ID
37741
Description
ICHOM Atrial Fibrillation data collection Version 1.0.0 Published: 3rd April 2019 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ The following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Atrial Fibrillation Population: An adult (≥ 18 years) diagnosed with atrial fibrillation (including symptomatic patients) Treatment approaches: Management of cardiovascular risk factors and institution of preventive therapy | Pharmacological management| Non-Pharmacological management Excluded populations: Children and Young persons below 18 years Excluded conditions: Patients diagnosed with cardiotoxic acute atrial fibrillation This document contains the Baseline - Patient-reported Form. It has to be filled in at index event. Collecting Patient-Reported Outcome Measure: PROMIS Global Health. As there is an official distribution site, the questions of this questionnaire will not be included in this version of the standard set. For more information see: https://bit.ly/29aOZu9 Montreal Cognitive Assessment Test. For more information see: https://www.mocatest.org/ The Standard set of ICHOM was supported by the BigData@Heart organization.
Link
Keywords
Versions (3)
- 8/21/19 8/21/19 -
- 8/26/19 8/26/19 - Sarah Riepenhausen
- 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder
ICHOM
Uploaded on
August 21, 2019
DOI
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License
Creative Commons BY-NC 3.0
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ICHOM Atrial Fibrillation
Baseline - Patient-reported
- StudyEvent: ODM
Description
Demographic Factors
Alias
- UMLS CUI-1
- C1704791
Description
Supporting Definition: Recorded as year of birth Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Date by YYYY
Data type
partialDate
Measurement units
- YYYY
Alias
- UMLS CUI [1,1]
- C0001779
- UMLS CUI [1,2]
- C0421451
Description
Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1]
- C0079399
Description
Supporting Definition: Level of schooling defined in each country according to the International Standard Classification of Education Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1]
- C0013658
Description
Note: A codelist is not supplemented because it varies by country and should be determined by country (not for cross country comparison). Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer Response Options: Varies by country and should be determined by country
Data type
text
Alias
- UMLS CUI [1]
- C0015031
Description
Lifestyle interventions measured at baseline
Alias
- UMLS CUI-1
- C0023676
- UMLS CUI-2
- C1442488
Description
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C1519386
- UMLS CUI [1,2]
- C0683312
Description
Supporting Definition: Standard drink according to WHO is 10 grams of pure alcohol that is: - A can or bottle of beer (375ml or 12 oz at 3.5% alcohol by volume) - A small glass of red wine (100ml or 3.4 oz at 13% alcohol by volume) - A shot of whiskey or other spirit (30ml or 1.0 oz at 40% alcohol by volume) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0001975
- UMLS CUI [1,2]
- C0560579
Description
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of days per week
Data type
integer
Measurement units
- days per week
Alias
- UMLS CUI [1,1]
- C1513375
- UMLS CUI [1,2]
- C0677547
- UMLS CUI [2,1]
- C1514989
- UMLS CUI [2,2]
- C0677547
Description
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of minutes per week
Data type
integer
Measurement units
- minutes per week
Alias
- UMLS CUI [1,1]
- C1513375
- UMLS CUI [1,2]
- C0556975
- UMLS CUI [2,1]
- C1514989
- UMLS CUI [2,2]
- C0556975
Description
Complications of treatment
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C0009566
Description
Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0012833
- UMLS CUI [3]
- C0039070
- UMLS CUI [4]
- C0220870
- UMLS CUI [5]
- C0041657
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0242350
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0002170
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C3843050
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0003467
- UMLS CUI [3]
- C0011581
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0231528
- UMLS CUI [3]
- C0003862
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0013404
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C0027497
- UMLS CUI [3]
- C0042963
- UMLS CUI [4]
- C0011991
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2,1]
- C4288071
- UMLS CUI [2,2]
- C0009938
- UMLS CUI [3,1]
- C4288071
- UMLS CUI [3,2]
- C0019080
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2,1]
- C2700116
- UMLS CUI [2,2]
- C3714552
- UMLS CUI [3,1]
- C2700116
- UMLS CUI [3,2]
- C0848717
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0392325
- UMLS CUI [1,2]
- C0332294
- UMLS CUI [1,3]
- C0457454
- UMLS CUI [1,4]
- C0013227
- UMLS CUI [1,5]
- C0004238
- UMLS CUI [2]
- C1262477
Description
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0392325
- UMLS CUI [1,3]
- C0332294
- UMLS CUI [1,4]
- C0457454
- UMLS CUI [1,5]
- C0013227
- UMLS CUI [1,6]
- C0004238
Description
Note: This item does not exist in the original standard set. Fill in for specification if MEDSE_12 is ticked. Inclusion Criteria: If MEDSE_12 is ticked Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Free text
Data type
text
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0392325
- UMLS CUI [1,3]
- C0332294
- UMLS CUI [1,4]
- C0457454
- UMLS CUI [1,5]
- C0013227
- UMLS CUI [1,6]
- C0004238
- UMLS CUI [1,7]
- C2348235
Description
Patient-Reported Outcomes
Alias
- UMLS CUI-1
- C2987124
Description
As there is an official distribution site for the questionnaire, only the total score is included in this version of the standard set. In the original standard set there are 10 questions. The OID's are: PROMIS-10_Q01 to PROMIS-10_Q10 Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C3836333
- UMLS CUI [1,2]
- C2964552
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- StudyEvent: ODM
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C0457454 (UMLS CUI [1,3])
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C0004238 (UMLS CUI [1,5])
C0231528 (UMLS CUI [2])
C0003862 (UMLS CUI [3])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
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C0332294 (UMLS CUI [1,2])
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C0042963 (UMLS CUI [3])
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C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C4288071 (UMLS CUI [2,1])
C0009938 (UMLS CUI [2,2])
C4288071 (UMLS CUI [3,1])
C0019080 (UMLS CUI [3,2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C2700116 (UMLS CUI [2,1])
C3714552 (UMLS CUI [2,2])
C2700116 (UMLS CUI [3,1])
C0848717 (UMLS CUI [3,2])
C0332294 (UMLS CUI [1,2])
C0457454 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
C0004238 (UMLS CUI [1,5])
C1262477 (UMLS CUI [2])
C0392325 (UMLS CUI [1,2])
C0332294 (UMLS CUI [1,3])
C0457454 (UMLS CUI [1,4])
C0013227 (UMLS CUI [1,5])
C0004238 (UMLS CUI [1,6])
C0392325 (UMLS CUI [1,2])
C0332294 (UMLS CUI [1,3])
C0457454 (UMLS CUI [1,4])
C0013227 (UMLS CUI [1,5])
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