ID
40599
Beschreibung
ICHOM Hypertension in low- and middle-income countries data collection Version 1.0.0 Revised: November 3rd, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. The following condition and treatment approaches (or interventions) are covered by our Standard Set. Condition: Hypertension (ICD-10: I10) Treatment Approaches: Pharmacological and Non-Pharmacological Collecting Patient-Reported Outcome Measures: Survey Used: EuroQol-5D-3L (EQ-5D-3L). As a licence is needed for use of EQ-5D-3L questionnaires, the actual questions are not part of this version of the standard set. For licensing information see: https://euroqol.org/support/how-to-obtain-eq-5d/ This document contains the 6 month review (6-monthly for life) - Patient-reported form. It has to be filled in 6 months after patient's entry into set as well as 6-monthly for life. PROMIS Single Question on erectile Dysfunction. Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Beliefs about Medication Questionnaire (BMQ)-Specific: Copyrighted, permission to use the scale can be obtained from Professor Rob Horne’s research team. The scoring guide can be found in the original validation article: Horne et al. (1999) The beliefs about medicines questionnaire: The development and evaluation of a new method for assessing the cognitive representation of medication. Psychology & Health, 14:1. Hill-Bone Compliance to High Blood Pressure Therapy Scale - South Africa Version: Permission to use the scale can be obtained from Estelle V. Lambert’s research team, The scoring guide can be found in the original validation article: Lambert, E.V. et al. (2006) Cross-Cultural Validation of the Hill-Bone Compliance To High Blood Pressure Therapy Scale in a South African, Primary Healthcare Setting. Ethnicity and Disease, 16. WHO STEPS Instrument. Free for use in clinical practice and a license is not required. http://www.who.int/chp/steps/instrument/en/ International Physical Activity Questionnaire(IPAQ)-Short Form: Publically available, open access, and no permissions are required to use it. https://sites.google.com/site/theipaq/ Alternative Quality of Life Surveys: PROMIS Global-10 Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Veteran’s Rand 12-Item Health Survey (VR-12). Free for all health care organizations, license required and can be requested at: http://bit.ly/2ir84sG. As a license is needed, the actual questions are not part of this version of the standard set. 12-Item Short Form Survey (SF-12). As a license is needed for use of SF-12 questionaires, the actual questions are not part of this version of the standard set. For more information see: http://bit.ly/2AcNLrme This Standard set was supported by the Novartis Foundation. Publication: Zack R, Okunade O, Olson E, et al. Improving Hypertension Outcome Measurement in Low- and Middle-Income Countries. Hypertension. 2019;73:990–997. doi: 10.1161/HYPERTENSIONAHA.118.11916 For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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- 04.06.19 04.06.19 -
- 30.04.20 30.04.20 - Sarah Riepenhausen
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ICHOM
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30. April 2020
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ICHOM Hypertension in low- and middle-income countries
6 month review (6-monthly for life) - Patient-reported
- StudyEvent: ODM
Beschreibung
Burden of care
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C2828008
Beschreibung
Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-reported Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0444454
- UMLS CUI [1,2]
- C0086388
- UMLS CUI [2,1]
- C4717882
- UMLS CUI [2,2]
- C1298908
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2]
- C0549106
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2]
- C0043010
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2,1]
- C1298908
- UMLS CUI [2,2]
- C0040223
- UMLS CUI [3]
- C0043227
- UMLS CUI [4,1]
- C0008059
- UMLS CUI [4,2]
- C0578884
