0 Evaluaciones
ID

40533

Descripción

CHRONIC KIDNEY DISEASE DATA COLLECTION Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains Outcome variables, clinical or administrative. To be collected 6-monthly, annually or ongoing. Surveys used: The OptumTM SF-36v2® Health Survey: The SF-36v2 Health Survey requires a license agreement prior to the use or reprodution of the tool. Information on how to obtain a license can be found here: bit.ly/SF36LIC . The scoring guide for the SF36v2 is only available upon a license agreement being made. Due to the requirement of a license the Score cannot be found in this version of the standard set. PROMIS-Global Health and PROMIS-29: Free for use in clinical practice and a license is not required. Information http://www.nihpromis.org/measures/translations . The scoring guides for the two PROMIS Scores can be found at bit.ly/PROMISGLOBALSCORE and bit.ly/PROMIS29SCORE . RAND-36: Free for use in clinical practice and a license is not required. The RAND-36 is available in English and Arabic. https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . The Scoring guide can be found at bit.ly/RAND36Score . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

www.ichom.org

Palabras clave

Versiones (2)
  1. 7/27/18 7/27/18 - Sarah Riepenhausen
  2. 4/30/20 4/30/20 - Sarah Riepenhausen
Titular de derechos de autor

ICHOM

Subido en

April 30, 2020

DOI

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Licencia

Creative Commons BY-NC 4.0
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    ICHOM Chronic Kidney Disease

    Inglés

    Outcome (Clinical / administrative)

    1 formularios  
    Administrative Data
    Descripción

    Administrative Data

    Alias
    UMLS CUI-1
    C1320722
    Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
    Descripción

    This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C0439564
    UMLS CUI [1,2]
    C1442488
    Indicate the patient's medical record number
    Descripción

    This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1269815
    Survival
    Descripción

    Survival

    Alias
    UMLS CUI-1
    C1148433
    Indicate whether the patient died
    Descripción

    INCLUSION CRITERIA: All patients TIMING: Ongoing REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0011065
    Indicate the date of death
    Descripción

    INCLUSION CRITERIA: If "1 = yes" to DEATH TIMING: Ongoing REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo de datos

    date

    Unidades de medida
    • DD/MM/YYYY
    Alias
    UMLS CUI [1]
    C1148348
    DD/MM/YYYY
    Indicate the cause of death
    Descripción

    Use SMARRT categories INCLUSION CRITERIA: If "1 = yes" to DEATH TIMING: Ongoing REPORTING SOURCE: Clinical TYPE: Single answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0007465
    Burden of Care
    Descripción

    Burden of Care

    Alias
    UMLS CUI-1
    C0087111
    UMLS CUI-2
    C2828008
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months?
    Descripción

    INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Numerical

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C4086639
    UMLS CUI [1,2]
    C4086728
    In total, how many days has the patient been hospitalised (requiring at least an overnight stay) at a hospital/acute care facility in the last 12 months?
    Descripción

    INCLUSION CRITERIA: If ≥1 to HOSPADMALL TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Numerical

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C3640790
    UMLS CUI [1,2]
    C4086728
    Indicate if the patient was diagnosed with a cardiovascular event
    Descripción

    Cardiovascular events of interest are acute myocardial infarction, stroke (excluding transient ischemic attacks), and limb amputation (excluding traumatic injury) INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1320716
    Indicate if the patient was diagnosed with an acute myocardial infarction
    Descripción

    INCLUSION CRITERIA: If "1 = yes" to CARDIOEV TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0155626
    Indicate the date of acute myocardial infarction diagnosis
    Descripción

    Multiple dates possible INCLUSION CRITERIA: If "1 = yes" to CARDIOAMI TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo de datos

    date

    Unidades de medida
    • DD/MM/YYYY
    Alias
    UMLS CUI [1,1]
    C0155626
    UMLS CUI [1,2]
    C2316983
    DD/MM/YYYY
    Indicate if the patient was diagnosed with a stroke
    Descripción

    INCLUSION CRITERIA: If "1 = yes" to CARDIOEV TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0038454
    Indicate the date of stroke diagnosis
    Descripción

