ID

30238

Description

Electronic Case Report Forms for the "Safety of the Living Kidney Donor - German National Register" (SOLKID-GNR).

Keywords

  1. 5/23/18 5/23/18 - Julian Varghese
  2. 1/23/19 1/23/19 - Sarah Riepenhausen
  3. 7/5/21 7/5/21 - Leonard Greulich
  4. 5/5/22 5/5/22 - Adrian Schulz
Copyright Holder

The SOLKID-GNR Consortium

Uploaded on

May 23, 2018

DOI

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License

Creative Commons BY-NC 3.0

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SOLKID-GNR

Basis Data

Basis Data
Description

Basis Data

Alias
UMLS CUI-1
C2707520
Pseudonyms
Description

Filled out automatically

Data type

text

Alias
UMLS CUI [1]
C0033824
Date of Inclusion
Description

Filled out automatically

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C1512693
Name
Description

T0_0_3

Data type

text

Alias
UMLS CUI [1]
C1299487
Forename
Description

T0_0_4

Data type

text

Alias
UMLS CUI [1]
C0421447
Date of birth
Description

T0_0_5

Data type

date

Alias
UMLS CUI [1]
C0421451
Email
Description

T0_0_5_em

Data type

text

Alias
UMLS CUI [1]
C0013849
Date of transplantation
Description

T0_0_6

Data type

date

Alias
UMLS CUI [1,1]
C0040732
UMLS CUI [1,2]
C0011008
Gender
Description

T0_0_7

Data type

integer

Alias
UMLS CUI [1]
C0079399
Ethnicity
Description

T0_0_8

Data type

integer

Alias
UMLS CUI [1]
C0015031
Black skin color
Description

T0_0_9

Data type

boolean

Alias
UMLS CUI [1,1]
C0599910
UMLS CUI [1,2]
C0005680
Weight
Description

T0_0_10

Data type

integer

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Height
Description

T0_0_11

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
BMI
Description

Filled out automatically

Data type

float

Alias
UMLS CUI [1]
C1305855
Country of birth
Description

T0_3

Data type

integer

Alias
UMLS CUI [1]
C1300001
Country of birth
Description

T0_3.1

Data type

text

Alias
UMLS CUI [1,1]
C1300001
UMLS CUI [1,2]
C0205394
Mother tongue
Description

if Other, enquire id T0_4.1

Data type

integer

Alias
UMLS CUI [1]
C1510558
Mother tongue other free text
Description

T0_4.1

Data type

text

Alias
UMLS CUI [1,1]
C1510558
UMLS CUI [1,2]
C0205394
Since when living in Germany
Description

T0_5

Data type

integer

Alias
UMLS CUI [1,1]
C2184149
UMLS CUI [1,2]
C0017480
For how many years have you been living in Germany?
Description

T0_5.1

Data type

integer

Alias
UMLS CUI [1,1]
C0439234
UMLS CUI [1,2]
C0017480
What's you mother's country of birth?
Description

if Other, enquire id T0_6.1a

Data type

integer

Alias
UMLS CUI [1,1]
C1300001
UMLS CUI [1,2]
C0026591
What's you mother's country of birth?
Description

T0_6.1a

Data type

text

Alias
UMLS CUI [1,1]
C1300001
UMLS CUI [1,2]
C0026591
What's you father's country of birth?
Description

if Other, enquire id T0_6.2a

Data type

integer

Alias
UMLS CUI [1,1]
C1300001
UMLS CUI [1,2]
C0015671
What's you father's country of birth?
Description

T0_6.2a

Data type

text

Alias
UMLS CUI [1,1]
C1300001
UMLS CUI [1,2]
C0015671
How many years have you been in school?
Description

T0_7

Data type

integer

Measurement units
  • a
Alias
UMLS CUI [1,1]
C0036375
UMLS CUI [1,2]
C0439234
a
Highest school qualification
Description

T0_8

Data type

integer

Alias
UMLS CUI [1,1]
C1522410
UMLS CUI [1,2]
C0036375
UMLS CUI [1,3]
C1711333
Vocational Education
Description

