual – Clinical Form
- StudyEvent: ODM
Beskrivning
Lifestyle interventions measured at annually
Alias
- UMLS CUI-1
- C0023676
- UMLS CUI-2
- C0184661
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical/Admin Type: Numerical value Response Options: Numerical value of weight in kilograms or pounds
Datatyp
float
Alias
- UMLS CUI [1]
- C0005910
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical/Admin Type: Numerical value
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C1519795
Beskrivning
Supporting Definition: Height and weight are used to calculate BMI Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical/Admin Type: Numerical value Response Options: Numerical value of height in metric or imperial system
Datatyp
float
Alias
- UMLS CUI [1]
- C0005890
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical/Admin Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0005890
- UMLS CUI [1,2]
- C1519795
Beskrivning
Supporting Definition: BMI = kg/m2 or BMI = 0.45x weight in pounds / (0.025x height in inches)2 Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinical/Admin Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1305855
- UMLS CUI [1,2]
- C0683312
Beskrivning
Supporting Definition: Average minutes per week of moderate intensity physical activity performed by patient Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1513375
- UMLS CUI [1,2]
- C0556975
Beskrivning
Health status measured at annually
Alias
- UMLS CUI-1
- C0018759
- UMLS CUI-2
- C0449440
Beskrivning
Supporting Definition: The MoCA assesses several cognitive domains. The test is a one-page 30-point test administered in approximately 10 minutes. The test and administration instructions are available for clinicians online. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer Response Options: Value out of 30
Datatyp
integer
Alias
- UMLS CUI [1]
- C3496286
Beskrivning
Supporting Definition: - Paroxysmal (episode of AF that terminates spontaneously or with intervention in less than seven days) - Persistent (AF that lasts for more than seven days and requires intervention in order for cardioversion to occur) - Long-standing persistent (episodes of AF extending greater than 12 months) - Permanent (AF that will not be cardioverted or has failed cardioversion) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C0332307
Beskrivning
Supporting Definition: - Recent (less than a year) date unknown - Diagnosed at DD/MM/ YYYY - Unknown Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer Response Options: 0 = Recent, data unknown 999 = Unknown Date of diagnosis (DD/MM/YYYY)
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C0872146
Beskrivning
Note: This item does not exist in the original standard set. Please fill in if you know when atrial fibrillation was diagnosed. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer Response Options: Date by DD/MM/YYYY
Datatyp
date
Måttenheter
- DD/MM/YYYY
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C2316983
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C0085826
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C0003280
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMATYPE2 Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C3653316
- UMLS CUI [3]
- C0043031
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMATYPE2 Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2,1]
- C1947931
- UMLS CUI [2,2]
- C0354604
- UMLS CUI [3]
- C2348066
- UMLS CUI [4]
- C1739768
- UMLS CUI [5]
- C1831808
- UMLS CUI [6]
- C2975435
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C0304516
- UMLS CUI [3]
- C0053799
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C0006684
- UMLS CUI [3]
- C0012373
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C0007158
- UMLS CUI [3]
- C0012265
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C0872271
- UMLS CUI [3]
- C0016229
- UMLS CUI [4]
- C0034414
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2]
- C0872245
- UMLS CUI [3]
- C0037707
- UMLS CUI [4]
- C0114771
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0013227
- UMLS CUI [1,3]
- C0004238
- UMLS CUI [2,1]
- C0439064
- UMLS CUI [2,2]
- C0872051
- UMLS CUI [3]
- C0002598
- UMLS CUI [4]
- C0766326
Beskrivning
Inclusion Criteria: If “1 = Yes” to PHARMACOTHERAPY Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0013227
- UMLS CUI [1,4]
- C0004238
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C2702800
Beskrivning
Inclusion Criteria: If “1 = Yes” to PROCEDURETYPE1 Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C2702800
- UMLS CUI [2]
- C3544330
Beskrivning
