ID
37724
Beskrivning
ICHOM Paediatric Facial Palsy data collection Version 1.0.0 Revised: August 31st, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Paediatric Facial Palsy, the following conditions and treatment approaches (or interventions) are covered by ICHOM‘s Standard Set. Conditions: Congenital/Syndromic | Acquired Unilateral (single- and multi-territory) | Bilateral (single- and multi-territory) Treatment approaches: Medical treatment | Surgery | Eye care Physiotherapy/Occupational therapy | Botulinum toxin | Psychological support This document contains the Pre-Intervention - Clinical Form. It has to be filled in prior to any new treatment (any invasive or non-invasive). Valid for 6 months if multiple interventions started within this period Collecting Patient-Reported Outcome Measure: eFACE – Clinician. For more information see: Banks CA, Bhama PK, Park J, Hadlock CR, Hadlock TA. Clinician-Graded Electronic Facial Paralysis Assessment: The eFACE, August 2015. doi: 10.1097/PRS.0000000000001447 FACE-Q Kids. As there is a license for use of this questionnaire, the questions will not be included in this version of the standard set, only subscores. Snellen Chart – Clinician. PROMIS Paediatric Global Health 7 and PROMIS Pediatric Peer Relationships SF 8a. As there is an official distribution site, only the total score of these questionnaires will be included in this version of the standard set. For more information see: http://www. healthmeasures.net/explore-measurement-systems/promis/ obtain-administer-measures Reference: Butler DP, De la Torre A, Borschel GH, et al. An International Collaborative Standardizing Patient-Centered Outcome Measures in Pediatric Facial Palsy. JAMA Facial Plast Surg. Published online May 09, 2019. doi:10.1001/jamafacial.2019.0224 The Standard set of ICHOM was supported by the royal free charity and the Dianne and Michael Bienes Charitable Foundation Inc.
Länk
Nyckelord
Versioner (3)
- 2019-08-20 2019-08-20 -
- 2019-08-28 2019-08-28 -
- 2020-04-30 2020-04-30 - Sarah Riepenhausen
Rättsinnehavare
ICHOM
Uppladdad den
20 augusti 2019
DOI
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Creative Commons BY-NC 3.0
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ICHOM Paediatric Facial Palsy
Pre-Intervention - Clinical Form
- StudyEvent: ODM
Beskrivning
Patient Demographic Factors
Alias
- UMLS CUI-1
- C1704791
Beskrivning
Inclusion Criteria: All patients Timing: On all forms Data Source: Clinical, parent-reported, or patient-reported Type: Single answer Response Options: Years and fractions
Datatyp
integer
Alias
- UMLS CUI [1]
- C0001779
Beskrivning
Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative data Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C1548070
Beskrivning
Clinical Status
Alias
- UMLS CUI-1
- C0449440
Beskrivning
Inclusion Criteria: All patients Timing: On all forms Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0009488
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C1298908
- UMLS CUI [2,2]
- C2359476
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2]
- C3277906
- UMLS CUI [3,1]
- C0232164
- UMLS CUI [3,2]
- C1704258
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C0042066
- UMLS CUI [2,2]
- C1704258
- UMLS CUI [3,1]
- C0042066
- UMLS CUI [3,2]
- C3887504
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2]
- C0424605
- UMLS CUI [3]
- C0851265
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2]
- C0004936
- UMLS CUI [3]
- C0004930
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2]
