ID

36722

Description

ICHOM Hypertension in low- and middle-income countries data collection Version 1.0.0 Revised: November 3rd, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ The following condition and treatment approaches (or interventions) are covered by our Standard Set. Condition: Hypertension (ICD-10: I10) Treatment Approaches: Pharmacological and Non-Pharmacological Collecting Patient-Reported Outcome Measures: Survey Used: EuroQol-5D-3L (EQ-5D-3L). As a licence is needed for use of EQ-5D-3L questionnaires, the actual questions are not part of this version of the standard set. For licensing information see: https://euroqol.org/support/how-to-obtain-eq-5d/ This document contains the Annually - Clinical Form. It has to be filled in one year after patient's entry into set and annually for life. PROMIS Single Question on erectile Dysfunction. Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Beliefs about Medication Questionnaire (BMQ)-Specific: Copyrighted, permission to use the scale can be obtained from Professor Rob Horne’s research team. The scoring guide can be found in the original validation article: Horne et al. (1999) The beliefs about medicines questionnaire: The development and evaluation of a new method for assessing the cognitive representation of medication. Psychology & Health, 14:1. Hill-Bone Compliance to High Blood Pressure Therapy Scale - South Africa Version: Permission to use the scale can be obtained from Estelle V. Lambert’s research team, The scoring guide can be found in the original validation article: Lambert, E.V. et al. (2006) Cross-Cultural Validation of the Hill-Bone Compliance To High Blood Pressure Therapy Scale in a South African, Primary Healthcare Setting. Ethnicity and Disease, 16. WHO STEPS Instrument. Free for use in clinical practice and a license is not required. http://www.who.int/chp/steps/instrument/en/ International Physical Activity Questionnaire(IPAQ)-Short Form: Publically available, open access, and no permissions are required to use it. https://sites.google.com/site/theipaq/ Alternative Quality of Life Surveys: PROMIS Global-10 Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Veteran’s Rand 12-Item Health Survey (VR-12). Free for all health care organizations, license required and can be requested at: http://bit.ly/2ir84sG. As a license is needed, the actual questions are not part of this version of the standard set. 12-Item Short Form Survey (SF-12). As a license is needed for use of SF-12 questionaires, the actual questions are not part of this version of the standard set. For more information see: http://bit.ly/2AcNLrme This Standard set was supported by the Novartis Foundation.

Link

http://www.ichom.org/

Keywords

Versions (3)
  1. 6/4/19 6/4/19 -
  2. 6/4/19 6/4/19 - Sarah Riepenhausen
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

June 4, 2019

DOI

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License

Creative Commons BY-NC 3.0
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ICHOM Hypertension in low- and middle-income countries

English

Annually - Clinical Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Reporting Source: Administratively-­‐reported or clinician-­‐reported Type: Numerical Response Options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C2348585
Time relative to baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Clinical Factors
Description

Clinical Factors

Alias
UMLS CUI-1
C0449440
Indicate if the patient has a documented history of diabetes mellitus (regardless of duration of disease or need for anti-diabetic agents). If newly diagnosed, the diagnosis should meet the following criteria: Fasting plasma glucose >= 7.0mmol/L (126 mg/dL) or 2-hour plasma glucose >= 11.1 mmol/L (200mg/dL) [2 hours post 75g glucose load]
Description

Inclusion Criteria: All patients Timing: Baseline and annually until positive diagnosis of diabetes Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0011849
UMLS CUI [2,1]
C0011849
UMLS CUI [2,2]
C1518321
For newly diagnosed diabetics indicate fasting plasma glucose if available
Description

Supporting Definition: Fasting plasma glucose value in mg/dL or mmol/L Inclusion Criteria: Optional Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Numerical Response Options: N/A

Data type

float

Alias
UMLS CUI [1]
C0583513
Units of fasting plasma glucose
Description

Inclusion Criteria: If fasting plasma glucose value is provided Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0583513
UMLS CUI [1,2]
C1519795
Indicate the patient's weight in kilograms or pounds
Description

