ID

36535

Description

ICHOM Stroke data collection Version 2.0.1 Revised: June 21th, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For stroke, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Patients who have been hospitalized for an index ischemic stroke (IS) or intracereberal hemorrhage (ICH). Patients with subarachnoid hemorrhage (SAH) are excluded. Inclusion of transient ischemic attack (TIA) or patients with IS or ICH who are evaluated but not hospitalized is not required. Treatment Approaches: IV Thrombolysis | Thrombectomy | Hemicraniectomy This form contains Discharge +7 days - Clinical form. If a second stroke occurs between discharge and the “90 day post index” collection, you should reset the measurement scale, treating them as a new patient. Questionnaires used in this standard set: PROMIS-10. It is free for all health care organizations, and a license is not needed. There are translations available for Spanish, French, German,and Dutch. As http://www.nihpromis.org is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Simplified Modified Rankin Scale Questionnaire (smRSq) – Clinician. There is no patent on thes smRSq or fee for using it in clinical practice; however Lippincott Williams & Wilkins (LWW) own the rights to the published article where the smRSq is introduced. Therefore here only the total score is included. The smRSq flow chart can be found at http://stroke.ahajournals.org/content/42/8/2276 “Simplified Modified Rankin Scale Questionnaire Reproducibility Over the Telephone and Validation With Quality of Life” Stroke 2011; 42: 2276-2279 © 2011 American Heart Association, Inc. Wolters Kluwer Health. Publication: Salinas J, Sprinkhuizen SM, Ackerson T, et al. An International Standard Set of Patient-Centered Outcome Measures After Stroke. Stroke. 2015;47(1):180–186. doi:10.1161/STROKEAHA.115.010898 The Stroke Standard Set is supported by the American Heart Association and the American Stroke Association.

Link

http://www.ichom.org/

Keywords

Versions (3)
  1. 5/14/19 5/14/19 -
  2. 5/21/19 5/21/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

May 21, 2019

DOI

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License

Creative Commons BY-NC 3.0
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ICHOM Conditions and Treatment Approaches Covered for Stroke

English

Discharge +7 days - Clinical

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Treatment/care related
Description

Treatment/care related

Alias
UMLS CUI-1
C0087111
UMLS CUI-2
C0439849
Did the acute inpatient care include dedicated stroke rehabilitation?
Description

Supporting Definition: Dedicated stroke rehabilitation during acute care Inclusion Criteria: All patients Timing: Discharge Data Source: Administrative or clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0034991
UMLS CUI [1,2]
C0021562
UMLS CUI [1,3]
C0679878
Treatment variables
Description

Treatment variables

Alias
UMLS CUI-1
C0087111
Indicate if the patient received intravenous thrombolytic therapy
Description

Supporting Definition: Intravenous tissue plasminogen activator Inclusion Criteria: Ischemic stroke patients Timing: Discharge Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0040044
Indicate the date of thrombolytic therapy
Description

Inclusion Criteria: If "1 = Yes" to THROMBOLYTICTX Timing: Discharge Data Source: Clinical Type: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0040044
UMLS CUI [1,2]
C2584899
DD/MM/YYYY
Indicate if the patient underwent thrombectomy
Description

Supporting Definition: Endovascular mechanical clot removal Inclusion Criteria: Ischemic stroke patients Timing: Discharge Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0162578
Indicate the date of thrombectomy
Description

Inclusion Criteria: If "1 = Yes" to THROMBOLYTICTX Timing: Discharge Data Source: Clinical Type: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0162578
UMLS CUI [1,2]
C2584899
DD/MM/YYYY
Indicate if the patient underwent hemicraniectomy
Description

Inclusion Criteria: All patients Timing: Discharge Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0195897
Indicate the date of hemicraniectomy
Description

Inclusion Criteria: If "1 = Yes" to HEMICRANITX Timing: Discharge Data Source: Clinical Type: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0195897
UMLS CUI [1,2]
C2584899
DD/MM/YYYY
Acute Complications of treatment
Description