Inclusion Criteria: If “1 = Yes” to PROCEDURETYPE1 Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C2702800
- UMLS CUI [1,2]
- C0443246
Beskrivning
Inclusion Criteria: If “1 = Yes” to PROCEDURETYPE1 Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C2702800
- UMLS CUI [2]
- C3275044
Beskrivning
Inclusion Criteria: If “1 = Yes” to PROCEDURETYPE1 Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C2702800
- UMLS CUI [2]
- C2702801
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004238
- UMLS CUI [2,1]
- C0547070
- UMLS CUI [2,2]
- C0543467
- UMLS CUI [2,3]
- C0397414
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004238
- UMLS CUI [2,1]
- C0009429
- UMLS CUI [2,2]
- C0547070
- UMLS CUI [2,3]
- C0543467
- UMLS CUI [2,4]
- C0397414
- UMLS CUI [2,5]
- C2702800
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004238
- UMLS CUI [2,1]
- C4523927
- UMLS CUI [2,2]
- C0205091
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004238
- UMLS CUI [2,1]
- C0225860
- UMLS CUI [2,2]
- C0598782
- UMLS CUI [2,3]
- C0023690
- UMLS CUI [2,4]
- C0543467
- UMLS CUI [3,1]
- C0225860
- UMLS CUI [3,2]
- C0598782
- UMLS CUI [3,3]
- C0728940
- UMLS CUI [3,4]
- C0543467
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004238
- UMLS CUI [2]
- C0013778
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004238
- UMLS CUI [2]
- C1963873
Beskrivning
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004238
- UMLS CUI [2]
- C0189842
Beskrivning
Complications of treatment
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C0009566
Similar models
Annual – Clinical Form
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C0184661 (UMLS CUI-2)
C1519795 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
C1519795 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C0556975 (UMLS CUI [1,2])
C0439232 (UMLS CUI-2)
(Comment:en)
C0439232 (UMLS CUI-2)
C0547043 (UMLS CUI-3)
C4321486 (UMLS CUI-4)
C0439232 (UMLS CUI-5)
(Comment:en)
C4321486 (UMLS CUI-2)
C0439232 (UMLS CUI-3)
(Comment:en)
C0449440 (UMLS CUI-2)
C0332307 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C0872146 (UMLS CUI [1,2])
C1511726 (UMLS CUI-2)
C0439673 (UMLS CUI-3)
(Comment:en)
(Comment:en)
C2316983 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0085826 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0003280 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C3653316 (UMLS CUI [2])
C0043031 (UMLS CUI [3])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C1947931 (UMLS CUI [2,1])
C0354604 (UMLS CUI [2,2])
C2348066 (UMLS CUI [3])
C1739768 (UMLS CUI [4])
C1831808 (UMLS CUI [5])
C2975435 (UMLS CUI [6])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0304516 (UMLS CUI [2])
C0053799 (UMLS CUI [3])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0006684 (UMLS CUI [2])
C0012373 (UMLS CUI [3])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0007158 (UMLS CUI [2])
C0012265 (UMLS CUI [3])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0872271 (UMLS CUI [2])
C0016229 (UMLS CUI [3])
C0034414 (UMLS CUI [4])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0872245 (UMLS CUI [2])
C0037707 (UMLS CUI [3])
C0114771 (UMLS CUI [4])
(Comment:en)
(Comment:en)
(Comment:en)
C0013227 (UMLS CUI [1,2])
C0004238 (UMLS CUI [1,3])
C0439064 (UMLS CUI [2,1])
C0872051 (UMLS CUI [2,2])
C0002598 (UMLS CUI [3])
C0766326 (UMLS CUI [4])
(Comment:en)
(Comment:en)
(Comment:en)
C0205394 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,3])
C0004238 (UMLS CUI [1,4])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C3544330 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C0443246 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
(Comment:en)
C3275044 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C2702801 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C0547070 (UMLS CUI [2,1])
C0543467 (UMLS CUI [2,2])
C0397414 (UMLS CUI [2,3])
(Comment:en)
(Comment:en)
(Comment:en)
C0009429 (UMLS CUI [2,1])
C0547070 (UMLS CUI [2,2])
C0543467 (UMLS CUI [2,3])
C0397414 (UMLS CUI [2,4])
C2702800 (UMLS CUI [2,5])
(Comment:en)
(Comment:en)
(Comment:en)
C4523927 (UMLS CUI [2,1])
C0205091 (UMLS CUI [2,2])
(Comment:en)
(Comment:en)
(Comment:en)
C0225860 (UMLS CUI [2,1])
C0598782 (UMLS CUI [2,2])
C0023690 (UMLS CUI [2,3])
C0543467 (UMLS CUI [2,4])
C0225860 (UMLS CUI [3,1])
C0598782 (UMLS CUI [3,2])
C0728940 (UMLS CUI [3,3])
C0543467 (UMLS CUI [3,4])
(Comment:en)
(Comment:en)
(Comment:en)
C0013778 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C1963873 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C0189842 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C0009566 (UMLS CUI-2)
(Comment:en)
(Comment:en)