Supporting Definition: Height and weight are used to calculate BMI Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Numerical Response Options: Numerical value

Data type

float

Alias
UMLS CUI [1]
C0005910
Indicate units of weight
Description

Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C1519795
Indicate if the patient is on lipid lowering therapy
Description

Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0585943
Specify lipid lowering therapy
Description

Inclusion Criteria: If answered 1 to LIPIDLOW Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0585943
UMLS CUI [1,2]
C2348235
Has the patient had a creatinine test?
Description

Inclusion Criteria: Optional Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0201976
Provide the patient's serum creatinine reading
Description

Supporting Definition: Please provide the most recent value Inclusion Criteria: If responded "yes" to CREADONE Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Numerical, enter "000" if unknown Response Options: Numerical value

Data type

float

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C1274040
What are the units of creatinine?
Description

Inclusion Criteria: If value for creatinine is provided Timing: Baseline and annually Reporting Source: Clinician‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C1519795
Was the creatinine reader calibrated to IDMS (isotope dilution mass spectrometry)
Description

Inclusion Criteria: If value for creatinine is provided Timing: Baseline and annually Reporting Source: Clinician-­reported/administratively­‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C0006751
UMLS CUI [1,3]
C3274766
Treatment variables
Description

Treatment variables

Alias
UMLS CUI-1
C0087111
What is the management approach?
Description

Supporting Definition: Non‐pharmacological management includes lifestyle interventions, exercise, diet and other non-­pharmacological approaches. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0449445
Is patient on any of the following drug classes? 1 = ACEi/ARB
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0003015
UMLS CUI [3]
C0521942
Is patient on any of the following drug classes? 2 = Alpha‐blocker
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0001641
Is patient on any of the following drug classes? 3 = Beta-blocker
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0001645
Is patient on any of the following drug classes? 4 = Loop Diuretics
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0354100
Is patient on any of the following drug classes? 5 = Thiazides
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0012802
Is patient on any of the following drug classes? 6 = Calcium channel blocker
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0006684
Is patient on any of the following drug classes? 7 = Other
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0205394
Is patient on any of the following drug classes? 999 = Unknown
Description

Supporting Definition: Please select all options that apply Inclusion Criteria: If answered '1' to treatment approach (TX) Timing: Baseline and annually Reporting Source: Clinician­‐reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0003364
UMLS CUI [1,2]
C0596463
UMLS CUI [2]
C0439673
Survival, disease control and cardiovascular complications
Description

Survival, disease control and cardiovascular complications

Alias
UMLS CUI-1
C1148433
UMLS CUI-2
C0012634
UMLS CUI-3
C0243148
UMLS CUI-4
C0007226
UMLS CUI-5
C0009566
Patient systolic blood pressure reading in mmHg
Description

Inclusion Criteria: All patients Timing: Minimum annually Reporting Source: Clinician‐reported Type: Numerical Response Options: Numerical value

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0871470
mmHg
Patient diastolic blood pressure reading in mmHg
Description

Inclusion Criteria: All patients Timing: Minimum annually Reporting Source: Clinician‐reported Type: Numerical Response Options: Numerical value

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0428883
mmHg
Has the patient died, regardless of cause?
Description

Inclusion Criteria: All patients Timing: At time of death Reporting Source: Clinician-­reported/administratively‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0011065
If yes, indicate date of death
Description

Inclusion Criteria: If answered 'yes' to overall survival (OVERALLSURV) Timing: At time of death Reporting Source: Clinician-­reported/administratively‐reported Type: Date by DD/MM/YYYY or by MM/YYYY (in case exact day is unknown) Response Options: DD/MM/YYYY or MM/YYYY

Data type

date

Alias
UMLS CUI [1]
C1148348
If yes, indicate cause of death, if known
Description

