ID

38600

Description

ICHOM Pregnancy and Childbirth data collection Version 1.0.3 Published: 10th April 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ The Pregnancy and Childbirth Standard Set of ICHOM includes outcomes to evaluate maternity care for all women during pregnancy, labor and delivery, and up to six month postpartum. ICHOMs Standard Set also includes a list of case-mix factors to allow for comparisons of outcomes across this broad patient population. Conditions: All women during: Pregnancy | Labor and delivery | Up to six months postpartum This document contains the Entry to prenatal care - Patient-reported Form. Data collection begins when a woman enters prenatal care. In many cases this is within the first trimester but may be considerably later in some care systems. If entry to prenatal care occurs close to or within the 3rd trimester, ICHOM recommend combining the documents "Entry to prenatal care" and "3rd trimester". In the case of a loss or termination of the pregnancy prior to 20 weeks but after the beginning of data collection, no further data collection should be pursued. Collecting Patient-Reported Outcome Measure: PROMIS-10. As there is an official distribution site for this questionnaire, only the total score will be included in this version of the standard set. For more information see: http://www.nihpromis.org/measures/translations International Consultation on Incontinence Questionnaire - Urinary Incontinence Short Form (ICIQ-UI SF). As permission is needed for use of this questionnaire, only the total score will be included in this version of the standard set. For more information see: http:// www.iciq.net/userpolicy.html, https://iciq.net/user-agreement Breastfeeding Self-Efficacy Scale - Short Form (BSES-SF). Free for use in clinical practice, routine outcomes measurement, and clinical research but requires permission from the developer. Please see Dennis, C-L. (2003) The Breastfeeding Self-Efficacy Scale: Psychometric assessment of the short form. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 32, 734-744. For more information see: http://www.cindyleedennis.ca/research/#1-breastfeeding Wexner Scale (Cleveland Clinic Florida Fecal Incontinence Score). Free for use. No license is required. For more information see: Table 2 of Vaizey et al. (1999) Prospective comparison of faecal incontinence grading systems. Gut 44:77-80. Original Publication: Jorge JM, Wexner SD. Etiology and management of fecal incontinence. Dis Colon Rectum. 1993 Jan;36(1):77–97. Mother-to-Infant Bonding Scale (MIBS). As license condition for use of this scale is insufficiently clarified, only the total score will be included in this version of the standard set. The complete scoring guide as well as information on clinical interpretation can be found at: http://www.ncbi.nlm.nih.gov/pubmed/15868385: Taylor, A., Atkins, R., Kumar, R. et al. Arch Womens Ment Health (2005) 8: 45. https://doi.org/10.1007/s00737-005-0074-z Patient Health Questionnaire-2 (PHQ-2). Free for use. No license is required. Scoring and clinical interpretation can be found at: http://www. cqaimh.org/pdf/tool_phq2.pdf For more information see: https://www.phqscreeners.com/ Edinburgh Postnatal Depression Scale (EPDS). Free for use. No license is required. Users may reproduce the scale without permissions provided they respect copyright by quoting the names of the authors, the title and the source of the paper in all reproduced copies. The scoring guide and clinical interpretation can be found in: Cox JL et al (1987) Detection of postnatal depression development of the 10-item Edinburgh Postnatal Depression Scale. Birth Satisfaction Scale - Revised (BSS-R). Free for use in clinical practice, routine outcomes measurement, and clinical research but requires permission from the developer. For more information see: Hollins Martin CJ et al (2014) Development and psychometric properties of the Birth Satisfaction Scale - Revised (BSS-R). Midwifery 30: 610-619 Reference: Nijagal MA, Wissig S, Stowell C, et al. Standardized outcome measures for pregnancy and childbirth, an ICHOM proposal. BMC Health Serv Res. 2018;18(1):953. Published 2018 Dec 11. doi:10.1186/s12913-018-3732-3 The Standard set of ICHOM was supported by the hoag, HCF Research Foundation, Karolinska University Hospital and the Government of South Australia.

