ID

36579

Description

ICHOM Hip and Knee Osteoarthritis Study description: ICHOM Hip and Knee Osteoarthritis data collection Version 2.2.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Hip and Knee Osteoarthritis, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions : All patients seeking treatment for osteoarthritis of the hip or knee, whether surgical or non-surgical Treatment Approaches: Non-Surgical: Lifestyle intervention | Patient education | Physiotherapy | Walking aid or orthosis | Topical and oral medication | Intra-articular injection Surgical: Osteotomy | Joint replacement | Other forms of surgical treatment This document contains the Baseline - Patient-reported form. Data collection may begin (baseline measure) at any point in a patient’s treatment for osteoarthritis whether at diagnosis of osteoarthritis in the hip or knee, upon the start of a new osteoarthritis treatment regime, or at the time of surgery. Once data collection begins, we recommend that it continues annually for as many years as feasible. Collecting Patient-Reported Outcome Measures: Hip Disability and Osteoarthritis Outcome Score - Physical Function Shortform (HOOS-PS). http://www.koos.nu/ Knee Injury and Osteoarthritis Outcome Score - Physical Function Shortform (KOOS-PS). http://www.koos.nu/ Veterans RAND 12 (VR-12) or Short Form 12 Health Survey (SF- 12). As a request for access and an agreement to terms of use are necessary before access, the actual questions of these questionnaires are not part of this version of the standard set. EuroQol-5D descriptive system (EQ- 5D-3L) and visual analogue scale (EQ-VAS). As a license is needed for use of EuroQol questionnaires, the actual questions are not part of this version of the standard set. *For a description of an algorithm to convert between the EQ-5D-3L and SF-12, please see: Le QA. Probabilistic mapping of the health status measure SF-12 responses and EQ-5D using the US-population-based scoring models. Qual Life Res. 2014 Mar; 23(2): 459-66. Please see the above Veterans RAND website for help converting the VR-12 to the SF-12. For this standard set ICHOM was supproted by Hoag Orthopedic Institute, the Connecticut Joint Replacement Institute, and Harvard Pilgrim Health Care and Arthritis Research.

Link

http://www.ichom.org/

Keywords

  1. 5/20/19 5/20/19 -
  2. 5/22/19 5/22/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

May 22, 2019

DOI

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License

Creative Commons BY-NC 3.0

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ICHOM Hip and Knee Osteoarthritis

Baseline - Patient-reported

Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C2348585
Demographic factors
Description

Demographic factors

Alias
UMLS CUI-1
C1704791
What is your date of birth?
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-­reported or administrative data Type: Date by DD/MM/YYYY Response Options: DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C0421451
DD/MM/YYYY
Please indicate your sex at birth?
Description

Inclusion Criteria: All patients Timing: Baseline Data Source: Patient‐reported or administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0079399
What is the highest level of schooling you have completed?
Description

Supporting definition: The level of schooling is defined in each country as per ISCED [International Standard Classification] Inclusion criteria: All patients Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0013658
Case-mix factors
Description

Case-mix factors

Alias
UMLS CUI-1
C0868928
UMLS CUI-2
C0549193
How tall are you?
Description

Supporting definition: Height and weight are used to calculate BMI Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported or clinical Type: Numeric value Responce Option: Numeric value of height in metric or imperial system

Data type

float

Alias
UMLS CUI [1]
C0005890
Units
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported or clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005890
UMLS CUI [1,2]
C1519795
How much do you weigh?
Description

Supporting definition: Height and weight are used to calculate BMI Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported or clinical Type: Numeric value Response Option: Numeric value of weight in metric or imperial system