Inclusion Criteria: If answered 'yes' to overall survival (OVERALLSURV) Timing: At time of death Reporting Source: Clinician-­reported/administratively‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0007465
Has the patient experienced any adverse events or unwanted side effects of medication?
Description

Inclusion Criteria: All patients Timing: Annually and 4-­‐6 weeks after initiation or change of treatment Reporting Source: Clinician‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0392325
UMLS CUI [2]
C0877248
If yes, please specify by selecting all that apply. 1 = Falls
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0085639
If yes, please specify by selecting all that apply. 2 = Acute kidney injury
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C2609414
If yes, please specify by selecting all that apply. 3 = Peripheral oedema
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0085649
If yes, please specify by selecting all that apply. 4 = Fatigue or unusual tiredness
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0015672
UMLS CUI [3,1]
C2700116
UMLS CUI [3,2]
C0848717
If yes, please specify by selecting all that apply. 5 = Electrolyte abnormalities
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0151613
If yes, please specify by selecting all that apply. 6 = Hypokalaemia
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0020621
If yes, please specify by selecting all that apply. 7 = Cough
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0010200
If yes, please specify by selecting all that apply. 8 = Erectile dysfunction
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0242350
If yes, please specify by selecting all that apply. 9 = Urinary frequency
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0042023
If yes, please specify by selecting all that apply. 10 = Other
Description

Supporting Definition: Hypotension and clinical manifestations of hypotension Inclusion Criteria: If answered 'yes' to medication side effects ('MEDEFFECTS') Timing: Annually and 4-­6 weeks after initiation or change of treatment Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0205394
Does the patient have ischaemic heart disease?
Description

Supporting Definition: Myocardial infarction (ICD10: I21) or angina (ICD10: I20) diagnosed by a clinician Inclusion Criteria: All patients Timing: Annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1869045
Does the patient have cerebrovascular disease?
Description

Supporting Definition: Cerebrovascular accident (ICD10: I60 ‐ Subarachnoid haemorrhage, I61 – Intracerebral haemorrhage, I62 – other non-­‐traumatic intracranial haemorrhage, I63 – cerebral infarction, I64 -­‐ Stroke, not specified as haemorrhage or infarction) or transient ischaemic attack (ICD10: G45 ­‐ Transient cerebral ischaemic attacks and related syndromes) diagnosed by a clinician Inclusion Criteria: All patients Timing: Annually Reporting Source: Clinician‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0007820
Does the patient have atrial fibrillation?
Description

Supporting Definition: Atrial fibrillation (ICD10: I48.0 paroxysmal atrial fibrillation, I48.1 – persistent atrial fibrillation, I48.2 Chronic atrial fibrillation) diagnosed by a clinician Inclusion Criteria: All patients Timing: Annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0004238
Does the patient have heart failure?
Description

Supporting Definition: Heart failure (ICD10: I50 ‐ Heart failure, ICD:10 I11.0 – hypertensive heart disease with (congestive) heart failure) diagnosed by a clinician Inclusion Criteria: All patients Timing: Annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0018801
If yes, what is the underlying cause?
Description

Inclusion Criteria: If answered 'yes' to heart failure ('HF') Timing: Annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0085978
UMLS CUI [1,2]
C0018801
Does the patient have peripheral artery disease?
Description

Supporting Definition: Peripheral artery disease (ICD:10 I70.2 -­‐ Atherosclerosis of arteries of extremities) diagnosed by clinician Inclusion Criteria: All patients Timing: Annually Reporting Source: Clinician-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1704436
Does the patient have chronic kidney disease as evidenced by proteinuria?
Description

Supporting Definition: Renal disease (ICD10: I12 Hypertensive renal disease incl. any condition in N00-­‐ N07, N18.-­‐, N19 or N26 due to hypertension) (Please ensure that other causes of proteinuria, such as urinary tract infection, have been ruled out) Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Clinician‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1561643
UMLS CUI [2]
C0033687
How was proteinuria detected?
Description

