ID

40636

Description

ICHOM Atrial Fibrillation data collection Version 1.0.0 Published: 3rd April 2019 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. The following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Atrial Fibrillation Population: An adult (≥ 18 years) diagnosed with atrial fibrillation (including symptomatic patients) Treatment approaches: Management of cardiovascular risk factors and institution of preventive therapy | Pharmacological management| Non-Pharmacological management Excluded populations: Children and Young persons below 18 years Excluded conditions: Patients diagnosed with cardiotoxic acute atrial fibrillation This document contains the 6-month - Clinical/Provider Form. It has to be filled in at the 6 month timepoints between the annually form. Collecting Patient-Reported Outcome Measure: PROMIS Global Health and Cognitive Function. As there is an official distribution site, the questions of this questionnaire will not be included in this version of the standard set. For more information see: https://bit.ly/29aOZu9 Alternatively Optum SF-12, AFEQT, AFSS or WPAI:GH may be used. The Standard set of ICHOM was supported by the BigData@Heart organization. Publication: Seligman WH, Das-Gupta Z, Jobi-Odeneye AO, Arbelo E, Banerjee A, Bollmann A, et al. Development of an international standard set of outcome measures for patients with atrial fibrillation: a report of the International Consortium for Health Outcomes Measurement (ICHOM) atrial fibrillation working group. Eur Heart J. 2020 Jan 29; 10.1093/eurheartj/ehz871 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

Versions (5)
  1. 8/7/19 8/7/19 -
  2. 8/12/19 8/12/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
  4. 4/30/20 4/30/20 - Sarah Riepenhausen
  5. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Atrial Fibrillation

English

Follow-up - Administrative Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Demographic factors
Description

Demographic factors

Alias
UMLS CUI-1
C1704791
Geographic location where the patient resides, specified by country and country specific postal code.
Description

INCLUSION CRITERIA: All patients TIMING: Baseline and ongoing REPORTING SOURCE: Administrative data TYPE: Alphanumeric value

Data type

text

Alias
UMLS CUI [1]
C0237096
Treatment
Description

Treatment

Alias
UMLS CUI-1
C0087111
Indicate the age of transfer into your institution
Description

INCLUSION CRITERIA: All patients TIMING: Ongoing REPORTING SOURCE: Administrative data TYPE: Numerical value RESPONSE OPTIONS: Numerical value of age in years

Data type

integer

Measurement units
  • years
Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0439786
UMLS CUI [1,3]
C0001779
years
Indicate the age of transfer out of your institution
Description

INCLUSION CRITERIA: All patients TIMING: Ongoing REPORTING SOURCE: Administrative data TYPE: Numerical value RESPONSE OPTIONS: Numerical value of age in years

Data type

integer

Measurement units
  • years
Alias
UMLS CUI [1,1]
C0030704
UMLS CUI [1,2]
C0439787
UMLS CUI [1,3]
C0001779
years
Other
Description

Other

Alias
UMLS CUI-1
C0205394
Indicate the patient’s insurance status
Description

INCLUSION CRITERIA: All patients TIMING: Baseline and ongoing REPORTING SOURCE: Administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1548070
Specify the distance in km from treatment team
Description

SUPPORTING DEFINITION: Calculated from residence and hospital location INCLUSION CRITERIA: All patients TIMING: Baseline and ongoing REPORTING SOURCE: Administrative data TYPE: Numerical value RESPONSE OPTIONS: Numerical value of distance in km

Data type

integer

Measurement units
  • km
Alias
UMLS CUI [1,1]
C0012751
UMLS CUI [1,2]
C0019994
UMLS CUI [1,3]
C0237096
km
Degree of health
Description

Degree of health

Alias
UMLS CUI-1
C0018759
Indicate the number of interventions the patient underwent requiring anesthesia (Palate)
Description