T0_9

Data type

integer

Alias
UMLS CUI [1]
C0042933
Working
Description

if no, enquire id T0_10.1

Data type

text

Alias
UMLS CUI [1,1]
C0556976
UMLS CUI [1,2]
C0043227
Unemployment
Description

T0_10.1

Data type

integer

Alias
UMLS CUI [1,1]
C0041674
UMLS CUI [1,2]
C0566251
Marital status
Description

T0_11

Data type

integer

Alias
UMLS CUI [1]
C0024819
Medication Medication self-disclosure
Description

T0_13

Data type

boolean

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0012625
Medication specification self-disclosure
Description

T0_13.1

Data type

integer

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0012625
Smoking
Description

T0_14

Data type

boolean

Alias
UMLS CUI [1]
C0543414
Quit smoking in Year:
Description

T0_14a

Data type

integer

Measurement units
  • a
Alias
UMLS CUI [1,1]
C3669167
UMLS CUI [1,2]
C0439234
a
Unable to work
Description

Within the last 12 months: Have You been certified sick due to illness for more one week?

Data type

integer

Alias
UMLS CUI [1,1]
C0043227
UMLS CUI [1,2]
C0231170
Reason for being unable to work
Description

T0_15.1

Data type

text

Alias
UMLS CUI [1,1]
C0566251
UMLS CUI [1,2]
C4049481
Own children
Description

Do you have children of your own? If Yes, enquire id T0_16.0

Data type

boolean

Alias
UMLS CUI [1]
C0008059
Number of children
Description

T0_16.0

Data type

integer

Alias
UMLS CUI [1]
C2229974
Complications of pregnancy
Description

Only female participants. If yes, enquire id T0_16b

Data type

boolean

Alias
UMLS CUI [1]
C0178292
Persons dependent on care in the household
Description

T0_12

Data type

integer

Alias
UMLS CUI [1,1]
C0080103
UMLS CUI [1,2]
C1399803
Complications of pregnancy
Description

