ID

36886

Description

ICHOM Depression and Anxiety data collection Version 2.3.2 Revised: August 10th, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Depression and Anxiety, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. This document contains the Ongoing - Patient-Reported Form. It has to be filled in between Baseline and Annually form. The ongoing periode includes e.g.: Active treatment stage; Measure essential PROs ongoing with treatment (potentially at every visit) Condition: Depression: Major Depressive Disorder | Dysthymia | Depressive Adaptive/Adjustment Disorder | Depressive Disorder - NOS Anxiety: Generalized Anxiety Disorder | Phobic Disorder | Agoraphobia | Post-Traumatic Stress Disorder | Panic Disorder | Obsessive-Compulsive Disorder Treatment Approaches : Psychopharmacotherapy | Psychotherapy | Lifestyle Interventions | Self-Guided Help | Other Forms of Therapy Collecting Clinician and Patient-Reported Outcome Measures: PHQ-9 (Patient Health Questionnaire). https://www.phqscreeners.com/ Pfizer: All PHQ, GAD-7 screeners and translations are downloadable from this website and no permission is required to reproduce, translate, display or distribute them. GAD-7 (Generalized Anxiety Disorder). https://www.phqscreeners.com/ Pfizer: All PHQ, GAD-7 screeners and translations are downloadable from this website and no permission is required to reproduce, translate, display or distribute them. Pfizer owner, authors: Drs. Spitzer, Williams and Kroenke SPIN (Social Phobia Inventory ), MIA (Mobility Inventory for Agoraphobia), IES-R (Impact of Event Scale - Revised for Post-traumatic Stress Disorder), PDSS-SR (Panic Disorder Severity Scale), OCI-R (Obsessive-Compulsive Inventory). As permission for use has to be obtained for all of these questionnaires from the copyright holder, only the total score will be included in this version of the standard set. WHODAS 2.0 (World Health Organization Disability Assessment Schedule 2.0). As there is a license needed for use of this questionnaire, only the total score will be included in this version oft he standard set. MOS-SSS (Medical Outcomes Study: Social Support Survey). There is no license or permission needed for use. https://www.rand.org/health-care/surveys_tools/mos/social-support.html ICHOM's Standard set was supported by the Douglas Institut universitaire en santé mentale and mental health university institute, Charité Universitätsmedizin Berlin, Stichting benchmark GGC.

Link

http://www.ichom.org/

Keywords

Versions (4)
  1. 6/17/19 6/17/19 -
  2. 6/18/19 6/18/19 - Sarah Riepenhausen
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
  4. 9/20/21 9/20/21 -
Copyright Holder

ICHOM

Uploaded on

June 18, 2019

DOI

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License

Creative Commons BY-NC 3.0
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ICHOM Depression and Anxiety

English

Ongoing - Patient-Reported Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Definition: Indicate the patient's medical record number Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

text

Alias
UMLS CUI [1]
C2348585
Time Relative to Baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Prior Treatment
Description

Prior Treatment

Alias
UMLS CUI-1
C1514463
Did you take your medication as prescribed over the last two weeks?
Description

Inclusion Criteria: All patients If answered 'yes' to taking medication (TXMED) Timing: Ongoing Reporting Source: Patient­‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C1321605
UMLS CUI [1,2]
C0013216
Treatment Variables
Description

Treatment Variables

Alias
UMLS CUI-1
C0087111
During the last two weeks, did you receive any of the following treatments for [specific condition]? Medication
Description

Supporting Definition: Specific conditions include: Depression Generalized anxiety disorder Social phobia Agoraphobia Post-traumatic stress disorder Panic disorder Obsessive-compulsive disorder Inclusion criteria: All patients Timing: Ongoing Reporting Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0013227
Psychotherapy
Description

Inclusion criteria: All patients Timing: Ongoing Reporting Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0033968
Other
Description

Inclusion criteria: All patients Timing: Ongoing Reporting Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0205394
If you took any medication for [specific condition], did you take your medication as prescribed?
Description