Data type

integer

Alias
UMLS CUI [1]
C0005910
Units
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported or clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C1519795
Which statement best describes your living arrangement?
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0337645
Have you been told by a doctor that you have osteoarthritis in the following joints? 1 = Right hip
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0925205
UMLS CUI [2,1]
C0019552
UMLS CUI [2,2]
C0205090
Have you been told by a doctor that you have osteoarthritis in the following joints? 2 = Left hip
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0925205
UMLS CUI [2,1]
C0019552
UMLS CUI [2,2]
C0205091
Have you been told by a doctor that you have osteoarthritis in the following joints? 3 = Right knee
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0925205
UMLS CUI [2,1]
C0022742
UMLS CUI [2,2]
C0205090
Have you been told by a doctor that you have osteoarthritis in the following joints? 4 = Left knee
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0925205
UMLS CUI [2,1]
C0022742
UMLS CUI [2,2]
C0205091
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 0 = None
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C1298908
UMLS CUI [1,2]
C0187769
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C0596706
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 1 = Right hip
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0187769
UMLS CUI [1,2]
C1298908
UMLS CUI [2,1]
C0596706
UMLS CUI [2,2]
C0205090
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 2 = Left hip
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0187769
UMLS CUI [1,2]
C1298908
UMLS CUI [2,1]
C0596706
UMLS CUI [2,2]
C0205091
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 3 = Right knee
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0187769
UMLS CUI [1,2]
C0205090
UMLS CUI [2,1]
C0596706
UMLS CUI [2,2]
C1298908
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 4 = Left knee
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0187769
UMLS CUI [1,2]
C0205091
UMLS CUI [2,1]
C0596706
UMLS CUI [2,2]
C1298908
In a typical week, how much time do you spend doing PHYSICAL ACTIVITY? PHYSICAL ACTIVITY is any activity that makes you breath hard, feel warm, and feel your heart beat faster. Examples of physical activity are walking, bicycling, and dancing and also housecleaning and gardening.
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0026606
Do you smoke?
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1519386
Have you been told by doctor that you have any of the following? 1 = Heart disease (for example angina, heart attack or heart failure)
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0018799
UMLS CUI [2,1]
C0009488
UMLS CUI [2,2]
C0002962
UMLS CUI [3,1]
C0009488
UMLS CUI [3,2]
C0027051
UMLS CUI [4,1]
C0009488
UMLS CUI [4,2]
C0018801
Have you been told by doctor that you have any of the following? 2 = High blood pressure
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0020538
Have you been told by doctor that you have any of the following? 3 = Problems caused by a stroke
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0038454
Have you been told by doctor that you have any of the following? 4 = Leg pain when walking due to poor circulation
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1306889
Have you been told by doctor that you have any of the following? 5 = Lung disease (for example asthma, chronic bronchitis or emphysema)
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0024115
UMLS CUI [2,1]
C0009488
UMLS CUI [2,2]
C0004096
UMLS CUI [3,1]
C0009488
UMLS CUI [3,2]
C0008677
UMLS CUI [4,1]
C0009488
UMLS CUI [4,2]
C0034067
Have you been told by doctor that you have any of the following? 6 = Diabetes
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0011849
Have you been told by doctor that you have any of the following? 7 = Kidney disease
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0022658
Have you been told by doctor that you have any of the following? 8 = Diseases of the nervous system (for example Parkinson’s disease or multiple sclerosis)
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0007682
UMLS CUI [2,1]
C0009488
UMLS CUI [2,2]
C0030567
UMLS CUI [3,1]
C0009488
UMLS CUI [3,2]
C0026769
Have you been told by doctor that you have any of the following? 9 = Liver disease
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0023895
Have you been told by doctor that you have any of the following? 10 = Cancer (within the last 5 years)
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0006826
Have you been told by doctor that you have any of the following? 11 = Depression
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0011581
Have you been told by doctor that you have any of the following? 12 = Arthritis in your back or other condition affecting your spine
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C1388633
UMLS CUI [2,1]
C0009488
UMLS CUI [2,2]
C0205394
UMLS CUI [2,3]
C0392760
UMLS CUI [2,4]
C0037949
Have you been told by doctor that you have any of the following? 13 = Rheumatoid arthritis or another kind of arthritis in addition to osteoarthritis
Description

Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0009488
UMLS CUI [1,2]
C0003873
UMLS CUI [2,1]
C0009488
UMLS CUI [2,2]
C0003864
UMLS CUI [2,3]
C0205394
UMLS CUI [2,4]
C1524062
UMLS CUI [2,5]
C0029408
Treatment Variables
Description