Link

http://www.ichom.org/

Keywords

  1. 10/7/19 10/7/19 -
  2. 10/12/19 10/12/19 -
  3. 10/25/19 10/25/19 - Sarah Riepenhausen
  4. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

October 25, 2019

DOI

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License

Creative Commons BY-NC 3.0

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ICHOM Pregnancy and Childbirth

Entry to prenatal care - Patient-reported Form

Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

SUPPORTING DEFINITION: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution. INCLUSION CRITERIA: All women TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Demographic
Description

Demographic

Alias
UMLS CUI-1
C1704791
Please indicated the highest level of schooling completed.
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0013658
What is your ethnicity?
Description

In the original standard set the response option is N/A because it varies by country and should be determined by country (not for cross country comparison). INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

text

Alias
UMLS CUI [1]
C0015031
How many people do you have near you that you can readily count on for help in time of difficulty such as to watch over children or pets, give rides to the hospital or store, or help when you are sick?
Description

SUPPORTING DEFINITION: The SIMSS INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0037438
Obstetric and medical history
Description

Obstetric and medical history

Alias
UMLS CUI-1
C0425963
UMLS CUI-2
C0262926
Have you given birth before? This includes both vaginal births and Cesarean sections (operations to remove your baby from your abdomen). Please do not count miscarriages or births that happened before 20 weeks (5 months) of pregnancy.
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005615
UMLS CUI [1,2]
C0332152
UMLS CUI [2]
C2985340
UMLS CUI [3]
C0007876
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 0 = This is my first pregnancy
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0425963
UMLS CUI [2,1]
C0205435
UMLS CUI [2,2]
C0032961
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 1 = A baby born early, more than 3 weeks before his or her due date
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0425963
UMLS CUI [2]
C0151526
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 2 = Bleeding so much during pregnancy, birth, or after giving birth that you needed to be given blood
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0425963
UMLS CUI [2,1]
C0019080
UMLS CUI [2,2]
C1514873
UMLS CUI [2,3]
C1879316
UMLS CUI [2,4]
C0032961
UMLS CUI [3,1]
C0019080
UMLS CUI [3,2]
C1514873
UMLS CUI [3,3]
C1879316
UMLS CUI [3,4]
C0005615
UMLS CUI [4,1]
C0032797
UMLS CUI [4,2]
C1514873
UMLS CUI [4,3]
C1879316
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 3 = A cesarean section (operation to remove your baby through your abdomen)
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0425963
UMLS CUI [2]
C0007876
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 4 = Loss of a pregnancy after 20 weeks (5 months) of pregnancy
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0425963
UMLS CUI [2]
C0595939
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 0 = None
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0549184
UMLS CUI [1,2]
C0262926
UMLS CUI [1,3]
C0332152
UMLS CUI [1,4]
C0032961
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 1 = Diabetes
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0032961
UMLS CUI [2]
C0011849
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 2 = High blood pressure or hypertension
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0032961
UMLS CUI [2]
C0020538
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 3 = A mental health disorder such as depression, anxiety, bipolar disorder or schizophrenia
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0032961
UMLS CUI [2]
C1446377
UMLS CUI [3]
C0011581
UMLS CUI [4]
C0003467
UMLS CUI [5]
C0005586
UMLS CUI [6]
C0036341
Are you pregnant with:
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0032989
How tall are you?
Description

Indicate height in centimeters or inches. Also indicate units of height. Height and weight are used to calculate BMI. INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Numeric value RESPONSE OPTIONS: Numeric value of height in metric or imperial system

Data type

float

Alias
UMLS CUI [1]
C0005890
Height units
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005890
UMLS CUI [1,2]
C1519795
How much did you weigh IMMEDIATELY before your pregnancy?
Description

Indicate weight in kilograms or pounds. Also indicate units of weight. Height and weight are used to calculate BMI. INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Numeric value RESPONSE OPTIONS: Numeric value of weight in metric or imperial system

Data type

float

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0032961
Weight units
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0032961
UMLS CUI [1,4]
C1519795
Patient-reported health status
Description

Patient-reported health status

Alias
UMLS CUI-1
C0018759
UMLS CUI-2
C2987124
PROMIS-10 Global health, total score
Description

As there is an official distribution site, the actual 10 questions of this questionnaire are not part of this verions of the standard set. ICHOM OIDs are: Global01 to Global10 INCLUSION CRITERIA: All women TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C3836333
UMLS CUI [1,2]
C2964552
In the past month, have you leaked urine, leaked stool or passed gas by accident?
Description

INCLUSION CRITERIA: All women TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0332185
UMLS CUI [1,2]
C0021167
ICIQ-SF, total score
Description

