ID

37466

Description

ICHOM Macular Degeneration data collection Version 3.0.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Macular Degeneration, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Neovascular Macular Degeneration Neovascular Age Related Macular Degeneration | Polypoidal Choroidal Vasculopathy | Myopic Neovascular Macular Degeneration | Other Forms of Neovascular Macular Degeneration (includes Post-Traumatic, Inflammatory, Idiopathic, Macular Telangiectasia Type 2) Non-Neovascular Age Related Macular Degeneration Treatment approaches: Intravitreal anti-VEGF treatment | Other intravitreal treatment | Photodynamic therapy | Thermal laser photocoagulation | Retinal radiation therapy | Transpupillary thermotherapy | Retinal surgical treatment This document contains the Baseline - Clinical Form. It has to be filled in at Patient's entrance into outcome tracking system for Macular Degeneration. Collecting Patient-Reported Outcome Measure: Brief Impact of Vision Impairment Questionnaire (Brief IVI): The Brief IVI includes costs for commercial use, and requires an agreement license. Therefore this questionnaire is not included in this Version of the standard set. Reference: Rodrigues IA, Sprinkhuizen SM, Barthelmes D, et al. Defining a Minimum Set of Standardized Patient-centered Outcome Measures for Macular Degeneration. American Journal of Opthalmology. 2016;168:1–12. doi: 10.1016/j.ajo.2016.04.012 The Standard set of ICHOM was supported by the WillsEye Hospital (America’s First World’s Best), Retina Suisse, St. Erik Eye Hospital, Macular Society, The Retina Society, Save sight Institute and The Macula Foundation (Preserving and Restoring Vision).

Link

http://www.ichom.org/

Keywords

  1. 7/30/19 7/30/19 -
  2. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

July 30, 2019

DOI

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License

Creative Commons BY-NC 3.0

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ICHOM Macular Degeneration

Baseline - Clinical Form

Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

SUPPORTING DEFINITION: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical TYPE: Numerical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C2348585
Demographic factors
Description

Demographic factors

Alias
UMLS CUI-1
C1704791
What is Patient's date of birth?
Description

Age in years, calculated from birth date at commencement of therapy INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Clinical or administrative data

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C0421451
DD/MM/YYYY
Please indicate Patient's sex at birth
Description

INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Clinical or administrative data

Data type

integer

Alias
UMLS CUI [1]
C0079399
Baseline Functional Status
Description

Baseline Functional Status

Alias
UMLS CUI-1
C0598463
UMLS CUI-2
C1442488
Indicate the patient's distance visual acuity
Description

SUPPORTING DEFINITION: Distance visual acuity (best of uncorrected, corrected using glasses or contact lenses, or pinhole) in the affected eye INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Clinical RESPONSE OPTIONS: Numerical value preferably reported in LogMAR. Snellen may be used but needs to be converted to LogMAR. Please refer to page 13 of the reference guide for a Snellen to LogMAR conversion table.

Data type

integer

Alias
UMLS CUI [1]
C0429537
Indicate the patient's distance visual acuity in the other (non study) eye
Description

SUPPORTING DEFINITION: Distance visual acuity (best of uncorrected, corrected using glasses or contact lenses, or pinhole) in the fellow eye INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Clinical RESPONSE OPTIONS: Numerical value preferably reported in LogMAR. Snellen may be used but needs to be converted to LogMAR. Please refer to page 13 for a Snellen to LogMAR conversion table.

Data type

integer

Alias
UMLS CUI [1,1]
C0429537
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0015392
Chart type used for distance visual acuity measurement
Description

SUPPORTING DEFINITION: Results preferably reported in LogMAR. Snellen may be used but needs to be converted to LogMAR. INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Clinical

Data type

integer

Alias
UMLS CUI [1]
C1302978
Distance at which distance visual acuity is measured
Description

INCLUSION CRITERIA: ALl patients TIMING: Baseline REPORTING SOURCE: Clinical RESPONSE OPTIONS: Record details of the distance at which visual acuity is measured

Data type

integer

Alias
UMLS CUI [1,1]
C0429537
UMLS CUI [1,2]
C0012751
Baseline clinical status
Description

Baseline clinical status

Alias
UMLS CUI-1
C0449440
UMLS CUI-2
C1442488
Indicate the type of macular degeneration
Description

INCLUSION CRITERIA: ALl patients TIMING: Baseline, Each clinical visit to check for change REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0024437
UMLS CUI [1,2]
C0332307
Indicate the presence of geographic atrophy anywhere in the macular area that is not contiguous with the main lesion
Description

