ID
40642
Descrizione
ICHOM Cleft Lip and Palate data collection Version 3.0.6 Revised: March 20th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Cleft Lip and Palate, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Cleft Lip | Cleft Palate | Cleft Lip and Alveolus | Cleft Lip and Palate | Robin Sequence | 22q11 | CL&P Associated with Other Craniofacial Abnormalities | CL&P Associated with Other Congenital Abnormalities Treatment approaches: Audiology | Otology | Speech/Communication | Feeding/Nutrition | Plastic Surgery | Oral & Maxillofacial Surgery | Dentistry | Orthodontics | Pediatrics | Nursing | Genetics | Social Work | Psychology/Psychiatry This document contains the Post-Operative - Clinical Form. It has to be filled in after surgical intervention. Clinician reported complications measured within 30 days post-op. Collecting Patient-Reported Outcome Measure: CLEFT-Q. As there is no permission for publication of this questionnaire on this portal, only the total score will be included in this version of the standard set. Nasal Obstruction NOSE Scale-Patient . The study for development and validation of the NOSE Scale was funded by the AAO-HNS/F. If others wish to use the tool, there is no cost, but the study should be referenced: Stewart MG, Witsell DL, Smith TL, Weaver EM, Yueh B, Hannley MT. Development and validation of the Nasal Obstruction Symptom Evaluation (NOSE) scale. Otolaryngol Head Neck Surg 2004;130:157-63. COHIP Oral Symptoms Scale-Patient. The COHIP is free for all health care organizations, and a license is not needed according to ICHOM. Broder HL, McGrath C, Cisneros GJ. Questionnaire development: Face validity and item impact testing of the child oral health impact profile Community Dent Oral Epidemiol 2007; 35 Suppl 1:8-19. Intelligibility in Context Scale (ICS)-Parent. The ICS is free for all health care organizations, and a license is not needed (according to ICHOM). McLeod, S., Harrison, L. J., & McCormack, J. (2012). Intelligibility in Context Scale. Bathurst, NSW, Australia: Charles Sturt University. Available at http://www.csu.edu.au/research/multilingual-speech/ics under CC 3.0 by-nc-nd. PCC-Clinician. The PCC is free for all health care organizations, and a license is not needed. The Pittsburgh Fistula Classification System: A Standardized Scheme for the Description of Palatal Fistulas. Smith, D. M., Vecchione, L., Jiang, S., Ford, M., Deleyiannis, F. W. B., Ann Haralam, M., … Losee, J. E. (2007). The Cleft Palate-Craniofacial Journal, 44(6), 590–594. Reference: Allori, A. C., Kelley, T., Meara, J. G., Albert, A., Bonanthaya, K., Chapman, K., … Wong, K. W. (2017). A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care. The Cleft Palate-Craniofacial Journal, 54(5), 540–554 The Standard set of ICHOM was supported by the Boston Children’s Hospital, The Children’s Hospital of Philadelphia. Texas Children’s Hospital and the Great Ormond Street Hospital. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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versioni (5)
- 07/08/19 07/08/19 -
- 12/08/19 12/08/19 - Sarah Riepenhausen
- 30/04/20 30/04/20 - Sarah Riepenhausen
- 30/04/20 30/04/20 - Sarah Riepenhausen
- 18/06/21 18/06/21 -
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ICHOM
Caricato su
30 aprile 2020
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Creative Commons BY-NC 4.0
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ICHOM Cleft Lip and Palate
Post-Operative - Clinical Form
- StudyEvent: ODM
Descrizione
