1 Evaluación

ID

34685

Descripción

Electronic Case Report Forms for the "Safety of the Living Kidney Donor - German National Register" (SOLKID-GNR).

Palabras clave

  1. 23/5/18 23/5/18 - Julian Varghese
  2. 23/1/19 23/1/19 - Sarah Riepenhausen
  3. 5/7/21 5/7/21 - Leonard Greulich
  4. 5/5/22 5/5/22 - Adrian Schulz
Titular de derechos de autor

The SOLKID-GNR Consortium

Subido en

23 de enero de 2019

DOI

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Licencia

Creative Commons BY-NC 3.0

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    SOLKID-GNR

    Basis Data
    Descripción

    Basis Data

    Alias
    UMLS CUI-1
    C2707520
    Pseudonyms
    Descripción

    Filled out automatically

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C0033824
    Date of Inclusion
    Descripción

    Filled out automatically

    Tipo de datos

    date

    Alias
    UMLS CUI [1,1]
    C0011008
    UMLS CUI [1,2]
    C1512693
    Name
    Descripción

    T0_0_3

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C1299487
    Forename
    Descripción

    T0_0_4

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C0421447
    Date of birth
    Descripción

    T0_0_5

    Tipo de datos

    date

    Alias
    UMLS CUI [1]
    C0421451
    Email
    Descripción

    T0_0_5_em

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C0013849
    Date of transplantation
    Descripción

    T0_0_6

    Tipo de datos

    date

    Alias
    UMLS CUI [1,1]
    C0040732
    UMLS CUI [1,2]
    C0011008
    Gender
    Descripción

    T0_0_7

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0079399
    Ethnicity
    Descripción

    T0_0_8

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0015031
    Black skin color
    Descripción

    T0_0_9

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1,1]
    C0599910
    UMLS CUI [1,2]
    C0005680
    Weight
    Descripción

    T0_0_10

    Tipo de datos

    integer

    Unidades de medida
    • kg
    Alias
    UMLS CUI [1]
    C0005910
    kg
    Height
    Descripción

    T0_0_11

    Tipo de datos

    integer

    Unidades de medida
    • cm
    Alias
    UMLS CUI [1]
    C0005890
    cm
    BMI
    Descripción

    Filled out automatically

    Tipo de datos

    float

    Alias
    UMLS CUI [1]
    C1305855
    Country of birth
    Descripción

    T0_3

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1300001
    Country of birth
    Descripción

    T0_3.1

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C1300001
    UMLS CUI [1,2]
    C0205394
    Mother tongue
    Descripción

    if Other, enquire id T0_4.1

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1510558
    Mother tongue other free text
    Descripción

    T0_4.1

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C1510558
    UMLS CUI [1,2]
    C0205394
    Since when living in Germany
    Descripción

    T0_5

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C2184149
    UMLS CUI [1,2]
    C0017480
    For how many years have you been living in Germany?
    Descripción

    T0_5.1

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0439234
    UMLS CUI [1,2]
    C0017480
    What's you mother's country of birth?
    Descripción

    if Other, enquire id T0_6.1a

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C1300001
    UMLS CUI [1,2]
    C0026591
    What's you mother's country of birth?
    Descripción

    T0_6.1a

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C1300001
    UMLS CUI [1,2]
    C0026591
    What's you father's country of birth?
    Descripción

    if Other, enquire id T0_6.2a

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C1300001
    UMLS CUI [1,2]
    C0015671
    What's you father's country of birth?
    Descripción

    T0_6.2a

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C1300001
    UMLS CUI [1,2]
    C0015671
    How many years have you been in school?
    Descripción

    T0_7

    Tipo de datos

    integer

    Unidades de medida
    • a
    Alias
    UMLS CUI [1,1]
    C0036375
    UMLS CUI [1,2]
    C0439234
    a
    Highest school qualification
    Descripción

    T0_8

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C1522410
    UMLS CUI [1,2]
    C0036375
    UMLS CUI [1,3]
    C1711333
    Vocational Education
    Descripción

    T0_9

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0042933
    Working
    Descripción

    if no, enquire id T0_10.1

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C0556976
    UMLS CUI [1,2]
    C0043227
    Unemployment
    Descripción

    T0_10.1

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0041674
    UMLS CUI [1,2]
    C0566251
    Marital status
    Descripción

    T0_11

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0024819
    Medication Medication self-disclosure
    Descripción

    T0_13

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1,1]
    C0013227
    UMLS CUI [1,2]
    C0012625
    Medication specification self-disclosure
    Descripción

    T0_13.1

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0013227
    UMLS CUI [1,2]
    C0012625
    Smoking
    Descripción

    T0_14

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1]
    C0543414
    Quit smoking in Year:
    Descripción

    T0_14a

    Tipo de datos

    integer

    Unidades de medida
    • a
    Alias
    UMLS CUI [1,1]
    C3669167
    UMLS CUI [1,2]
    C0439234
    a
    Unable to work
    Descripción

    Within the last 12 months: Have You been certified sick due to illness for more one week?

