ID

36522

Description

ICHOM Lung cancer data collection Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Lung Cancer, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Small Cell and Non-Small Cell Lung Cancer Treatment Approaches: Surgery | Radiotherapy | Chemotherapy | Targeted Therapy | Immunotherapy | Other This document contains Follow-up - Administrative data Form. It includes 1 year post initiation of treatment and Tracked ongoing annually for life (when hospital is able to track this ongoing) Collecting Patient-Reported Outcome Measures: European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30). European Organization for Research and Treatment of Cancer Quality of Life Lung Cancer-Specific Questionnaire (EORTC QLQ-LC13). Both are free for all health care organizations, but a license is needed for use. http:// groups.eortc.be/qol/eortc-qlq-c30 is the official distribution site for EORTC QLQ-C30 and EORTC QLQ-LC13 questionnaires. Therefore only the total score will be included in this version of the standard set. Publication: Mak KS, van Bommel AC, Stowell C, et al. Defining a standard set of patient-centred outcomes for lung cancer. Eur Respir J. 2016;48(3):852–860. doi:10.1183/13993003.02049-2015 For this standard set ICHOM was supported by the Alliance of Dedicated Cancer Centers.

Link

http://www.ichom.org/

Keywords

Versions (3)
  1. 5/14/19 5/14/19 -
  2. 5/20/19 5/20/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

May 20, 2019

DOI

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License

Creative Commons BY-NC 3.0
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ICHOM Lung Cancer

English

Follow-up - Administrative data

1 forms  
Administrative data
Description

Administrative data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C2348585
Time Relative to Baseline (1 year post initiation of treatment and Tracked ongoing annually for life (when hospital is able to track this ongoing).
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Survival
Description

Survival

Alias
UMLS CUI-1
C1148433
Indicate if the patient has died as indicated on certificate of death
Description

Inclusion Criteria: All patients Timing: 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Administrative data (Death registry) Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0011065
Indicate date of death as indicated on certificate of death
Description

Inclusion Criteria: All patients If answered "yes” on the question "indicate if the patient has died" (DEATH) Timing: 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Administrative data (Death registry) Type: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C1148348
DD/MM/YYYY
Indicate if death is noted to be directly attributable to lung cancer as indicated on certificate of death
Description

Inclusion Criteria: All patients If answered "yes” on the question "indicate if the patient has died" (DEATH) Timing: 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Administrative data (Death registry) or clinical Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0242379
Quality of death
Description

Quality of death

Alias
UMLS CUI-1
C0011065
UMLS CUI-2
C0332306
Indicate where patient died as indicated on certificate of death
Description

Inclusion Criteria: All patients If answered "yes” on the question "indicate if the patient has died" (DEATH) Timing: 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Administrative data (Death registry) Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C2924451
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Similar models

Follow-up - Administrative data

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (1 year post initiation of treatment and Tracked ongoing annually for life (when hospital is able to track this ongoing).
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Survival
C1148433 (UMLS CUI-1)
Item
Indicate if the patient has died as indicated on certificate of death
integer
C0011065 (UMLS CUI [1])
Death: Patient died
Code List
Indicate if the patient has died as indicated on certificate of death
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Death: Date of death
Item
Indicate date of death as indicated on certificate of death
date
C1148348 (UMLS CUI [1])
Item
Indicate if death is noted to be directly attributable to lung cancer as indicated on certificate of death
integer
C0007465 (UMLS CUI [1,1])
C0242379 (UMLS CUI [1,2])
Cause of death: Death attributable to lung cancer
Code List
Indicate if death is noted to be directly attributable to lung cancer as indicated on certificate of death
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Quality of death
C0011065 (UMLS CUI-1)
C0332306 (UMLS CUI-2)
Item
Indicate where patient died as indicated on certificate of death
integer
C2924451 (UMLS CUI [1])
Location of death
Code List
Indicate where patient died as indicated on certificate of death
CL Item
Hospital: acute or community hospitals/units but not psychiatric hospitals (1)
C0019994 (UMLS CUI-1)
(Comment:en)
CL Item
Own residence: the death occurred in the place of usual residence where this is not a communal establishment (2)
C0682130 (UMLS CUI-1)
(Comment:en)
CL Item
Care home: private home or residential home or specialist nursing homes (3)
C0028688 (UMLS CUI-1)
(Comment:en)
CL Item
Hospices: many hospices are „freestanding‟ but some are found within hospitals. Also, hospices increasingly work in the community (4)
C3826197 (UMLS CUI-1)
(Comment:en)
CL Item
Other (888)
C0205394 (UMLS CUI-1)
(Comment:en)
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