Supporting definition: Specific conditions include: Depression Generalized anxiety disorder Social phobia Agoraphobia Post-traumatic stress disorder Panic disorder Obsessive-compulsive disorder Inclusion criteria: All patients If answered 'yes' to taking medication (DEPTXMEDON) Timing: Ongoing Reporting Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C1321605
UMLS CUI [1,2]
C0013216
Symptom Burden
Description

Symptom Burden

Alias
UMLS CUI-1
C1457887
UMLS CUI-2
C2828008
Over the last 2 weeks, how often have you been bothered by any of the following problems? 1: Little interest or pleasure in doing things
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2,1]
C2984078
UMLS CUI [2,2]
C0543488
UMLS CUI [3,1]
C0679105
UMLS CUI [3,2]
C3668946
2: Feeling down, depressed, or hopeless
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C2924103
3: Trouble falling or staying asleep, or sleeping too much
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0150079
4: Feeling tired or having little energy
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0557875
UMLS CUI [3]
C0015672
5: Poor appetite or overeating
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0003621
6: Feeling bad about yourself — or that you are a failure or have let yourself or your family down
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0854366
7: Trouble concentrating on things, such as reading the newspaper or watching television
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0424099
8: Moving or speaking so slowly that other people could have noticed? Or the opposite — being so fidgety or restless that you have been moving around a lot more than usual
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0424114
UMLS CUI [3]
C0237280
9: Thoughts that you would be better off dead or of hurting yourself in some way
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0178360
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2,1]
C0001288
UMLS CUI [2,2]
C0033213
Over the last 2 weeks, how often have you been bothered by the following problems? 1: Feeling nervous, anxious, or on edge
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C0849963
UMLS CUI [3]
C0003467
2: Not being able to stop or control worrying
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C0243148
UMLS CUI [2,3]
C0233481
3: Worrying too much about different things
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C0233481
4: Trouble relaxing
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3827766
5: Being so restless that it’s hard to sit still
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3887611
6: Becoming easily annoyed or irritable
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3831378
7: Feeling afraid as if something awful might happen
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3830159
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2,1]
C0001288
UMLS CUI [2,2]
C0033213
Questionnaire SPIN, total score
Description

As permission has to be obtained, the actual 17 questions of the SPIN questionnaire are not included in this version of the standard set. The ICHOM ID's are SPIN_Q01 to SPIN_Q17 Inclusion Criteria: Patients with social phobia Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2919383
UMLS CUI [1,2]
C2964552
Questionnaire MI, total score
Description

As permission has to be obtained, the actual 4 questions of the MI questionnaire are not included in this version of the standard set. The ICHOM ID's are MI_Q01, MI_Q01HIGH, MI_Q01OTHER, MI_Q02, MI_Q03a, MI_Q03b, MI_Q04a, MI_Q04b Supporting Definition: Each item corresponds to a separate VaraibleID. Inclusion Criteria: Patients with agoraphobia Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C3472508
UMLS CUI [1,2]
C2964552
Questionnaire IESR, total score
Description

As permission has to be obtained, the actual 22 questions of the IESR questionnaire are not included in this version of the standard set. The ICHOM ID's are IESR_Q01 to IESR_Q22 Inclusion Criteria: Patients with post-traumatic stress disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0034394
UMLS CUI [1,2]
C0038436
UMLS CUI [1,3]
C2964552
Questionnaire PDSSSR, total score
Description

As permission has to be obtained, the actual 7 questions of the PDSSSR questionnaire are not included in this version of the standard set. The ICHOM ID's are PDSSSR_Q01 to PDSSSR_Q07 Inclusion Criteria: Patients with panic disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3472191
Questionnaire OCI, total score
Description

As permission has to be obtained, the actual 42 questions of the OCI questionnaire are not included in this version of the standard set. The ICHOM ID's are OCI_Q01 to OCI_Q42 Inclusion Criteria: Patients with obsessive-compulsive disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C3472189
Other
Description

