ID

38371

Beschreibung

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. The form Cardiomyopathy Diagnostics is used to document analyzing parameters of cardiomyopathy examinations. The documentation is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). As of 09/10/2019, there are no specific SOPs for this form.

Link

http://dzhk.de

Stichworte

Versionen (1)
  1. 14.10.19 14.10.19 -
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DZHK

Hochgeladen am

14. Oktober 2019

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DZHK Data Catalogue

Deutsch Englisch

Cardiomyopathy Diagnostics

1 Formulare  
General Diagnostic Information
Beschreibung

General Diagnostic Information

Alias
UMLS CUI-1
C1508263
UMLS CUI-2
C0430022
Were cardiomyopathy diagnostics collected
Beschreibung

Cardiomyopathy diagnostics performed?

Datentyp

text

Alias
UMLS CUI [1,1]
C0430022
UMLS CUI [1,2]
C0878544
UMLS CUI [1,3]
C0884358
Quality level
Beschreibung

Cardiomyopathy diagnostics quality

Datentyp

integer

Alias
UMLS CUI [1,1]
C0332306
UMLS CUI [1,2]
C0430022
UMLS CUI [1,3]
C0878544
Cardiomyopathy Diagnostics
Beschreibung

Cardiomyopathy Diagnostics

Alias
UMLS CUI-1
C0430022
UMLS CUI-2
C0878544
Dilated cardiomyopathy
Beschreibung

Dilated cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1]
C0007193
If "yes"
Beschreibung

Dilated cardiomyopathy etiology

Datentyp

text

Alias
UMLS CUI [1,1]
C0007193
UMLS CUI [1,2]
C1314792
Please specify
Beschreibung

Specify dilated cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1,1]
C0007193
UMLS CUI [1,2]
C1521902
Left ventricular non-compaction cardiomyopathy
Beschreibung

Left ventricular non-compaction cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1]
C4021133
Hypertrophic cardiomyopathy
Beschreibung

Hypertrophic cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1]
C0007194
Hypertrophic cardiomyopathy
Beschreibung

Hypertrophic cardiomyopathy obstruction

Datentyp

text

Alias
UMLS CUI [1,1]
C0007194
UMLS CUI [1,2]
C0028778
Hypertrophic cardiomyopathy
Beschreibung

Hypertrophic cardiomyopathy heredity

Datentyp

text

Alias
UMLS CUI [1,1]
C0007194
UMLS CUI [1,2]
C0019266
Positive pressure gradient at rest (echocardiography)
Beschreibung

Positive pressure gradient at rest (echocardiography)

Datentyp

text

Alias
UMLS CUI [1]
C0013516
UMLS CUI [2,1]
C0443144
UMLS CUI [2,2]
C0428898
UMLS CUI [2,3]
C1446409
Positive pressure gradient at rest (echocardiography)
Beschreibung

Positive pressure gradient at rest (echocardiography)

Datentyp

integer

Maßeinheiten
  • mmHg
Alias
UMLS CUI [1]
C0013516
UMLS CUI [2,1]
C0443144
UMLS CUI [2,2]
C0428898
UMLS CUI [2,3]
C1446409
mmHg
Positive pressure gradient on exertion (stress echocardiography)
Beschreibung

Positive pressure gradient on exertion (stress echocardiography)

Datentyp

text

Alias
UMLS CUI [1]
C0920208
UMLS CUI [2,1]
C0428898
UMLS CUI [2,2]
C1446409
UMLS CUI [2,3]
C0015264
Positive pressure gradient on exertion (stress echocardiography)
Beschreibung

Positive pressure gradient on exertion (stress echocardiography)

Datentyp

integer

Maßeinheiten
  • mmHg
Alias
UMLS CUI [1]
C0920208
UMLS CUI [2,1]
C0428898
UMLS CUI [2,2]
C1446409
UMLS CUI [2,3]
C0015264
mmHg
Wall thickness measured by
Beschreibung

Wall thickness measurement method

Datentyp

text

Alias
UMLS CUI [1,1]
C2024242
UMLS CUI [1,2]
C0025663
Septum
Beschreibung

Wall thickness

Datentyp

text

Alias
UMLS CUI [1,1]
C1301886
UMLS CUI [1,2]
C0018819
Septum
Beschreibung

Wall thickness

Datentyp

integer

Maßeinheiten
  • mm
Alias
UMLS CUI [1,1]
C1301886
UMLS CUI [1,2]
C0018819
UMLS CUI [1,3]
C0242485
mm
Lateral
Beschreibung

