ID

36711

Descrição

ICHOM Hypertension in low- and middle-income countries data collection Version 1.0.0 Revised: November 3rd, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ The following condition and treatment approaches (or interventions) are covered by our Standard Set. Condition: Hypertension (ICD-10: I10) Treatment Approaches: Pharmacological and Non-Pharmacological Collecting Patient-Reported Outcome Measures: Survey Used: EuroQol-5D-3L (EQ-5D-3L). As a licence is needed for use of EQ-5D-3L questionnaires, the actual questions are not part of this version of the standard set. For licensing information see: https://euroqol.org/support/how-to-obtain-eq-5d/ This document contains the 6 month review (6-monthly for life) - Patient-reported form. It has to be filled in 6 months after patient's entry into set as well as 6-monthly for life. PROMIS Single Question on erectile Dysfunction. Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Beliefs about Medication Questionnaire (BMQ)-Specific: Copyrighted, permission to use the scale can be obtained from Professor Rob Horne’s research team. The scoring guide can be found in the original validation article: Horne et al. (1999) The beliefs about medicines questionnaire: The development and evaluation of a new method for assessing the cognitive representation of medication. Psychology & Health, 14:1. Hill-Bone Compliance to High Blood Pressure Therapy Scale - South Africa Version: Permission to use the scale can be obtained from Estelle V. Lambert’s research team, The scoring guide can be found in the original validation article: Lambert, E.V. et al. (2006) Cross-Cultural Validation of the Hill-Bone Compliance To High Blood Pressure Therapy Scale in a South African, Primary Healthcare Setting. Ethnicity and Disease, 16. WHO STEPS Instrument. Free for use in clinical practice and a license is not required. http://www.who.int/chp/steps/instrument/en/ International Physical Activity Questionnaire(IPAQ)-Short Form: Publically available, open access, and no permissions are required to use it. https://sites.google.com/site/theipaq/ Alternative Quality of Life Surveys: PROMIS Global-10 Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Veteran’s Rand 12-Item Health Survey (VR-12). Free for all health care organizations, license required and can be requested at: http://bit.ly/2ir84sG. As a license is needed, the actual questions are not part of this version of the standard set. 12-Item Short Form Survey (SF-12). As a license is needed for use of SF-12 questionaires, the actual questions are not part of this version of the standard set. For more information see: http://bit.ly/2AcNLrme This Standard set was supported by the Novartis Foundation.

Link

http://www.ichom.org/

Palavras-chave

Versões (2)
  1. 04/06/2019 04/06/2019 -
  2. 30/04/2020 30/04/2020 - Sarah Riepenhausen
Titular dos direitos

ICHOM

Transferido a

4 de junho de 2019

DOI

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Licença

Creative Commons BY-NC 3.0
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ICHOM Hypertension in low- and middle-income countries

Inglês

6 month review (6-monthly for life) - Patient-reported

1 Formulários  
Administrative Data
Descrição

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Descrição

Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Reporting Source: Administratively-­‐reported or clinician-­‐reported Type: Numerical Response Options: According to institution

Tipo de dados

integer

Alias
UMLS CUI [1]
C2348585
Time relative to Baseline
Descrição

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Burden of care
Descrição

Burden of care

Alias
UMLS CUI-1
C0087111
UMLS CUI-2
C2828008
Was there any time during the past 12 months when you really needed to consult your healthcare provider but you did not?
Descrição

Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­reported Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C0444454
UMLS CUI [1,2]
C0086388
UMLS CUI [2,1]
C4717882
UMLS CUI [2,2]
C1298908
If yes, why? 1 = Could not afford to (too expensive)
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2]
C0549106
If yes, why? 2 = Waiting list
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2]
C0043010
If yes, why? 3 = Could not take time because of work, care for children or for others
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C0040223
UMLS CUI [3]
C0043227
UMLS CUI [4,1]
C0008059
UMLS CUI [4,2]
C0578884
UMLS CUI [5,1]
C0205394
UMLS CUI [5,2]
C1947933
If yes, why? 4 = Too far to travel/no means of transportation
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2,1]
C0012751
UMLS CUI [2,2]
C1298908
UMLS CUI [2,3]
C2003850
If yes, why? 5 = Fear of doctor/hospitals/examination/treatment
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2,1]
C1288289
UMLS CUI [2,2]
C0031831
UMLS CUI [3,1]
C1288289
UMLS CUI [3,2]
C0019994
UMLS CUI [4,1]
C1288289
UMLS CUI [4,2]
C0031809
UMLS CUI [5,1]
C1288289
UMLS CUI [5,2]
C0087111
If yes, why? 6 = Wanted to wait and see if problem got better on its own
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2,1]
C1610166
UMLS CUI [2,2]
C0018759
UMLS CUI [2,3]
C2986411
UMLS CUI [2,4]
C0746919
If yes, why? 7 = Didn’t know any good doctor or specialist?
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2,1]
C3843613
UMLS CUI [2,2]
C0205170
UMLS CUI [2,3]
C2348234
If yes, why? 8 = Other reason
Descrição

Inclusion Criteria: If answered 'yes' to access to care ('ACCESCARE') Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0679881
UMLS CUI [2]
C3840932
Were you able to obtain the medication prescribed by your healthcare provider in the appropriate dose and formulation?
Descrição

Supporting Definition: Access to drugs is the ability to access drugs as prescribed by healthcare provider Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­‐reported Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C0444454
UMLS CUI [1,2]
C0013227
If no, please specify reason:
Descrição

Inclusion Criteria: If answered 'no' to access to medication ('ACCESMEDS') Timing: Annually Reporting Source: Patient-­‐reported Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C4296486
UMLS CUI [1,2]
C0444454
UMLS CUI [1,3]
C0013227
What is the total number of pills or tablets that you take daily?
Descrição

Supporting Definition: Pill burden is the number of total daily pills patient takes Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­‐reported Type: Numerical Response Options: Numerical value

Tipo de dados

float

Alias
UMLS CUI [1,1]
C0994475
UMLS CUI [1,2]
C2828008
Health literacy and beliefs
Descrição

Health literacy and beliefs

Alias
UMLS CUI-1
C2362527
UMLS CUI-3
C0004951
BMQ-Specific Subscale
Descrição

Supporting Definition: Please contact license holder for the questionnaire. If you wish to participate in the ICHOM benchmarking program and have secured a licence to use the tool, ICHOM will provide you with the technical specifications on how to collect the data. Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient‐reported

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0034394
UMLS CUI [1,2]
C0004951
UMLS CUI [1,3]
C0013227
UMLS CUI [1,4]
C2964552
Hill-Bone Compliance to High Blood Pressure Therapy Scale - South Africa Version
Descrição

Supporting Definition: Please contact license holder for the questionnaire. If you wish to participate in the ICHOM benchmarking program and have secured a licence to use the tool, ICHOM will provide you with the technical specifications on how to collect the data. Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-reported

Tipo de dados

text

Alias
UMLS CUI [1,1]
C1947916
UMLS CUI [1,2]
C0020538
UMLS CUI [1,3]
C0087111
UMLS CUI [1,4]
C1321605
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Similar models