Treatment Variables

Alias
UMLS CUI-1
C0087111
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 1 = Information/advice (ex: patient education, advice on diet, exercise, or other lifestyle alterations)
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C1955348
UMLS CUI [2]
C0030688
UMLS CUI [3,1]
C1386497
UMLS CUI [3,2]
C0012155
UMLS CUI [4]
C0015259
UMLS CUI [5,1]
C0205394
UMLS CUI [5,2]
C0870811
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 2 = Self managed care (ex: non-prescription oral pain medication, medications applied to the skin, exercise or diet program)
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0474417
UMLS CUI [2,1]
C0474417
UMLS CUI [2,2]
C0013231
UMLS CUI [2,3]
C0442027
UMLS CUI [2,4]
C0002771
UMLS CUI [3,1]
C0474417
UMLS CUI [3,2]
C2347852
UMLS CUI [3,3]
C0185125
UMLS CUI [3,4]
C1123023
UMLS CUI [4,1]
C0474417
UMLS CUI [4,2]
C0015259
UMLS CUI [5,1]
C0474417
UMLS CUI [5,2]
C0012155
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 3 = Non-surgical, clinical care (ex: nonsteroidal anti-inflammatory drugs or other prescription drugs, supervised physical or occupation therapy, orthosis or other ambulatory aids, injections directly into the joint)
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0344211
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C0543467
UMLS CUI [3]
C0003211
UMLS CUI [4,1]
C0205394
UMLS CUI [4,2]
C0304227
UMLS CUI [5]
C0949766
UMLS CUI [6,1]
C0087111
UMLS CUI [6,2]
C0521127
UMLS CUI [7]
C1739370
UMLS CUI [8,1]
C0439841
UMLS CUI [8,2]
C0205394
UMLS CUI [8,3]
C0036605
UMLS CUI [9]
C0021488
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 4 = Surgery (ex: osteotomy, resurfacing, partial or total joint replacement)
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0543467
UMLS CUI [2]
C0029468
UMLS CUI [3]
C0444754
UMLS CUI [4,1]
C0185317
UMLS CUI [4,2]
C0728938
UMLS CUI [5,1]
C0185317
UMLS CUI [5,2]
C0439810
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 1 = Health educator/peer support group
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C1704738
UMLS CUI [2]
C0021682
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 2 = Dietician; physical therapist; general practitioner
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C1704738
UMLS CUI [2]
C3536818
UMLS CUI [3,1]
C0031809
UMLS CUI [3,2]
C0871525
UMLS CUI [4]
C0017319
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 3 = Rheumatologist
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C1704738
UMLS CUI [1,2]
C0334889
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 4 = Orthopedic surgeon
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C1704738
UMLS CUI [1,2]
C0029354
UMLS CUI [1,3]
C0582175
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 5 = Alternative health practitioner
Description

Inclusion critria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1,1]
C1704738
UMLS CUI [1,2]
C0949216
UMLS CUI [1,3]
C1709627
Functional status
Description

Functional status

Alias
UMLS CUI-1
C0598463
This survey asks for your view about your hip. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your hip problem. 1. Descending stairs
Description

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0029410
2. Getting in/out of bath or shower
Description

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0029410
3. Sitting
Description

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0029410
4. Running
Description

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0029410
5. Twisting/pivoting on your loaded leg
Description

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0029410
This survey asks for your view about your knee. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your knee problem. 1. Rising from bed
Description

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0409959
2. Putting on socks/stockings
Description

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0409959
3. Rising from sitting
Description

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0409959
4. Bending to floor
Description

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0409959
5. Twisting/pivoting on your injured knee
Description

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0409959
6. Kneeling
Description

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0409959
7. Squatting
Description

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0598463
UMLS CUI [1,2]
C0449820
UMLS CUI [1,3]
C0409959
Pain
Description

Pain

Alias
UMLS CUI-1
C0030193
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right hip
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Data type

float

Alias
UMLS CUI [1,1]
C0019559
UMLS CUI [1,2]
C0205090
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left hip
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Data type

float

Alias
UMLS CUI [1,1]
C0019559
UMLS CUI [1,2]
C0205091
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right knee
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Data type

float

Alias
UMLS CUI [1,1]
C0231749
UMLS CUI [1,2]
C0205090
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left knee
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Data type

float

Alias
UMLS CUI [1,1]
C0231749
UMLS CUI [1,2]
C0205091
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Lower back
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Data type

float

Alias
UMLS CUI [1,1]
C0230102
UMLS CUI [1,2]
C0004604
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Lower back
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Data type

float

Alias
UMLS CUI [1,1]
C0230102
UMLS CUI [1,2]
C0004604
Work Status
Description

Work Status

Alias
UMLS CUI-1
C0014003
UMLS CUI-2
C0449438
What is your work status?
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0242271
Quality of life
Description