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0043227
    UMLS CUI [1,2]
    C0231170
    Reason for being unable to work
    Descripción

    T0_15.1

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C0566251
    UMLS CUI [1,2]
    C4049481
    Own children
    Descripción

    Do you have children of your own? If Yes, enquire id T0_16.0

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1]
    C0008059
    Number of children
    Descripción

    T0_16.0

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C2229974
    Complications of pregnancy
    Descripción

    Only female participants. If yes, enquire id T0_16b

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1]
    C0178292
    Persons dependent on care in the household
    Descripción

    T0_12

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0080103
    UMLS CUI [1,2]
    C1399803
    Complications of pregnancy
    Descripción

    T0_16.2

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0178292

    Similar models

    Basis Data

    Name
    Tipo
    Description | Question | Decode (Coded Value)
    Tipo de datos
    Alias
    Item Group
    Basis Data
    C2707520 (UMLS CUI-1)
    T0_0_1
    Item
    Pseudonyms
    text
    C0033824 (UMLS CUI [1])
    T0_0_2
    Item
    Date of Inclusion
    date
    C0011008 (UMLS CUI [1,1])
    C1512693 (UMLS CUI [1,2])
    T0_0_3
    Item
    Name
    text
    C1299487 (UMLS CUI [1])
    T0_0_4
    Item
    Forename
    text
    C0421447 (UMLS CUI [1])
    T0_0_5
    Item
    Date of birth
    date
    C0421451 (UMLS CUI [1])
    T0_0_5_em
    Item
    Email
    text
    C0013849 (UMLS CUI [1])
    T0_0_6
    Item
    Date of transplantation
    date
    C0040732 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Gender
    integer
    C0079399 (UMLS CUI [1])
    Code List
    Gender
    CL Item
    Male (1)
    CL Item
    Female (2)
    CL Item
    Intersexual (3)
    CL Item
    Unknown (4)
    Item
    Ethnicity
    integer
    C0015031 (UMLS CUI [1])
    Code List
    Ethnicity
    CL Item
    Caucasian (1)
    CL Item
    Black (2)
    CL Item
    Hispanic (3)
    CL Item
    Asian (4)
    CL Item
    Other (5)
    T0_0_9
    Item
    Black skin color
    boolean
    C0599910 (UMLS CUI [1,1])
    C0005680 (UMLS CUI [1,2])
    T0_0_10
    Item
    Weight
    integer
    C0005910 (UMLS CUI [1])
    T0_0_11
    Item
    Height
    integer
    C0005890 (UMLS CUI [1])
    T0_0_12
    Item
    BMI
    float
    C1305855 (UMLS CUI [1])
    Item
    Country of birth
    integer
    C1300001 (UMLS CUI [1])
    Code List
    Country of birth
    CL Item
    Germany (1)
    CL Item
    Other (2)
    T0_3.1
    Item
    Country of birth
    text
    C1300001 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    Item
    Mother tongue
    integer
    C1510558 (UMLS CUI [1])
    Code List
    Mother tongue
    CL Item
    German (1)
    CL Item
    Other (2)
    T0_4.1
    Item
    Mother tongue other free text
    text
    C1510558 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    Item
    Since when living in Germany
    integer
    C2184149 (UMLS CUI [1,1])
    C0017480 (UMLS CUI [1,2])
    Code List
    Since when living in Germany
    CL Item
    since Birth (1)
    CL Item
    since Childhood (2)
    CL Item
    since Adulthood (3)
    CL Item
    never lived in Germany (4)
    T0_5.1
    Item
    For how many years have you been living in Germany?
    integer
    C0439234 (UMLS CUI [1,1])
    C0017480 (UMLS CUI [1,2])
    Item
    What's you mother's country of birth?
    integer
    C1300001 (UMLS CUI [1,1])
    C0026591 (UMLS CUI [1,2])
    Code List
    What's you mother's country of birth?
    CL Item
    Germany (1)
    (Comment:en)
    CL Item
    Other (2)
    (Comment:en)
    T0_6.1a
    Item
    What's you mother's country of birth?
    text
    C1300001 (UMLS CUI [1,1])
    C0026591 (UMLS CUI [1,2])
    Item
    What's you father's country of birth?
    integer
    C1300001 (UMLS CUI [1,1])
    C0015671 (UMLS CUI [1,2])
    Code List
    What's you father's country of birth?
    CL Item
    Germany (1)
    CL Item
    Other (2)
    T0_6.2a
    Item
    What's you father's country of birth?
    text
