ID

40566

Beschreibung

CORONARY ARTERY DISEASE DATA COLLECTION Version 2.0.3 Revised: April 5th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Asymptomatic Coronary Artery Disease | Stable Angina | Acute Coronary Syndrome (Includes AMI) Treatment Approaches: Lifestyle Modification | Drug Therapy | Percutaneous Coronary Intervention (PCI) | Coronary Artery Bypass Grafting (CABG) This form contains the patient-reported Outcome questionnaires. They should be assessed at the entry event, 30 days after it and annually for 5 years. A new revascularization procedure or a new diagnosis of ACS constitutes a new index event, and tracking of patient-reported health status should reset from this point, tracking again at +30 days, and then annually for 5 years. Questionnaires used in this Form: Rose Dyspnea Scale: The Rose Dyspnea Scale is free for all health care organizations, and a license is not needed. More information may be found at http://www.ahjonline.com/article/S0002-8703(09)00266-X/abstract Patient Health Questionnaire (PHQ-2): The PHQ-2 is free for all health care organizations, and a license is not needed. Copyright Pfizer, more Information on http://www.phqscreeners.com/ Seattle Angina Questionnaire (SAQ-7): Due to the need for a license for use of the SAQ-7 the actual questions of SAQ-7 will not be part of this version of the standard set. Publication: McNamara RL, Spatz ES, Kelley TA, et al. Standardized Outcome Measurement for Patients With Coronary Artery Disease: Consensus From the International Consortium for Health Outcomes Measurement (ICHOM). J Am Heart Assoc. 2015;4(5):e001767. Published 2015 May 19. doi:10.1161/JAHA.115.001767 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Stichworte

Versionen (2)
  1. 22.11.18 22.11.18 - Sarah Riepenhausen
  2. 30.04.20 30.04.20 - Sarah Riepenhausen
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ICHOM

Hochgeladen am

30. April 2020

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Creative Commons BY-NC 4.0
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ICHOM Coronary Artery Disease

Englisch

Patient-reported Form (Baseline and Follow-up)

1 Formulare  
Administrative Data
Beschreibung

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Beschreibung

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical TYPE: Numerical RESPONSE OPTIONS: According to institution

Datentyp

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
Beschreibung

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Datentyp

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Demographic factors
Beschreibung

Demographic factors

Alias
UMLS CUI-1
C1704791
What is your date of birth?
Beschreibung

INCLUSION CRITERIA: All patients TIMING: At time of diagnosis REPORTING SOURCE: Patient-reported, clinical, or administrative data TYPE: Date by DD/MM/YYYY

Datentyp

date

Maßeinheiten
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C0001779
UMLS CUI [2]
C0421451
DD/MM/YYYY
Please indicate your sex at birth
Beschreibung

INCLUSION CRITERIA: All patients TIMING: At time of diagnosis REPORTING SOURCE: Patient-reported, clinical, or administrative data TYPE: Single answer

Datentyp

integer

Alias
UMLS CUI [1]
C0079399
Patient-Reported Health Status
Beschreibung

Patient-Reported Health Status

Alias
UMLS CUI-1
C0018759
UMLS CUI-2
C2987124
Do you get out of breath in the following situations? When hurrying on ground level or walking up a slight hill
Beschreibung

INCLUSION CRITERIA: All patients TIMING: Baseline 30 days + annually up to 5 years after index event REPORTING SOURCE: Patient-reported TYPE: Single answer

Datentyp

integer

Alias
UMLS CUI [1]
C4288225
When walking with other people your age on level ground
Beschreibung

INCLUSION CRITERIA: All patients TIMING: Baseline 30 days + annually up to 5 years after index event REPORTING SOURCE: Patient-reported TYPE: Single answer

Datentyp

integer

Alias
UMLS CUI [1]
C2183407
When walking your own pace on level ground
Beschreibung

INCLUSION CRITERIA: All patients TIMING: Baseline 30 days + annually up to 5 years after index event REPORTING SOURCE: Patient-reported TYPE: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C2183407
UMLS CUI [1,2]
C3173662
When washing or dressing
Beschreibung

INCLUSION CRITERIA: All patients TIMING: Baseline 30 days + annually up to 5 years after index event REPORTING SOURCE: Patient-reported TYPE: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C0013404
UMLS CUI [1,2]
C3827978
Over the past 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
Beschreibung

INCLUSION CRITERIA: All patients TIMING: Baseline 30 days + annually up to 5 years after index event REPORTING SOURCE: Patient-reported TYPE: Single answer

Datentyp

integer

Alias
UMLS CUI [1]
C2707451
Feeling down, depressed or hopeless
Beschreibung

INCLUSION CRITERIA: All patients TIMING: Baseline 30 days + annually up to 5 years after index event REPORTING SOURCE: Patient-reported TYPE: Single answer

Datentyp

integer

Alias
UMLS CUI [1]
C2707455
SAQ-7 Total Score
Beschreibung

As a license is needed for use of this questionnaire, the 7 actual questions are not included in this version of the standard set. ICHOM IDs are SAQ7_Q01a up to SAQ7_Q05 INCLUSION CRITERIA: All patients TIMING: Baseline, 30 days + annually up to 5 years after index event REPORTING SOURCE: Patient-reported TYPE: Numerical (each question is single answer in original set)

Datentyp

integer

Alias
UMLS CUI [1,1]
C4695252
UMLS CUI [1,2]
C2964552
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Ähnliche Modelle

Patient-reported Form (Baseline and Follow-up)

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Demographic factors
C1704791 (UMLS CUI-1)
Age
Item
What is your date of birth?
date
C0001779 (UMLS CUI [1])
C0421451 (UMLS CUI [2])
Item
Please indicate your sex at birth
integer
C0079399 (UMLS CUI [1])
Sex
Code List
Please indicate your sex at birth
CL Item
Male (1)
C0086582 (UMLS CUI-1)
(Comment:en)
CL Item
Female (2)
C0086287 (UMLS CUI-1)
(Comment:en)
Item Group
Patient-Reported Health Status
C0018759 (UMLS CUI-1)
C2987124 (UMLS CUI-2)
Item
Do you get out of breath in the following situations? When hurrying on ground level or walking up a slight hill
integer
C4288225 (UMLS CUI [1])
Past medical history: Previous AMI
Code List
Do you get out of breath in the following situations? When hurrying on ground level or walking up a slight hill
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
When walking with other people your age on level ground
integer
C2183407 (UMLS CUI [1])
Past medical history: Previous AMI
Code List
When walking with other people your age on level ground
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
When walking your own pace on level ground
integer
C2183407 (UMLS CUI [1,1])
C3173662 (UMLS CUI [1,2])
Past medical history: Previous AMI
Code List
When walking your own pace on level ground
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
When washing or dressing
integer
C0013404 (UMLS CUI [1,1])
C3827978 (UMLS CUI [1,2])
Past medical history: Previous AMI
Code List
When washing or dressing
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Over the past 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
integer
C2707451 (UMLS CUI [1])
Past medical history: Previous AMI
Code List
Over the past 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
CL Item
Not at all (1)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (2)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (3)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (4)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
Feeling down, depressed or hopeless
integer
C2707455 (UMLS CUI [1])
Past medical history: Previous AMI
Code List
Feeling down, depressed or hopeless
CL Item
Not at all (1)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (2)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (3)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (4)
C3845713 (UMLS CUI-1)
(Comment:en)
SAQ-7
Item
SAQ-7 Total Score
integer
C4695252 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
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