Acute Complications of treatment

Alias
UMLS CUI-1
C0087111
UMLS CUI-2
C0009566
Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with intravenous thrombolysis?
Description

Inclusion Criteria: If "1 = Yes" to THROMBOLYTICTX Timing: Discharge Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0151699
UMLS CUI [1,2]
C0332282
UMLS CUI [1,3]
C0151699
Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with thrombectomy?
Description

Inclusion Criteria: If "1 = Yes" to THROMBOLYTICTX Timing: Discharge Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0151699
UMLS CUI [1,2]
C0332282
UMLS CUI [1,3]
C0162578
Clinician reported health status
Description

Clinician reported health status

Alias
UMLS CUI-1
C0018759
UMLS CUI-2
C0205210
UMLS CUI-3
C0700287
Indicate the degree of disability or dependence by obtaining the smRSq
Description

Supporting Definition: The link to the smRSq flow chart and instructions for use can be found in this Reference Guide on page 11 Inclusion Criteria: All patients Timing: Discharge + 7 days; 90 days post admission for index event Data Source: Clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2984908
UMLS CUI [1,2]
C2964552
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Similar models

Discharge +7 days - Clinical

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C1269815 (UMLS CUI [1])
Item Group
Treatment/care related
C0087111 (UMLS CUI-1)
C0439849 (UMLS CUI-2)
Item
Did the acute inpatient care include dedicated stroke rehabilitation?
integer
C0034991 (UMLS CUI [1,1])
C0021562 (UMLS CUI [1,2])
C0679878 (UMLS CUI [1,3])
Rehabilitation inpatient acute care
Code List
Did the acute inpatient care include dedicated stroke rehabilitation?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Treatment variables
C0087111 (UMLS CUI-1)
Item
Indicate if the patient received intravenous thrombolytic therapy
integer
C0040044 (UMLS CUI [1])
Thrombolytic therapy
Code List
Indicate if the patient received intravenous thrombolytic therapy
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of thrombolytic therapy
Item
Indicate the date of thrombolytic therapy
date
C0040044 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
Indicate if the patient underwent thrombectomy
integer
C0162578 (UMLS CUI [1])
Thrombectomy
Code List
Indicate if the patient underwent thrombectomy
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of thrombectomy
Item
Indicate the date of thrombectomy
date
C0162578 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
Indicate if the patient underwent hemicraniectomy
integer
C0195897 (UMLS CUI [1])
Hemicraniectomy
Code List
Indicate if the patient underwent hemicraniectomy
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of hemocraniectomy
Item
Indicate the date of hemicraniectomy
date
C0195897 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item Group
Acute Complications of treatment
C0087111 (UMLS CUI-1)
C0009566 (UMLS CUI-2)
Item
Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with intravenous thrombolysis?
integer
C0151699 (UMLS CUI [1,1])
C0332282 (UMLS CUI [1,2])
C0151699 (UMLS CUI [1,3])
Symptomatic intracranial hemorrhage after IV thrombolysis
Code List
Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with intravenous thrombolysis?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item
Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with thrombectomy?
integer
C0151699 (UMLS CUI [1,1])
C0332282 (UMLS CUI [1,2])
C0162578 (UMLS CUI [1,3])
Symptomatic intracranial hemorrhage after thrombectomy
Code List
Indicate if the patient developed symptomatic intracerebral hemorrhage after treatment of ischemic stroke with thrombectomy?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Item Group
Clinician reported health status
C0018759 (UMLS CUI-1)
C0205210 (UMLS CUI-2)
C0700287 (UMLS CUI-3)
Item
Indicate the degree of disability or dependence by obtaining the smRSq
integer
C2984908 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Simplified modified Rankin Scale Questionnaire (smRSq)
Code List
Indicate the degree of disability or dependence by obtaining the smRSq
CL Item
0 (0)
(Comment:en)
CL Item
1 (1)
(Comment:en)
CL Item
2 (2)
(Comment:en)
CL Item
3 (3)
(Comment:en)
CL Item
4 (4)
(Comment:en)
CL Item
5 (5)
(Comment:en)
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