ID

36523

Beschreibung

ICHOM Hip and Knee Osteoarthritis Study description: ICHOM Hip and Knee Osteoarthritis data collection Version 2.2.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Hip and Knee Osteoarthritis, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions : All patients seeking treatment for osteoarthritis of the hip or knee, whether surgical or non-surgical Treatment Approaches: Non-Surgical: Lifestyle intervention | Patient education | Physiotherapy | Walking aid or orthosis | Topical and oral medication | Intra-articular injection Surgical: Osteotomy | Joint replacement | Other forms of surgical treatment This document contains the Optional measures - Patient-reported form. ICHOM includes the option of more frequent collection of some measures for direct use in clinical care. For example, more frequent collection of functional outcomes may be helpful following surgery or major changes in treatment. ICHOM leave the timing of this data collection to individual institutions or clinicians. Collecting Patient-Reported Outcome Measures: Hip Disability and Osteoarthritis Outcome Score - Physical Function Shortform (HOOS-PS). http://www.koos.nu/ Knee Injury and Osteoarthritis Outcome Score - Physical Function Shortform (KOOS-PS). http://www.koos.nu/ Veterans RAND 12 (VR-12) or Short Form 12 Health Survey (SF- 12). As a request for access and an agreement to terms of use are necessary before access, the actual questions of these questionnaires are not part of this version of the standard set. EuroQol-5D descriptive system (EQ- 5D-3L) and visual analogue scale (EQ-VAS). As a license is needed for use of EuroQol questionnaires, the actual questions are not part of this version of the standard set. *For a description of an algorithm to convert between the EQ-5D-3L and SF-12, please see: Le QA. Probabilistic mapping of the health status measure SF-12 responses and EQ-5D using the US-population-based scoring models. Qual Life Res. 2014 Mar; 23(2): 459-66. Please see the above Veterans RAND website for help converting the VR-12 to the SF-12. For this standard set ICHOM was supproted by Hoag Orthopedic Institute, the Connecticut Joint Replacement Institute, and Harvard Pilgrim Health Care and Arthritis Research.

Link

http://www.ichom.org/

Stichworte

Versionen (3)
  1. 20.05.19 20.05.19 -
  2. 20.05.19 20.05.19 - Sarah Riepenhausen
  3. 30.04.20 30.04.20 - Sarah Riepenhausen
Rechteinhaber

ICHOM

Hochgeladen am

20. Mai 2019

DOI

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Lizenz

Creative Commons BY-NC 3.0
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ICHOM Hip and Knee Osteoarthritis

Englisch

Optional measures - Patient-reported

1 Formulare  
Administrative Data
Beschreibung

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Beschreibung

Supporting definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response options: According to institution

Datentyp

integer

Alias
UMLS CUI [1]
C2348585
Time relative to Baseline
Beschreibung

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Datentyp

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Optional measures
Beschreibung

Optional measures

Alias
UMLS CUI-1
C1518600
UMLS CUI-2
C0947611
This survey asks for your view about your hip. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your hip problem. 1. Descending stairs
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0029410
2. Getting in/out of bath or shower
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0029410
3. Sitting
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0029410
4. Running
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0029410
5. Twisting/pivoting on your loaded leg
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a hip Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0029410
This survey asks for your view about your knee. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your knee problem. 1. Rising from bed
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0409959
2. Putting on socks/stockings
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0409959
3. Rising from sitting
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0409959
4. Bending to floor
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0409959
5. Twisting/pivoting on your injured knee
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0409959
6. Kneeling
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0409959
7. Squatting
Beschreibung

Inclusion criteria: Patients whose most problematic joint is a knee Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported Type: Single answer

Datentyp

integer

Alias
UMLS CUI [1,1]
C4036478
UMLS CUI [1,2]
C0409959
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right hip
Beschreibung

Inclusion criteria: All patients Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Datentyp

float

Alias
UMLS CUI [1,1]
C0019559
UMLS CUI [1,2]
C0205090
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left hip
Beschreibung

Inclusion criteria: All patients Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Datentyp

float

Alias
UMLS CUI [1,1]
C0019559
UMLS CUI [1,2]
C0205091
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right knee
Beschreibung