Quality of life

Alias
UMLS CUI-1
C0034380
EQ5D Questionaire total score
Description

As a license is needed for use of EuroQol questionnaires, the actual questions are not part of this version of the standard set. In the original standard set the EQ5D Questionaire includes 6 questions. The ICHOM OID's are: MOBILITY, SELFCARE, ACTIVITY, PAIN, ANXIETY and EQ_VAS. Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2733251
UMLS CUI [1,2]
C2964552
VR-12 Questionaire total score
Description

As a request for access and an agreement to terms of use are necessary before access, the actual questions of these questionnaires are not part of this version of the standard set. In the original standard set the VR-12 Questionaire includes 9 questions. The ICHOM OID's are: GH1, PF2, PF4, VRP2, VRP3, VRE2, VRE3, BP2, MH3, VT2, MH4, SF2, VR12_Q08 and VR12_Q09. Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C3655770
UMLS CUI [1,2]
C2964552
General treatment outcomes
Description

General treatment outcomes

Alias
UMLS CUI-1
C0199174
UMLS CUI-2
C2015879
How satisfied are you with the results of your treatment?
Description

Inclusion criteria: All patients Timing: Baseline Annually Data Source: Patient-reported Type: Likert scale

Data type

integer

Alias
UMLS CUI [1]
C3476649

Similar models

Baseline - Patient-reported

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Item Group
Demographic factors
C1704791 (UMLS CUI-1)
Date of birth
Item
What is your date of birth?
date
C0421451 (UMLS CUI [1])
Item
Please indicate your sex at birth?
integer
C0079399 (UMLS CUI [1])
Code List
Please indicate your sex at birth?
CL Item
Male (1)
CL Item
Female (2)
Item
What is the highest level of schooling you have completed?
integer
C0013658 (UMLS CUI [1])
Code List
What is the highest level of schooling you have completed?
CL Item
None (0)
C0557286 (UMLS CUI-1)
(Comment:en)
CL Item
Primary (1)
C0013658 (UMLS CUI-1)
C0033145 (UMLS CUI-2)
(Comment:en)
CL Item
Secondary (2)
C0557289 (UMLS CUI-1)
(Comment:en)
CL Item
Tertiary (university or equivalent) (3)
C0557291 (UMLS CUI-1)
C0041740 (UMLS CUI-2)
C0205163 (UMLS CUI-3)
(Comment:en)
Item Group
Case-mix factors
C0868928 (UMLS CUI-1)
C0549193 (UMLS CUI-2)
Height
Item
How tall are you?
float
C0005890 (UMLS CUI [1])
Item
Units
integer
C0005890 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Code List
Units
CL Item
cm (1)
C0475210 (UMLS CUI-1)
(Comment:en)
CL Item
in (2)
C0439204 (UMLS CUI-1)
(Comment:en)
Item
How much do you weigh?
integer
C0005910 (UMLS CUI [1])
Code List
How much do you weigh?
Item
Units
integer
C0005910 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Code List
Units
CL Item
kg (1)
C0439209 (UMLS CUI-1)
(Comment:en)
CL Item
lbs (2)
C0439219 (UMLS CUI-1)
(Comment:en)
Item
Which statement best describes your living arrangement?
integer
C0337645 (UMLS CUI [1])
Code List
Which statement best describes your living arrangement?
CL Item
I live with partner/spouse/family/friends (1)
C1443355 (UMLS CUI-1)
C2184147 (UMLS CUI-2)
C0557130 (UMLS CUI-3)
C0557128 (UMLS CUI-4)
(Comment:en)
CL Item
I live alone (2)
C0439044 (UMLS CUI-1)
(Comment:en)
CL Item
I live in a nursing home/hospital/other long term care home (3)
C0425205 (UMLS CUI-1)
C0557218 (UMLS CUI-2)
C3640869 (UMLS CUI-3)
(Comment:en)
CL Item
Other (888)
C0205394 (UMLS CUI-1)
C0337645 (UMLS CUI-2)
(Comment:en)
Laterality of affected joint(s): Right hip
Item
Have you been told by a doctor that you have osteoarthritis in the following joints? 1 = Right hip
boolean
C0925205 (UMLS CUI [1])
C0019552 (UMLS CUI [2,1])
C0205090 (UMLS CUI [2,2])
Laterality of affected joint(s): Left hip
Item
Have you been told by a doctor that you have osteoarthritis in the following joints? 2 = Left hip
boolean
C0925205 (UMLS CUI [1])
C0019552 (UMLS CUI [2,1])
C0205091 (UMLS CUI [2,2])
