ID

36543

Description

ICHOM Stroke data collection Version 2.0.1 Revised: June 21th, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For stroke, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Patients who have been hospitalized for an index ischemic stroke (IS) or intracereberal hemorrhage (ICH). Patients with subarachnoid hemorrhage (SAH) are excluded. Inclusion of transient ischemic attack (TIA) or patients with IS or ICH who are evaluated but not hospitalized is not required. Treatment Approaches: IV Thrombolysis | Thrombectomy | Hemicraniectomy This form containsDischarge +7 days - Administrative data form. If a second stroke occurs between discharge and the “90 day post index” collection, you should reset the measurement scale, treating them as a new patient. Questionnaires used in this standard set: PROMIS-10. It is free for all health care organizations, and a license is not needed. There are translations available for Spanish, French, German,and Dutch. As http://www.nihpromis.org is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Simplified Modified Rankin Scale Questionnaire (smRSq) – Clinician. There is no patent on thes smRSq or fee for using it in clinical practice; however Lippincott Williams & Wilkins (LWW) own the rights to the published article where the smRSq is introduced. Therefore here only the total score is included. The smRSq flow chart can be found at http://stroke.ahajournals.org/content/42/8/2276 “Simplified Modified Rankin Scale Questionnaire Reproducibility Over the Telephone and Validation With Quality of Life” Stroke 2011; 42: 2276-2279 © 2011 American Heart Association, Inc. Wolters Kluwer Health. Publication: Salinas J, Sprinkhuizen SM, Ackerson T, et al. An International Standard Set of Patient-Centered Outcome Measures After Stroke. Stroke. 2015;47(1):180–186. doi:10.1161/STROKEAHA.115.010898 The Stroke Standard Set is supported by the American Heart Association and the American Stroke Association.

Link

http://www.ichom.org/

Keywords

Versions (3)
  1. 5/14/19 5/14/19 -
  2. 5/21/19 5/21/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

May 21, 2019

DOI

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License

Creative Commons BY-NC 3.0
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ICHOM Conditions and Treatment Approaches Covered for Stroke

English

Discharge +7 days - Administrative data

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Treatment/care related
Description

Treatment/care related

Alias
UMLS CUI-1
C0087111
UMLS CUI-2
C0439849
Date of discharge from acute care hospital
Description

Inclusion Criteria: All patients Timing: Discharge Data Source: Administrative data Type: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C2361123
UMLS CUI [1,2]
C3661916
DD/MM/YYYY
Did the acute inpatient care include dedicated stroke rehabilitation?
Description

Supporting Definition: Dedicated stroke rehabilitation during acute care Inclusion Criteria: All patients Timing: Discharge Data Source: Administrative or clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0034991
UMLS CUI [1,2]
C0021562
UMLS CUI [1,3]
C0679878
Did the post-acute care include dedicated stroke rehabilitation?
Description

Supporting Definition: Dedicated stroke rehabilitation during post-acute care, either hospital based or out patient/home based Inclusion Criteria: All patients Timing: Discharge Data Source: Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0034991
UMLS CUI [1,2]
C0332282
UMLS CUI [1,3]
C0679878
What type of place was the patient discharged to?
Description

Supporting Definition: Indicate the patient’s discharge destination from acute care hospital Inclusion Criteria: All patients Timing: Discharge Data Source: Administrative data Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1550391
Survival and disease control
Description

Survival and disease control

Alias
UMLS CUI-1
C1148433
UMLS CUI-2
C0012634
UMLS CUI-3
C0243148
Indicate if the patient has died
Description

Supporting Definition: All cause mortality Inclusion Criteria: All patients Timing: Discharge; 90 days post admission for index event; One year after index event; Tracked ongoing annually for 5 years (when hospital is able to track this ongoing) Data Source: Administrative data (e.g. death registry) Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C1148433
UMLS CUI [1,2]
C0282416
Indicate date of death
Description

Inclusion Criteria: If "1 = Yes" to OVERALLSURV Timing: Discharge; 90 days post admission for index event; One year after index event; Tracked ongoing annually for 5 years (when hospital is able to track this ongoing) Data Source: Administrative data (e.g. death registry) Type: Date by DD/MM/YYYY 99/99/9999 = Unknown

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C1148348
DD/MM/YYYY
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Similar models

Discharge +7 days - Administrative data

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C1269815 (UMLS CUI [1])
Item Group
Treatment/care related
C0087111 (UMLS CUI-1)
C0439849 (UMLS CUI-2)
Date of discharge
Item
Date of discharge from acute care hospital
date
C2361123 (UMLS CUI [1,1])
C3661916 (UMLS CUI [1,2])
Item
Did the acute inpatient care include dedicated stroke rehabilitation?
integer
C0034991 (UMLS CUI [1,1])
C0021562 (UMLS CUI [1,2])
C0679878 (UMLS CUI [1,3])
Rehabilitation inpatient acute care
Code List
Did the acute inpatient care include dedicated stroke rehabilitation?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Did the post-acute care include dedicated stroke rehabilitation?
integer
C0034991 (UMLS CUI [1,1])
C0332282 (UMLS CUI [1,2])
C0679878 (UMLS CUI [1,3])
Rehabilitation inpatient acute care
Code List
Did the post-acute care include dedicated stroke rehabilitation?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
What type of place was the patient discharged to?
integer
C1550391 (UMLS CUI [1])
Discharge destination following acute care hospitalization
Code List
What type of place was the patient discharged to?
CL Item
Home or community dwelling (not home hospice) (1)
C0442519 (UMLS CUI-1)
C4045975 (UMLS CUI-2)
(Comment:en)
CL Item
Residential facility (2)
C0035186 (UMLS CUI-1)
(Comment:en)
CL Item
Dedicated inpatient rehabilitation facility (3)
C0021562 (UMLS CUI-1)
C0018704 (UMLS CUI-2)
(Comment:en)
CL Item
Another acute care hospital (4)
C0205394 (UMLS CUI-1)
C3661916 (UMLS CUI-2)
(Comment:en)
CL Item
Patient died in hospital (5)
C1306577 (UMLS CUI-1)
C0019994 (UMLS CUI-2)
(Comment:en)
CL Item
Other (888)
C0205394 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Survival and disease control
C1148433 (UMLS CUI-1)
C0012634 (UMLS CUI-2)
C0243148 (UMLS CUI-3)
Item
Indicate if the patient has died
integer
C1148433 (UMLS CUI [1,1])
C0282416 (UMLS CUI [1,2])
Overall survival
Code List
Indicate if the patient has died
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of death
Item
Indicate date of death
date
C1148348 (UMLS CUI [1])
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