SUPPORTING DEFINITION: Geographic atrophy is defined as an area of hypopigmentation or hyperfluorescence of at least 250 μm in its minimum linear dimension with 2 of the 3 following characteristics: (i) circular shape, (ii) sharp borders, or (iii) visibility of choroidal vessels within the area of geographic atrophy INCLUSION CRITERIA: ALl patients TIMING: Baseline, Each clinical visit to check for change REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1536085
Indicate the presence of subretinal fibrosis
Description

SUPPORTING DEFINITION: Abnormal thickening of the subretinal tissue complex (material between Bruch's membrane and outer retina) anywhere in the macular area INCLUSION CRITERIA: ALl patients TIMING: Baseline, Each clinical visit to check for change REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0423434
Indicate the presence of pigment epithelial detachment
Description

SUPPORTING DEFINITION: Discrete elevations of the retinal pigment epithelium (RPE) anywhere in the macular area with solid (fibrovascular or haemorrhagic PED) or fluid (serous PED) matter below the corresponding retinal pigment epithelium INCLUSION CRITERIA: ALl patients TIMING: Baseline, Each clinical visit to check for change REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0339546
Indicate the type of pigment epithelial detachment
Description

SUPPORTING DEFINITION: Solid (fibrovascular or haemorrhagic) or fluid (Serous) PED below the corresponding retinal pigment epithelium INCLUSION CRITERIA: All patients If answered '1' or '2' on Pigment epithelial detachment (PED) TIMING: Baseline, Each clinical visit to check for change REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0339546
UMLS CUI [1,2]
C0332307
Associated clinical history
Description

Associated clinical history

Alias
UMLS CUI-1
C0262926
UMLS CUI-2
C0332281
Indicate ocular comorbidities 1 = Retinal vascular disease (presence of any retinal vascular disease such as diabetic retinopathy, retinal vein occlusion, retinal artery occlusion)
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1299003
UMLS CUI [1,3]
C0154833
UMLS CUI [2]
C0011884
UMLS CUI [3]
C0035328
UMLS CUI [4]
C0035302
Indicate ocular comorbidities 2 = Other macular pathology (presence of any other macular pathology such as , diabetic macular edema, epiretinal membrane, macular hole, macular dystrophy etc.)
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1299003
UMLS CUI [1,3]
C0730362
UMLS CUI [1,4]
C1518912
UMLS CUI [2]
C0730285
UMLS CUI [3]
C0339543
UMLS CUI [4]
C0024441
UMLS CUI [5]
C0026850
Indicate ocular comorbidities 3 = Glaucoma or other optic neuropathy (confirmed diagnosis of glaucoma or other optic neuropathy has been made)
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1299003
UMLS CUI [2]
C0017601
UMLS CUI [3,1]
C3887709
UMLS CUI [3,2]
C0205394
Indicate ocular comorbidities 4 = Amblyopia (presence of amblyopia)
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1299003
UMLS CUI [2]
C0002418
Indicate ocular comorbidities 5 = Media opacity (presence of media opacity from cataract or corneal pathology etc.)
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1299003
UMLS CUI [2]
C0086543
UMLS CUI [3]
C0010038
Indicate ocular comorbidities 888 = Other
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline, Annually from baseline REPORTING SOURCE: Clinical TYPE: Multiple answers. Separate multiple entries with "";""

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1299003
UMLS CUI [1,3]
C0205394
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 0 = None
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0549184
UMLS CUI [1,2]
C0205156
UMLS CUI [1,3]
C0024437
UMLS CUI [1,4]
C0087111
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 1 = Previous intravitreal anti-VEGF treatment
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2,1]
C1554888
UMLS CUI [2,2]
C3895948
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 2 = Intravitreal steroid
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2]
C1444685
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 3 = Photodynamic therapy
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2]
C0940918
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 4 = Thermal laser photocoagulation
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2]
C0441510
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 5 = Retinal radiation therapy
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2,1]
C1522449
UMLS CUI [2,2]
C0035331
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 6 = Transpupillary thermotherapy
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2,1]
C0442379
UMLS CUI [2,2]
C0879037
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 7 = Retinal surgical treatment
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2]
C0197770
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 888 = Other
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2]
C0205394
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 999 = Unknown/Undisclosed
Description

SUPPORTING DEFINITION: Select all that apply INCLUSION CRITERIA: All patients TIMING: Baseline REPORTING SOURCE: Clinical TYPE: "Multiple answers. Separate multiple entries with "";"""

Data type

boolean

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0024437
UMLS CUI [1,3]
C0087111
UMLS CUI [2]
C0439673

