ID

40527

Description

CATARACTS DATA COLLECTION Version 2.0.1 Revised: March 8th, 2017, International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Symptomatic Cataract | Asymptomatic Cataract Treatment Approaches: Phacoemulsification | Sutured Extracapsular Cataract Extraction | Sutureless Extracapsular Cataract Extraction | Intracapsular Cataract Extraction Scores: Catquest-9SF - The Catquest-9SF is free for all health care organizations, and a license is not needed for use. By Mats Lundström This ODM-file contains pre- and post-operative patient froms. To be filled in by patient prior to and within 3 months after surgery. Publication: Mahmud I, Kelley T, Stowell C, et al. A Proposed Minimum Standard Set of Outcome Measures for Cataract Surgery. JAMA Ophthalmol. 2015;133(11):1247–1252. doi:10.1001/jamaophthalmol.2015.2810 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

Versions (2)
  1. 8/9/18 8/9/18 - Sarah Riepenhausen
  2. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Cataracts

English

Patient-Reported Visual Function (pre- and post-operative)

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Surgery (e.g. pre-operative, 3 months post-operative, ...)
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C2939459
Patient-reported visual function: Catquest-9SF
Description

Patient-reported visual function: Catquest-9SF

Alias
UMLS CUI-1
C0681906
UMLS CUI-2
C0687724
The aim of this questionnaire is to establish what difficulties you have in your daily life due to impaired sight. So that we can develop our healthcare as well as possible we are keen for you to answer the questions in the questionnaire as honestly as you can. The questionnaire contains questions about your difficulties due to impaired sight in connection with certain everyday tasks. If you use glasses for distance and/or close-up purposes, the questions are about what it is like when you use your best glasses. The questions in this questionnaire apply to your situation during the past 4 weeks. When you answer the questions you must try to think only of the difficulties that your sight may be causing you. We appreciate that it may be difficult to decide just what your sight means to you if you also have other problems such as joint pains or dizziness for example. We would still ask you to try to answer how important you think your sight is in your ability to perform the following tasks. When you are asked to state your difficulties, we have given three response options. We call them very great difficulty, great difficulty and some difficulty. Different people may put things differently. Try to see the three response options as three equal size parts of a scale ranging from the greatest to the least difficulty caused by your sight in performing various activities. An example of how we envisage the scale with the three different response options: Greatest ________________ / ________________ / ________________ least very great difficulty great difficulty some difficulty 1. Do you find that your sight at present in some way causes you difficulty in your everyday life?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0001288
UMLS CUI [1,2]
C0332218
UMLS CUI [1,3]
C3665347
2. Are you satisfied or dissatisfied with your sight at present?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0042789
UMLS CUI [1,2]
C0242428
3. Do you have difficulty reading text in newspapers because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3176682
4. Do you have difficulty recognizing the faces of people you meet?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0870537
UMLS CUI [1,2]
C0332218
5. Do you have difficulty seeing the prices of goods when shopping because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0080045
UMLS CUI [1,2]
C0599621
UMLS CUI [1,3]
C0332218
6. Do you have difficulty seeing to walk on uneven surfaces (for example cobblestones) because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4074937
UMLS CUI [1,2]
C3665347
7. Do you have difficulty seeing to do handicrafts, woodwork, etc. because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0599621
UMLS CUI [1,2]
C0332218
UMLS CUI [1,3]
C3665347
8. Do you have difficulty reading subtitles on TV because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0039461
UMLS CUI [1,2]
C0332218
UMLS CUI [1,3]
C3665347
9. Do you have difficulty seeing to engage in activity/hobby that you are interested in because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0441655
UMLS CUI [1,2]
C0019826
UMLS CUI [1,3]
C0332218
UMLS CUI [1,4]
C3665347
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Similar models

Patient-Reported Visual Function (pre- and post-operative)