Other

Alias
UMLS CUI-1
C0205394
Did you experience any side-effects from the medication during the last two weeks?
Description

Inclusion Criteria: All patients Timing: Ongoing Reporting Source: Patient-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0392325
If yes, please indicate which side-effects you experienced during the last two weeks 1 = Weight gain
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0043094
If yes, please indicate which side-effects you experienced during the last two weeks 2 = Sexual dysfunction
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0549622
If yes, please indicate which side-effects you experienced during the last two weeks 3 = Sleep disturbances
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0037317
If yes, please indicate which side-effects you experienced during the last two weeks 4 = Dry mouth
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0043352
If yes, please indicate which side-effects you experienced during the last two weeks 5 = Drowsiness/sedation
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0013144
UMLS CUI [3]
C3179159
If yes, please indicate which side-effects you experienced during the last two weeks 6 = Cardiovascular side‐effects (For example palpitations)
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0007226
UMLS CUI [3]
C0030252
If yes, please indicate which side-effects you experienced during the last two weeks 7 = Gastrointestinal side­‐effects (For example diarrhea, nausea, vomiting)
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0012240
UMLS CUI [3]
C0011991
UMLS CUI [4]
C0027497
UMLS CUI [5]
C0042963
If yes, please indicate which side-effects you experienced during the last two weeks 888 = Other (indicate what kind of side-effect)
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ON) Timing: Ongoing Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0205394
Please indicate the side-effect you have experienced during the last two weeks
Description

Inclusion Criteria: All patients If answered 'Other' on type of medication side-­effects (MEDSE_Q02ON888) Timing: Ongoing Reporting Source: Patient‐reported Type: Free text Response Options: Medication side-­effect

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0392325
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Similar models

