ID
40533
Descrizione
CHRONIC KIDNEY DISEASE DATA COLLECTION Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains Outcome variables, clinical or administrative. To be collected 6-monthly, annually or ongoing. Surveys used: The OptumTM SF-36v2® Health Survey: The SF-36v2 Health Survey requires a license agreement prior to the use or reprodution of the tool. Information on how to obtain a license can be found here: bit.ly/SF36LIC . The scoring guide for the SF36v2 is only available upon a license agreement being made. Due to the requirement of a license the Score cannot be found in this version of the standard set. PROMIS-Global Health and PROMIS-29: Free for use in clinical practice and a license is not required. Information http://www.nihpromis.org/measures/translations . The scoring guides for the two PROMIS Scores can be found at bit.ly/PROMISGLOBALSCORE and bit.ly/PROMIS29SCORE . RAND-36: Free for use in clinical practice and a license is not required. The RAND-36 is available in English and Arabic. https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . The Scoring guide can be found at bit.ly/RAND36Score . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
collegamento
Keywords
versioni (2)
- 27/07/18 27/07/18 - Sarah Riepenhausen
- 30/04/20 30/04/20 - Sarah Riepenhausen
Titolare del copyright
ICHOM
Caricato su
30 aprile 2020
DOI
Per favore, per richiedere un accesso.
Licenza
Creative Commons BY-NC 4.0
Commenti del modello :
Puoi commentare il modello dati qui. Tramite i fumetti nei gruppi di articoli e articoli è possibile aggiungere commenti a quelli in modo specifico.
Commenti del gruppo di articoli per :
Commenti dell'articolo per :
Per scaricare i modelli di dati devi essere registrato. Per favore accesso o registrati GRATIS.
ICHOM Chronic Kidney Disease
Outcome (Clinical / administrative)
- StudyEvent: ODM
Descrizione
Survival
Alias
- UMLS CUI-1
- C1148433
Descrizione
INCLUSION CRITERIA: All patients TIMING: Ongoing REPORTING SOURCE: Administrative or Clinical TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C0011065
Descrizione
INCLUSION CRITERIA: If "1 = yes" to DEATH TIMING: Ongoing REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY
Tipo di dati
date
Unità di misura
- DD/MM/YYYY
Alias
- UMLS CUI [1]
- C1148348
Descrizione
Use SMARRT categories INCLUSION CRITERIA: If "1 = yes" to DEATH TIMING: Ongoing REPORTING SOURCE: Clinical TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C0007465
Descrizione
Burden of Care
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C2828008
Descrizione
INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Numerical
Tipo di dati
integer
Alias
- UMLS CUI [1,1]
- C4086639
- UMLS CUI [1,2]
- C4086728
Descrizione
INCLUSION CRITERIA: If ≥1 to HOSPADMALL TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Numerical
Tipo di dati
integer
Alias
- UMLS CUI [1,1]
- C3640790
- UMLS CUI [1,2]
- C4086728
Descrizione
Cardiovascular events of interest are acute myocardial infarction, stroke (excluding transient ischemic attacks), and limb amputation (excluding traumatic injury) INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C1320716
Descrizione
INCLUSION CRITERIA: If "1 = yes" to CARDIOEV TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C0155626
Descrizione
Multiple dates possible INCLUSION CRITERIA: If "1 = yes" to CARDIOAMI TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY
Tipo di dati
date
Unità di misura
- DD/MM/YYYY
Alias
- UMLS CUI [1,1]
- C0155626
- UMLS CUI [1,2]
- C2316983
Descrizione
INCLUSION CRITERIA: If "1 = yes" to CARDIOEV TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C0038454
Descrizione
Multiple dates possible INCLUSION CRITERIA: If "1 = yes" to CARDIOSTR TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY
Tipo di dati
date
Unità di misura
- DD/MM/YYYY
Alias
- UMLS CUI [1,1]
- C0038454
- UMLS CUI [1,2]
- C0011008
Descrizione
INCLUSION CRITERIA: If "1 = yes" to CARDIOEV TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C0002689
Descrizione
Multiple dates possible INCLUSION CRITERIA: If "1 = yes" to CARDIOLIMB TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY
Tipo di dati
date
Unità di misura
- DD/MM/YYYY
Alias
- UMLS CUI [1,1]
- C0002689
- UMLS CUI [1,2]
- C0011008
Similar models
Outcome (Clinical / administrative)
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])