ID
40538
Description
PARKINSON‘S DISEASE DATA COLLECTION Version 2.2.1 Revised April 10th, 2017 www.ichom.org otice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions Covered: Idiopathic Parkinson’s Disease Treatment Approaches: Pharmacotherapy | Behavioral Therapy | Exercise-Based Therapy | Deep Brain Stimulation | Infusion/Injection-Based Delivery This ODM-file contains a form to be administered at the first visit to the doctor with Parkinson's disease. Mainly Patient-reported, some items may alternatively have a clinical reporting source. Surveys used: Movement Disorder Society (MDS-UPDRS), Part I: Non-Motor Aspects of Experiences of Daily Living (nM- EDL). Both clinical- and patient-reported portions; Part II: Motor Aspects of Experiences of Daily Living (M-EDL). Patient-reported: The MDS-UPDRS requires a license (by International Parkinson’s and Movement Disorders Society), therefore the used items are not integrated into this version of the Parkinson's Disease Standard Set. International Parkinson’s and Movement Disorders Society (IPMDS) Non-motor symptoms questionnaire (NMSQ): The NMSQ requires a license. However, in ICHOM's Parkinson's Disease Standard Set only one question derived from 2 NMSQ items is used. Parkinson’s Disease Quality of Life Questionnaire (PDQ-8): The PDQ-8 requires a license (by Innovation, Oxford University), therefore the used items are not integrated into this version of the Parkinson's Disease Standard Set. ICHOM was supported for this standard set by the International Association for Parkinsonism and Related Disorders. Publication: De Roos P, Bloem BR, Kelley TA, et al. A Consensus Set of Outcomes for Parkinson’s Disease from the International Consortium for Health Outcomes Measurement. Journal of Parkinson’s disease. 2017;7(3):533-543. doi:10.3233/JPD-161055. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Versions (2)
- 04/09/2018 04/09/2018 - Sarah Riepenhausen
- 30/04/2020 30/04/2020 - Sarah Riepenhausen
Détendeur de droits
ICHOM
Téléchargé le
30 avril 2020
DOI
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Licence
Creative Commons BY-NC 4.0
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ICHOM Parkinson's Disease
First Doctor's Visit Form
- StudyEvent: ODM
Description
Demographic factors
Alias
- UMLS CUI-1
- C1704791
Description
INCLUSION CRITERIA: All patients TIMING: First doctor‘s visit REPORTING SOURCE: Clinical or patient-reported TYPE: Date by DD/MM/YYYY
Type de données
date
Unités de mesure
- DD/MM/YYYY
Alias
- UMLS CUI [1]
- C0001779
- UMLS CUI [2]
- C0421451
Description
INCLUSION CRITERIA: All patients TIMING: First doctor‘s visit REPORTING SOURCE: Clinical or patient-reported TYPE: Single answer
Type de données
integer
Alias
- UMLS CUI [1]
- C0079399
Description
Baseline clinical status
Alias
- UMLS CUI-1
- C0449440
- UMLS CUI-2
- C1442488
Description
INCLUSION CRITERIA: All patients TIMING: First doctor‘s visit REPORTING SOURCE: Patient-reported TYPE: Single answer
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0011581
- UMLS CUI [1,2]
- C0332152
- UMLS CUI [1,3]
- C0030567
Description
INCLUSION CRITERIA: All patients TIMING: First doctor‘s visit REPORTING SOURCE: Patient-reported TYPE: Single answer
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0003467
- UMLS CUI [1,2]
- C0332152
- UMLS CUI [1,3]
- C0030567
Description
INCLUSION CRITERIA: All patients TIMING: First doctor‘s visit REPORTING SOURCE: Patient-reported TYPE: Single answer
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0751772
- UMLS CUI [1,2]
- C0332152
- UMLS CUI [1,3]
- C0030567
Description
INCLUSION CRITERIA: All patients TIMING: First doctor‘s visit REPORTING SOURCE: Patient-reported TYPE: Numerical RESPONSE OPTIONS: Numerical value of age in years
Type de données
integer
Unités de mesure
- a
Alias
- UMLS CUI [1,1]
- C1828181
- UMLS CUI [1,2]
- C0030567
Description
INCLUSION CRITERIA: All patients TIMING: First doctor‘s visit REPORTING SOURCE: Patient-reported TYPE: Numerical RESPONSE OPTIONS: Numerical value of age in years
Type de données
integer
Unités de mesure
- a
Alias
- UMLS CUI [1,1]
- C0150907
- UMLS CUI [1,2]
- C0030567
Similar models
First Doctor's Visit Form
- StudyEvent: ODM
C0421451 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
C1442488 (UMLS CUI-2)
C0332152 (UMLS CUI [1,2])
C0030567 (UMLS CUI [1,3])
(Comment:en)
(Comment:en)
C0332152 (UMLS CUI [1,2])
C0030567 (UMLS CUI [1,3])
(Comment:en)
(Comment:en)
C0332152 (UMLS CUI [1,2])
C0030567 (UMLS CUI [1,3])
(Comment:en)
(Comment:en)
C0030567 (UMLS CUI [1,2])
C0030567 (UMLS CUI [1,2])