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C1269815 (UMLS CUI [1])
Time Relative to Surgery
Item
Time Relative to Surgery (e.g. pre-operative, 3 months post-operative, ...)
text
C0439564 (UMLS CUI [1,1])
C2939459 (UMLS CUI [1,2])
Item Group
Patient-reported visual function: Catquest-9SF
C0681906 (UMLS CUI-1)
C0687724 (UMLS CUI-2)
Item
The aim of this questionnaire is to establish what difficulties you have in your daily life due to impaired sight. So that we can develop our healthcare as well as possible we are keen for you to answer the questions in the questionnaire as honestly as you can. The questionnaire contains questions about your difficulties due to impaired sight in connection with certain everyday tasks. If you use glasses for distance and/or close-up purposes, the questions are about what it is like when you use your best glasses. The questions in this questionnaire apply to your situation during the past 4 weeks. When you answer the questions you must try to think only of the difficulties that your sight may be causing you. We appreciate that it may be difficult to decide just what your sight means to you if you also have other problems such as joint pains or dizziness for example. We would still ask you to try to answer how important you think your sight is in your ability to perform the following tasks. When you are asked to state your difficulties, we have given three response options. We call them very great difficulty, great difficulty and some difficulty. Different people may put things differently. Try to see the three response options as three equal size parts of a scale ranging from the greatest to the least difficulty caused by your sight in performing various activities. An example of how we envisage the scale with the three different response options: Greatest ________________ / ________________ / ________________ least very great difficulty great difficulty some difficulty 1. Do you find that your sight at present in some way causes you difficulty in your everyday life?
integer
C0001288 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
C3665347 (UMLS CUI [1,3])
Question 1 of Catquest-9SF
Code List
The aim of this questionnaire is to establish what difficulties you have in your daily life due to impaired sight. So that we can develop our healthcare as well as possible we are keen for you to answer the questions in the questionnaire as honestly as you can. The questionnaire contains questions about your difficulties due to impaired sight in connection with certain everyday tasks. If you use glasses for distance and/or close-up purposes, the questions are about what it is like when you use your best glasses. The questions in this questionnaire apply to your situation during the past 4 weeks. When you answer the questions you must try to think only of the difficulties that your sight may be causing you. We appreciate that it may be difficult to decide just what your sight means to you if you also have other problems such as joint pains or dizziness for example. We would still ask you to try to answer how important you think your sight is in your ability to perform the following tasks. When you are asked to state your difficulties, we have given three response options. We call them very great difficulty, great difficulty and some difficulty. Different people may put things differently. Try to see the three response options as three equal size parts of a scale ranging from the greatest to the least difficulty caused by your sight in performing various activities. An example of how we envisage the scale with the three different response options: Greatest ________________ / ________________ / ________________ least very great difficulty great difficulty some difficulty 1. Do you find that your sight at present in some way causes you difficulty in your everyday life?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
2. Are you satisfied or dissatisfied with your sight at present?
integer
C0042789 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
Question 2 of Catquest-9SF
Code List
2. Are you satisfied or dissatisfied with your sight at present?
CL Item
Very dissatisfied (1)
CL Item
Fairly dissatisfied (2)
CL Item
Fairly satisfied (3)
CL Item
Very satisfied (4)
CL Item
Cannot decide (5)
Item
3. Do you have difficulty reading text in newspapers because of your sight?
integer
C3176682 (UMLS CUI [1])
Question 3 of Catquest-9SF
Code List
3. Do you have difficulty reading text in newspapers because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
4. Do you have difficulty recognizing the faces of people you meet?
integer
C0870537 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
Question 4 of Catquest-9SF
Code List
4. Do you have difficulty recognizing the faces of people you meet?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
5. Do you have difficulty seeing the prices of goods when shopping because of your sight?
integer
C0080045 (UMLS CUI [1,1])
C0599621 (UMLS CUI [1,2])
C0332218 (UMLS CUI [1,3])
Question 5 of Catquest-9SF
Code List
5. Do you have difficulty seeing the prices of goods when shopping because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
6. Do you have difficulty seeing to walk on uneven surfaces (for example cobblestones) because of your sight?
integer
C4074937 (UMLS CUI [1,1])
C3665347 (UMLS CUI [1,2])
Question 6 of Catquest-9SF
Code List
6. Do you have difficulty seeing to walk on uneven surfaces (for example cobblestones) because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
7. Do you have difficulty seeing to do handicrafts, woodwork, etc. because of your sight?
integer
C0599621 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
C3665347 (UMLS CUI [1,3])
Question 7 of Catquest-9SF
Code List
7. Do you have difficulty seeing to do handicrafts, woodwork, etc. because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
8. Do you have difficulty reading subtitles on TV because of your sight?
integer
C0039461 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
C3665347 (UMLS CUI [1,3])
Question 8 of Catquest-9SF
Code List
8. Do you have difficulty reading subtitles on TV because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
9. Do you have difficulty seeing to engage in activity/hobby that you are interested in because of your sight?
integer
C0441655 (UMLS CUI [1,1])
C0019826 (UMLS CUI [1,2])
C0332218 (UMLS CUI [1,3])
C3665347 (UMLS CUI [1,4])
Question 9 of Catquest-9SF
Code List
9. Do you have difficulty seeing to engage in activity/hobby that you are interested in because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
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