6 month review (6-monthly for life) - Patient-reported

1 Formulários
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Time relative to Baseline
Item
Time relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Burden of care
C0087111 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Item
Was there any time during the past 12 months when you really needed to consult your healthcare provider but you did not?
integer
C0444454 (UMLS CUI [1,1])
C0086388 (UMLS CUI [1,2])
C4717882 (UMLS CUI [2,1])
C1298908 (UMLS CUI [2,2])
Access to care
Code List
Was there any time during the past 12 months when you really needed to consult your healthcare provider but you did not?
CL Item
Yes, there was at least one occasion (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
No, there was no occasion (2)
C1298908 (UMLS CUI-1)
(Comment:en)
Barriers to accessing care: Could not afford to (too expensive)
Item
If yes, why? 1 = Could not afford to (too expensive)
boolean
C0679881 (UMLS CUI [1])
C0549106 (UMLS CUI [2])
Barriers to accessing care: Waiting list
Item
If yes, why? 2 = Waiting list
boolean
C0679881 (UMLS CUI [1])
C0043010 (UMLS CUI [2])
Barriers to accessing care: Could not take time because of work, care for children or for others
Item
If yes, why? 3 = Could not take time because of work, care for children or for others
boolean
C0679881 (UMLS CUI [1])
C1298908 (UMLS CUI [2,1])
C0040223 (UMLS CUI [2,2])
C0043227 (UMLS CUI [3])
C0008059 (UMLS CUI [4,1])
C0578884 (UMLS CUI [4,2])
C0205394 (UMLS CUI [5,1])
C1947933 (UMLS CUI [5,2])
Barriers to accessing care: Too far to travel/no means of transportation
Item
If yes, why? 4 = Too far to travel/no means of transportation
boolean
C0679881 (UMLS CUI [1])
C0012751 (UMLS CUI [2,1])
C1298908 (UMLS CUI [2,2])
C2003850 (UMLS CUI [2,3])
Barriers to accessing care: Fear of doctor/hospitals/examination/treatment
Item
If yes, why? 5 = Fear of doctor/hospitals/examination/treatment
boolean
C0679881 (UMLS CUI [1])
C1288289 (UMLS CUI [2,1])
C0031831 (UMLS CUI [2,2])
C1288289 (UMLS CUI [3,1])
C0019994 (UMLS CUI [3,2])
C1288289 (UMLS CUI [4,1])
C0031809 (UMLS CUI [4,2])
C1288289 (UMLS CUI [5,1])
C0087111 (UMLS CUI [5,2])
Barriers to accessing care: Wanted to wait and see if problem got better on its own
Item
If yes, why? 6 = Wanted to wait and see if problem got better on its own
boolean
C0679881 (UMLS CUI [1])
C1610166 (UMLS CUI [2,1])
C0018759 (UMLS CUI [2,2])
C2986411 (UMLS CUI [2,3])
C0746919 (UMLS CUI [2,4])
Barriers to accessing care: Didn’t know any good doctor or specialist?
Item
If yes, why? 7 = Didn’t know any good doctor or specialist?
boolean
C0679881 (UMLS CUI [1])
C3843613 (UMLS CUI [2,1])
C0205170 (UMLS CUI [2,2])
C2348234 (UMLS CUI [2,3])
Barriers to accessing care: Other reason
Item
If yes, why? 8 = Other reason
boolean
C0679881 (UMLS CUI [1])
C3840932 (UMLS CUI [2])
Item
Were you able to obtain the medication prescribed by your healthcare provider in the appropriate dose and formulation?
integer
C0444454 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Access to medication
Code List
Were you able to obtain the medication prescribed by your healthcare provider in the appropriate dose and formulation?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
No (2)
C1298908 (UMLS CUI-1)
(Comment:en)
Item
If no, please specify reason:
integer
C4296486 (UMLS CUI [1,1])
C0444454 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,3])
Barriers to accessing medication
Code List
If no, please specify reason:
CL Item
Medication not available (1)
C0013227 (UMLS CUI-1)
C0686905 (UMLS CUI-2)
(Comment:en)
CL Item
Cost (2)
C0010186 (UMLS CUI-1)
(Comment:en)
CL Item
Other (3)
C0205394 (UMLS CUI-1)
(Comment:en)
Pill burden
Item
What is the total number of pills or tablets that you take daily?
float
C0994475 (UMLS CUI [1,1])
C2828008 (UMLS CUI [1,2])
Item Group
Health literacy and beliefs
C2362527 (UMLS CUI-1)
C0004951 (UMLS CUI-3)
BMQ-Specific
Item
BMQ-Specific Subscale
text
C0034394 (UMLS CUI [1,1])
C0004951 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
Hill-Bone Compliance to High Blood Pressure Therapy Scale - South Africa Version
Item
Hill-Bone Compliance to High Blood Pressure Therapy Scale - South Africa Version
text
C1947916 (UMLS CUI [1,1])
C0020538 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C1321605 (UMLS CUI [1,4])
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