- C0009450
- UMLS CUI [3,1]
- C0040549
- UMLS CUI [3,2]
- C0012634
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C0521362
- UMLS CUI [2,2]
- C1704258
- UMLS CUI [3,1]
- C0521362
- UMLS CUI [3,2]
- C3887504
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C0026860
- UMLS CUI [2,2]
- C3887504
- UMLS CUI [3,1]
- C0026860
- UMLS CUI [3,2]
- C1704258
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C0205394
- UMLS CUI [2,2]
- C0037303
- UMLS CUI [2,3]
- C0024947
- UMLS CUI [2,4]
- C1704258
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C2709248
- UMLS CUI [2,2]
- C1704258
- UMLS CUI [3]
- C1709770
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C0279810
- UMLS CUI [2,2]
- C1704258
- UMLS CUI [3,1]
- C0279810
- UMLS CUI [3,2]
- C3887504
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C0205470
- UMLS CUI [2,2]
- C1704258
- UMLS CUI [3,1]
- C0205470
- UMLS CUI [3,2]
- C3887504
Beskrivning
Inclusion Criteria: If "1 = Yes" to COMORB Timing: On all forms Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1521725
- UMLS CUI [1,2]
- C0009488
- UMLS CUI [2,1]
- C0027853
- UMLS CUI [2,2]
- C1704258
- UMLS CUI [3,1]
- C0027853
- UMLS CUI [3,2]
- C3887504
Beskrivning
Other
Alias
- UMLS CUI-1
- C0205394
Beskrivning
Inclusion Criteria: All patients Timing: Pre-Intervention, 5 and 11 ages Follow-up Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1302313
- UMLS CUI [1,2]
- C1518988
Beskrivning
Treatment
Alias
- UMLS CUI-1
- C0087111
Beskrivning
Inclusion Criteria: All patients Timing: Pre-Intervention Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0184661
- UMLS CUI [1,2]
- C0332307
- UMLS CUI [2,1]
- C0199171
- UMLS CUI [2,2]
- C1515119
- UMLS CUI [3,1]
- C0038317
- UMLS CUI [3,2]
- C1527415
- UMLS CUI [4,1]
- C0003451
- UMLS CUI [4,2]
- C1527415
Beskrivning
Inclusion Criteria: All patients Timing: Pre-Intervention Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0184661
- UMLS CUI [1,2]
- C0332307
- UMLS CUI [2,1]
- C2363849
- UMLS CUI [2,2]
- C0412787
- UMLS CUI [3,1]
- C0015392
- UMLS CUI [3,2]
- C0343138
- UMLS CUI [4]
- C0717951
Beskrivning
Inclusion Criteria: All patients Timing: Pre-Intervention Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0184661
- UMLS CUI [1,2]
- C0332307
- UMLS CUI [2,1]
- C0015450
- UMLS CUI [2,2]
- C0034991
Beskrivning
Inclusion Criteria: All patients Timing: Pre-Intervention Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0184661
- UMLS CUI [1,2]
- C0332307
- UMLS CUI [2]
- C0841584
- UMLS CUI [3]
- C1318464
Beskrivning
Inclusion Criteria: All patients Timing: Pre-Intervention Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0184661
- UMLS CUI [1,2]
- C0332307
- UMLS CUI [2]
- C0543467
Beskrivning
Inclusion Criteria: All patients Timing: Pre-Intervention Data Source: Clinician Type: Multiple answer Separate multiple entries with ";"
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0184661
- UMLS CUI [1,2]
- C0332307
- UMLS CUI [2]
- C0006055
Beskrivning
Inclusion Criteria: If "INTERVENTION_6" is ticked Timing: Ongoing Data Source: Clinician Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0332307
- UMLS CUI [1,2]
- C0549433
- UMLS CUI [1,3]
- C0015469
Beskrivning
Inclusion Criteria: All patients Timing: Ongoing Data Source: Clinician Type: Date by DD/MM/YYYY Response Options: DD/MM/YYYY
Datatyp
date
Måttenheter
- DD/MM/YYYY
Alias
- UMLS CUI [1]
- C2584899
Beskrivning
Degree of Health
Alias
- UMLS CUI-1
- C0018759
Beskrivning