Inclusion Criteria: If "yes" to CKD Timing: Baseline and annually Reporting Source: Clinician‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0033687
UMLS CUI [1,2]
C3887511
Proteinuria as provided by electronically read urine dipstick
Description

Inclusion Criteria: If responded "1" or "2" to PROTEINEVID Timing: Baseline and annually Reporting Source: Clinician‐reported Type: Single response

Data type

integer

Alias
UMLS CUI [1,1]
C1274040
UMLS CUI [1,2]
C1160927
Evidence of proteinuria as evidenced by urinary ACR
Description

Inclusion Criteria: If responded "3" to PROTEINEVID Timing: Baseline and annually Reporting Source: Clinician-­reported Type: Numerical Response Options: Numerical value

Data type

float

Alias
UMLS CUI [1,1]
C0455271
UMLS CUI [1,2]
C2826772
Units of urinary ACR
Description

Inclusion Criteria: If ACR value provided Timing: Baseline and annually Reporting Source: Clinician‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0455271
UMLS CUI [1,2]
C1519795
Has the patient had a blood pressure reading above 180/120 mmHg in the past 12 months?
Description

Supporting Definition: Hypertensive urgency is an acute rise in BP >180/120 mmHg with no evidence of acute end-­organ damage. Hypertensive emergency is an acute rise in BP > 180/120 with evidence of acute end organ damage. Inclusion Criteria: All patients Timing: Annually Reporting Source: Clinician­‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0745138
UMLS CUI [2]
C0745136
If yes, does the patient have evidence of acute end-organ damage?
Description

Inclusion Criteria: If answered 'yes' to hypertensive urgency/ hypertensive emergency ('HYPTENEMERG') Timing: Annually Reporting Source: Clinician‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0205178
UMLS CUI [1,2]
C0743496
If yes, please specify the type of acute end-organ damage: 1 = Ophthalmological
Description

Inclusion Criteria: If answered 'yes' to acute end-­‐organ damage ('HYPTENENDORG') Timing: Annually Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0205178
UMLS CUI [1,3]
C0743496
UMLS CUI [2]
C0015397
If yes, please specify the type of acute end-organ damage: 2 = Renal
Description

Inclusion Criteria: If answered 'yes' to acute end-­‐organ damage ('HYPTENENDORG') Timing: Annually Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0205178
UMLS CUI [1,3]
C0743496
UMLS CUI [2]
C0022646
If yes, please specify the type of acute end-organ damage: 3 = Cardiac
Description

Inclusion Criteria: If answered 'yes' to acute end-­‐organ damage ('HYPTENENDORG') Timing: Annually Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0205178
UMLS CUI [1,3]
C0743496
UMLS CUI [2]
C1522601
If yes, please specify the type of acute end-organ damage: 4 = Cerebrovascular
Description

Inclusion Criteria: If answered 'yes' to acute end-­‐organ damage ('HYPTENENDORG') Timing: Annually Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0205178
UMLS CUI [1,3]
C0743496
UMLS CUI [2]
C1880018
If yes, please specify the type of acute end-organ damage: 999 = Unknown
Description

Inclusion Criteria: If answered 'yes' to acute end-­‐organ damage ('HYPTENENDORG') Timing: Annually Reporting Source: Clinician-­reported Type: Multiple answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0205178
UMLS CUI [1,3]
C0743496
UMLS CUI [2]
C0439673
Health status
Description

Health status

Alias
UMLS CUI-1
C0018759
What Health-related Quality of Life tool are you using?
Description

Inclusion Criteria: All patients Timing: Annually Reporting Source: Clinician-reported/administratively-­reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4279947
UMLS CUI [1,2]
C0449820
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Similar models

