ID
37741
Beschrijving
ICHOM Atrial Fibrillation data collection Version 1.0.0 Published: 3rd April 2019 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ The following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Atrial Fibrillation Population: An adult (≥ 18 years) diagnosed with atrial fibrillation (including symptomatic patients) Treatment approaches: Management of cardiovascular risk factors and institution of preventive therapy | Pharmacological management| Non-Pharmacological management Excluded populations: Children and Young persons below 18 years Excluded conditions: Patients diagnosed with cardiotoxic acute atrial fibrillation This document contains the Baseline - Patient-reported Form. It has to be filled in at index event. Collecting Patient-Reported Outcome Measure: PROMIS Global Health. As there is an official distribution site, the questions of this questionnaire will not be included in this version of the standard set. For more information see: https://bit.ly/29aOZu9 Montreal Cognitive Assessment Test. For more information see: https://www.mocatest.org/ The Standard set of ICHOM was supported by the BigData@Heart organization.
Link
Trefwoorden
Versies (3)
- 21-08-19 21-08-19 -
- 26-08-19 26-08-19 - Sarah Riepenhausen
- 30-04-20 30-04-20 - Sarah Riepenhausen
Houder van rechten
ICHOM
Geüploaded op
21 augustus 2019
DOI
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Licentie
Creative Commons BY-NC 3.0
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ICHOM Atrial Fibrillation
Baseline - Patient-reported
- StudyEvent: ODM
Beschrijving
Demographic Factors
Alias
- UMLS CUI-1
- C1704791
Beschrijving
Supporting Definition: Recorded as year of birth Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Date by YYYY
Datatype
partialDate
Maateenheden
- YYYY
Alias
- UMLS CUI [1,1]
- C0001779
- UMLS CUI [1,2]
- C0421451
Beschrijving
Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1]
- C0079399
Beschrijving
Supporting Definition: Level of schooling defined in each country according to the International Standard Classification of Education Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
Note: A codelist is not supplemented because it varies by country and should be determined by country (not for cross country comparison). Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer Response Options: Varies by country and should be determined by country
Datatype
text
Alias
- UMLS CUI [1]
- C0015031
Beschrijving
Lifestyle interventions measured at baseline
Alias
- UMLS CUI-1
- C0023676
- UMLS CUI-2
- C1442488
Beschrijving
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1519386
- UMLS CUI [1,2]
- C0683312
Beschrijving
Supporting Definition: Standard drink according to WHO is 10 grams of pure alcohol that is: - A can or bottle of beer (375ml or 12 oz at 3.5% alcohol by volume) - A small glass of red wine (100ml or 3.4 oz at 13% alcohol by volume) - A shot of whiskey or other spirit (30ml or 1.0 oz at 40% alcohol by volume) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0001975
- UMLS CUI [1,2]
- C0560579
Beschrijving
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of days per week
Datatype
integer
Maateenheden
- days per week
Alias
- UMLS CUI [1,1]
- C1513375
- UMLS CUI [1,2]
- C0677547
- UMLS CUI [2,1]
- C1514989
- UMLS CUI [2,2]
- C0677547
Beschrijving
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of minutes per week
Datatype
integer
Maateenheden
- minutes per week
Alias
- UMLS CUI [1,1]
- C1513375
- UMLS CUI [1,2]
- C0556975
- UMLS CUI [2,1]
- C1514989
- UMLS CUI [2,2]
- C0556975
Beschrijving
Complications of treatment
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C0009566
Beschrijving
Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0012833
- UMLS CUI [3]
- C0039070
- UMLS CUI [4]
- C0220870
- UMLS CUI [5]
- C0041657
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0242350
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0002170
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C3843050
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0003467
- UMLS CUI [3]
- C0011581
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0231528
- UMLS CUI [3]
- C0003862
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0013404
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0027497
- UMLS CUI [3]
- C0042963
- UMLS CUI [4]
- C0011991
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2,1]
- C4288071
- UMLS CUI [2,2]
- C0009938
- UMLS CUI [3,1]
- C4288071
- UMLS CUI [3,2]
- C0019080
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2,1]
- C2700116
- UMLS CUI [2,2]
- C3714552
- UMLS CUI [3,1]
- C2700116
- UMLS CUI [3,2]
- C0848717
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C1262477
Beschrijving
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0392325
- UMLS CUI [1,3]
- C0332294
- UMLS CUI [1,4]
- C0457454
- UMLS CUI [1,5]
- C0013227
- UMLS CUI [1,6]
- C0004238
Beschrijving
Note: This item does not exist in the original standard set. Fill in for specification if MEDSE_12 is ticked. Inclusion Criteria: If MEDSE_12 is ticked Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Free text
Datatype
text
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0392325
- UMLS CUI [1,3]
- C0332294
- UMLS CUI [1,4]
- C0457454
- UMLS CUI [1,5]
- C0013227
- UMLS CUI [1,6]
- C0004238
- UMLS CUI [1,7]
- C2348235
Beschrijving
Patient-Reported Outcomes
Alias
- UMLS CUI-1
- C2987124
Beschrijving
As there is an official distribution site for the questionnaire, only the total score is included in this version of the standard set. In the original standard set there are 10 questions. The OID's are: PROMIS-10_Q01 to PROMIS-10_Q10 Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3836333
- UMLS CUI [1,2]
- C2964552
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Baseline - Patient-reported
- StudyEvent: ODM
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C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
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C0012833 (UMLS CUI [2])
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C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C0242350 (UMLS CUI [2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C0002170 (UMLS CUI [2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C3843050 (UMLS CUI [2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C0003467 (UMLS CUI [2])
C0011581 (UMLS CUI [3])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C0231528 (UMLS CUI [2])
C0003862 (UMLS CUI [3])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C0013404 (UMLS CUI [2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C0027497 (UMLS CUI [2])
C0042963 (UMLS CUI [3])
C0011991 (UMLS CUI [4])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C4288071 (UMLS CUI [2,1])
C0009938 (UMLS CUI [2,2])
C4288071 (UMLS CUI [3,1])
C0019080 (UMLS CUI [3,2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C2700116 (UMLS CUI [2,1])
C3714552 (UMLS CUI [2,2])
C2700116 (UMLS CUI [3,1])
C0848717 (UMLS CUI [3,2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C1262477 (UMLS CUI [2])
C0392325 (UMLS CUI [1,2])
C0332294 (UMLS CUI [1,3])
C0457454 (UMLS CUI [1,4])
C0013227 (UMLS CUI [1,5])
C0004238 (UMLS CUI [1,6])
C0392325 (UMLS CUI [1,2])
C0332294 (UMLS CUI [1,3])
C0457454 (UMLS CUI [1,4])
C0013227 (UMLS CUI [1,5])
C0004238 (UMLS CUI [1,6])
C2348235 (UMLS CUI [1,7])
C2964552 (UMLS CUI [1,2])