As permission is needed for use of this questionnaire, the actual 4 questions are not included in this version of the standard set. ICHOM OIDs are: UI01* to UI04* INCLUSION CRITERIA: *women scoring a 1 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester,Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C4544471
UMLS CUI [1,2]
C2964552
How often do you have accidents to solid, well-formed stool?
Description

INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0681889
UMLS CUI [1,2]
C0015732
UMLS CUI [1,3]
C0205208
UMLS CUI [1,4]
C3898838
How often do you have accidents to liquid stool/diarrhea?
Description

INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0681889
UMLS CUI [1,2]
C0015732
UMLS CUI [1,3]
C2129214
UMLS CUI [1,4]
C3898838
How often does the gas escape without your knowledge or control?
Description

INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0681889
UMLS CUI [1,2]
C4087409
UMLS CUI [1,3]
C3898838
How often do you wear a pad/depends or change underwear?
Description

INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0681889
UMLS CUI [1,2]
C0182158
UMLS CUI [1,3]
C3898838
UMLS CUI [1,4]
C0443172
UMLS CUI [1,5]
C0453880
How much do the above answers alter your lifestyle or activities?
Description

INCLUSION CRITERIA: *women scoring a 2 on INCONTSCREEN TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0681889
UMLS CUI [1,2]
C3829612
UMLS CUI [1,3]
C0015732
In the past 30 days, how much has pain affected your satisfaction with your sex life?
Description

This question has been copied by PROMIS SFFAC102 INCLUSION CRITERIA: All women TIMING: Entry to prenatal care Postpa,rtum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C2984060
UMLS CUI [1,2]
C0030193
Role transition
Description

Role transition

Alias
UMLS CUI-1
C2700061
UMLS CUI-2
C3871154
How confident do you feel about looking after your baby when he or she is born?
Description

INCLUSION: All women TIMING: Entry to prenatal care, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C1704726
UMLS CUI [1,2]
C1858460
Mental Health
Description

Mental Health

Alias
UMLS CUI-1
C0025353
Over the past 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
Description

INCLUSION: All women TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C2706101
UMLS CUI [2]
C0860654
Feeling down, depressed or hopeless
Description

INCLUSION: All women TIMING: Entry to prenatal care, 3rd trimester, Postpartum check-up, 6 months postpartum REPORTING SOURCE: Patient-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C2706101
UMLS CUI [2]
C2924103