Ongoing - Patient-Reported Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
text
C2348585 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Prior Treatment
C1514463 (UMLS CUI-1)
Item
Did you take your medication as prescribed over the last two weeks?
integer
C1321605 (UMLS CUI [1,1])
C0013216 (UMLS CUI [1,2])
Adherence to medication
Code List
Did you take your medication as prescribed over the last two weeks?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Mostly (1)
C0750554 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
Item Group
Treatment Variables
C0087111 (UMLS CUI-1)
Item
During the last two weeks, did you receive any of the following treatments for [specific condition]? Medication
integer
C0087111 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Medication side-effects
Code List
During the last two weeks, did you receive any of the following treatments for [specific condition]? Medication
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Psychotherapy
integer
C0087111 (UMLS CUI [1,1])
C0033968 (UMLS CUI [1,2])
Medication side-effects
Code List
Psychotherapy
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Other
integer
C0087111 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Medication side-effects
Code List
Other
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
If you took any medication for [specific condition], did you take your medication as prescribed?
integer
C1321605 (UMLS CUI [1,1])
C0013216 (UMLS CUI [1,2])
Adherence to medication
Code List
If you took any medication for [specific condition], did you take your medication as prescribed?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Mostly (1)
C0750554 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
Item Group
Symptom Burden
C1457887 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Item
Over the last 2 weeks, how often have you been bothered by any of the following problems? 1: Little interest or pleasure in doing things
integer
C4083201 (UMLS CUI [1])
C2984078 (UMLS CUI [2,1])
C0543488 (UMLS CUI [2,2])
C0679105 (UMLS CUI [3,1])
C3668946 (UMLS CUI [3,2])
Question 1 of PHQ9
Code List
Over the last 2 weeks, how often have you been bothered by any of the following problems? 1: Little interest or pleasure in doing things
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
2: Feeling down, depressed, or hopeless
integer
C4083201 (UMLS CUI [1])
C2924103 (UMLS CUI [2])
Question 1 of PHQ9
Code List
2: Feeling down, depressed, or hopeless
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
3: Trouble falling or staying asleep, or sleeping too much
integer
C4083201 (UMLS CUI [1])
C0150079 (UMLS CUI [2])
Question 1 of PHQ9
Code List
3: Trouble falling or staying asleep, or sleeping too much
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
4: Feeling tired or having little energy
integer
C4083201 (UMLS CUI [1])
C0557875 (UMLS CUI [2])
C0015672 (UMLS CUI [3])
Question 1 of PHQ9
Code List
4: Feeling tired or having little energy
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
5: Poor appetite or overeating
integer
C4083201 (UMLS CUI [1])
C0003621 (UMLS CUI [2])
Question 1 of PHQ9
Code List
5: Poor appetite or overeating
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
6: Feeling bad about yourself — or that you are a failure or have let yourself or your family down
integer
C4083201 (UMLS CUI [1])
C0854366 (UMLS CUI [2])
Question 1 of PHQ9
Code List
6: Feeling bad about yourself — or that you are a failure or have let yourself or your family down
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
7: Trouble concentrating on things, such as reading the newspaper or watching television
integer
C4083201 (UMLS CUI [1])
C0424099 (UMLS CUI [2])
Question 1 of PHQ9
Code List
7: Trouble concentrating on things, such as reading the newspaper or watching television
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
8: Moving or speaking so slowly that other people could have noticed? Or the opposite — being so fidgety or restless that you have been moving around a lot more than usual
integer
C4083201 (UMLS CUI [1])
C0424114 (UMLS CUI [2])
C0237280 (UMLS CUI [3])
Question 1 of PHQ9
Code List
8: Moving or speaking so slowly that other people could have noticed? Or the opposite — being so fidgety or restless that you have been moving around a lot more than usual
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
9: Thoughts that you would be better off dead or of hurting yourself in some way
integer
C4083201 (UMLS CUI [1])
C0178360 (UMLS CUI [2])
Question 1 of PHQ9
Code List
9: Thoughts that you would be better off dead or of hurting yourself in some way
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
integer
C4083201 (UMLS CUI [1])
C0001288 (UMLS CUI [2,1])
C0033213 (UMLS CUI [2,2])
Question 1 of PHQ9
Code List
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
CL Item
Not difficult at all (0)
C2984077 (UMLS CUI-1)
C0332218 (UMLS CUI-2)
(Comment:en)
CL Item
Somewhat difficult (1)
C3843068 (UMLS CUI-1)
(Comment:en)
CL Item
Very difficult (2)
C3843353 (UMLS CUI-1)
(Comment:en)
CL Item
Extremely difficult (3)
C3843354 (UMLS CUI-2)
(Comment:en)
Item
Over the last 2 weeks, how often have you been bothered by the following problems? 1: Feeling nervous, anxious, or on edge
integer
C3641330 (UMLS CUI [1])
C0849963 (UMLS CUI [2])
C0003467 (UMLS CUI [3])
Question 1 of GAD7