Laterality of affected joint(s): Right knee
Item
Have you been told by a doctor that you have osteoarthritis in the following joints? 3 = Right knee
boolean
C0925205 (UMLS CUI [1])
C0022742 (UMLS CUI [2,1])
C0205090 (UMLS CUI [2,2])
Laterality of affected joint(s): Left knee
Item
Have you been told by a doctor that you have osteoarthritis in the following joints? 4 = Left knee
boolean
C0925205 (UMLS CUI [1])
C0022742 (UMLS CUI [2,1])
C0205091 (UMLS CUI [2,2])
History of surgery on the hip or knee: None
Item
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 0 = None
boolean
C1298908 (UMLS CUI [1,1])
C0187769 (UMLS CUI [1,2])
C1298908 (UMLS CUI [2,1])
C0596706 (UMLS CUI [2,2])
History of surgery on the hip or knee: Right hip
Item
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 1 = Right hip
boolean
C0187769 (UMLS CUI [1,1])
C1298908 (UMLS CUI [1,2])
C0596706 (UMLS CUI [2,1])
C0205090 (UMLS CUI [2,2])
History of surgery on the hip or knee: Left hip
Item
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 2 = Left hip
boolean
C0187769 (UMLS CUI [1,1])
C1298908 (UMLS CUI [1,2])
C0596706 (UMLS CUI [2,1])
C0205091 (UMLS CUI [2,2])
History of surgery on the hip or knee: Right knee
Item
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 3 = Right knee
boolean
C0187769 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
C0596706 (UMLS CUI [2,1])
C1298908 (UMLS CUI [2,2])
History of surgery on the hip or knee: Left knee
Item
In the past year, have you had surgery to treat osteoarthritis in the following joint(s)? 4 = Left knee
boolean
C0187769 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
C0596706 (UMLS CUI [2,1])
C1298908 (UMLS CUI [2,2])
Item
In a typical week, how much time do you spend doing PHYSICAL ACTIVITY? PHYSICAL ACTIVITY is any activity that makes you breath hard, feel warm, and feel your heart beat faster. Examples of physical activity are walking, bicycling, and dancing and also housecleaning and gardening.
integer
C0026606 (UMLS CUI [1])
Code List
In a typical week, how much time do you spend doing PHYSICAL ACTIVITY? PHYSICAL ACTIVITY is any activity that makes you breath hard, feel warm, and feel your heart beat faster. Examples of physical activity are walking, bicycling, and dancing and also housecleaning and gardening.
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
About 30 minutes (1)
C1442458 (UMLS CUI-1)
(Comment:en)
CL Item
About 1 hour (2)
C1442450 (UMLS CUI-1)
(Comment:en)
CL Item
About 2 hours (3)
C0205172 (UMLS CUI-1)
C1442450 (UMLS CUI-2)
(Comment:en)
CL Item
More than 2 hours (4)
C0205172 (UMLS CUI-1)
C1292425 (UMLS CUI-2)
(Comment:en)
Item
Do you smoke?
integer
C1519386 (UMLS CUI [1])
Code List
Do you smoke?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Co-morbid conditions: Heart disease
Item
Have you been told by doctor that you have any of the following? 1 = Heart disease (for example angina, heart attack or heart failure)
boolean
C0009488 (UMLS CUI [1,1])
C0018799 (UMLS CUI [1,2])
C0009488 (UMLS CUI [2,1])
C0002962 (UMLS CUI [2,2])
C0009488 (UMLS CUI [3,1])
C0027051 (UMLS CUI [3,2])
C0009488 (UMLS CUI [4,1])
C0018801 (UMLS CUI [4,2])
Co-morbid conditions: High blood pressure
Item
Have you been told by doctor that you have any of the following? 2 = High blood pressure
boolean
C0009488 (UMLS CUI [1,1])
C0020538 (UMLS CUI [1,2])
Co-morbid conditions: Stroke
Item
Have you been told by doctor that you have any of the following? 3 = Problems caused by a stroke
boolean
C0009488 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
Co-morbid conditions: Leg pain
Item
Have you been told by doctor that you have any of the following? 4 = Leg pain when walking due to poor circulation
boolean
C0009488 (UMLS CUI [1,1])
C1306889 (UMLS CUI [1,2])
Co-morbid conditions: Lung disease
Item