Inclusion criteria: All patients Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Datentyp

float

Alias
UMLS CUI [1,1]
C0231749
UMLS CUI [1,2]
C0205090
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left knee
Beschreibung

Inclusion criteria: All patients Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Datentyp

float

Alias
UMLS CUI [1,1]
C0231749
UMLS CUI [1,2]
C0205091
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Lower back
Beschreibung

Inclusion criteria: All patients Timing: Whenever it seems helpful, e.g. after surgery or major changes in treatment Data Source: Patient-reported - Please refer to the sample questionnaire for the proper format Type: Single answer or Visual scale, Please see the sample questionnaires Response Option: Numeric rating scale (0 - 10) or Visual Analog Scale

Datentyp

float

Alias
UMLS CUI [1,1]
C0230102
UMLS CUI [1,2]
C0004604
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Ähnliche Modelle

Optional measures - Patient-reported

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Time relative to Baseline
Item
Time relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Optional measures
C1518600 (UMLS CUI-1)
C0947611 (UMLS CUI-2)
Item
This survey asks for your view about your hip. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your hip problem. 1. Descending stairs
integer
C4036478 (UMLS CUI [1,1])
C0029410 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
This survey asks for your view about your hip. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your hip problem. 1. Descending stairs
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
2. Getting in/out of bath or shower
integer
C4036478 (UMLS CUI [1,1])
C0029410 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
2. Getting in/out of bath or shower
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
3. Sitting
integer
C4036478 (UMLS CUI [1,1])
C0029410 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
3. Sitting
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
4. Running
integer
C4036478 (UMLS CUI [1,1])
C0029410 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
4. Running
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
5. Twisting/pivoting on your loaded leg
integer
C4036478 (UMLS CUI [1,1])
C0029410 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
5. Twisting/pivoting on your loaded leg
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
This survey asks for your view about your knee. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your knee problem. 1. Rising from bed
integer
C4036478 (UMLS CUI [1,1])
C0409959 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
This survey asks for your view about your knee. This information will help us keep track of how well you are able to perform different activities. Answer every question by selecting the appropriate answer, only one answer for each question. If you are unsure about how to answer a question, please give the best answer you can so that you answer all the questions. The following questions concern your level of function in performing usual daily activities and higher level activities. For each of the following activities, please indicate the degree of difficulty you have experienced in the last week due to your knee problem. 1. Rising from bed
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
2. Putting on socks/stockings
integer
C4036478 (UMLS CUI [1,1])
C0409959 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
2. Putting on socks/stockings
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
3. Rising from sitting
integer
C4036478 (UMLS CUI [1,1])
C0409959 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
3. Rising from sitting
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
4. Bending to floor
integer
C4036478 (UMLS CUI [1,1])
C0409959 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
4. Bending to floor
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
5. Twisting/pivoting on your injured knee
integer
C4036478 (UMLS CUI [1,1])
C0409959 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
5. Twisting/pivoting on your injured knee
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
6. Kneeling
integer
C4036478 (UMLS CUI [1,1])
C0409959 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
6. Kneeling
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Item
7. Squatting
integer
C4036478 (UMLS CUI [1,1])
C0409959 (UMLS CUI [1,2])
Question 1 of HOOS-PS
Code List
7. Squatting
CL Item
None (0)
C0549184 (UMLS CUI-1)
(Comment:en)
CL Item
Mild (1)
C2945599 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate (2)
C0205081 (UMLS CUI-1)
(Comment:en)
CL Item
Severe (3)
C0205082 (UMLS CUI-1)
(Comment:en)
CL Item
Extreme (4)
C0205403 (UMLS CUI-1)
(Comment:en)
Pain in the right hip
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right hip
float
C0019559 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
Pain in the left hip
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left hip
float
C0019559 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
Pain in the right knee
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Right knee
float
C0231749 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
Pain in the left knee
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Left knee
float
C0231749 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
Pain in the lower back
Item
On a scale of 0 to 10, with 0 being no pain at all and 10 being the worst pain imaginable, please indicate your average pain in each of the following joints over the last 7 days. Lower back
float
C0230102 (UMLS CUI [1,1])
C0004604 (UMLS CUI [1,2])
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