Similar models

Entry to prenatal care - Patient-reported Form

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Item Group
Demographic
C1704791 (UMLS CUI-1)
Item
Please indicated the highest level of schooling completed.
integer
C0013658 (UMLS CUI [1])
Code List
Please indicated the highest level of schooling completed.
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Primary (1)
C0013658 (UMLS CUI-1)
C0033145 (UMLS CUI-2)
(Comment:en)
CL Item
Secondary (2)
C0557289 (UMLS CUI-1)
(Comment:en)
CL Item
Tertiary (university or equivalent) (3)
C0557291 (UMLS CUI-1)
C0041740 (UMLS CUI-2)
C0205163 (UMLS CUI-3)
(Comment:en)
Race/ethnicity
Item
What is your ethnicity?
text
C0015031 (UMLS CUI [1])
Item
How many people do you have near you that you can readily count on for help in time of difficulty such as to watch over children or pets, give rides to the hospital or store, or help when you are sick?
integer
C0037438 (UMLS CUI [1])
Code List
How many people do you have near you that you can readily count on for help in time of difficulty such as to watch over children or pets, give rides to the hospital or store, or help when you are sick?
CL Item
0 (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
1 (1)
C0205447 (UMLS CUI-1)
(Comment:en)
CL Item
2 - 5 (2)
C0205448 (UMLS CUI-1)
C0205451 (UMLS CUI-2)
(Comment:en)
CL Item
6 - 10 (3)
C0205452 (UMLS CUI-1)
C0205456 (UMLS CUI-2)
(Comment:en)
Item Group
Obstetric and medical history
C0425963 (UMLS CUI-1)
C0262926 (UMLS CUI-2)
Item
Have you given birth before? This includes both vaginal births and Cesarean sections (operations to remove your baby from your abdomen). Please do not count miscarriages or births that happened before 20 weeks (5 months) of pregnancy.
integer
C0005615 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C2985340 (UMLS CUI [2])
C0007876 (UMLS CUI [3])
Code List
Have you given birth before? This includes both vaginal births and Cesarean sections (operations to remove your baby from your abdomen). Please do not count miscarriages or births that happened before 20 weeks (5 months) of pregnancy.
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Obstetric history: first pregnancy
Item
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 0 = This is my first pregnancy
boolean
C0425963 (UMLS CUI [1])
C0205435 (UMLS CUI [2,1])
C0032961 (UMLS CUI [2,2])
Obstetric history: premature birth
Item
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 1 = A baby born early, more than 3 weeks before his or her due date
boolean
C0425963 (UMLS CUI [1])
C0151526 (UMLS CUI [2])
Obstetric history: Hemorrhage requiring transfusion
Item
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 2 = Bleeding so much during pregnancy, birth, or after giving birth that you needed to be given blood
boolean
C0425963 (UMLS CUI [1])
C0019080 (UMLS CUI [2,1])
C1514873 (UMLS CUI [2,2])
C1879316 (UMLS CUI [2,3])
C0032961 (UMLS CUI [2,4])
C0019080 (UMLS CUI [3,1])
C1514873 (UMLS CUI [3,2])
C1879316 (UMLS CUI [3,3])
C0005615 (UMLS CUI [3,4])
C0032797 (UMLS CUI [4,1])
C1514873 (UMLS CUI [4,2])
C1879316 (UMLS CUI [4,3])
Obstetric history: cesarean section
Item
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 3 = A cesarean section (operation to remove your baby through your abdomen)
boolean
C0425963 (UMLS CUI [1])
C0007876 (UMLS CUI [2])
Obstetric history: miscarriage
Item
If you have been pregnant before, have you experienced any of the following in previous pregnancies? Please mark all that apply. 4 = Loss of a pregnancy after 20 weeks (5 months) of pregnancy
boolean
C0425963 (UMLS CUI [1])
C0595939 (UMLS CUI [2])
Medical history: None
Item
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 0 = None
boolean
C0549184 (UMLS CUI [1,1])
C0262926 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0032961 (UMLS CUI [1,4])
Medical history: Diabetes
Item
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 1 = Diabetes
boolean
C0262926 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0032961 (UMLS CUI [1,3])
C0011849 (UMLS CUI [2])
Medical history: High blood pressure or hypertension
Item
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 2 = High blood pressure or hypertension
boolean
C0262926 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0032961 (UMLS CUI [1,3])
C0020538 (UMLS CUI [2])
