ID

31749

Description

Common Data Elements for retinal neovascular diseases. The CDEs may be used in clinical routine, clinical trial, patient outcome, quality assurance and registry documentation of Age related macular degeneration (AMD), Diabetic Retinopathy (DR) and Retinal vein occlusion (RVO). The CDEs were developed by the Institute of Medical Informatics of the University Muenster in cooperation with the Department of Ophthalmology of the University Hospital Muenster.

Keywords

Versions (2)
  1. 9/25/18 9/25/18 -
  2. 9/20/21 9/20/21 -
Copyright Holder

Mehnaz Mowry

Uploaded on

September 25, 2018

DOI

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License

Creative Commons BY-NC 3.0
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Common Data Elements for Retinal Neovascular Diseases

German English

Diagnosis and Examination

4 forms  
Diagnosis and Examination
Description

Diagnosis and Examination

Alias
UMLS CUI-1
C0262926
UMLS CUI-3
C0031809
1. Date of visit
Description

Date of visit

Data type

date

Alias
UMLS CUI [1]
C1320303
2. Diagnosis
Description

Diagnosis

Data type

integer

Alias
UMLS CUI [1]
C0262926
3. Date of diagnosis
Description

Date of diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
4a. If you chose AMD, classification or Stage of AMD:
Description

Classification or Stage of disease AMD

Data type

integer

Alias
UMLS CUI [1,1]
C0683326
UMLS CUI [1,2]
C0242383
4b. If you chose DR, classification or Stage of DR:
Description

Classification or Stage of disease DR

Data type

integer

Alias
UMLS CUI [1,1]
C0683326
UMLS CUI [1,2]
C0011884
4c. If you chose RVO, classification or Stage of RVO:
Description

Classification or Stage of disease RVO

Data type

integer

Alias
UMLS CUI [1,1]
C0683326
UMLS CUI [1,2]
C0035328
5. Eye
Description

Eye

Data type

integer

Alias
UMLS CUI [1]
C0015392
6. Complications due to the underlying disease
Description

Disease complications

Data type

integer

Alias
UMLS CUI [1]
C0544688
7. HBA1c
Description

HBA1c

Data type

text

Alias
UMLS CUI [1]
C0019018
8. Blood Pressure
Description

Blood Pressure

Data type

text

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0005823
mmHg
9. Date of Follow-up visit
Description

Date of Follow-up visit

Data type

date

Alias
UMLS CUI [1]
C0589121
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Similar models

