Item
Who do you donate to?
integer
C0080231 (UMLS CUI [1,1])
C1709850 (UMLS CUI [1,2])
Code List
Who do you donate to?
CL Item
Spouse (Partner) (1)
Item
Initiative to donate
integer
C0080231 (UMLS CUI [1,1])
C0424093 (UMLS CUI [1,2])
Code List
Initiative to donate
CL Item
From yourself (1)
CL Item
From a member of your family (2)
CL Item
From receiver (3)
CL Item
From relatives of the recipient (4)
CL Item
From a doctor (5)
Item
Duration of decision
integer
C0449238 (UMLS CUI [1,1])
C0679006 (UMLS CUI [1,2])
Code List
Duration of decision
CL Item
Less than 3 months (1)
CL Item
More than 12 months (4)
Item
Duration of preperation
integer
C0449238 (UMLS CUI [1,1])
C1521827 (UMLS CUI [1,2])
Code List
Duration of preperation
CL Item
Less than 3 months (1)
CL Item
More than 12 months (4)
Item
Feedback regarding duration of preperation
integer
C0449238 (UMLS CUI [1,1])
C1521827 (UMLS CUI [1,2])
Code List
Feedback regarding duration of preperation
CL Item
.... too long (1)
CL Item
.... too short (2)
CL Item
.... just right (3)
Item
Feedback regarding information on risks
integer
C1955348 (UMLS CUI [1,1])
C0332306 (UMLS CUI [1,2])
Code List
Feedback regarding information on risks
Item
Feedback of dependants regarding donation
integer
C0080103 (UMLS CUI [1,1])
C0871010 (UMLS CUI [1,2])
C0080231 (UMLS CUI [1,3])
Code List
Feedback of dependants regarding donation
CL Item
Very positive (1)
CL Item
Very negative (5)
Item
Feeling pressed for donation
integer
C0080231 (UMLS CUI [1,1])
C0680855 (UMLS CUI [1,2])
Code List
Feeling pressed for donation
Item
Self-Assessment regarding health of organ receiver
integer
C0018759 (UMLS CUI [1,1])
C0040732 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
Code List
Self-Assessment regarding health of organ receiver
Item
Relation to organ receiver
integer
C0439849 (UMLS CUI [1,1])
C1709850 (UMLS CUI [1,2])
Code List
Relation to organ receiver
Item
Will the receiver treat the donated kidgney well
integer
C0022671 (UMLS CUI [1,1])
C0749659 (UMLS CUI [1,2])
Code List
Will the receiver treat the donated kidgney well
Item
Will your relation to organ receiver change after donation
integer
C2045651 (UMLS CUI [1,1])
C1709850 (UMLS CUI [1,2])
Code List
Will your relation to organ receiver change after donation
CL Item
Very negative (1)
CL Item
Rather negative (2)
CL Item
Do not change (3)
CL Item
Rather positive (4)
CL Item
Very positive (5)
Item
Retrospectively, would you donate again
integer
C0080231 (UMLS CUI [1,1])
C0035110 (UMLS CUI [1,2])
Code List
Retrospectively, would you donate again
CL Item
Under no circumstances (5)
T2_4.1
Item
Retrospectively, would you donate again, why not free text
text
C0080231 (UMLS CUI [1,1])
C0035110 (UMLS CUI [1,2])
C2826287 (UMLS CUI [1,3])
Item
Retrospectively, how would you rate informed consent
integer
C1955348 (UMLS CUI [1,1])
C1514923 (UMLS CUI [1,2])
Code List
Retrospectively, how would you rate informed consent
T2_6
Item
Is organ receiver alive
boolean
C1709850 (UMLS CUI [1,1])
C2584946 (UMLS CUI [1,2])
T2_7
Item
Does organ receiver require dialysis?