    Multiple dates possible INCLUSION CRITERIA: If "1 = yes" to CARDIOSTR TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo de datos

    date

    Unidades de medida
    • DD/MM/YYYY
    Alias
    UMLS CUI [1,1]
    C0038454
    UMLS CUI [1,2]
    C0011008
    DD/MM/YYYY
    Indicate if the patient was diagnosed with a limb amputation
    Descripción

    INCLUSION CRITERIA: If "1 = yes" to CARDIOEV TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0002689
    Indicate the date of limb amputation diagnosis (not due to traumatic injury)
    Descripción

    Multiple dates possible INCLUSION CRITERIA: If "1 = yes" to CARDIOLIMB TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

    Tipo de datos

    date

    Unidades de medida
    • DD/MM/YYYY
    Alias
    UMLS CUI [1,1]
    C0002689
    UMLS CUI [1,2]
    C0011008
    DD/MM/YYYY
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    Similar models

    Outcome (Clinical / administrative)

    1 formularios
    Name
    Tipo
    Description | Question | Decode (Coded Value)
    Tipo de datos
    Alias
    Item Group
    Administrative Data
    C1320722 (UMLS CUI-1)
    Time Relative to Baseline
    Item
    Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
    text
    C0439564 (UMLS CUI [1,1])
    C1442488 (UMLS CUI [1,2])
    Patient ID
    Item
    Indicate the patient's medical record number
    integer
    C1269815 (UMLS CUI [1])
    Item Group
    Survival
    C1148433 (UMLS CUI-1)
    Item
    Indicate whether the patient died
    integer
    C0011065 (UMLS CUI [1])
    Death
    Code List
    Indicate whether the patient died
    CL Item
    No  (0)
    CL Item
    Yes (1)
    Date of death
    Item
    Indicate the date of death
    date
    C1148348 (UMLS CUI [1])
    Item
    Indicate the cause of death
    integer
    C0007465 (UMLS CUI [1])
    Cause of death
    Code List
    Indicate the cause of death
    CL Item
    Cardiovascular (1)
    CL Item
    Infection (2)
    CL Item
    Renal Replacement Therapy Complication (3)
    CL Item
    Malignancy (4)
    CL Item
    Treatment Withdrawal (5)
    CL Item
    Other (6)
    CL Item
    Unknown (999)
    Item Group
    Burden of Care
    C0087111 (UMLS CUI-1)
    C2828008 (UMLS CUI-2)
    All admissions to hospitals
    Item
    How many times has the patient been admitted (requiring at least an overnight stay) to a hospital/acute care facility in the last 12 months?
    integer
    C4086639 (UMLS CUI [1,1])
    C4086728 (UMLS CUI [1,2])
    Total number of days hospitalised
    Item
    In total, how many days has the patient been hospitalised (requiring at least an overnight stay) at a hospital/acute care facility in the last 12 months?
    integer
    C3640790 (UMLS CUI [1,1])
    C4086728 (UMLS CUI [1,2])
    Item
    Indicate if the patient was diagnosed with a cardiovascular event
    integer
    C1320716 (UMLS CUI [1])
    Cardiovascular events
    Code List
    Indicate if the patient was diagnosed with a cardiovascular event
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Item
    Indicate if the patient was diagnosed with an acute myocardial infarction
    integer
    C0155626 (UMLS CUI [1])
    Acute Myocardial Infarction
    Code List
    Indicate if the patient was diagnosed with an acute myocardial infarction
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Date of acute myocardial infarction
    Item
    Indicate the date of acute myocardial infarction diagnosis
    date
    C0155626 (UMLS CUI [1,1])
    C2316983 (UMLS CUI [1,2])
    Item
    Indicate if the patient was diagnosed with a stroke
    integer
    C0038454 (UMLS CUI [1])
    Stroke (excluding transient ischemic attacks)
    Code List
    Indicate if the patient was diagnosed with a stroke
    CL Item
    No  (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (999)
    Date of stroke
    Item
    Indicate the date of stroke diagnosis
    date
    C0038454 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Indicate if the patient was diagnosed with a limb amputation
    integer
    C0002689 (UMLS CUI [1])
    Limb amputation (not due to traumatic injury)
    Code List
    Indicate if the patient was diagnosed with a limb amputation
    CL Item
    No  (0)
    CL Item
    Yes (1)
    Date of limb amputation
    Item
    Indicate the date of limb amputation diagnosis (not due to traumatic injury)
    date
    C0002689 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
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