Code List
Over the last 2 weeks, how often have you been bothered by the following problems? 1: Feeling nervous, anxious, or on edge
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
2: Not being able to stop or control worrying
integer
C3641330 (UMLS CUI [1])
C1298908 (UMLS CUI [2,1])
C0243148 (UMLS CUI [2,2])
C0233481 (UMLS CUI [2,3])
Question 1 of GAD7
Code List
2: Not being able to stop or control worrying
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
3: Worrying too much about different things
integer
C3641330 (UMLS CUI [1])
C0233481 (UMLS CUI [2])
Question 1 of GAD7
Code List
3: Worrying too much about different things
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
4: Trouble relaxing
integer
C3641330 (UMLS CUI [1])
C3827766 (UMLS CUI [2])
Question 1 of GAD7
Code List
4: Trouble relaxing
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
5: Being so restless that it’s hard to sit still
integer
C3641330 (UMLS CUI [1])
C3887611 (UMLS CUI [2])
Question 1 of GAD7
Code List
5: Being so restless that it’s hard to sit still
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
6: Becoming easily annoyed or irritable
integer
C3641330 (UMLS CUI [1])
C3831378 (UMLS CUI [2])
Question 1 of GAD7
Code List
6: Becoming easily annoyed or irritable
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
7: Feeling afraid as if something awful might happen
integer
C3641330 (UMLS CUI [1])
C3830159 (UMLS CUI [2])
Question 1 of GAD7
Code List
7: Feeling afraid as if something awful might happen
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
integer
C3641330 (UMLS CUI [1])
C0001288 (UMLS CUI [2,1])
C0033213 (UMLS CUI [2,2])
Question 1 of PHQ9
Code List
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
CL Item
Not difficult at all (0)
C2984077 (UMLS CUI-1)
C0332218 (UMLS CUI-2)
(Comment:en)
CL Item
Somewhat difficult (1)
C3843068 (UMLS CUI-1)
(Comment:en)
CL Item
Very difficult (2)
C3843353 (UMLS CUI-1)
(Comment:en)
CL Item
Extremely difficult (3)
C3843354 (UMLS CUI-2)
(Comment:en)
Questionnaire SPIN, total score
Item
Questionnaire SPIN, total score
integer
C2919383 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Questionnaire MI, total score
Item
Questionnaire MI, total score
integer
C3472508 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Questionnaire IESR, total score
Item
Questionnaire IESR, total score
integer
C0034394 (UMLS CUI [1,1])
C0038436 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
Questionnaire PDSSSR, total score
Item
Questionnaire PDSSSR, total score
integer
C3472191 (UMLS CUI [1])
Questionnaire OCI, total score
Item
Questionnaire OCI, total score
integer
C3472189 (UMLS CUI [1])
Item Group
Other
C0205394 (UMLS CUI-1)
Item
Did you experience any side-effects from the medication during the last two weeks?
integer
C0392325 (UMLS CUI [1])
Medication side-effects
Code List
Did you experience any side-effects from the medication during the last two weeks?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Type of medication side-effects: Weight gain
Item
If yes, please indicate which side-effects you experienced during the last two weeks 1 = Weight gain
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0043094 (UMLS CUI [2])
Type of medication side-effects: Sexual dysfunction
Item
If yes, please indicate which side-effects you experienced during the last two weeks 2 = Sexual dysfunction
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0549622 (UMLS CUI [2])
Type of medication side-effects: Sleep disturbances
Item
If yes, please indicate which side-effects you experienced during the last two weeks 3 = Sleep disturbances
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0037317 (UMLS CUI [2])
Type of medication side-effects: Dry mouth
Item
If yes, please indicate which side-effects you experienced during the last two weeks 4 = Dry mouth
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0043352 (UMLS CUI [2])
Type of medication side-effects: Drowsiness/sedation
Item
If yes, please indicate which side-effects you experienced during the last two weeks 5 = Drowsiness/sedation
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0013144 (UMLS CUI [2])
C3179159 (UMLS CUI [3])
Type of medication side-effects: Cardiovascular side-­effects
Item
If yes, please indicate which side-effects you experienced during the last two weeks 6 = Cardiovascular side‐effects (For example palpitations)
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0007226 (UMLS CUI [2])
C0030252 (UMLS CUI [3])
Type of medication side-effects: Gastrointestinal side-­effects
Item
If yes, please indicate which side-effects you experienced during the last two weeks 7 = Gastrointestinal side­‐effects (For example diarrhea, nausea, vomiting)
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0012240 (UMLS CUI [2])
C0011991 (UMLS CUI [3])
C0027497 (UMLS CUI [4])
C0042963 (UMLS CUI [5])
Type of medication side-effects: Other
Item
If yes, please indicate which side-effects you experienced during the last two weeks 888 = Other (indicate what kind of side-effect)
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2])
Type of medication side-effect other than those explicitly listed
Item
Please indicate the side-effect you have experienced during the last two weeks
text
C0205394 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
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