    C1300001 (UMLS CUI [1,1])
    C0015671 (UMLS CUI [1,2])
    T0_7
    Item
    How many years have you been in school?
    integer
    C0036375 (UMLS CUI [1,1])
    C0439234 (UMLS CUI [1,2])
    Item
    Highest school qualification
    integer
    C1522410 (UMLS CUI [1,1])
    C0036375 (UMLS CUI [1,2])
    C1711333 (UMLS CUI [1,3])
    Code List
    Highest school qualification
    CL Item
    No graduation degree (1)
    CL Item
    Volksschule / Hauptschule / Polytechnische Oberschule (9th standard) (2)
    CL Item
    Realschulabschluss (secondary school leaving certificate) / Polytechnische Oberschule (10th standard) (3)
    CL Item
    Fachhochschulreife (Fachabitur) (4)
    CL Item
    High school diploma (5)
    CL Item
    Other (6)
    Item
    Vocational Education
    integer
    C0042933 (UMLS CUI [1])
    Code List
    Vocational Education
    CL Item
    No vocational grade (1)
    CL Item
    Vocational Qualification (2)
    CL Item
    School for technicians/ master school (3)
    CL Item
    University of Applied Science Degree /University Degree (4)
    Item
    Working
    text
    C0556976 (UMLS CUI [1,1])
    C0043227 (UMLS CUI [1,2])
    Code List
    Working
    CL Item
    Yes, regular full-time (Yes, regular full-time)
    CL Item
    15 h/week) (Yes, regular part-time ( >)
    CL Item
    Yes, marginally or irregularly employed (<15 h/week) (Yes, marginally or irregularly employed (<15 h/week))
    CL Item
    no (no)
    Item
    Unemployment
    integer
    C0041674 (UMLS CUI [1,1])
    C0566251 (UMLS CUI [1,2])
    Code List
    Unemployment
    CL Item
    in apprenticeship, training, studies (1)
    CL Item
    Housewife/Househusband (2)
    CL Item
    in maternity protection/parental leave, or other leave of absence (3)
    CL Item
    unemployed (4)
    CL Item
    Partial Retirement (5)
    CL Item
    Retirement, Early Retirement (6)
    Item
    Marital status
    integer
    C0024819 (UMLS CUI [1])
    Code List
    Marital status
    CL Item
    Married or registered partnership and living together with partner (1)
    CL Item
    Married or registered partnership and separated from partner (2)
    CL Item
    Single (3)
    CL Item
    Divorced (4)
    CL Item
    Widowed (5)
    T0_13
    Item
    Medication Medication self-disclosure
    boolean
    C0013227 (UMLS CUI [1,1])
    C0012625 (UMLS CUI [1,2])
    Item
    Medication specification self-disclosure
    integer
    C0013227 (UMLS CUI [1,1])
    C0012625 (UMLS CUI [1,2])
    Code List
    Medication specification self-disclosure
    CL Item
    Hypertension (1)
    CL Item
    Diabetes (2)
    CL Item
    Pain (3)
    CL Item
    Sleep disorder (4)
    CL Item
    Depression (5)
    CL Item
    Anxiety (6)
    CL Item
    Coagulation (7)
    CL Item
    Other (8)
    T0_14
    Item
    Smoking
    boolean
    C0543414 (UMLS CUI [1])
    T0_14a
    Item
    Quit smoking in Year:
    integer
    C3669167 (UMLS CUI [1,1])
    C0439234 (UMLS CUI [1,2])
    Item
    Unable to work
    integer
    C0043227 (UMLS CUI [1,1])
    C0231170 (UMLS CUI [1,2])
    Code List
    Unable to work
    CL Item
    No (1)
    CL Item
    Yes, 1-2 times (2)
    CL Item
    Yes, more than three times (3)
    T0_15.1
    Item
    Reason for being unable to work
    text
    C0566251 (UMLS CUI [1,1])
    C4049481 (UMLS CUI [1,2])
    T0_16
    Item
    Own children
    boolean
    C0008059 (UMLS CUI [1])
    T0_16.0
    Item
    Number of children
    integer
    C2229974 (UMLS CUI [1])
    T0_16.1
    Item
    Complications of pregnancy
    boolean
    C0178292 (UMLS CUI [1])
    Item
    Persons dependent on care in the household
    integer
    C0080103 (UMLS CUI [1,1])
    C1399803 (UMLS CUI [1,2])
    Code List
    Persons dependent on care in the household
    CL Item
    No (1)
    CL Item
    Yes, Children und 18 Years of age (2)
    CL Item
    Yes, Persons dependent on care in the household (3)
    Item
    Complications of pregnancy
    integer
    C0178292 (UMLS CUI [1])
    Code List
    Complications of pregnancy
    CL Item
    Hypertension (1)
    CL Item
    Diabetes (2)
    CL Item
    Miscarriage (3)

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