Diagnosis and Examination

4 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Diagnosis and Examination
C0262926 (UMLS CUI-1)
C0031809 (UMLS CUI-3)
Date of visit
Item
1. Date of visit
date
C1320303 (UMLS CUI [1])
Item
2. Diagnosis
integer
C0262926 (UMLS CUI [1])
Diagnosis
Code List
2. Diagnosis
CL Item
Age related macular degeneration (AMD) (1)
(Comment:de)
C0242383 (UMLS CUI-1)
(Comment:en)
CL Item
Diabetic Retinopathy (DR) (2)
(Comment:de)
C0011884 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal Vein Occlusion (RVO) (3)
(Comment:de)
C0035328 (UMLS CUI-1)
(Comment:en)
Date of diagnosis
Item
3. Date of diagnosis
date
C2316983 (UMLS CUI [1])
Item
4a. If you chose AMD, classification or Stage of AMD:
integer
C0683326 (UMLS CUI [1,1])
C0242383 (UMLS CUI [1,2])
Classification or Stage of disease AMD
Code List
4a. If you chose AMD, classification or Stage of AMD:
CL Item
Dry age-related macular degeneration (1)
(Comment:de)
C3888461 (UMLS CUI-1)
(Comment:en)
CL Item
Wet age-related macular degeneration (2)
(Comment:de)
C3888896 (UMLS CUI-1)
(Comment:en)
Item
4b. If you chose DR, classification or Stage of DR:
integer
C0683326 (UMLS CUI [1,1])
C0011884 (UMLS CUI [1,2])
Classification or Stage of disease DR
Code List
4b. If you chose DR, classification or Stage of DR:
CL Item
Nonproliferative diabetic retinopathy NPDR (1)
(Comment:de)
C0004606 (UMLS CUI-1)
(Comment:en)
CL Item
Mild non-proliferative diabetic retinopathy (2)
(Comment:de)
C0730276 (UMLS CUI-1)
(Comment:en)
CL Item
Severe nonproliferative diabetic retinopathy (3)
(Comment:de)
C0730278 (UMLS CUI-1)
(Comment:en)
CL Item
Proliferative diabetic retinopathy PDR (4)
(Comment:de)
C0154830 (UMLS CUI-1)
(Comment:en)
CL Item
Diabetic maculopathy (5)
(Comment:de)
C0339471 (UMLS CUI-1)
(Comment:en)
CL Item
Moderate nonproliferative diabetic retinopathy (6)
(Comment:de)
C0730277 (UMLS CUI-1)
(Comment:en)
Item
4c. If you chose RVO, classification or Stage of RVO:
integer
C0683326 (UMLS CUI [1,1])
C0035328 (UMLS CUI [1,2])
Classification or Stage of disease RVO
Code List
4c. If you chose RVO, classification or Stage of RVO:
CL Item
Central retinal vein occlusion CRVO (1)
(Comment:de)
C0154841 (UMLS CUI-1)
(Comment:en)
CL Item
Branch retinal vein occlusion BRVO (2)
(Comment:de)
C0339505 (UMLS CUI-1)
(Comment:en)
Item
5. Eye
integer
C0015392 (UMLS CUI [1])
Eye
Code List
5. Eye
CL Item
Right eye (1)
(Comment:de)
C0229089 (UMLS CUI-1)
(Comment:en)
CL Item
Left Eye (2)
(Comment:de)
C0229090 (UMLS CUI-1)
(Comment:en)
CL Item
Both Eyes (3)
(Comment:de)
C0229118 (UMLS CUI-1)
(Comment:en)
Item
6. Complications due to the underlying disease
integer
C0544688 (UMLS CUI [1])
Disease complications
Code List
6. Complications due to the underlying disease
CL Item
Retinal Pigment Epithelial Detachment (1)
(Comment:de)
C0339546 (UMLS CUI-1)
(Comment:en)
CL Item
Subretinal hemorrhage (2)
(Comment:de)
C0271049 (UMLS CUI-1)
(Comment:en)
CL Item
Macular pigment epithelial detachment (3)
(Comment:de)
C0344272 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal Hemorrhage (4)
(Comment:de)
C0035317 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal Perforations (5)
(Comment:de)
C0035321 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal Drusen (6)
(Comment:de)
C0035312 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal Neovascularization (7)
(Comment:de)
C0035320 (UMLS CUI-1)
(Comment:en)
CL Item
Choroidal retinal neovascularization (8)
(Comment:de)
C0271066 (UMLS CUI-1)
(Comment:en)
CL Item
Rubeosis iridis (9)
(Comment:de)
C0154916 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal scar (10)
(Comment:de)
C0271036 (UMLS CUI-1)
(Comment:en)
CL Item
Atrophic retina (11)
(Comment:de)
C0521694 (UMLS CUI-1)
(Comment:en)
CL Item
Macular degeneration (12)
(Comment:de)
C0024437 (UMLS CUI-1)
(Comment:en)
CL Item
Cotton wool spots (13)
(Comment:de)
C0271053 (UMLS CUI-1)
(Comment:en)
CL Item
Disc neovascularization (14)
(Comment:de)
C1112634 (UMLS CUI-1)
(Comment:en)
CL Item
multiple macular cysts (15)
(Comment:de)
C2174726 (UMLS CUI-1)
(Comment:en)
CL Item
Macular exudation (16)
(Comment:de)
C4072984 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal hyperpigmentation (17)
(Comment:de)
C3671851 (UMLS CUI-1)
(Comment:en)
CL Item
Maculopathy (18)
(Comment:de)
C0730362 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal dot hemorrhage (19)
(Comment:de)
C0474358 (UMLS CUI-1)
(Comment:en)
CL Item
Geographic Atrophy (20)
(Comment:de)
C1536085 (UMLS CUI-1)
(Comment:en)
CL Item
Metamorphopsia (21)
(Comment:de)
C0271185 (UMLS CUI-1)
(Comment:en)
CL Item
Blindness (22)
(Comment:de)
C0456909 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal cyst (23)
(Comment:de)
C2064514 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal depigmentation (24)
(Comment:de)
C0151891 (UMLS CUI-1)
(Comment:en)
CL Item
Vitreomacular adhesion (25)
(Comment:de)
C2748203 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal lipid deposits (26)
(Comment:de)
C0423410 (UMLS CUI-1)
(Comment:en)
CL Item
Diabetic retinal microaneurysm (27)
(Comment:de)
C0271064 (UMLS CUI-1)
(Comment:en)
CL Item
Macular edema (28)
(Comment:de)
C1403471 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal Edema (29)
(Comment:de)
C0242420 (UMLS CUI-1)
(Comment:en)
CL Item
Subretinal edema (30)
(Comment:de)
C2721564 (UMLS CUI-1)
(Comment:en)
CL Item
Vitreous Detachment (31)
(Comment:de)
C0042907 (UMLS CUI-1)
(Comment:en)
CL Item
Vitreous Hemorrhage (32)
(Comment:de)
C0042909 (UMLS CUI-1)
(Comment:en)
CL Item
Visual Impairment (33)
(Comment:de)
C3665347 (UMLS CUI-1)
(Comment:en)
CL Item
Advanced diabetic retinal disease (34)
(Comment:de)
C0589354 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal ischemia (35)
(Comment:de)
C0162291 (UMLS CUI-1)
(Comment:en)
CL Item
Retinal Detachment (36)
(Comment:de)
C0035305 (UMLS CUI-1)
(Comment:en)
HBA1c
Item
7. HBA1c
text
C0019018 (UMLS CUI [1])
Blood Pressure
Item
8. Blood Pressure
text
C0005823 (UMLS CUI [1])
Date of Follow-up visit
Item
9. Date of Follow-up visit
date
C0589121 (UMLS CUI [1])
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