Wall thickness

Datentyp

text

Alias
UMLS CUI [1,1]
C2024242
UMLS CUI [1,2]
C0205093
Lateral
Beschreibung

Wall thickness

Datentyp

integer

Maßeinheiten
  • mm
Alias
UMLS CUI [1,1]
C0242485
UMLS CUI [1,2]
C2024242
UMLS CUI [1,3]
C0205093
mm
Arrhythmogenic right ventricular cardiomyopathy
Beschreibung

Arrhythmogenic right ventricular cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1]
C0349788
Positive biopsy for plakoglobin
Beschreibung

Positive biopsy for plakoglobin

Datentyp

text

Alias
UMLS CUI [1,1]
C0005558
UMLS CUI [1,2]
C1514241
UMLS CUI [1,3]
C0137209
Myocarditis
Beschreibung

Myocarditis

Datentyp

text

Alias
UMLS CUI [1]
C0027059
Viral myocarditis
Beschreibung

Viral myocarditis

Datentyp

text

Alias
UMLS CUI [1]
C0276138
Autoimmune myocarditis
Beschreibung

Autoimmune myocarditis

Datentyp

text

Alias
UMLS CUI [1]
C1608389
Toxic myocarditis
Beschreibung

Toxic myocarditis

Datentyp

text

Alias
UMLS CUI [1]
C0155691
Other
Beschreibung

Other myocarditis

Datentyp

text

Alias
UMLS CUI [1,1]
C0027059
UMLS CUI [1,2]
C0205394
Other
Beschreibung

Specify other myocarditis

Datentyp

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0027059
UMLS CUI [1,3]
C0205394
Toxic cardiomyopathy
Beschreibung

Toxic cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1,1]
C0878544
UMLS CUI [1,2]
C1407029
Alcohol-induced
Beschreibung

Alcohol-induced cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1]
C0007192
Status post chemotherapy
Beschreibung

Toxic cardiomyopathy: Status post chemotherapy

Datentyp

text

Alias
UMLS CUI [1,1]
C0392920
UMLS CUI [1,2]
C0231290
UMLS CUI [2,1]
C0878544
UMLS CUI [2,2]
C1407029
Diagnosis
Beschreibung

Diagnosis certainty

Datentyp

text

Alias
UMLS CUI [1]
C0332146
Family history
Beschreibung

Family history of cardiomyopathy

Datentyp

text

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C0878544
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Ähnliche Modelle