boolean
C1709850 (UMLS CUI [1,1])
C0011946 (UMLS CUI [1,2])
Item
Self-assessment health of organ receiver
integer
C0018759 (UMLS CUI [1,1])
C0040732 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
Code List
Self-assessment health of organ receiver
Item
Does organ receiver treat the donated kidney well
integer
C0022671 (UMLS CUI [1,1])
C0749659 (UMLS CUI [1,2])
Code List
Does organ receiver treat the donated kidney well
Item
Has your relation to organ receiver changed
integer
C2045651 (UMLS CUI [1,1])
C1709850 (UMLS CUI [1,2])
Code List
Has your relation to organ receiver changed
CL Item
Very negative (1)
CL Item
Rather negative (2)
CL Item
Rather positive (4)
CL Item
Very positive (5)
Item
Limited in everyday life due to illness of organ receiver
integer
C0221423 (UMLS CUI [1,1])
C0443288 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
Code List
Limited in everyday life due to illness of organ receiver
Item
Limited in everyday life due to the donation
integer
C0443288 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
C0080231 (UMLS CUI [1,3])
Code List
Limited in everyday life due to the donation
Item
Satisfied with result of the donation
integer
C0242428 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
Code List
Satisfied with result of the donation
CL Item
Very satisfied (1)
CL Item
Rather satisfied (2)
CL Item
Rather dissatisfied (4)
CL Item
Very dissatisfied (5)
Item
Physical strain due to donation
integer
C1142435 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C0566251 (UMLS CUI [1,3])
Code List
Physical strain due to donation
Item
Psychic strain due to donation
integer
C0038443 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C0566251 (UMLS CUI [1,3])
Code List
Psychic strain due to donation
T2_16
Item
Complications after donation
boolean
C0009566 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
T2_17
Item
Complications for organ receiver after donation
boolean
C0009566 (UMLS CUI [1,1])
C0080231 (UMLS CUI [1,2])
C1709850 (UMLS CUI [1,3])
T2_18
Item
Week unable to week after donation
integer
C0449238 (UMLS CUI [1,1])
C0849751 (UMLS CUI [1,2])
Item
Occupational or everyday activities possible
integer
C3641747 (UMLS CUI [1])
Code List
Occupational or everyday activities possible
CL Item
Not at all (0 %) (1)
CL Item
25 % of the time (2)
CL Item
50 % of the time (3)
CL Item
75% of the time (4)
CL Item
Complete (100%) (5)
Item
Taking cure
integer
C0018740 (UMLS CUI [1])
CL Item
No, I didn't want (2)
CL Item
No, I was not offered one (3)
CL Item
No, because the health insurance company refused (4)
Item
Taking cure has helped physically
integer
C2986411 (UMLS CUI [1,1])
C0031808 (UMLS CUI [1,2])
C0018740 (UMLS CUI [1,3])
Code List
Taking cure has helped physically
Item
The cure has helped emotionally
integer
C2984554 (UMLS CUI [1,1])
C2986411 (UMLS CUI [1,2])
C0018740 (UMLS CUI [1,3])
Code List
The cure has helped emotionally
T3_21
Item
Taking cure again
boolean
C0018740 (UMLS CUI [1,1])
C0205341 (UMLS CUI [1,2])
T3_22
Item
Attended follow-up testing last year
boolean
C0001758 (UMLS CUI [1])
Item
Location follow-up testing
integer
C0001758 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
Code List
Location follow-up testing
CL Item
family doctor: (1)
CL Item
established kidney specialist (nephrologist) (2)
CL Item
Transplantation centre (3)
Item
Frequency follow-up testing
integer
C0439603 (UMLS CUI [1,1])
C0001758 (UMLS CUI [1,2])
Code List
Frequency follow-up testing
CL Item
more than 4 times (4)
T3_23
Item
Pregnant after donation?
boolean
C0080231 (UMLS CUI [1,1])
C0032961 (UMLS CUI [1,2])
Item
Pregnancy complications
integer
C0032962 (UMLS CUI [1])
Code List
Pregnancy complications