ID

40579

Description

ICHOM Hip and Knee Osteoarthritis Study description: ICHOM Hip and Knee Osteoarthritis data collection Version 2.2.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Hip and Knee Osteoarthritis, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions : All patients seeking treatment for osteoarthritis of the hip or knee, whether surgical or non-surgical Treatment Approaches: Non-Surgical: Lifestyle intervention | Patient education | Physiotherapy | Walking aid or orthosis | Topical and oral medication | Intra-articular injection Surgical: Osteotomy | Joint replacement | Other forms of surgical treatment This document contains the 30 days post procedure or hospital discharge - Clinical and Administrative Data form. It has to be filled in after each: intervention, operation inclusive reoperation, hospitalisation. Collecting Patient-Reported Outcome Measures: Hip Disability and Osteoarthritis Outcome Score - Physical Function Shortform (HOOS-PS). http://www.koos.nu/ Knee Injury and Osteoarthritis Outcome Score - Physical Function Shortform (KOOS-PS). http://www.koos.nu/ Veterans RAND 12 (VR-12) or Short Form 12 Health Survey (SF- 12). As a request for access and an agreement to terms of use are necessary before access, the actual questions of these questionnaires are not part of this version of the standard set. EuroQol-5D descriptive system (EQ- 5D-3L) and visual analogue scale (EQ-VAS). As a license is needed for use of EuroQol questionnaires, the actual questions are not part of this version of the standard set. *For a description of an algorithm to convert between the EQ-5D-3L and SF-12, please see: Le QA. Probabilistic mapping of the health status measure SF-12 responses and EQ-5D using the US-population-based scoring models. Qual Life Res. 2014 Mar; 23(2): 459-66. Please see the above Veterans RAND website for help converting the VR-12 to the SF-12. For this standard set ICHOM was supproted by Hoag Orthopedic Institute, the Connecticut Joint Replacement Institute, and Harvard Pilgrim Health Care and Arthritis Research. Publication: Rolfson O, Wissig S, van Maasakkers L, et al. Defining an International Standard Set of Outcome Measures for Patients With Hip or Knee Osteoarthritis: Consensus of the International Consortium for Health Outcomes Measurement Hip and Knee Osteoarthritis Working Group. Arthritis Care Res (Hoboken). 2016;68(11):1631–1639. doi:10.1002/acr.22868 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

Versions (2)
  1. 5/22/19 5/22/19 -
  2. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Hip and Knee Osteoarthritis

English

Post procedure/hospital discharge - Clinical and Administrative Data

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C2348585
Time relative to Baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Treatment Variables
Description

Treatment Variables

Alias
UMLS CUI-1
C0087111
Indicate the date of surgery
Description

Inclusion criteria: Surgical patients Timing: 30 days post procedure or hospital discharge Data Source: Clinical Administrative data Type: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C2584899
DD/MM/YYYY
Indicate on which joint surgery was performed
Description

Inclusion criteria: Surgical patients Timing: 30 days post procedure or hospital discharge Data Source: Clinical Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0543467
UMLS CUI [1,2]
C0022417
Indicate the type of surgery that was performed
Description

Inclusion criteria: Surgical patients Timing: 30 days post procedure or hospital discharge Data Source: Clinical Administrative data Type: Single answer

Data type

text

Alias
UMLS CUI [1]
C1136201
Surgical outcomes
Description

Surgical outcomes

Alias
UMLS CUI-1
C0543467
UMLS CUI-2
C0086749
Indicate if the patient died in-hospital or within 30 days of procedure (all cause mortality)
Description

Inclusion criteria: Surgical patients Timing: 30 days post procedure or hospital discharge Data Source: Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0011065
UMLS CUI [1,2]
C3489408
UMLS CUI [2,1]
C0011065
UMLS CUI [2,2]
C0543467
Indicate if the patient had an unplanned readmission for any cause to any hospital within 30 days of discharge
Description

Inclusion criteria: Surgical patients Timing: 30 days post procedure or hospital discharge Data Source: Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0030673
Any consecutive open surgery performed on the hip or knee
Description

Supporting definition: Includes both minor and major reoperations: Minor revision: any reoperation with removal, exchange, and/or addition of minor implant part (e.g. head, liner) Major revision: any reoperation with removal, exchange, and/or addition of major implant part (e.g. cup, femoral component, tibial component) Inclusion criteria: Surgical patients Timing: Continuous (Continuous data collection means that any instance of reoperation should be reported. This may be done either by physician report at the time of the reoperation or via abstraction from clinical or administrative data on a yearly basis.) Data Source: Clinical or administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0558347
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Similar models

Post procedure/hospital discharge - Clinical and Administrative Data

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Time relative to Baseline
Item
Time relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Treatment Variables
C0087111 (UMLS CUI-1)
Date of procedure
Item
Indicate the date of surgery
date
C2584899 (UMLS CUI [1])
Item
Indicate on which joint surgery was performed
integer
C0543467 (UMLS CUI [1,1])
C0022417 (UMLS CUI [1,2])
Operative joint
Code List
Indicate on which joint surgery was performed
CL Item
Right hip (1)
C0019552 (UMLS CUI-1)
C0205090 (UMLS CUI-2)
(Comment:en)
CL Item
Left hip (2)
C0019552 (UMLS CUI-1)
C0205091 (UMLS CUI-2)
(Comment:en)
CL Item
Right knee (3)
C0022742 (UMLS CUI-1)
C0205090 (UMLS CUI-2)
(Comment:en)
CL Item
Left knee (4)
C0022742 (UMLS CUI-1)
C0205091 (UMLS CUI-2)
(Comment:en)
Item
Indicate the type of surgery that was performed
text
C1136201 (UMLS CUI [1])
Operative joint
Code List
Indicate the type of surgery that was performed
CL Item
Joint replacement (1)
C0185317 (UMLS CUI-1)
(Comment:en)
CL Item
Osteotomy (2)
C0029468 (UMLS CUI-1)
(Comment:en)
CL Item
Osteosynthesis/fracture surgery (3)
C0016642 (UMLS CUI-1)
(Comment:en)
CL Item
Ligament reconstruction (4)
C0547071 (UMLS CUI-1)
(Comment:en)
CL Item
Other surgical procedure (888)
C0543467 (UMLS CUI-1)
C0205394 (UMLS CUI-2)
(Comment:en)
Item Group
Surgical outcomes
C0543467 (UMLS CUI-1)
C0086749 (UMLS CUI-2)
Item
Indicate if the patient died in-hospital or within 30 days of procedure (all cause mortality)
integer
C0011065 (UMLS CUI [1,1])
C3489408 (UMLS CUI [1,2])
C0011065 (UMLS CUI [2,1])
C0543467 (UMLS CUI [2,2])
Death
Code List
Indicate if the patient died in-hospital or within 30 days of procedure (all cause mortality)
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Indicate if the patient had an unplanned readmission for any cause to any hospital within 30 days of discharge
integer
C0030673 (UMLS CUI [1])
Death
Code List
Indicate if the patient had an unplanned readmission for any cause to any hospital within 30 days of discharge
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Any consecutive open surgery performed on the hip or knee
integer
C0558347 (UMLS CUI [1])
Death
Code List
Any consecutive open surgery performed on the hip or knee
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
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