Annually - Clinical Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Time relative to baseline
Item
Time relative to baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Clinical Factors
C0449440 (UMLS CUI-1)
Item
Indicate if the patient has a documented history of diabetes mellitus (regardless of duration of disease or need for anti-diabetic agents). If newly diagnosed, the diagnosis should meet the following criteria: Fasting plasma glucose >= 7.0mmol/L (126 mg/dL) or 2-hour plasma glucose >= 11.1 mmol/L (200mg/dL) [2 hours post 75g glucose load]
integer
C0262926 (UMLS CUI [1,1])
C0011849 (UMLS CUI [1,2])
C0011849 (UMLS CUI [2,1])
C1518321 (UMLS CUI [2,2])
Past medical history: Diabetes
Code List
Indicate if the patient has a documented history of diabetes mellitus (regardless of duration of disease or need for anti-diabetic agents). If newly diagnosed, the diagnosis should meet the following criteria: Fasting plasma glucose >= 7.0mmol/L (126 mg/dL) or 2-hour plasma glucose >= 11.1 mmol/L (200mg/dL) [2 hours post 75g glucose load]
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Fasting plasma glucose
Item
For newly diagnosed diabetics indicate fasting plasma glucose if available
float
C0583513 (UMLS CUI [1])
Item
Units of fasting plasma glucose
integer
C0583513 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Units of fasting plasma glucose
Code List
Units of fasting plasma glucose
CL Item
mg/dL (1)
C0439269 (UMLS CUI-1)
(Comment:en)
CL Item
mmol/L (2)
C1532563 (UMLS CUI-1)
(Comment:en)
Weight
Item
Indicate the patient's weight in kilograms or pounds
float
C0005910 (UMLS CUI [1])
Item
Indicate units of weight
integer
C0005910 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Weight units
Code List
Indicate units of weight
CL Item
Kilograms (1)
C0439209 (UMLS CUI-1)
(Comment:en)
CL Item
Pounds (2)
C0439219 (UMLS CUI-1)
(Comment:en)
Item
Indicate if the patient is on lipid lowering therapy
integer
C0585943 (UMLS CUI [1])
Lipid lowering therapy
Code List
Indicate if the patient is on lipid lowering therapy
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Specify lipid lowering therapy
integer
C0585943 (UMLS CUI [1,1])
C2348235 (UMLS CUI [1,2])
Lipid lowering medication
Code List
Specify lipid lowering therapy
CL Item
Statin (1)
C0360714 (UMLS CUI-1)
(Comment:en)
CL Item
Ezetimibe (2)
C1142985 (UMLS CUI-1)
(Comment:en)
CL Item
Fibrates (3)
C1449704 (UMLS CUI-1)
(Comment:en)
CL Item
Other (4)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Has the patient had a creatinine test?
integer
C0201976 (UMLS CUI [1])
Past medical history: Diabetes
Code List
Has the patient had a creatinine test?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Creatinine
Item
Provide the patient's serum creatinine reading
float
C0201976 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
Item
What are the units of creatinine?
integer
C0201976 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Units of fasting plasma glucose
Code List
What are the units of creatinine?
CL Item
mg/dL (1)
C0439269 (UMLS CUI-1)
(Comment:en)
CL Item
mmol/L (2)
C1532563 (UMLS CUI-1)
(Comment:en)
Item
Was the creatinine reader calibrated to IDMS (isotope dilution mass spectrometry)
integer
C0201976 (UMLS CUI [1,1])
C0006751 (UMLS CUI [1,2])
C3274766 (UMLS CUI [1,3])
Creatinine calibration
Code List
Was the creatinine reader calibrated to IDMS (isotope dilution mass spectrometry)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
No (2)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Treatment variables
C0087111 (UMLS CUI-1)
Item
What is the management approach?
integer
C0087111 (UMLS CUI [1,1])
C0449445 (UMLS CUI [1,2])
Treatment approach
Code List
What is the management approach?
CL Item
