ID
40618
Descrição
ICHOM Macular Degeneration data collection Version 3.0.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Macular Degeneration, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Neovascular Macular Degeneration Neovascular Age Related Macular Degeneration | Polypoidal Choroidal Vasculopathy | Myopic Neovascular Macular Degeneration | Other Forms of Neovascular Macular Degeneration (includes Post-Traumatic, Inflammatory, Idiopathic, Macular Telangiectasia Type 2) Non-Neovascular Age Related Macular Degeneration Treatment approaches: Intravitreal anti-VEGF treatment | Other intravitreal treatment | Photodynamic therapy | Thermal laser photocoagulation | Retinal radiation therapy | Transpupillary thermotherapy | Retinal surgical treatment This document contains the Baseline - Patient-reported form. It has to be filled in at Patient's entrance into outcome tracking system for Macular Degeneration. Collecting Patient-Reported Outcome Measure: Brief Impact of Vision Impairment Questionnaire (Brief IVI): The Brief IVI includes costs for commercial use, and requires an agreement license. Therefore this questionnaire is not included in this Version of the standard set. Reference: Rodrigues IA, Sprinkhuizen SM, Barthelmes D, et al. Defining a Minimum Set of Standardized Patient-centered Outcome Measures for Macular Degeneration. American Journal of Opthalmology. 2016;168:1–12. doi: 10.1016/j.ajo.2016.04.012 The Standard set of ICHOM was supported by the WillsEye Hospital (America’s First World’s Best), Retina Suisse, St. Erik Eye Hospital, Macular Society, The Retina Society, Save sight Institute and The Macula Foundation (Preserving and Restoring Vision). For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Versões (3)
- 24/07/2019 24/07/2019 -
- 30/07/2019 30/07/2019 -
- 30/04/2020 30/04/2020 - Sarah Riepenhausen
Titular dos direitos
ICHOM
Transferido a
30 de abril de 2020
DOI
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Licença
Creative Commons BY-NC 4.0
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ICHOM Macular Degeneration
Baseline - Patient-reported
- StudyEvent: ODM
Descrição
Demographic factors
Alias
- UMLS CUI-1
- C1704791
Descrição
Note that regulations on reporting ethnicity may differ per country INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Patient-reported
Tipo de dados
integer
Alias
- UMLS CUI [1]
- C0015031
Descrição
Smoking status (of cigarettes, cigars or tobacco) INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Patient-reported
Tipo de dados
integer
Alias
- UMLS CUI [1]
- C1519386
Descrição
Visual functioning and health related quality of life
Alias
- UMLS CUI-1
- C4279947
- UMLS CUI-2
- C0042792
Descrição
As there is a license for use of this questionnaire, the actual questions are not part of this verison of the standard set. In the original standard set the Brief IVI questionnaire includes 15 questions. The ICHOM OID's are: B_IVI_Q01 to B_IVI_Q15 INCLUSION CRITERIA: All patients TIMING: Baseline, 1 year post initiation of treatment and tracked ongoing annually while under follow-up REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C3665347
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C2964552
Similar models
Baseline - Patient-reported
- StudyEvent: ODM
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C0205430 (UMLS CUI-2)
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C0042792 (UMLS CUI-2)
C0034394 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])