Medical history: mental health disorde
Item
BEFORE you got pregnant, did a doctor, nurse, or other health worker tell you that you had any of the following health conditions? Please mark all that apply. 3 = A mental health disorder such as depression, anxiety, bipolar disorder or schizophrenia
boolean
C0262926 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0032961 (UMLS CUI [1,3])
C1446377 (UMLS CUI [2])
C0011581 (UMLS CUI [3])
C0003467 (UMLS CUI [4])
C0005586 (UMLS CUI [5])
C0036341 (UMLS CUI [6])
Item
Are you pregnant with:
integer
C0032989 (UMLS CUI [1])
Code List
Are you pregnant with:
CL Item
One baby (1)
C0205447 (UMLS CUI-1)
C0021270 (UMLS CUI-2)
(Comment:en)
CL Item
Two babies (twins) (2)
C0041427 (UMLS CUI-1)
(Comment:en)
CL Item
Three or more babies (triplets or higher) (3)
C0032989 (UMLS CUI-1)
C0332300 (UMLS CUI-2)
C0041427 (UMLS CUI-3)
(Comment:en)
Body height
Item
How tall are you?
float
C0005890 (UMLS CUI [1])
Item
Height units
integer
C0005890 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Code List
Height units
CL Item
centimeters (1)
C0475210 (UMLS CUI-1)
(Comment:en)
CL Item
inches (2)
C0439204 (UMLS CUI-1)
(Comment:en)
Body weight
Item
How much did you weigh IMMEDIATELY before your pregnancy?
float
C0005910 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0032961 (UMLS CUI [1,3])
Item
Weight units
integer
C0005910 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0032961 (UMLS CUI [1,3])
C1519795 (UMLS CUI [1,4])
Code List
Weight units
CL Item
kilograms (1)
C0439209 (UMLS CUI-1)
(Comment:en)
CL Item
pounds (2)
C0439219 (UMLS CUI-1)
(Comment:en)
Item Group
Patient-reported health status
C0018759 (UMLS CUI-1)
C2987124 (UMLS CUI-2)
PROMIS-10 Global health, total score
Item
PROMIS-10 Global health, total score
integer
C3836333 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item
In the past month, have you leaked urine, leaked stool or passed gas by accident?
integer
C0332185 (UMLS CUI [1,1])
C0021167 (UMLS CUI [1,2])
Code List
In the past month, have you leaked urine, leaked stool or passed gas by accident?
CL Item
Yes, I leaked urine (1)
C0042024 (UMLS CUI-1)
(Comment:en)
CL Item
Yes, I leaked stool or passed gas by accident (2)
C0015733 (UMLS CUI-1)
C0428715 (UMLS CUI-2)
(Comment:en)
CL Item
No, I did not leak urine, leak stool, or pass gas by accident (3)
C1298908 (UMLS CUI-1)
(Comment:en)
ICIQ-SF, total score
Item
ICIQ-SF, total score
integer
C4544471 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item
How often do you have accidents to solid, well-formed stool?
integer
C0681889 (UMLS CUI [1,1])
C0015732 (UMLS CUI [1,2])
C0205208 (UMLS CUI [1,3])
C3898838 (UMLS CUI [1,4])
Code List
How often do you have accidents to solid, well-formed stool?
CL Item
Less than once per month (1)
C3841785 (UMLS CUI-1)
(Comment:en)
CL Item
Less than once/week and greater than once/month (2)
C3845368 (UMLS CUI-1)
C0439093 (UMLS CUI-2)
C3845349 (UMLS CUI-3)
(Comment:en)
CL Item
Less than once/day and greater than once/week (3)
C3843156 (UMLS CUI-1)
C0556983 (UMLS CUI-2)
C0439093 (UMLS CUI-3)
C0558293 (UMLS CUI-4)
(Comment:en)
CL Item
Once a day or more than once a day (4)
C0556983 (UMLS CUI-1)
C3853132 (UMLS CUI-2)
(Comment:en)
CL Item
Never (0)
C2003901 (UMLS CUI-1)
(Comment:en)
Item
How often do you have accidents to liquid stool/diarrhea?
integer
C0681889 (UMLS CUI [1,1])
C0015732 (UMLS CUI [1,2])
C2129214 (UMLS CUI [1,3])
C3898838 (UMLS CUI [1,4])
Code List
How often do you have accidents to liquid stool/diarrhea?
CL Item
Less than once per month (1)
C3841785 (UMLS CUI-1)
(Comment:en)
CL Item
Less than once/week and greater than once/month (2)
C3845368 (UMLS CUI-1)
C0439093 (UMLS CUI-2)
C3845349 (UMLS CUI-3)
(Comment:en)
CL Item
Less than once/day and greater than once/week (3)
C3843156 (UMLS CUI-1)
C0556983 (UMLS CUI-2)
C0439093 (UMLS CUI-3)
C0558293 (UMLS CUI-4)
(Comment:en)
CL Item
Once a day or more than once a day (4)
C0556983 (UMLS CUI-1)
C3853132 (UMLS CUI-2)
(Comment:en)
CL Item
Never (0)
C2003901 (UMLS CUI-1)
(Comment:en)
Item
How often does the gas escape without your knowledge or control?
integer
C0681889 (UMLS CUI [1,1])
C4087409 (UMLS CUI [1,2])
C3898838 (UMLS CUI [1,3])
Code List
How often does the gas escape without your knowledge or control?
CL Item
Less than once per month (1)
C3841785 (UMLS CUI-1)