Burden of treatment and complications
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C0009566
Descrizione
INCLUSION CRITERIA: All patients TIMING: Time of operation REPORTING SOURCE: Clinical TYPE: Free text
Tipo di dati
text
Alias
- UMLS CUI [1]
- C0543467
Descrizione
SUPPORTING DEFINITION: - Bleeding requiring return to OR: bleeding requiring operative re-exploration to establish hemostasis; or a hematoma of sufficient size to require evacuation and washout in the operating room INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C0019080
- UMLS CUI [2,2]
- C0332156
- UMLS CUI [2,3]
- C0029064
Descrizione
SUPPORTING DEFINITION: - Bleeding requiring transfusion: bleeding sufficient to cause hemodynamic stress or appreciable drop in Hgb/Hct, requiring transfusion of blood for treatment INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C0019080
- UMLS CUI [2,2]
- C0005841
- UMLS CUI [2,3]
- C1514873
Descrizione
SUPPORTING DEFINITION: - Infection requiring return to OR: cellulitis, abscess, or fasciitis requiring incision and drainage and/or irrigation and debridement; or hardware infection requiring removal or exchange; either case performed in the OR INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C3714514
- UMLS CUI [2,2]
- C0332156
- UMLS CUI [2,3]
- C0029064
Descrizione
SUPPORTING DEFINITION: - Infection or exposure of graft material requiring return to OR for removal or replacement: exposure of any autologous graft (e.g., cartilage or bone), cadaveric allograft, or other implanted biologic material. Treatment requires return to the OR for removal and/or replacement of graft INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C0332157
- UMLS CUI [2,2]
- C0181074
- UMLS CUI [2,3]
- C0332156
- UMLS CUI [2,4]
- C0029064
- UMLS CUI [3,1]
- C3714514
- UMLS CUI [3,2]
- C0181074
- UMLS CUI [3,3]
- C0332156
- UMLS CUI [3,4]
- C0029064
Descrizione
SUPPORTING DEFINITION: - Wound: complete dehiscence: wound-healing problem affecting the entire wound, such as abruption of the suture line due to postoperative trauma. Requires surgical repair. INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C0259768
- UMLS CUI [2,2]
- C0205197
Descrizione
SUPPORTING DEFINITION: - Wound: palatal dehiscence requiring return to OR: necrosis and loss of the mucoperiosteal flaps during palatoplasty or the musculomucosal flaps during pharyngoplasty or sphincteroplasty INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C0259768
- UMLS CUI [2,2]
- C0700374
- UMLS CUI [2,3]
- C0332156
- UMLS CUI [2,4]
- C0029064
Descrizione
SUPPORTING DEFINITION: - Wound: oronasal fistula: permanent (mucosalized) connection between the oropharynx and nasopharynx following palatal repair. INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2]
- C1299894
Descrizione
SUPPORTING DEFINITION: - Palatal flap necrosis: ischemic injury to one or both mucoperiosteal flaps following palatoplasty that result in partial or complete necrosis. INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C0700374
- UMLS CUI [2,2]
- C4075512
Descrizione
SUPPORTING DEFINITION: - Respiratory distress: requires mechanical ventilation (major): labored breathing, tachypnea, hypopnea/apnea, or hypoxia that requires CPAP, BiPAP, or mechanical ventilation INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";""
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C0241311
- UMLS CUI [1,2]
- C0009566
- UMLS CUI [2,1]
- C0476273
- UMLS CUI [2,2]
- C1514873
- UMLS CUI [2,3]
- C0199470
Descrizione
INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";"" RESPONSE OPTION: Characterization of oronasal fistula via Pittsburgh scale
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C1299894
- UMLS CUI [1,2]
- C0008902
- UMLS CUI [2]
- C4551488
Descrizione
INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";"" RESPONSE OPTION: Characterization of oronasal fistula via Pittsburgh scale
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C1299894
- UMLS CUI [1,2]
- C0008902
- UMLS CUI [2]
- C0030219
Descrizione
INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";"" RESPONSE OPTION: Characterization of oronasal fistula via Pittsburgh scale
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C1299894
- UMLS CUI [1,2]
- C0008902
- UMLS CUI [2]
- C0447423
Descrizione
INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";"" RESPONSE OPTION: Characterization of oronasal fistula via Pittsburgh scale
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C1299894
- UMLS CUI [1,2]
- C0008902
- UMLS CUI [2]
- C0447423
Descrizione
INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";"" RESPONSE OPTION: Characterization of oronasal fistula via Pittsburgh scale
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C1299894
- UMLS CUI [1,2]
- C0008902
- UMLS CUI [2,1]
- C126854
- UMLS CUI [2,2]
- C0205144
- UMLS CUI [2,3]
- C1519217
Descrizione
INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";"" RESPONSE OPTION: Characterization of oronasal fistula via Pittsburgh scale
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C1299894
- UMLS CUI [1,2]
- C0008902
- UMLS CUI [2,1]
- C2349948
- UMLS CUI [2,2]
- C0447411
Descrizione
INCLUSION CRITERIA: All patients TIMING: Post-operatively REPORTING SOURCE: Clinical TYPE: Multiple answer, Separate multiple entries with "";"" RESPONSE OPTION: Characterization of oronasal fistula via Pittsburgh scale
Tipo di dati
boolean
Alias
- UMLS CUI [1,1]
- C1299894
- UMLS CUI [1,2]
- C0008902
- UMLS CUI [2,1]
- C0023759
- UMLS CUI [2,2]
- C0447411
Similar models
Post-Operative - Clinical Form
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C0009566 (UMLS CUI-2)
C0009566 (UMLS CUI [1,2])
C0019080 (UMLS CUI [2,1])
C0332156 (UMLS CUI [2,2])
C0029064 (UMLS CUI [2,3])
C0009566 (UMLS CUI [1,2])
C0019080 (UMLS CUI [2,1])
C0005841 (UMLS CUI [2,2])
C1514873 (UMLS CUI [2,3])
C0009566 (UMLS CUI [1,2])
C3714514 (UMLS CUI [2,1])
C0332156 (UMLS CUI [2,2])
C0029064 (UMLS CUI [2,3])
C0009566 (UMLS CUI [1,2])
C0332157 (UMLS CUI [2,1])
C0181074 (UMLS CUI [2,2])
C0332156 (UMLS CUI [2,3])
C0029064 (UMLS CUI [2,4])
C3714514 (UMLS CUI [3,1])
C0181074 (UMLS CUI [3,2])
C0332156 (UMLS CUI [3,3])
C0029064 (UMLS CUI [3,4])
C0009566 (UMLS CUI [1,2])
C0259768 (UMLS CUI [2,1])
C0205197 (UMLS CUI [2,2])
C0009566 (UMLS CUI [1,2])
C0259768 (UMLS CUI [2,1])
C0700374 (UMLS CUI [2,2])
C0332156 (UMLS CUI [2,3])
C0029064 (UMLS CUI [2,4])
C0009566 (UMLS CUI [1,2])
C1299894 (UMLS CUI [2])
C0009566 (UMLS CUI [1,2])
C0700374 (UMLS CUI [2,1])
C4075512 (UMLS CUI [2,2])
C0009566 (UMLS CUI [1,2])
C0476273 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
C0199470 (UMLS CUI [2,3])
C0008902 (UMLS CUI [1,2])
C4551488 (UMLS CUI [2])
C0008902 (UMLS CUI [1,2])
C0030219 (UMLS CUI [2])
C0008902 (UMLS CUI [1,2])
C0447423 (UMLS CUI [2])
C0008902 (UMLS CUI [1,2])
C0447423 (UMLS CUI [2])
C0008902 (UMLS CUI [1,2])
C126854 (UMLS CUI [2,1])
C0205144 (UMLS CUI [2,2])
C1519217 (UMLS CUI [2,3])
C0008902 (UMLS CUI [1,2])
C2349948 (UMLS CUI [2,1])
C0447411 (UMLS CUI [2,2])
C0008902 (UMLS CUI [1,2])
C0023759 (UMLS CUI [2,1])
C0447411 (UMLS CUI [2,2])