ID
31564
Beschreibung
PARKINSON‘S DISEASE DATA COLLECTION Version 2.2.1 Revised April 10th, 2017 www.ichom.org Conditions Covered: Idiopathic Parkinson’s Disease Treatment Approaches: Pharmacotherapy | Behavioral Therapy | Exercise-Based Therapy | Deep Brain Stimulation | Infusion/Injection-Based Delivery This ODM-file contains clinically reported Treatment variables to be administered annually. Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. TEST StudyFor example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. Survey used: Movement Disorder Society (MDS-UPDRS), Part I: Non-Motor Aspects of Experiences of Daily Living (nM- EDL). Both clinical- and patient-reported portions; Part II: Motor Aspects of Experiences of Daily Living (M-EDL). Patient-reported: The MDS-UPDRS requires a license (by International Parkinson’s and Movement Disorders Society), therefore the used items are not integrated into this version of the Parkinson's Disease Standard Set. International Parkinson’s and Movement Disorders Society (IPMDS) Non-motor symptoms questionnaire (NMSQ): The NMSQ requires a license. However, in ICHOM's Parkinson's Disease Standard Set only one question derived from 2 NMSQ items is used. Parkinson’s Disease Quality of Life Questionnaire (PDQ-8): The PDQ-8 requires a license (by Innovation, Oxford University), therefore the used items are not integrated into this version of the Parkinson's Disease Standard Set. ICHOM was endorsed for this standard set by the International Association for Parkinsonism and Related Disorders. De Roos P, Bloem BR, Kelley TA, et al. A Consensus Set of Outcomes for Parkinson’s Disease from the International Consortium for Health Outcomes Measurement. Journal of Parkinson’s disease. 2017;7(3):533-543. doi:10.3233/JPD-161055.
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Versionen (2)
- 04.09.18 04.09.18 - Sarah Riepenhausen
- 30.04.20 30.04.20 - Sarah Riepenhausen
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ICHOM
Hochgeladen am
4. September 2018
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Creative Commons BY-NC 3.0
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ICHOM Parkinson's Disease
Annual Clinical Form: Treatment variables
- StudyEvent: ODM
Beschreibung
Treatment Variables
Alias
- UMLS CUI-1
- C0087111
Beschreibung
INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Clinical TYPE: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0418981
- UMLS CUI [1,2]
- C4086728
Beschreibung
INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Clinical TYPE: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0004933
- UMLS CUI [1,2]
- C4086728
Beschreibung
INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Clinical TYPE: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C2243091
- UMLS CUI [1,2]
- C4086728
Beschreibung
INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Clinical TYPE: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0394162
- UMLS CUI [1,2]
- C4086728
Beschreibung
INCLUSION CRITERIA: All patients TIMING: Annually REPORTING SOURCE: Clinical TYPE: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0574032
- UMLS CUI [1,2]
- C0087111
- UMLS CUI [1,3]
- C4086728
- UMLS CUI [2,1]
- C1533685
- UMLS CUI [2,2]
- C0087111
- UMLS CUI [2,3]
- C4086728
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