Similar models

Baseline - Clinical Form

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C2348585 (UMLS CUI [1])
Item Group
Demographic factors
C1704791 (UMLS CUI-1)
Date of birth
Item
What is Patient's date of birth?
date
C0421451 (UMLS CUI [1])
Item
Please indicate Patient's sex at birth
integer
C0079399 (UMLS CUI [1])
Code List
Please indicate Patient's sex at birth
CL Item
Male (0)
C1706180 (UMLS CUI-1)
(Comment:en)
CL Item
Female (1)
C0086287 (UMLS CUI-1)
(Comment:en)
CL Item
Undisclosed (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Baseline Functional Status
C0598463 (UMLS CUI-1)
C1442488 (UMLS CUI-2)
Distance visual acuity
Item
Indicate the patient's distance visual acuity
integer
C0429537 (UMLS CUI [1])
Distance visual acuity in the fellow eye
Item
Indicate the patient's distance visual acuity in the other (non study) eye
integer
C0429537 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0015392 (UMLS CUI [1,3])
Item
Chart type used for distance visual acuity measurement
integer
C1302978 (UMLS CUI [1])
Code List
Chart type used for distance visual acuity measurement
CL Item
LogMAR (1)
C0487935 (UMLS CUI-1)
(Comment:en)
CL Item
Snellen (2)
C1827708 (UMLS CUI-1)
(Comment:en)
Distance visual acuity
Item
Distance at which distance visual acuity is measured
integer
C0429537 (UMLS CUI [1,1])
C0012751 (UMLS CUI [1,2])
Item Group
Baseline clinical status
C0449440 (UMLS CUI-1)
C1442488 (UMLS CUI-2)
Item
Indicate the type of macular degeneration
integer
C0024437 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Indicate the type of macular degeneration
CL Item
Neovascular age related macular degeneration (1)
C0271084 (UMLS CUI-1)
(Comment:en)
CL Item
Myopic neovascular macular degeneration (2)
C0730271 (UMLS CUI-1)
(Comment:en)
CL Item
Other neovascular macular degeneration (3)
C0205394 (UMLS CUI-1)
C0024437 (UMLS CUI-2)
(Comment:en)
CL Item
Polypoidal choroidal vasculopathy (4)
C1504336 (UMLS CUI-1)
(Comment:en)
CL Item
Dry/non-neovascular age related macular degeneration (5)
C0271083 (UMLS CUI-1)
(Comment:en)
Item
Indicate the presence of geographic atrophy anywhere in the macular area that is not contiguous with the main lesion
integer
C1536085 (UMLS CUI [1])
Code List
Indicate the presence of geographic atrophy anywhere in the macular area that is not contiguous with the main lesion
CL Item
Not present (0)
C0332197 (UMLS CUI-1)
(Comment:en)
CL Item
Subfoveal (present and involving the subfoveal area) (1)
C0442185 (UMLS CUI-1)
(Comment:en)
CL Item
Extra-foveal (present, but not involving the subfoveal area) (2)
C0442083 (UMLS CUI-1)
C0442185 (UMLS CUI-2)
(Comment:en)
Item
Indicate the presence of subretinal fibrosis
integer
C0423434 (UMLS CUI [1])
Code List
Indicate the presence of subretinal fibrosis
CL Item
Not present (0)
C0332197 (UMLS CUI-1)
(Comment:en)
CL Item
Subfoveal (present and involving the subfoveal area) (1)
C0442185 (UMLS CUI-1)
(Comment:en)
CL Item
Extra-foveal (present, but not involving the subfoveal area) (2)
C0442083 (UMLS CUI-1)
C0442185 (UMLS CUI-2)
(Comment:en)
Item
Indicate the presence of pigment epithelial detachment
integer
C0339546 (UMLS CUI [1])
Code List
Indicate the presence of pigment epithelial detachment
CL Item
Not present (0)
C0332197 (UMLS CUI-1)
(Comment:en)
CL Item
Subfoveal (present and involving the subfoveal area) (1)
C0442185 (UMLS CUI-1)
(Comment:en)
CL Item
Extra-foveal (present, but not involving the subfoveal area) (2)
C0442083 (UMLS CUI-1)
C0442185 (UMLS CUI-2)
(Comment:en)
Item
Indicate the type of pigment epithelial detachment
integer
C0339546 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Indicate the type of pigment epithelial detachment
CL Item
Solid (Fibrovascular or haemorrhagic) PED below the corresponding retinal pigment epithelium (1)
C2231426 (UMLS CUI-1)
C0154846 (UMLS CUI-2)
(Comment:en)
CL Item
Fluid (Serous) PED below the corresponding retinal pigment epithelium (2)
C2013338 (UMLS CUI-1)
(Comment:en)
Item Group
Associated clinical history
C0262926 (UMLS CUI-1)
C0332281 (UMLS CUI-2)
Ocular comorbidities: Retinal vascular disease
Item