Cardiomyopathy Diagnostics

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
General Diagnostic Information
C1508263 (UMLS CUI-1)
C0430022 (UMLS CUI-2)
Item
Were cardiomyopathy diagnostics collected
text
C0430022 (UMLS CUI [1,1])
C0878544 (UMLS CUI [1,2])
C0884358 (UMLS CUI [1,3])
Cardiomyopathy diagnostics collected
Code List
Were cardiomyopathy diagnostics collected
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Quality level
integer
C0332306 (UMLS CUI [1,1])
C0430022 (UMLS CUI [1,2])
C0878544 (UMLS CUI [1,3])
6MWT quality
Code List
Quality level
CL Item
Level 1: The examination is performed in accordance with the guidelines of the medical associations. (1)
CL Item
Level 2: The examination is performed in accordance with the specifications of the DZHK SOP. Minimum requirements to ensure the quality of the implementation and the examiners are defined in the SOP. (2)
CL Item
Level 3: The examination is performed in accordance with the specifications of the DZHK SOP and certification of the examiners: Definition of intr-observer and interobserver-variability (standard of epidemiological studies). (3)
Item Group
Cardiomyopathy Diagnostics
C0430022 (UMLS CUI-1)
C0878544 (UMLS CUI-2)
Item
Dilated cardiomyopathy
text
C0007193 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Dilated cardiomyopathy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
If "yes"
text
C0007193 (UMLS CUI [1,1])
C1314792 (UMLS CUI [1,2])
Dilated cardiomyopathy etiology
Code List
If "yes"
CL Item
hereditary (hereditary)
CL Item
inflammatory (inflammatory)
CL Item
toxic (toxic)
CL Item
other (other)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify dilated cardiomyopathy
Item
Please specify
text
C0007193 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Left ventricular non-compaction cardiomyopathy
Item
Left ventricular non-compaction cardiomyopathy
text
C4021133 (UMLS CUI [1])
Item
Hypertrophic cardiomyopathy
text
C0007194 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Hypertrophic cardiomyopathy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Hypertrophic cardiomyopathy
text
C0007194 (UMLS CUI [1,1])
C0028778 (UMLS CUI [1,2])
Hypertrophic cardiomyopathy subtype
Code List
Hypertrophic cardiomyopathy
CL Item
non-obstructive (non-obstructive)
CL Item
obstructive (obstructive)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Hypertrophic cardiomyopathy
text
C0007194 (UMLS CUI [1,1])
C0019266 (UMLS CUI [1,2])
Hypertrophic cardiomyopathy heredity
Code List
Hypertrophic cardiomyopathy
CL Item
hereditary (hereditary)
CL Item
non-familial (non-familial)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive pressure gradient at rest (echocardiography)
text
C0013516 (UMLS CUI [1])
C0443144 (UMLS CUI [2,1])
C0428898 (UMLS CUI [2,2])
C1446409 (UMLS CUI [2,3])
Cardiomyopathy diagnostics collected
Code List
Positive pressure gradient at rest (echocardiography)
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Positive pressure gradient at rest (echocardiography)
Item
Positive pressure gradient at rest (echocardiography)
integer
C0013516 (UMLS CUI [1])
C0443144 (UMLS CUI [2,1])
C0428898 (UMLS CUI [2,2])
C1446409 (UMLS CUI [2,3])
Item
Positive pressure gradient on exertion (stress echocardiography)
text
C0920208 (UMLS CUI [1])
C0428898 (UMLS CUI [2,1])
C1446409 (UMLS CUI [2,2])
C0015264 (UMLS CUI [2,3])
Cardiomyopathy diagnostics collected
Code List
Positive pressure gradient on exertion (stress echocardiography)
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Positive pressure gradient on exertion (stress echocardiography)
Item
Positive pressure gradient on exertion (stress echocardiography)
integer
C0920208 (UMLS CUI [1])
C0428898 (UMLS CUI [2,1])
C1446409 (UMLS CUI [2,2])
C0015264 (UMLS CUI [2,3])
Item
Wall thickness measured by
text
C2024242 (UMLS CUI [1,1])
C0025663 (UMLS CUI [1,2])
Wall thickness measurement method
Code List
Wall thickness measured by
CL Item
MRT (MRT)
CL Item
Echocardiography (Echocardiography)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Septum
text
C1301886 (UMLS CUI [1,1])
C0018819 (UMLS CUI [1,2])
Cardiomyopathy diagnostics collected
Code List
Septum
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Septum thickness measurement
Item
Septum
integer
C1301886 (UMLS CUI [1,1])
C0018819 (UMLS CUI [1,2])
C0242485 (UMLS CUI [1,3])
Item
Lateral
text
C2024242 (UMLS CUI [1,1])
C0205093 (UMLS CUI [1,2])
Cardiomyopathy diagnostics collected
Code List
Lateral
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Lateral wall thickness measurement
Item
Lateral
integer
C0242485 (UMLS CUI [1,1])
C2024242 (UMLS CUI [1,2])
C0205093 (UMLS CUI [1,3])
Item
Arrhythmogenic right ventricular cardiomyopathy
text
C0349788 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Arrhythmogenic right ventricular cardiomyopathy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive biopsy for plakoglobin
text
C0005558 (UMLS CUI [1,1])
C1514241 (UMLS CUI [1,2])
C0137209 (UMLS CUI [1,3])
Cardiomyopathy diagnostics collected
Code List
Positive biopsy for plakoglobin
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Myocarditis
text
C0027059 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Myocarditis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Viral myocarditis
text
C0276138 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Viral myocarditis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Autoimmune myocarditis
text
C1608389 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Autoimmune myocarditis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Toxic myocarditis
text
C0155691 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Toxic myocarditis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other
text
C0027059 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Cardiomyopathy diagnostics collected
Code List
Other
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify other myocarditis
Item
Other
text
C1521902 (UMLS CUI [1,1])
C0027059 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
Toxic cardiomyopathy
text
C0878544 (UMLS CUI [1,1])
C1407029 (UMLS CUI [1,2])
Cardiomyopathy diagnostics collected
Code List
Toxic cardiomyopathy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Alcohol-induced
text
C0007192 (UMLS CUI [1])
Cardiomyopathy diagnostics collected
Code List
Alcohol-induced
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Status post chemotherapy
text
C0392920 (UMLS CUI [1,1])
C0231290 (UMLS CUI [1,2])
C0878544 (UMLS CUI [2,1])
C1407029 (UMLS CUI [2,2])
Cardiomyopathy diagnostics collected
Code List
Status post chemotherapy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Diagnosis
text
C0332146 (UMLS CUI [1])
Diagnosis certainty
Code List
Diagnosis
CL Item
assured (assured)
CL Item
probable (probable)
CL Item
possible (possible)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Family history
text
C0241889 (UMLS CUI [1,1])
C0878544 (UMLS CUI [1,2])
Family history
Code List
Family history
CL Item
assured familial clustering (assured familial clustering)
CL Item
assumed familial clustering (assumed familial clustering)
CL Item
not familial clustering (not familial clustering)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
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