T0_16.2

Data type

integer

Alias
UMLS CUI [1]
C0178292

Similar models

Basis Data

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Basis Data
C2707520 (UMLS CUI-1)
T0_0_1
Item
Pseudonyms
text
C0033824 (UMLS CUI [1])
T0_0_2
Item
Date of Inclusion
date
C0011008 (UMLS CUI [1,1])
C1512693 (UMLS CUI [1,2])
T0_0_3
Item
Name
text
C1299487 (UMLS CUI [1])
T0_0_4
Item
Forename
text
C0421447 (UMLS CUI [1])
T0_0_5
Item
Date of birth
date
C0421451 (UMLS CUI [1])
T0_0_5_em
Item
Email
text
C0013849 (UMLS CUI [1])
T0_0_6
Item
Date of transplantation
date
C0040732 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Gender
integer
C0079399 (UMLS CUI [1])
Code List
Gender
CL Item
Male (1)
CL Item
Female (2)
CL Item
Intersexual (3)
CL Item
Unknown (4)
Item
Ethnicity
integer
C0015031 (UMLS CUI [1])
Code List
Ethnicity
CL Item
Caucasian (1)
CL Item
Black (2)
CL Item
Hispanic (3)
CL Item
Asian (4)
CL Item
Other (5)
T0_0_9
Item
Black skin color
boolean
C0599910 (UMLS CUI [1,1])
C0005680 (UMLS CUI [1,2])
T0_0_10
Item
Weight
integer
C0005910 (UMLS CUI [1])
T0_0_11
Item
Height
integer
C0005890 (UMLS CUI [1])
T0_0_12
Item
BMI
float
C1305855 (UMLS CUI [1])
Item
Country of birth
integer
C1300001 (UMLS CUI [1])
Code List
Country of birth
CL Item
Germany (1)
CL Item
Other (2)
T0_3.1
Item
Country of birth
text
C1300001 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Mother tongue
integer
C1510558 (UMLS CUI [1])
Code List
Mother tongue
CL Item
German (1)
CL Item
Other (2)
T0_4.1
Item
Mother tongue other free text
text
C1510558 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Since when living in Germany
integer
C2184149 (UMLS CUI [1,1])
C0017480 (UMLS CUI [1,2])
Code List
Since when living in Germany
CL Item
since Birth (1)
CL Item
since Childhood (2)
CL Item
since Adulthood (3)
CL Item
never lived in Germany (4)
T0_5.1
Item
For how many years have you been living in Germany?
integer
C0439234 (UMLS CUI [1,1])
C0017480 (UMLS CUI [1,2])
Item
What's you mother's country of birth?
integer
C1300001 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
Code List
What's you mother's country of birth?
CL Item
Germany (1)
(Comment:en)
CL Item
Other (2)
(Comment:en)
T0_6.1a
Item
What's you mother's country of birth?
text
C1300001 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
Item
What's you father's country of birth?
integer
C1300001 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
Code List
What's you father's country of birth?
CL Item
Germany (1)
CL Item
Other (2)
T0_6.2a
Item
What's you father's country of birth?
text
C1300001 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
T0_7
Item
How many years have you been in school?
integer
C0036375 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item
Highest school qualification
integer
C1522410 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C1711333 (UMLS CUI [1,3])
Code List
Highest school qualification
CL Item
No graduation degree (1)
CL Item
Volksschule / Hauptschule / Polytechnische Oberschule (9th standard) (2)
CL Item
Realschulabschluss (secondary school leaving certificate) / Polytechnische Oberschule (10th standard) (3)
CL Item
Fachhochschulreife (Fachabitur) (4)
CL Item
High school diploma (5)
CL Item
Other (6)
Item
Vocational Education
integer
C0042933 (UMLS CUI [1])
Code List
Vocational Education
CL Item
No vocational grade (1)
CL Item
Vocational Qualification (2)
CL Item
School for technicians/ master school (3)
CL Item
University of Applied Science Degree /University Degree (4)
Item
Working
text
C0556976 (UMLS CUI [1,1])
C0043227 (UMLS CUI [1,2])
Code List
Working
CL Item
Yes, regular full-time (Yes, regular full-time)
CL Item
15 h/week) (Yes, regular part-time ( >)
CL Item
Yes, marginally or irregularly employed (<15 h/week) (Yes, marginally or irregularly employed (<15 h/week))
CL Item
no (no)
Item
Unemployment
integer
C0041674 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
Code List
Unemployment
CL Item
in apprenticeship, training, studies (1)
CL Item
Housewife/Househusband (2)
CL Item
in maternity protection/parental leave, or other leave of absence (3)
CL Item
unemployed (4)
CL Item
Partial Retirement (5)
CL Item
Retirement, Early Retirement (6)
Item
Marital status
integer
C0024819 (UMLS CUI [1])
Code List
Marital status
CL Item
Married or registered partnership and living together with partner (1)
CL Item
Married or registered partnership and separated from partner (2)
CL Item
Single (3)
CL Item
Divorced (4)
CL Item
Widowed (5)
T0_13
Item
Medication Medication self-disclosure
boolean
C0013227 (UMLS CUI [1,1])
C0012625 (UMLS CUI [1,2])
Item
Medication specification self-disclosure
integer
C0013227 (UMLS CUI [1,1])
C0012625 (UMLS CUI [1,2])
Code List
Medication specification self-disclosure
CL Item
Hypertension (1)
CL Item
Diabetes (2)
CL Item
Pain (3)
CL Item
Sleep disorder (4)
CL Item
Depression (5)
CL Item
Anxiety (6)
CL Item
Coagulation (7)
CL Item
Other (8)
T0_14
Item
Smoking
boolean
C0543414 (UMLS CUI [1])
T0_14a
Item
Quit smoking in Year:
integer
C3669167 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item
Unable to work
integer
C0043227 (UMLS CUI [1,1])
C0231170 (UMLS CUI [1,2])
Code List
Unable to work
CL Item
No (1)
CL Item
Yes, 1-2 times (2)
CL Item
Yes, more than three times (3)
T0_15.1
Item
Reason for being unable to work
text
C0566251 (UMLS CUI [1,1])
C4049481 (UMLS CUI [1,2])
T0_16
Item
Own children
boolean
C0008059 (UMLS CUI [1])
T0_16.0
Item
Number of children
integer
C2229974 (UMLS CUI [1])
T0_16.1
Item
Complications of pregnancy
boolean
C0178292 (UMLS CUI [1])
Item
Persons dependent on care in the household
integer
C0080103 (UMLS CUI [1,1])
C1399803 (UMLS CUI [1,2])
Code List
Persons dependent on care in the household
CL Item
No (1)
CL Item
Yes, Children und 18 Years of age (2)
CL Item
Yes, Persons dependent on care in the household (3)
Item
Complications of pregnancy
integer
C0178292 (UMLS CUI [1])
Code List
Complications of pregnancy
CL Item
Hypertension (1)
CL Item
Diabetes (2)
CL Item
Miscarriage (3)

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