Non­‐pharmacological management only (0)
C1518422 (UMLS CUI-1)
C0013216 (UMLS CUI-2)
(Comment:en)
CL Item
Pharmacological management (with or without non‐pharmacological treatment) (1)
C0013216 (UMLS CUI-1)
(Comment:en)
Antihypertensive drug class: ACEi/ARB
Item
Is patient on any of the following drug classes? 1 = ACEi/ARB
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0003015 (UMLS CUI [2])
C0521942 (UMLS CUI [3])
Antihypertensive drug class: Alpha‐blocker
Item
Is patient on any of the following drug classes? 2 = Alpha‐blocker
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0001641 (UMLS CUI [2])
Antihypertensive drug class: Beta-blocker
Item
Is patient on any of the following drug classes? 3 = Beta-blocker
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0001645 (UMLS CUI [2])
Antihypertensive drug class: Loop Diuretics
Item
Is patient on any of the following drug classes? 4 = Loop Diuretics
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0354100 (UMLS CUI [2])
Antihypertensive drug class: Thiazides
Item
Is patient on any of the following drug classes? 5 = Thiazides
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0012802 (UMLS CUI [2])
Antihypertensive drug class: Calcium channel blocker
Item
Is patient on any of the following drug classes? 6 = Calcium channel blocker
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0006684 (UMLS CUI [2])
Antihypertensive drug class: Other
Item
Is patient on any of the following drug classes? 7 = Other
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2])
Antihypertensive drug class: Unknown
Item
Is patient on any of the following drug classes? 999 = Unknown
boolean
C0003364 (UMLS CUI [1,1])
C0596463 (UMLS CUI [1,2])
C0439673 (UMLS CUI [2])
Item Group
Survival, disease control and cardiovascular complications
C1148433 (UMLS CUI-1)
C0012634 (UMLS CUI-2)
C0243148 (UMLS CUI-3)
C0007226 (UMLS CUI-4)
C0009566 (UMLS CUI-5)
Systolic blood pressure
Item
Patient systolic blood pressure reading in mmHg
integer
C0871470 (UMLS CUI [1])
Diastolic blood pressure
Item
Patient diastolic blood pressure reading in mmHg
integer
C0428883 (UMLS CUI [1])
Item
Has the patient died, regardless of cause?
integer
C0011065 (UMLS CUI [1])
Has the patient died?
Code List
Has the patient died, regardless of cause?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of death
Item
If yes, indicate date of death
date
C1148348 (UMLS CUI [1])
Item
If yes, indicate cause of death, if known
integer
C0007465 (UMLS CUI [1])
Cause of death
Code List
If yes, indicate cause of death, if known
CL Item
Acute myocardial infarction (1)
C0155626 (UMLS CUI-1)
(Comment:en)
CL Item
Sudden cardiac death (2)
C0085298 (UMLS CUI-1)
(Comment:en)
CL Item
Heart failure (3)
C0018801 (UMLS CUI-1)
(Comment:en)
CL Item
Stroke (4)
C0038454 (UMLS CUI-1)
(Comment:en)
CL Item
Cardiovascular procedures (5)
C0007222 (UMLS CUI-1)
C0430022 (UMLS CUI-2)
(Comment:en)
CL Item
Cardiovascular haemorrhage (6)
C0007222 (UMLS CUI-1)
C0019080 (UMLS CUI-2)
(Comment:en)
CL Item
Other cardiovascular causes (7)
C0205394 (UMLS CUI-1)
C0007222 (UMLS CUI-2)
(Comment:en)
CL Item
Non‐cardiovascular causes (8)
C0007222 (UMLS CUI-1)
C1298908 (UMLS CUI-2)
C0007465 (UMLS CUI-3)
(Comment:en)
CL Item
Cause unknown (9)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Has the patient experienced any adverse events or unwanted side effects of medication?
integer
C0392325 (UMLS CUI [1])
C0877248 (UMLS CUI [2])
Medication side effects and adverse events
Code List
Has the patient experienced any adverse events or unwanted side effects of medication?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Type of medication side effects: Falls
Item
If yes, please specify by selecting all that apply. 1 = Falls
