ID
38360
Descrição
ICHOM Congenital Upper Limb Anomalies data collection Version 1.0.0 August 31st, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Congenital Upper Limb Anomalies, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Congenital Hand Anomaly | Congenital Upper Limb Anomaly | Apert | Cleft Hand | Constriction Ring | Polydactyly | Radial Ray Deficiency | Symbrachydactyly | Thumb Hypoplasia | Ulnar Dysplasia | Ulnar Ray Deficiency Treatment approaches: Surgery | Rehabilitation | Other This document contains the Follow-up 6 years - Patient Form. It has to be filled in 6 years after Patient's entry into set. If the patient is unable to respond to the questionnaires, please let the parent fill in the parent reported follow-up form instead. Collecting Patient-Reported Outcome Measures: Joint Mobility Questions. There are no licensing requirements to use these questions. PROMIS Upper Extremity, Global Health, Peer relationships, Anxiety, Depression. As there is an official distribution site, these questionnaires will not be included in this version of the standard set. For more information see: http://www.healthmeasures.net/exploremeasurement-systems/promis/obtain-administer-measures Goniometry, Dynamometry for Clinician. Follow the clinical assessment recommendations of the American Dynamometry - Clinician Society of Hand Therapists. Manual Muscle Strength Testing – Clinician. Use the Medical Research Council MMST grading. Oberg-Manske-Tonkin Classification. For more information see: Oberg KC, Feenstra JM, Manske PR, et al. Developmental biology and classification of congenital anomalies of the hand and upper extremity. J Hand Surg Am. 2010;35:2066. The Standard set of ICHOM was supported by the Great Ormond Stres Hospital, the Boston Children’s Hospital, the Erasmus MC, the Royal North Shore Hospital, the Texas Scottish Rite Hospital and the Loma Linda University.
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Versões (4)
- 12/10/2019 12/10/2019 -
- 16/10/2019 16/10/2019 -
- 23/10/2019 23/10/2019 - Sarah Riepenhausen
- 30/04/2020 30/04/2020 - Sarah Riepenhausen
Titular dos direitos
ICHOM
Transferido a
12 de outubro de 2019
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Creative Commons BY-NC 3.0
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38322_ICHOM Congenital Upper Limb Anomalies
Follow-up 6 years - Patient Form
- StudyEvent: ODM
Descrição
Degree of Health
Alias
- UMLS CUI-1
- C0018759
Descrição
As there is an official distribution site, the actual 8 questions of this questionnaire are not included in this version of the standard set. The ICHOM OIDs are: PROMIS-UE_Q01 to PROMIS-UE_Q08. Supporting Definition: Please contact license holder for the questionnaire. If you wish to participate in the ICHOM benchmarking program and have secured a licence to use the tool, ICHOM will provide you with the technical specifications on how to collect the data. Inclusion Criteria: Age 6-18 Timing: 6Y, 8Y, 12Y, 15Y, EOC Data Source: Patient-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C3693645
- UMLS CUI [1,2]
- C1140618
- UMLS CUI [1,3]
- C0030755
- UMLS CUI [1,4]
- C0516981
- UMLS CUI [1,5]
- C2964552
Descrição
Inclusion Criteria: Age 6-18 Timing: 6Y, 8Y, 12Y, 15Y, EOC Data Source: Patient-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0036594
- UMLS CUI [1,2]
- C0282416
- UMLS CUI [1,3]
- C2603369
- UMLS CUI [1,4]
- C0018563
Descrição
Inclusion Criteria: Age 6-18 Timing: 6Y, 8Y, 12Y, 15Y, EOC Data Source: Patient-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1]
- C0033963
- UMLS CUI [2,1]
- C0037427
- UMLS CUI [2,2]
- C0018563
- UMLS CUI [2,3]
- C0700364
Descrição
Inclusion Criteria: Age 6-18 Timing: 6Y, 8Y, 12Y, 15Y, EOC Data Source: Patient-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0036594
- UMLS CUI [1,2]
- C2986411
- UMLS CUI [1,3]
- C0018563
- UMLS CUI [1,4]
- C0700364
Descrição
Inclusion Criteria: Age 6-18 Timing: 6Y, 8Y, 12Y, 15Y, EOC Data Source: Patient-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0036594
- UMLS CUI [1,2]
- C0018563
- UMLS CUI [1,3]
- C0700364
- UMLS CUI [1,4]
- C0332514
Descrição
Inclusion Criteria: Age 6-18 Timing: 6Y, 8Y, 12Y, 15Y, EOC Data Source: Patient-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C0184661
- UMLS CUI [1,2]
- C0392760
- UMLS CUI [1,3]
- C0018563
- UMLS CUI [1,4]
- C0700364
Descrição
As there is an official distribution site, the actual 7 questions of this questionnaire are not included in this version of the standard set. The ICHOM OIDs are: PROMIS-CPGH7_Q01 to PROMIS-CPGH7_Q07. Supporting Definition: Please contact license holder for the questionnaire. If you wish to participate in the ICHOM benchmarking program and have secured a licence to use the tool, ICHOM will provide you with the technical specifications on how to collect the data. Inclusion Criteria: Age 6-18 Timing: 6Y, 8Y, 12Y, 15Y, EOC Data Source: Patient-reported Type: Single answer
Tipo de dados
integer
Alias
- UMLS CUI [1,1]
- C3836333
- UMLS CUI [1,2]
- C0030755
- UMLS CUI [1,3]
- C2964552
Similar models
Follow-up 6 years - Patient Form
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C1140618 (UMLS CUI [1,2])
C0030755 (UMLS CUI [1,3])
C0516981 (UMLS CUI [1,4])
C2964552 (UMLS CUI [1,5])
C0282416 (UMLS CUI [1,2])
C2603369 (UMLS CUI [1,3])
C0018563 (UMLS CUI [1,4])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C0037427 (UMLS CUI [2,1])
C0018563 (UMLS CUI [2,2])
C0700364 (UMLS CUI [2,3])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C2986411 (UMLS CUI [1,2])
C0018563 (UMLS CUI [1,3])
C0700364 (UMLS CUI [1,4])
(Comment:en)
(Comment:en)
(Comment:en)
C0018563 (UMLS CUI [1,2])
C0700364 (UMLS CUI [1,3])
C0332514 (UMLS CUI [1,4])
(Comment:en)
(Comment:en)
(Comment:en)
C0392760 (UMLS CUI [1,2])
C0018563 (UMLS CUI [1,3])
C0700364 (UMLS CUI [1,4])
(Comment:en)
(Comment:en)
(Comment:en)
C0030755 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])