ID
40550
Description
INFLAMMATORY ARTHRITIS DATA COLLECTION Version 1.0.0 Revised: April 27 th, 2018 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Rheumatoid Arthritis | Psoriatic Arthritis | Ankylosing Spondylitis | Juvenile Idiopathic Arthritis This ODM-file contains Clinical Variables to be administered at baseline visit and every 6 months if the disease is active or annually if the disease is in remission. The following scores are the ones that are integrated into the standard set. There are alternatives for each category: see questionnaire or data collection guide. PAIN: - Numerical Rating Scale (Adult/Paediatric) FATIGUE - Numerical rating Scale (Adult/Paediatric) ACTIVITY LIMITATION: - HAQ-II* (Adult): copyright FORWARD-The National Data Bank for Rheumatic Diseases, arthritis-research.org ; http://bit.ly/HAQIIIA ; Wolfe F, Michaud K, Pincus T. Development and validation of the health assessment questionnaire II: a revised version of the health assessment questionnaire. Arthritis & Rheumatism. 2004;50(10):3296-305. OVERALL EMOTIONAL AND PHYSICAL HEALTH IMPACT - Numerical rating scale (Adult/Paediatric) WORK/SCHOOL/HOUSEWORK ABILITY AND PRODUCTIVITY: - WPAI (Adult): reillyassociates.net/WPAI_General.html, they ask to inform them about publication or presentation of WPAI-data ICHOM was supported for the Inflammatory Arthritis Standard Set by Santeon, Arthritis Research UK, TiH Transparency in Healthcare, Maasstad Ziekenhuis, Karolinska Universitetssjukhuset, and Sheba Academic Medical Center Hospital. Publication: Oude Voshaar MAH, Das Gupta Z, Bijlsma JWJ, et al. International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group. Arthritis Care Res (Hoboken). 2019;71(12):1556‐1565. doi:10.1002/acr.23799 For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Versions (2)
- 9/21/18 9/21/18 - Sarah Riepenhausen
- 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder
ICHOM
Uploaded on
April 30, 2020
DOI
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License
Creative Commons BY-NC 4.0
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ICHOM Inflammatory Arthritis
Baseline and 6-monthly/annually Clinical Form
- StudyEvent: ODM
Description
Treatment-Specific
Alias
- UMLS CUI-1
- C0087111
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly if disease is active, baseline and annually if in remission REPORTING SOURCE: Clinical TYPE: Free Text
Data type
text
Alias
- UMLS CUI [1,1]
- C4065474
- UMLS CUI [1,2]
- C1290884
Description
INCLUSION CRITERIA: All patients TIMING: Baseline and 6-monthly if disease is active, baseline and annually if in remission REPORTING SOURCE: Clinical TYPE: Free Text
Data type
text
Alias
- UMLS CUI [1,1]
- C4065474
- UMLS CUI [1,2]
- C1290884
- UMLS CUI [1,3]
- C1274040
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