Indicate ocular comorbidities 1 = Retinal vascular disease (presence of any retinal vascular disease such as diabetic retinopathy, retinal vein occlusion, retinal artery occlusion)
boolean
C0009488 (UMLS CUI [1,1])
C1299003 (UMLS CUI [1,2])
C0154833 (UMLS CUI [1,3])
C0011884 (UMLS CUI [2])
C0035328 (UMLS CUI [3])
C0035302 (UMLS CUI [4])
Ocular comorbidities: Other macular pathology
Item
Indicate ocular comorbidities 2 = Other macular pathology (presence of any other macular pathology such as , diabetic macular edema, epiretinal membrane, macular hole, macular dystrophy etc.)
boolean
C0009488 (UMLS CUI [1,1])
C1299003 (UMLS CUI [1,2])
C0730362 (UMLS CUI [1,3])
C1518912 (UMLS CUI [1,4])
C0730285 (UMLS CUI [2])
C0339543 (UMLS CUI [3])
C0024441 (UMLS CUI [4])
C0026850 (UMLS CUI [5])
Ocular comorbidities: Glaucoma or other optic neuropathy
Item
Indicate ocular comorbidities 3 = Glaucoma or other optic neuropathy (confirmed diagnosis of glaucoma or other optic neuropathy has been made)
boolean
C0009488 (UMLS CUI [1,1])
C1299003 (UMLS CUI [1,2])
C0017601 (UMLS CUI [2])
C3887709 (UMLS CUI [3,1])
C0205394 (UMLS CUI [3,2])
Ocular comorbidities: Amblyopia
Item
Indicate ocular comorbidities 4 = Amblyopia (presence of amblyopia)
boolean
C0009488 (UMLS CUI [1,1])
C1299003 (UMLS CUI [1,2])
C0002418 (UMLS CUI [2])
Ocular comorbidities: Media opacity
Item
Indicate ocular comorbidities 5 = Media opacity (presence of media opacity from cataract or corneal pathology etc.)
boolean
C0009488 (UMLS CUI [1,1])
C1299003 (UMLS CUI [1,2])
C0086543 (UMLS CUI [2])
C0010038 (UMLS CUI [3])
Ocular comorbidities: Other
Item
Indicate ocular comorbidities 888 = Other
boolean
C0009488 (UMLS CUI [1,1])
C1299003 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Previous macular degeneration treatment: None
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 0 = None
boolean
C0549184 (UMLS CUI [1,1])
C0205156 (UMLS CUI [1,2])
C0024437 (UMLS CUI [1,3])
C0087111 (UMLS CUI [1,4])
Previous macular degeneration treatment: Previous intravitreal anti-VEGF treatment
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 1 = Previous intravitreal anti-VEGF treatment
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C1554888 (UMLS CUI [2,1])
C3895948 (UMLS CUI [2,2])
Previous macular degeneration treatment: Intravitreal steroid
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 2 = Intravitreal steroid
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C1444685 (UMLS CUI [2])
Previous macular degeneration treatment: Photodynamic therapy
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 3 = Photodynamic therapy
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0940918 (UMLS CUI [2])
Previous macular degeneration treatment: Thermal laser photocoagulation
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 4 = Thermal laser photocoagulation
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0441510 (UMLS CUI [2])
Previous macular degeneration treatment: Retinal radiation therapy
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 5 = Retinal radiation therapy
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C1522449 (UMLS CUI [2,1])
C0035331 (UMLS CUI [2,2])
Previous macular degeneration treatment: Transpupillary thermotherapy
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 6 = Transpupillary thermotherapy
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0442379 (UMLS CUI [2,1])
C0879037 (UMLS CUI [2,2])
Previous macular degeneration treatment: Retinal surgical treatment
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 7 = Retinal surgical treatment
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0197770 (UMLS CUI [2])
Previous macular degeneration treatment: Other
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 888 = Other
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0205394 (UMLS CUI [2])
Previous macular degeneration treatment: Unknown/Undisclosed
Item
Indicate previous macular degeneration treatment in affected eye (multiple options possible) 999 = Unknown/Undisclosed
boolean
C0205156 (UMLS CUI [1,1])
C0024437 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0439673 (UMLS CUI [2])

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