Have you been told by doctor that you have any of the following? 5 = Lung disease (for example asthma, chronic bronchitis or emphysema)
boolean
C0009488 (UMLS CUI [1,1])
C0024115 (UMLS CUI [1,2])
C0009488 (UMLS CUI [2,1])
C0004096 (UMLS CUI [2,2])
C0009488 (UMLS CUI [3,1])
C0008677 (UMLS CUI [3,2])
C0009488 (UMLS CUI [4,1])
C0034067 (UMLS CUI [4,2])
Co-morbid conditions: Diabetes
Item
Have you been told by doctor that you have any of the following? 6 = Diabetes
boolean
C0009488 (UMLS CUI [1,1])
C0011849 (UMLS CUI [1,2])
Co-morbid conditions: Kidney disease
Item
Have you been told by doctor that you have any of the following? 7 = Kidney disease
boolean
C0009488 (UMLS CUI [1,1])
C0022658 (UMLS CUI [1,2])
Co-morbid conditions: Diseases of the nervous system
Item
Have you been told by doctor that you have any of the following? 8 = Diseases of the nervous system (for example Parkinson’s disease or multiple sclerosis)
boolean
C0009488 (UMLS CUI [1,1])
C0007682 (UMLS CUI [1,2])
C0009488 (UMLS CUI [2,1])
C0030567 (UMLS CUI [2,2])
C0009488 (UMLS CUI [3,1])
C0026769 (UMLS CUI [3,2])
Co-morbid conditions: Liver disease
Item
Have you been told by doctor that you have any of the following? 9 = Liver disease
boolean
C0009488 (UMLS CUI [1,1])
C0023895 (UMLS CUI [1,2])
Co-morbid conditions: Cancer
Item
Have you been told by doctor that you have any of the following? 10 = Cancer (within the last 5 years)
boolean
C0009488 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])
Co-morbid conditions: Depression
Item
Have you been told by doctor that you have any of the following? 11 = Depression
boolean
C0009488 (UMLS CUI [1,1])
C0011581 (UMLS CUI [1,2])
Co-morbid conditions: Arthritis, other condition affecting your spine
Item
Have you been told by doctor that you have any of the following? 12 = Arthritis in your back or other condition affecting your spine
boolean
C0009488 (UMLS CUI [1,1])
C1388633 (UMLS CUI [1,2])
C0009488 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
C0392760 (UMLS CUI [2,3])
C0037949 (UMLS CUI [2,4])
Co-morbid conditions: Rheumatoid arthritis, another kind of arthritis in addition to osteoarthritis
Item
Have you been told by doctor that you have any of the following? 13 = Rheumatoid arthritis or another kind of arthritis in addition to osteoarthritis
boolean
C0009488 (UMLS CUI [1,1])
C0003873 (UMLS CUI [1,2])
C0009488 (UMLS CUI [2,1])
C0003864 (UMLS CUI [2,2])
C0205394 (UMLS CUI [2,3])
C1524062 (UMLS CUI [2,4])
C0029408 (UMLS CUI [2,5])
Item Group
Treatment Variables
C0087111 (UMLS CUI-1)
Treatment progression: Information/advice
Item
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 1 = Information/advice (ex: patient education, advice on diet, exercise, or other lifestyle alterations)
boolean
C0087111 (UMLS CUI [1,1])
C1955348 (UMLS CUI [1,2])
C0030688 (UMLS CUI [2])
C1386497 (UMLS CUI [3,1])
C0012155 (UMLS CUI [3,2])
C0015259 (UMLS CUI [4])
C0205394 (UMLS CUI [5,1])
C0870811 (UMLS CUI [5,2])
Treatment progression: Self managed care
Item
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 2 = Self managed care (ex: non-prescription oral pain medication, medications applied to the skin, exercise or diet program)
boolean
C0087111 (UMLS CUI [1,1])
C0474417 (UMLS CUI [1,2])
C0474417 (UMLS CUI [2,1])
C0013231 (UMLS CUI [2,2])
C0442027 (UMLS CUI [2,3])
C0002771 (UMLS CUI [2,4])
C0474417 (UMLS CUI [3,1])
C2347852 (UMLS CUI [3,2])
C0185125 (UMLS CUI [3,3])
C1123023 (UMLS CUI [3,4])
C0474417 (UMLS CUI [4,1])
C0015259 (UMLS CUI [4,2])
C0474417 (UMLS CUI [5,1])
C0012155 (UMLS CUI [5,2])
Treatment progression: Non-surgical, clinical care
Item
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 3 = Non-surgical, clinical care (ex: nonsteroidal anti-inflammatory drugs or other prescription drugs, supervised physical or occupation therapy, orthosis or other ambulatory aids, injections directly into the joint)