- UMLS CUI [5,1]
- C0205394
- UMLS CUI [5,2]
- C1947933
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2,1]
- C0012751
- UMLS CUI [2,2]
- C1298908
- UMLS CUI [2,3]
- C2003850
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2,1]
- C1288289
- UMLS CUI [2,2]
- C0031831
- UMLS CUI [3,1]
- C1288289
- UMLS CUI [3,2]
- C0019994
- UMLS CUI [4,1]
- C1288289
- UMLS CUI [4,2]
- C0031809
- UMLS CUI [5,1]
- C1288289
- UMLS CUI [5,2]
- C0087111
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2,1]
- C1610166
- UMLS CUI [2,2]
- C0018759
- UMLS CUI [2,3]
- C2986411
- UMLS CUI [2,4]
- C0746919
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2,1]
- C3843613
- UMLS CUI [2,2]
- C0205170
- UMLS CUI [2,3]
- C2348234
Beschreibung
Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0679881
- UMLS CUI [2]
- C3840932
Beschreibung
Supporting Definition: Access to drugs is the ability to access drugs as prescribed by healthcare provider Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-‐reported Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0444454
- UMLS CUI [1,2]
- C0013227
Beschreibung
Inclusion Criteria: If answered 'no' to access to medication ('ACCESMEDS') Timing: Annually Reporting Source: Patient-‐reported Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C4296486
- UMLS CUI [1,2]
- C0444454
- UMLS CUI [1,3]
- C0013227
Beschreibung
Supporting Definition: Pill burden is the number of total daily pills patient takes Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-‐reported Type: Numerical Response Options: Numerical value
Datentyp
float
Alias
- UMLS CUI [1,1]
- C0994475
- UMLS CUI [1,2]
- C2828008
Beschreibung
Health literacy and beliefs
Alias
- UMLS CUI-1
- C2362527
- UMLS CUI-3
- C0004951
Beschreibung
Supporting Definition: Please contact license holder for the questionnaire. If you wish to participate in the ICHOM benchmarking program and have secured a licence to use the tool, ICHOM will provide you with the technical specifications on how to collect the data. Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient‐reported
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0034394
- UMLS CUI [1,2]
- C0004951
- UMLS CUI [1,3]
- C0013227
- UMLS CUI [1,4]
- C2964552
Beschreibung
Supporting Definition: Please contact license holder for the questionnaire. If you wish to participate in the ICHOM benchmarking program and have secured a licence to use the tool, ICHOM will provide you with the technical specifications on how to collect the data. Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-reported
Datentyp
text
Alias
- UMLS CUI [1,1]
- C1947916
- UMLS CUI [1,2]
- C0020538
- UMLS CUI [1,3]
- C0087111
- UMLS CUI [1,4]
- C1321605
Ähnliche Modelle
6 month review (6-monthly for life) - Patient-reported
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C0086388 (UMLS CUI [1,2])
C4717882 (UMLS CUI [2,1])
C1298908 (UMLS CUI [2,2])
(Comment:en)
(Comment:en)
C0549106 (UMLS CUI [2])
C0043010 (UMLS CUI [2])
C1298908 (UMLS CUI [2,1])
C0040223 (UMLS CUI [2,2])
C0043227 (UMLS CUI [3])
C0008059 (UMLS CUI [4,1])
C0578884 (UMLS CUI [4,2])
C0205394 (UMLS CUI [5,1])
C1947933 (UMLS CUI [5,2])
C0012751 (UMLS CUI [2,1])
C1298908 (UMLS CUI [2,2])
C2003850 (UMLS CUI [2,3])
C1288289 (UMLS CUI [2,1])
C0031831 (UMLS CUI [2,2])
C1288289 (UMLS CUI [3,1])
C0019994 (UMLS CUI [3,2])
C1288289 (UMLS CUI [4,1])
C0031809 (UMLS CUI [4,2])
C1288289 (UMLS CUI [5,1])
C0087111 (UMLS CUI [5,2])
C1610166 (UMLS CUI [2,1])
C0018759 (UMLS CUI [2,2])
C2986411 (UMLS CUI [2,3])
C0746919 (UMLS CUI [2,4])
C3843613 (UMLS CUI [2,1])
C0205170 (UMLS CUI [2,2])
C2348234 (UMLS CUI [2,3])
C3840932 (UMLS CUI [2])
C0013227 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
C0444454 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,3])
C0686905 (UMLS CUI-2)
(Comment:en)
(Comment:en)
(Comment:en)
C2828008 (UMLS CUI [1,2])
C0004951 (UMLS CUI-3)
C0004951 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0020538 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C1321605 (UMLS CUI [1,4])