ID
40624
Description
ICHOM Macular Degeneration data collection Version 3.0.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Macular Degeneration, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Neovascular Macular Degeneration Neovascular Age Related Macular Degeneration | Polypoidal Choroidal Vasculopathy | Myopic Neovascular Macular Degeneration | Other Forms of Neovascular Macular Degeneration (includes Post-Traumatic, Inflammatory, Idiopathic, Macular Telangiectasia Type 2) Non-Neovascular Age Related Macular Degeneration Treatment approaches: Intravitreal anti-VEGF treatment | Other intravitreal treatment | Photodynamic therapy | Thermal laser photocoagulation | Retinal radiation therapy | Transpupillary thermotherapy | Retinal surgical treatment This document contains the Annually - Clinical Form. It has to be filled in annually from baseline. Collecting Patient-Reported Outcome Measure: Brief Impact of Vision Impairment Questionnaire (Brief IVI): The Brief IVI includes costs for commercial use, and requires an agreement license. Therefore this questionnaire is not included in this Version of the standard set. Reference: Rodrigues IA, Sprinkhuizen SM, Barthelmes D, et al. Defining a Minimum Set of Standardized Patient-centered Outcome Measures for Macular Degeneration. American Journal of Opthalmology. 2016;168:1–12. doi: 10.1016/j.ajo.2016.04.012 The Standard set of ICHOM was supported by the WillsEye Hospital (America’s First World’s Best), Retina Suisse, St. Erik Eye Hospital, Macular Society, The Retina Society, Save sight Institute and The Macula Foundation (Preserving and Restoring Vision). For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Versions (2)
- 7/24/19 7/24/19 -
- 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder
ICHOM
Uploaded on
April 30, 2020
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License
Creative Commons BY-NC 4.0
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ICHOM Macular Degeneration
Annually - Clinical Form
- StudyEvent: ODM
Description
Associated clinical history
Alias
- UMLS CUI-1
- C0262926
Description
SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1299003
- UMLS CUI [1,3]
- C0154833
- UMLS CUI [2]
- C0011884
- UMLS CUI [3]
- C0035328
- UMLS CUI [4]
- C0035302
Description
SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1299003
- UMLS CUI [1,3]
- C0730362
- UMLS CUI [1,4]
- C1518912
- UMLS CUI [2]
- C0730285
- UMLS CUI [3]
- C0339543
- UMLS CUI [4]
- C0024441
- UMLS CUI [5]
- C0026850
Description
SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1299003
- UMLS CUI [2]
- C0017601
- UMLS CUI [3,1]
- C3887709
- UMLS CUI [3,2]
- C0205394
Description
SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1299003
- UMLS CUI [2]
- C0002418
Description
SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1299003
- UMLS CUI [2]
- C0086543
- UMLS CUI [3]
- C0010038
Description
SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1299003
- UMLS CUI [1,3]
- C0205394
Similar models
Annually - Clinical Form
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C1299003 (UMLS CUI [1,2])
C0154833 (UMLS CUI [1,3])
C0011884 (UMLS CUI [2])
C0035328 (UMLS CUI [3])
C0035302 (UMLS CUI [4])
C1299003 (UMLS CUI [1,2])
C0730362 (UMLS CUI [1,3])
C1518912 (UMLS CUI [1,4])
C0730285 (UMLS CUI [2])
C0339543 (UMLS CUI [3])
C0024441 (UMLS CUI [4])
C0026850 (UMLS CUI [5])
C1299003 (UMLS CUI [1,2])
C0017601 (UMLS CUI [2])
C3887709 (UMLS CUI [3,1])
C0205394 (UMLS CUI [3,2])
C1299003 (UMLS CUI [1,2])
C0002418 (UMLS CUI [2])
C1299003 (UMLS CUI [1,2])
C0086543 (UMLS CUI [2])
C0010038 (UMLS CUI [3])
C1299003 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])