INCLUSION CRITERIA: Patients with cleft lip and palate, patients with cleft palate, patients with cleft lip and alveolus, patients with cleft lip TIMING: 22 years REPORTING SOURCE: Administrative data TYPE: Numerical RESPONSE OPTIONS: Numerical value of interventions for palate

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0002903
UMLS CUI [1,3]
C0700374
UMLS CUI [1,4]
C0449788
Indicate the number of interventions the patient underwent requiring anesthesia (Lip/Nose)
Description

INCLUSION CRITERIA: Patients with cleft lip and palate, patients with cleft palate, patients with cleft lip and alveolus, patients with cleft lip TIMING: 22 years REPORTING SOURCE: Administrative data TYPE: Numerical RESPONSE OPTIONS: Numerical value of interventions for palate

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0002903
UMLS CUI [1,3]
C0023759
UMLS CUI [1,4]
C0028429
UMLS CUI [1,5]
C0449788
Indicate the number of interventions the patient underwent requiring anesthesia (Alveolus)
Description

INCLUSION CRITERIA: Patients with cleft lip and palate, patients with cleft palate, patients with cleft lip and alveolus, patients with cleft lip TIMING: 22 years REPORTING SOURCE: Administrative data TYPE: Numerical RESPONSE OPTIONS: Numerical value of interventions for palate

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0002903
UMLS CUI [1,3]
C0227130
UMLS CUI [1,4]
C0449788
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Similar models

Follow-up - Administrative Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Demographic factors
C1704791 (UMLS CUI-1)
Residence
Item
Geographic location where the patient resides, specified by country and country specific postal code.
text
C0237096 (UMLS CUI [1])
Item Group
Treatment
C0087111 (UMLS CUI-1)
Age of transfer into your institution
Item
Indicate the age of transfer into your institution
integer
C0030704 (UMLS CUI [1,1])
C0439786 (UMLS CUI [1,2])
C0001779 (UMLS CUI [1,3])
Age of transfer out of your institution
Item
Indicate the age of transfer out of your institution
integer
C0030704 (UMLS CUI [1,1])
C0439787 (UMLS CUI [1,2])
C0001779 (UMLS CUI [1,3])
Item Group
Other
C0205394 (UMLS CUI-1)
Item
Indicate the patient’s insurance status
integer
C1548070 (UMLS CUI [1])
Lost to follow-up (perioperative)
Code List
Indicate the patient’s insurance status
CL Item
Uninsured (0)
C0087134 (UMLS CUI-1)
(Comment:en)
CL Item
Private insurance (1)
C3845555 (UMLS CUI-1)
(Comment:en)
CL Item
Governmental insurance (2)
C0021682 (UMLS CUI-1)
(Comment:en)
Distance from treatment team
Item
Specify the distance in km from treatment team
integer
C0012751 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0237096 (UMLS CUI [1,3])
Item Group
Degree of health
C0018759 (UMLS CUI-1)
Number of interventions requiring anesthesia: Palate
Item
Indicate the number of interventions the patient underwent requiring anesthesia (Palate)
integer
C0184661 (UMLS CUI [1,1])
C0002903 (UMLS CUI [1,2])
C0700374 (UMLS CUI [1,3])
C0449788 (UMLS CUI [1,4])
Number of interventions requiring anesthesia: Lip and nose
Item
Indicate the number of interventions the patient underwent requiring anesthesia (Lip/Nose)
integer
C0184661 (UMLS CUI [1,1])
C0002903 (UMLS CUI [1,2])
C0023759 (UMLS CUI [1,3])
C0028429 (UMLS CUI [1,4])
C0449788 (UMLS CUI [1,5])
Number of interventions requiring anesthesia: Alveolus
Item
Indicate the number of interventions the patient underwent requiring anesthesia (Alveolus)
integer
C0184661 (UMLS CUI [1,1])
C0002903 (UMLS CUI [1,2])
C0227130 (UMLS CUI [1,3])
C0449788 (UMLS CUI [1,4])
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