(Comment:en)
CL Item
Less than once/week and greater than once/month (2)
C3845368 (UMLS CUI-1)
C0439093 (UMLS CUI-2)
C3845349 (UMLS CUI-3)
(Comment:en)
CL Item
Less than once/day and greater than once/week (3)
C3843156 (UMLS CUI-1)
C0556983 (UMLS CUI-2)
C0439093 (UMLS CUI-3)
C0558293 (UMLS CUI-4)
(Comment:en)
CL Item
Once a day or more than once a day (4)
C0556983 (UMLS CUI-1)
C3853132 (UMLS CUI-2)
(Comment:en)
CL Item
Never (0)
C2003901 (UMLS CUI-1)
(Comment:en)
Item
How often do you wear a pad/depends or change underwear?
integer
C0681889 (UMLS CUI [1,1])
C0182158 (UMLS CUI [1,2])
C3898838 (UMLS CUI [1,3])
C0443172 (UMLS CUI [1,4])
C0453880 (UMLS CUI [1,5])
Code List
How often do you wear a pad/depends or change underwear?
CL Item
Less than once per month (1)
C3841785 (UMLS CUI-1)
(Comment:en)
CL Item
Less than once/week and greater than once/month (2)
C3845368 (UMLS CUI-1)
C0439093 (UMLS CUI-2)
C3845349 (UMLS CUI-3)
(Comment:en)
CL Item
Less than once/day and greater than once/week (3)
C3843156 (UMLS CUI-1)
C0556983 (UMLS CUI-2)
C0439093 (UMLS CUI-3)
C0558293 (UMLS CUI-4)
(Comment:en)
CL Item
Once a day or more than once a day (4)
C0556983 (UMLS CUI-1)
C3853132 (UMLS CUI-2)
(Comment:en)
CL Item
Never (0)
C2003901 (UMLS CUI-1)
(Comment:en)
Item
How much do the above answers alter your lifestyle or activities?
integer
C0681889 (UMLS CUI [1,1])
C3829612 (UMLS CUI [1,2])
C0015732 (UMLS CUI [1,3])
Code List
How much do the above answers alter your lifestyle or activities?
CL Item
Less than once per month (1)
C3841785 (UMLS CUI-1)
(Comment:en)
CL Item
Less than once/week and greater than once/month (2)
C3845368 (UMLS CUI-1)
C0439093 (UMLS CUI-2)
C3845349 (UMLS CUI-3)
(Comment:en)
CL Item
Less than once/day and greater than once/week (3)
C3843156 (UMLS CUI-1)
C0556983 (UMLS CUI-2)
C0439093 (UMLS CUI-3)
C0558293 (UMLS CUI-4)
(Comment:en)
CL Item
Once a day or more than once a day (4)
C0556983 (UMLS CUI-1)
C3853132 (UMLS CUI-2)
(Comment:en)
CL Item
Never (0)
C2003901 (UMLS CUI-1)
(Comment:en)
Item
In the past 30 days, how much has pain affected your satisfaction with your sex life?
integer
C2984060 (UMLS CUI [1,1])
C0030193 (UMLS CUI [1,2])
Code List
In the past 30 days, how much has pain affected your satisfaction with your sex life?
CL Item
Have not had pain in the past 30 days  (0)
C0234225 (UMLS CUI-1)
(Comment:en)
CL Item
Not at all  (1)
C2003901 (UMLS CUI-1)
(Comment:en)
CL Item
A little bit  (2)
C2984078 (UMLS CUI-1)
(Comment:en)
CL Item
Somewhat  (3)
C2984079 (UMLS CUI-1)
(Comment:en)
CL Item
Quite a bit  (4)
C2984080 (UMLS CUI-1)
(Comment:en)
CL Item
Very much (5)
C2984081 (UMLS CUI-1)
(Comment:en)
Item Group
Role transition
C2700061 (UMLS CUI-1)
C3871154 (UMLS CUI-2)
Item
How confident do you feel about looking after your baby when he or she is born?
integer
C1704726 (UMLS CUI [1,1])
C1858460 (UMLS CUI [1,2])
Code List
How confident do you feel about looking after your baby when he or she is born?
CL Item
Not at all confident (1)
C2984077 (UMLS CUI-1)
C1704726 (UMLS CUI-2)
(Comment:en)
CL Item
Not very confident (2)
C1298908 (UMLS CUI-1)
C4036200 (UMLS CUI-2)
(Comment:en)
CL Item
Somewhat confident (3)
C2984079 (UMLS CUI-1)
C0558095 (UMLS CUI-2)
(Comment:en)
CL Item
Confident (4)
C0558095 (UMLS CUI-1)
(Comment:en)
CL Item
Very confident (5)
C4036200 (UMLS CUI-1)
(Comment:en)
Item Group
Mental Health
C0025353 (UMLS CUI-1)
Item
Over the past 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
integer
C2706101 (UMLS CUI [1])
C0860654 (UMLS CUI [2])
Code List
Over the past 2 weeks, how often have you been bothered by any of the following problems? Little interest or pleasure in doing things
CL Item
Not at all (1)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (2)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (3)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (4)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
Feeling down, depressed or hopeless
integer
C2706101 (UMLS CUI [1])
C2924103 (UMLS CUI [2])
Code List
Feeling down, depressed or hopeless
CL Item
Not at all (1)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (2)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (3)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (4)
C3845713 (UMLS CUI-1)
(Comment:en)

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