boolean
C0344211 (UMLS CUI [1])
C1298908 (UMLS CUI [2,1])
C0543467 (UMLS CUI [2,2])
C0003211 (UMLS CUI [3])
C0205394 (UMLS CUI [4,1])
C0304227 (UMLS CUI [4,2])
C0949766 (UMLS CUI [5])
C0087111 (UMLS CUI [6,1])
C0521127 (UMLS CUI [6,2])
C1739370 (UMLS CUI [7])
C0439841 (UMLS CUI [8,1])
C0205394 (UMLS CUI [8,2])
C0036605 (UMLS CUI [8,3])
C0021488 (UMLS CUI [9])
Treatment progression: Surgery
Item
Which of the following treatments have you undergone in the past year for your osteoarthritis related hip or knee problems? 4 = Surgery (ex: osteotomy, resurfacing, partial or total joint replacement)
boolean
C0543467 (UMLS CUI [1])
C0029468 (UMLS CUI [2])
C0444754 (UMLS CUI [3])
C0185317 (UMLS CUI [4,1])
C0728938 (UMLS CUI [4,2])
C0185317 (UMLS CUI [5,1])
C0439810 (UMLS CUI [5,2])
Care utilization: Health educator/peer support group
Item
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 1 = Health educator/peer support group
boolean
C1704738 (UMLS CUI [1])
C0021682 (UMLS CUI [2])
Care utilization: Dietician; physical therapist; general practitioner
Item
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 2 = Dietician; physical therapist; general practitioner
boolean
C1704738 (UMLS CUI [1])
C3536818 (UMLS CUI [2])
C0031809 (UMLS CUI [3,1])
C0871525 (UMLS CUI [3,2])
C0017319 (UMLS CUI [4])
Care utilization: Rheumatologist
Item
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 3 = Rheumatologist
boolean
C1704738 (UMLS CUI [1,1])
C0334889 (UMLS CUI [1,2])
Care utilization: Orthopedic surgeon
Item
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 4 = Orthopedic surgeon
boolean
C1704738 (UMLS CUI [1,1])
C0029354 (UMLS CUI [1,2])
C0582175 (UMLS CUI [1,3])
Care utilization: Alternative health practitioner
Item
In the past year, which of the following health care providers have you seen for treatment of your osteoarthritis related hip or knee problems? 5 = Alternative health practitioner
boolean
C1704738 (UMLS CUI [1,1])
C0949216 (UMLS CUI [1,2])
C1709627 (UMLS CUI [1,3])
Item Group
Functional status
C0598463 (UMLS CUI-1)
Item
This survey asks for your view about your hip. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your hip problem. 1. Descending stairs
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0029410 (UMLS CUI [1,3])
Code List
This survey asks for your view about your hip. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your hip problem. 1. Descending stairs
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
2. Getting in/out of bath or shower
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0029410 (UMLS CUI [1,3])
Code List
2. Getting in/out of bath or shower
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
3. Sitting
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0029410 (UMLS CUI [1,3])
Code List
3. Sitting
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
4. Running
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0029410 (UMLS CUI [1,3])
Code List
4. Running
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
5. Twisting/pivoting on your loaded leg
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0029410 (UMLS CUI [1,3])
Code List
5. Twisting/pivoting on your loaded leg
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
This survey asks for your view about your knee. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your knee problem. 1. Rising from bed
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0409959 (UMLS CUI [1,3])
Code List
This survey asks for your view about your knee. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your knee problem. 1. Rising from bed
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
2. Putting on socks/stockings
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0409959 (UMLS CUI [1,3])
Code List