Supporting Definition: PROMs refer to patient-, parent- or proxy-reported tools Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C4038447
Beskrivning
Supporting Definition: Based on eFACE Inclusion Criteria: Age >3y Timing: On all forms Data Source: Clinician/Administrative data Type: Numerical value Response Options: Numerical
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C3846158
- UMLS CUI [1,2]
- C0449820
- UMLS CUI [1,3]
- C0439793
- UMLS CUI [1,4]
- C0015469
- UMLS CUI [2]
- C0517048
Similar models
Pre-Intervention - Clinical Form
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C0009488 (UMLS CUI [1,2])
C1298908 (UMLS CUI [2,1])
C2359476 (UMLS CUI [2,2])
C0009488 (UMLS CUI [1,2])
C3277906 (UMLS CUI [2])
C0232164 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
C0009488 (UMLS CUI [1,2])
C0042066 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0042066 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
C0009488 (UMLS CUI [1,2])
C0424605 (UMLS CUI [2])
C0851265 (UMLS CUI [3])
C0009488 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2])
C0004930 (UMLS CUI [3])
C0009488 (UMLS CUI [1,2])
C0009450 (UMLS CUI [2])
C0040549 (UMLS CUI [3,1])
C0012634 (UMLS CUI [3,2])
C0009488 (UMLS CUI [1,2])
C0521362 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0521362 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
C0009488 (UMLS CUI [1,2])
C0026860 (UMLS CUI [2,1])
C3887504 (UMLS CUI [2,2])
C0026860 (UMLS CUI [3,1])
C1704258 (UMLS CUI [3,2])
C0009488 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C0037303 (UMLS CUI [2,2])
C0024947 (UMLS CUI [2,3])
C1704258 (UMLS CUI [2,4])
C0009488 (UMLS CUI [1,2])
C2709248 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C1709770 (UMLS CUI [3])
C0009488 (UMLS CUI [1,2])
C0279810 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0279810 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
C0009488 (UMLS CUI [1,2])
C0205470 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0205470 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
C0009488 (UMLS CUI [1,2])
C0027853 (UMLS CUI [2,1])
C1704258 (UMLS CUI [2,2])
C0027853 (UMLS CUI [3,1])
C3887504 (UMLS CUI [3,2])
C1518988 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
(Comment:en)
C0332307 (UMLS CUI [1,2])
C0199171 (UMLS CUI [2,1])
C1515119 (UMLS CUI [2,2])
C0038317 (UMLS CUI [3,1])
C1527415 (UMLS CUI [3,2])
C0003451 (UMLS CUI [4,1])
C1527415 (UMLS CUI [4,2])
C0332307 (UMLS CUI [1,2])
C2363849 (UMLS CUI [2,1])
C0412787 (UMLS CUI [2,2])
C0015392 (UMLS CUI [3,1])
C0343138 (UMLS CUI [3,2])
C0717951 (UMLS CUI [4])
C0332307 (UMLS CUI [1,2])
C0015450 (UMLS CUI [2,1])
C0034991 (UMLS CUI [2,2])
C0332307 (UMLS CUI [1,2])
C0841584 (UMLS CUI [2])
C1318464 (UMLS CUI [3])
C0332307 (UMLS CUI [1,2])
C0543467 (UMLS CUI [2])
C0332307 (UMLS CUI [1,2])
C0006055 (UMLS CUI [2])
C0549433 (UMLS CUI [1,2])
C0015469 (UMLS CUI [1,3])
C0087111 (UMLS CUI-2)
C1298908 (UMLS CUI-3)
C1996904 (UMLS CUI-4)
C0205245 (UMLS CUI-5)
C0026845 (UMLS CUI-6)
C1705822 (UMLS CUI-7)
(Comment:en)
C0230064 (UMLS CUI-2)
C0441463 (UMLS CUI-3)
C0087111 (UMLS CUI-4)
(Comment:en)
C0230064 (UMLS CUI-2)
C0026845 (UMLS CUI-3)
C1705822 (UMLS CUI-4)
(Comment:en)
C0205245 (UMLS CUI-2)
C0026845 (UMLS CUI-3)
C1705822 (UMLS CUI-4)
(Comment:en)
C0196775 (UMLS CUI-2)
(Comment:en)
C0702123 (UMLS CUI-2)
(Comment:en)
C0702123 (UMLS CUI-2)
(Comment:en)
C0015450 (UMLS CUI-2)
C0702123 (UMLS CUI-3)
(Comment:en)
(Comment:en)
(Comment:en)
C0600420 (UMLS CUI-2)
(Comment:en)
C0449820 (UMLS CUI [1,2])
C0439793 (UMLS CUI [1,3])
C0015469 (UMLS CUI [1,4])
C0517048 (UMLS CUI [2])