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ID

40652

Description

ICHOM Atrial Fibrillation data collection Version 1.0.0 Published: 3rd April 2019 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. The following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Atrial Fibrillation Population: An adult (≥ 18 years) diagnosed with atrial fibrillation (including symptomatic patients) Treatment approaches: Management of cardiovascular risk factors and institution of preventive therapy | Pharmacological management| Non-Pharmacological management Excluded populations: Children and Young persons below 18 years Excluded conditions: Patients diagnosed with cardiotoxic acute atrial fibrillation This document contains the Follow-up - Patient-reported Form. It has to be filled in after 6 months and 6-monthly from then on. Collecting Patient-Reported Outcome Measure: PROMIS Global Health. As there is an official distribution site, the questions of this questionnaire will not be included in this version of the standard set. For more information see: https://bit.ly/29aOZu9 Alternatively Optum SF-12, AFEQT, AFSS or WPAI:GH may be used. Montreal Cognitive Assessment Test. For more information see: https://www.mocatest.org/ The Standard set of ICHOM was supported by the BigData@Heart organization. Publication: Seligman WH, Das-Gupta Z, Jobi-Odeneye AO, Arbelo E, Banerjee A, Bollmann A, et al. Development of an international standard set of outcome measures for patients with atrial fibrillation: a report of the International Consortium for Health Outcomes Measurement (ICHOM) atrial fibrillation working group. Eur Heart J. 2020 Jan 29; 10.1093/eurheartj/ehz871 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

  1. 8/21/19 8/21/19 -
  2. 8/26/19 8/26/19 - Sarah Riepenhausen
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

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April 30, 2020

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Creative Commons BY-NC 4.0

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    ICHOM Atrial Fibrillation

    Follow-up - Patient-reported

    Administrative Data
    Description

    Administrative Data

    Alias
    UMLS CUI-1
    C1320722
    Indicate the patient's medical record number
    Description

    This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

    Data type

    text

    Alias
    UMLS CUI [1]
    C1269815
    Time Relative to Baseline
    Description

    This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0439564
    UMLS CUI [1,2]
    C1442488
    Lifestyle interventions measured
    Description

    Lifestyle interventions measured

    Alias
    UMLS CUI-1
    C0023676
    UMLS CUI-2
    C0184661
    Indicate your (the patient’s) category
    Description

    Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C1519386
    UMLS CUI [1,2]
    C0683312
    How many standard alcoholic drinks do you drink per week?
    Description

    Supporting Definition: Standard drink according to WHO is 10 grams of pure alcohol that is: - A can or bottle of beer (375ml or 12 oz at 3.5% alcohol by volume) - A small glass of red wine (100ml or 3.4 oz at 13% alcohol by volume) - A shot of whiskey or other spirit (30ml or 1.0 oz at 40% alcohol by volume) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Single answer

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0560579
    On average, how many days per week do you engage in moderate to strenuous exercise (like a brisk walk, slow biking, general gardening)?
    Description

    Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of days per week

    Data type

    integer

    Measurement units
    • days per week
    Alias
    UMLS CUI [1,1]
    C1513375
    UMLS CUI [1,2]
    C0677547
    UMLS CUI [2,1]
    C1514989
    UMLS CUI [2,2]
    C0677547
    days per week
    On average, how many minutes do you engage in exercise at this level?
    Description

    Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of minutes per week

    Data type

    integer

    Measurement units
    • minutes per week
    Alias
    UMLS CUI [1,1]
    C1513375
    UMLS CUI [1,2]
    C0556975
    UMLS CUI [2,1]
    C1514989
    UMLS CUI [2,2]
    C0556975
    minutes per week
    Complications of treatment
    Description

    Complications of treatment

    Alias
    UMLS CUI-1
    C0087111
    UMLS CUI-2
    C0009566
    Did you experience a medication side effects that resulted in discontinuing your prescribed medication for atrial fibrillation?
    Description

    Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 1 = Dizziness, fainting, lightheadedness or loss of consciousness
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C0012833
    UMLS CUI [3]
    C0039070
    UMLS CUI [4]
    C0220870
    UMLS CUI [5]
    C0041657
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 2 = Erectile dysfunction
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C0242350
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 3 = Hair loss
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C0002170
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 4 = Memory problems, brain fog or poor concentration
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C3843050
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 5 = Mental health issues such as depression or anxiety
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C0003467
    UMLS CUI [3]
    C0011581
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 6 = Muscle or joint pain
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C0231528
    UMLS CUI [3]
    C0003862
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 7 = Shortness of breath
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C0013404
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 8 = Stomach problems such as nausea, vomiting or diarrhea
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C0027497
    UMLS CUI [3]
    C0042963
    UMLS CUI [4]
    C0011991
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 9 = Unexplained bruising or bleeding
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2,1]
    C4288071
    UMLS CUI [2,2]
    C0009938
    UMLS CUI [3,1]
    C4288071
    UMLS CUI [3,2]
    C0019080
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 10 = Unusual weakness or tiredness
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2,1]
    C2700116
    UMLS CUI [2,2]
    C3714552
    UMLS CUI [3,1]
    C2700116
    UMLS CUI [3,2]
    C0848717
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 11 = Weight loss
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0392325
    UMLS CUI [1,2]
    C0332294
    UMLS CUI [1,3]
    C0457454
    UMLS CUI [1,4]
    C0013227
    UMLS CUI [1,5]
    C0004238
    UMLS CUI [2]
    C1262477
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 12 = Other (specify)
    Description

    Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C0392325
    UMLS CUI [1,3]
    C0332294
    UMLS CUI [1,4]
    C0457454
    UMLS CUI [1,5]
    C0013227
    UMLS CUI [1,6]
    C0004238
    Other Side effects, specification
    Description

    Note: This item does not exist in the original standard set. Fill in for specification if MEDSE_12 is ticked. Inclusion Criteria: If MEDSE_12 is ticked Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Free text

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0205394
    UMLS CUI [1,2]
    C0392325
    UMLS CUI [1,3]
    C0332294
    UMLS CUI [1,4]
    C0457454
    UMLS CUI [1,5]
    C0013227
    UMLS CUI [1,6]
    C0004238
    UMLS CUI [1,7]
    C2348235
    Patient-Reported Outcomes
    Description

    Patient-Reported Outcomes

    Alias
    UMLS CUI-1
    C2987124
    PROMIS Global Health, total score
    Description

    As there is an official distribution site for the questionnaire, only the total score is included in this version of the standard set. In the original standard set there are 10 questions. The OID's are: PROMIS-10_Q01 to PROMIS-10_Q10 Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C3836333
    UMLS CUI [1,2]
    C2964552