2. Putting on socks/stockings
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
3. Rising from sitting
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0409959 (UMLS CUI [1,3])
Code List
3. Rising from sitting
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
4. Bending to floor
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0409959 (UMLS CUI [1,3])
Code List
4. Bending to floor
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
5. Twisting/pivoting on your injured knee
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0409959 (UMLS CUI [1,3])
Code List
5. Twisting/pivoting on your injured knee
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
6. Kneeling
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0409959 (UMLS CUI [1,3])
Code List
6. Kneeling
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
7. Squatting
integer
C0598463 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0409959 (UMLS CUI [1,3])
Code List
7. Squatting
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item Group
Pain
C0030193 (UMLS CUI-1)
Pain in the right hip
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right hip
float
C0019559 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
Pain in the left hip
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left hip
float
C0019559 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
Pain in the right knee
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right knee
float
C0231749 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
Pain in the left knee
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left knee
float
C0231749 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
Pain in the lower back
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Lower back
float
C0230102 (UMLS CUI [1,1])
C0004604 (UMLS CUI [1,2])
Pain in the lower back
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Lower back
float
C0230102 (UMLS CUI [1,1])
C0004604 (UMLS CUI [1,2])
Item Group
Work Status
C0014003 (UMLS CUI-1)
C0449438 (UMLS CUI-2)
Item
What is your work status?
integer
C0242271 (UMLS CUI [1])
Code List
What is your work status?
CL Item
Unable to work due to a condition other than osteoarthritis (0)
C0849751 (UMLS CUI-1)
C0332300 (UMLS CUI-2)
C0029408 (UMLS CUI-3)
(Comment:en)
CL Item
Unable to work due to osteoarthritis (1)
C0849751 (UMLS CUI-1)
C0029408 (UMLS CUI-2)
(Comment:en)
CL Item
Not working by choice (student, retired, homemaker) (2)
C0439656 (UMLS CUI-1)
C0041674 (UMLS CUI-2)
C0038492 (UMLS CUI-3)
C0035345 (UMLS CUI-4)
C0555052 (UMLS CUI-5)
(Comment:en)
CL Item
Seeking employment (I consider myself able to work but cannot find a job) (3)
C0041674 (UMLS CUI-1)
C2984044 (UMLS CUI-2)
(Comment:en)
CL Item
Working part-time (4)
C0682294 (UMLS CUI-1)
(Comment:en)
CL Item
Working full-time (5)
C0682295 (UMLS CUI-1)
(Comment:en)
Item Group
Quality of life
C0034380 (UMLS CUI-1)
EQ5D Questionaire total score
Item
EQ5D Questionaire total score
integer
C2733251 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
VR-12 Questionaire total score
Item
VR-12 Questionaire total score
integer
C3655770 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item Group
General treatment outcomes
C0199174 (UMLS CUI-1)
C2015879 (UMLS CUI-2)
Item
How satisfied are you with the results of your treatment?
integer
C3476649 (UMLS CUI [1])
Code List
How satisfied are you with the results of your treatment?
CL Item
Very satisfied (1)
C3840671 (UMLS CUI-1)
(Comment:en)
CL Item
Satisfied (2)
C4084799 (UMLS CUI-1)
(Comment:en)
CL Item
Neither satisfied nor dissatisfied (3)
C4050008 (UMLS CUI-1)
(Comment:en)
CL Item
Unsatisfied (4)
C4085546 (UMLS CUI-1)
(Comment:en)
CL Item
Very unsatisfied (5)
C2984081 (UMLS CUI-1)
C4085546 (UMLS CUI-2)
(Comment:en)

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