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0085639 (UMLS CUI [2])
Type of medication side effects: Acute kidney injury
Item
If yes, please specify by selecting all that apply. 2 = Acute kidney injury
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C2609414 (UMLS CUI [2])
Type of medication side effects: Peripheral oedema
Item
If yes, please specify by selecting all that apply. 3 = Peripheral oedema
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0085649 (UMLS CUI [2])
Type of medication side effects: Fatigue or unusual tiredness
Item
If yes, please specify by selecting all that apply. 4 = Fatigue or unusual tiredness
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0015672 (UMLS CUI [2])
C2700116 (UMLS CUI [3,1])
C0848717 (UMLS CUI [3,2])
Type of medication side effects: Electrolyte abnormalities
Item
If yes, please specify by selecting all that apply. 5 = Electrolyte abnormalities
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0151613 (UMLS CUI [2])
Type of medication side effects: Hypokalaemia
Item
If yes, please specify by selecting all that apply. 6 = Hypokalaemia
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0020621 (UMLS CUI [2])
Type of medication side effects: Cough
Item
If yes, please specify by selecting all that apply. 7 = Cough
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0010200 (UMLS CUI [2])
Type of medication side effects: Erectile dysfunction
Item
If yes, please specify by selecting all that apply. 8 = Erectile dysfunction
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0242350 (UMLS CUI [2])
Type of medication side effects: Urinary frequency
Item
If yes, please specify by selecting all that apply. 9 = Urinary frequency
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0042023 (UMLS CUI [2])
Type of medication side effects: Other
Item
If yes, please specify by selecting all that apply. 10 = Other
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2])
Item
Does the patient have ischaemic heart disease?
integer
C1869045 (UMLS CUI [1])
Past medical history: Diabetes
Code List
Does the patient have ischaemic heart disease?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Does the patient have cerebrovascular disease?
integer
C0007820 (UMLS CUI [1])
Past medical history: Diabetes
Code List
Does the patient have cerebrovascular disease?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Does the patient have atrial fibrillation?
integer
C0004238 (UMLS CUI [1])
Past medical history: Diabetes
Code List
Does the patient have atrial fibrillation?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Does the patient have heart failure?
integer
C0018801 (UMLS CUI [1])
Past medical history: Diabetes
Code List
Does the patient have heart failure?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
If yes, what is the underlying cause?
integer
C0085978 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
Past medical history: Diabetes
Code List
If yes, what is the underlying cause?
CL Item
Valvular disease (1)
C0018824 (UMLS CUI-1)
(Comment:en)
CL Item
Hypertension (2)
C0020538 (UMLS CUI-1)
(Comment:en)
CL Item
Cardiomyopathy (3)
C0878544 (UMLS CUI-1)
(Comment:en)
CL Item
Ischaemic heart disease (4)
C1869045 (UMLS CUI-1)
(Comment:en)
CL Item
Other (5)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (6)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Does the patient have peripheral artery disease?
integer
C1704436 (UMLS CUI [1])
Past medical history: Diabetes
Code List
Does the patient have peripheral artery disease?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Does the patient have chronic kidney disease as evidenced by proteinuria?
integer
C1561643 (UMLS CUI [1])
C0033687 (UMLS CUI [2])
Chronic renal disease
Code List