    Similar models

    Follow-up - Patient-reported

    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Administrative Data
    C1320722 (UMLS CUI-1)
    Patient ID
    Item
    Indicate the patient's medical record number
    text
    C1269815 (UMLS CUI [1])
    Time Relative to Baseline
    Item
    Time Relative to Baseline
    text
    C0439564 (UMLS CUI [1,1])
    C1442488 (UMLS CUI [1,2])
    Item Group
    Lifestyle interventions measured
    C0023676 (UMLS CUI-1)
    C0184661 (UMLS CUI-2)
    Item
    Indicate your (the patient’s) category
    integer
    C1519386 (UMLS CUI [1,1])
    C0683312 (UMLS CUI [1,2])
    Code List
    Indicate your (the patient’s) category
    CL Item
    Never (0)
    C0425293 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Former (1)
    C0337671 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Current (2)
    C3241966 (UMLS CUI-1)
    (Comment:en)
    Item
    How many standard alcoholic drinks do you drink per week?
    integer
    C0560579 (UMLS CUI [1])
    Code List
    How many standard alcoholic drinks do you drink per week?
    CL Item
    None (0)
    C0549184 (UMLS CUI-1)
    (Comment:en)
    CL Item
    1-6 (1)
    C0205447 (UMLS CUI-1)
    C0547043 (UMLS CUI-2)
    C0205452 (UMLS CUI-3)
    (Comment:en)
    CL Item
    7-14 (2)
    C0205453 (UMLS CUI-1)
    C0547043 (UMLS CUI-2)
    C3715152 (UMLS CUI-3)
    (Comment:en)
    CL Item
    >14 (3)
    C0205172 (UMLS CUI-1)
    C3715152 (UMLS CUI-2)
    (Comment:en)
    The Physical Activity Q1
    Item
    On average, how many days per week do you engage in moderate to strenuous exercise (like a brisk walk, slow biking, general gardening)?
    integer
    C1513375 (UMLS CUI [1,1])
    C0677547 (UMLS CUI [1,2])
    C1514989 (UMLS CUI [2,1])
    C0677547 (UMLS CUI [2,2])
    The Physical Activity Q2
    Item
    On average, how many minutes do you engage in exercise at this level?
    integer
    C1513375 (UMLS CUI [1,1])
    C0556975 (UMLS CUI [1,2])
    C1514989 (UMLS CUI [2,1])
    C0556975 (UMLS CUI [2,2])
    Item Group
    Complications of treatment
    C0087111 (UMLS CUI-1)
    C0009566 (UMLS CUI-2)
    Item
    Did you experience a medication side effects that resulted in discontinuing your prescribed medication for atrial fibrillation?
    integer
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    Code List
    Did you experience a medication side effects that resulted in discontinuing your prescribed medication for atrial fibrillation?
    CL Item
    No (0)
    C1298908 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Yes (1)
    C1705108 (UMLS CUI-1)
    (Comment:en)
    Side effects resulting in discontinuation of AF medication: Dizziness, fainting, lightheadedness or loss of consciousness
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 1 = Dizziness, fainting, lightheadedness or loss of consciousness
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C0012833 (UMLS CUI [2])
    C0039070 (UMLS CUI [3])
    C0220870 (UMLS CUI [4])
    C0041657 (UMLS CUI [5])
    Side effects resulting in discontinuation of AF medication: Erectile dysfunction
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 2 = Erectile dysfunction
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C0242350 (UMLS CUI [2])
    Side effects resulting in discontinuation of AF medication: Hair loss
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 3 = Hair loss
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C0002170 (UMLS CUI [2])
    Side effects resulting in discontinuation of AF medication: Memory problems, brain fog or poor concentration
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 4 = Memory problems, brain fog or poor concentration
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C3843050 (UMLS CUI [2])
    Side effects resulting in discontinuation of AF medication: depression or anxiety
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 5 = Mental health issues such as depression or anxiety
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C0003467 (UMLS CUI [2])
    C0011581 (UMLS CUI [3])
    Side effects resulting in discontinuation of AF medication: Muscle or joint pain
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 6 = Muscle or joint pain
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C0231528 (UMLS CUI [2])
    C0003862 (UMLS CUI [3])
    Side effects resulting in discontinuation of AF medication: Shortness of breath
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 7 = Shortness of breath
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C0013404 (UMLS CUI [2])
    Side effects resulting in discontinuation of AF medication: nausea, vomiting or diarrhea
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 8 = Stomach problems such as nausea, vomiting or diarrhea
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C0027497 (UMLS CUI [2])
    C0042963 (UMLS CUI [3])
    C0011991 (UMLS CUI [4])
    Side effects resulting in discontinuation of AF medication: Unexplained bruising or bleeding
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 9 = Unexplained bruising or bleeding
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C4288071 (UMLS CUI [2,1])
    C0009938 (UMLS CUI [2,2])
    C4288071 (UMLS CUI [3,1])
    C0019080 (UMLS CUI [3,2])
    Side effects resulting in discontinuation of AF medication: Unusual weakness or tiredness
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 10 = Unusual weakness or tiredness
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C2700116 (UMLS CUI [2,1])
    C3714552 (UMLS CUI [2,2])
    C2700116 (UMLS CUI [3,1])
    C0848717 (UMLS CUI [3,2])
    Side effects resulting in discontinuation of AF medication: Weight loss
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 11 = Weight loss
    boolean
    C0392325 (UMLS CUI [1,1])
    C0332294 (UMLS CUI [1,2])
    C0457454 (UMLS CUI [1,3])
    C0013227 (UMLS CUI [1,4])
    C0004238 (UMLS CUI [1,5])
    C1262477 (UMLS CUI [2])
    Side effects resulting in discontinuation of AF medication: Other
    Item
    Which side effects caused discontinuation of your prescribed medication for atrial fibrillation. 12 = Other (specify)
    boolean
    C0205394 (UMLS CUI [1,1])
    C0392325 (UMLS CUI [1,2])
    C0332294 (UMLS CUI [1,3])
    C0457454 (UMLS CUI [1,4])
    C0013227 (UMLS CUI [1,5])
    C0004238 (UMLS CUI [1,6])
    Other Side effects, specification
    Item
    Other Side effects, specification
    text
    C0205394 (UMLS CUI [1,1])
    C0392325 (UMLS CUI [1,2])
    C0332294 (UMLS CUI [1,3])
    C0457454 (UMLS CUI [1,4])
    C0013227 (UMLS CUI [1,5])
    C0004238 (UMLS CUI [1,6])
    C2348235 (UMLS CUI [1,7])
    Item Group
    Patient-Reported Outcomes
    C2987124 (UMLS CUI-1)
    PROMIS Global Health, total score
    Item
    PROMIS Global Health, total score
    integer
    C3836333 (UMLS CUI [1,1])
    C2964552 (UMLS CUI [1,2])

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