Does the patient have chronic kidney disease as evidenced by proteinuria?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
How was proteinuria detected?
integer
C0033687 (UMLS CUI [1,1])
C3887511 (UMLS CUI [1,2])
Evidence of proteinuria
Code List
How was proteinuria detected?
CL Item
Manually read urine dipstick (1)
C0430370 (UMLS CUI-1)
C2911685 (UMLS CUI-2)
C0175674 (UMLS CUI-3)
(Comment:en)
CL Item
Electronically read urine dipstick (2)
C0430370 (UMLS CUI-1)
C2911685 (UMLS CUI-2)
C0022885 (UMLS CUI-3)
(Comment:en)
CL Item
Urinary albumin/creatinine ratio (3)
C0455271 (UMLS CUI-1)
(Comment:en)
Item
Proteinuria as provided by electronically read urine dipstick
integer
C1274040 (UMLS CUI [1,1])
C1160927 (UMLS CUI [1,2])
Results of urine dip
Code List
Proteinuria as provided by electronically read urine dipstick
CL Item
+ (1)
(Comment:en)
CL Item
++ (2)
(Comment:en)
CL Item
+++ (3)
(Comment:en)
CL Item
Unknown/results unavailable (4)
C0439673 (UMLS CUI-1)
C1254595 (UMLS CUI-2)
(Comment:en)
Results of urine ACR if done in place of urine dip
Item
Evidence of proteinuria as evidenced by urinary ACR
float
C0455271 (UMLS CUI [1,1])
C2826772 (UMLS CUI [1,2])
Item
Units of urinary ACR
integer
C0455271 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Units of urinary ACR
Code List
Units of urinary ACR
CL Item
mg/g (1)
C1300563 (UMLS CUI-1)
(Comment:en)
CL Item
mg/mmol (2)
C0567349 (UMLS CUI-1)
(Comment:en)
Item
Has the patient had a blood pressure reading above 180/120 mmHg in the past 12 months?
integer
C0745138 (UMLS CUI [1])
C0745136 (UMLS CUI [2])
Past medical history: Diabetes
Code List
Has the patient had a blood pressure reading above 180/120 mmHg in the past 12 months?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
If yes, does the patient have evidence of acute end-organ damage?
integer
C0205178 (UMLS CUI [1,1])
C0743496 (UMLS CUI [1,2])
Past medical history: Diabetes
Code List
If yes, does the patient have evidence of acute end-organ damage?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Type of acute end-organ damage: Ophthalmological
Item
If yes, please specify the type of acute end-organ damage: 1 = Ophthalmological
boolean
C0332307 (UMLS CUI [1,1])
C0205178 (UMLS CUI [1,2])
C0743496 (UMLS CUI [1,3])
C0015397 (UMLS CUI [2])
Type of acute end-organ damage: Renal
Item
If yes, please specify the type of acute end-organ damage: 2 = Renal
boolean
C0332307 (UMLS CUI [1,1])
C0205178 (UMLS CUI [1,2])
C0743496 (UMLS CUI [1,3])
C0022646 (UMLS CUI [2])
Type of acute end-organ damage: Cardiac
Item
If yes, please specify the type of acute end-organ damage: 3 = Cardiac
boolean
C0332307 (UMLS CUI [1,1])
C0205178 (UMLS CUI [1,2])
C0743496 (UMLS CUI [1,3])
C1522601 (UMLS CUI [2])
Type of acute end-organ damage: Cerebrovascular
Item
If yes, please specify the type of acute end-organ damage: 4 = Cerebrovascular
boolean
C0332307 (UMLS CUI [1,1])
C0205178 (UMLS CUI [1,2])
C0743496 (UMLS CUI [1,3])
C1880018 (UMLS CUI [2])
Type of acute end-organ damage: Unknown
Item
If yes, please specify the type of acute end-organ damage: 999 = Unknown
boolean
C0332307 (UMLS CUI [1,1])
C0205178 (UMLS CUI [1,2])
C0743496 (UMLS CUI [1,3])
C0439673 (UMLS CUI [2])
Item Group
Health status
C0018759 (UMLS CUI-1)
Item
What Health-related Quality of Life tool are you using?
integer
C4279947 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
Health-related Quality of Life
Code List
What Health-related Quality of Life tool are you using?
CL Item
EQ5D3L (1)
C1880594 (UMLS CUI-1)
(Comment:en)
CL Item
SF­‐12 (2)
C1519135 (UMLS CUI-1)
(Comment:en)
CL Item
VR‐12 (3)
C3655770 (UMLS CUI-1)
(Comment:en)
CL Item
PROMIS‐10 (4)
C3836333 (UMLS CUI-1)
(Comment:en)
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