ID

28352

Beschreibung

Swedish Heart Failure Registry (RiksSvikt/SwedeHF) Sweden has a long tradition of measuring results and performance of the given health care. In order to stimulate to achieve better results, we try to find explanations for the discrepancies between different regions/hospitals/primary care units. In recent years, quality registries have become an increasingly important source of Swedish clinical research. SwedeHF (or RiksSvikt) was created in order to give the participating units knowledge, about how they diagnosed and treated their patients. The given information obtains indications where further efforts are needed in order to give patients with heart failure an optimal management. SwedeHF is an Internet-based registry, where participating units register their heart failure patient on-line, using transferred data from standardized forms or from computerized patients records. RiksSvikt Life and Life Quality

Stichworte

Versionen (1)
  1. 06.01.18 06.01.18 -
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RiksSvikt

Hochgeladen am

6. Januar 2018

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Swedish Heart Failure Registry (RiksSvikt)

Englisch ( localization.languageCode.US ) Schwedisch

RiksSvikt Life and Life Quality

1 Formulare  
RiksSvikt
Beschreibung

RiksSvikt

Alias
UMLS CUI-1
C0018801
UMLS CUI-2
C0034975
Study ID
Beschreibung

Study ID

Datentyp

text

Alias
UMLS CUI [1]
C2348585
Name
Beschreibung

Name

Datentyp

text

Alias
UMLS CUI [1]
C1299487
date
Beschreibung

date

Datentyp

date

Alias
UMLS CUI [1]
C0011008
City
Beschreibung

City

Datentyp

text

Alias
UMLS CUI [1]
C2316883
LIFE AND LIFE QUALITY
Beschreibung

LIFE AND LIFE QUALITY

Alias
UMLS CUI-1
C0034380
Relationship status
Beschreibung

Relationship status

Datentyp

integer

Alias
UMLS CUI [1]
C0024819
Living situation
Beschreibung

living situation

Datentyp

integer

Alias
UMLS CUI [1]
C2184149
Participation in organized physical exercise for heart failure
Beschreibung

Participation in organized physical exercise for heart failure

Datentyp

integer

Alias
UMLS CUI [1,1]
C1535955
UMLS CUI [1,2]
C0018801
UMLS CUI [1,3]
C2348568
Participation in heart failure school
Beschreibung

Participation in heart failure school

Datentyp

integer

Alias
UMLS CUI [1,1]
C0036375
UMLS CUI [1,2]
C0018801
UMLS CUI [1,3]
C2348568
Tobacco - Smoking habits
Beschreibung

Tobacco - Smoking habits

Datentyp

integer

Alias
UMLS CUI [1]
C0543414
Alcohol - How many standard glasses do you drink a regular week?
Beschreibung

Alcohol

Datentyp

integer

Alias
UMLS CUI [1]
C0001948
Alcohol - How often do you drink as a woman 4 standard glasses and you are 5 standard glasses or more at one and the same time?
Beschreibung

Alcohol

Datentyp

integer

Alias
UMLS CUI [1]
C0001948
FUNCTION CLASS - PATIENT ESTIMATED SYMPTOMS
Beschreibung

FUNCTION CLASS - PATIENT ESTIMATED SYMPTOMS

Alias
UMLS CUI-1
C0018801
UMLS CUI-2
C1457887
Fatigue
Beschreibung

Fatigue

Datentyp

integer

Alias
UMLS CUI [1]
C0015672
Breathlessness
Beschreibung

Breathlessness

Datentyp

integer

Alias
UMLS CUI [1]
C0013404
Current medication
Beschreibung

Current medication

Alias
UMLS CUI-1
C0013227
UMLS CUI-2
C1553892
medication name
Beschreibung

medication name

Datentyp

text

Alias
UMLS CUI [1]
C2360065
Medication Dose mg
Beschreibung

Dose

Datentyp

float

Maßeinheiten
  • mg
Alias
UMLS CUI [1]
C3174092
mg
Number of tablets morning
Beschreibung

Number of tablets morning

Datentyp

integer

Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0332170
Number of tablets midday
Beschreibung

Number of tablets midday

Datentyp

integer

Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0585020
Number of tablets evening
Beschreibung

Number of tablets evening

Datentyp

integer

Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0587117
Number of tablets night
Beschreibung

Number of tablets night

Datentyp

integer

Alias
UMLS CUI [1,1]
C3174092
UMLS CUI [1,2]
C0240526
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Ähnliche Modelle

RiksSvikt Life and Life Quality

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
RiksSvikt
C0018801 (UMLS CUI-1)
C0034975 (UMLS CUI-2)
Study ID
Item
Study ID
text
C2348585 (UMLS CUI [1])
Name
Item
Name
text
C1299487 (UMLS CUI [1])
date
Item
date
date
C0011008 (UMLS CUI [1])
City
Item
City
text
C2316883 (UMLS CUI [1])
Item Group
LIFE AND LIFE QUALITY
C0034380 (UMLS CUI-1)
Item
Relationship status
integer
C0024819 (UMLS CUI [1])
Relationship status
Code List
Relationship status
CL Item
Married / partner (1)
CL Item
Single (2)
CL Item
Unknown (3)
Item
Living situation
integer
C2184149 (UMLS CUI [1])
living situation
Code List
Living situation
CL Item
Independent living (1)
CL Item
Other accommodation (2)
CL Item
Unknown (3)
Item
Participation in organized physical exercise for heart failure
integer
C1535955 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
C2348568 (UMLS CUI [1,3])
Participation in organized physical exercise for heart failure
Code List
Participation in organized physical exercise for heart failure
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Participation in heart failure school
integer
C0036375 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
C2348568 (UMLS CUI [1,3])
Participation in organized physical exercise for heart failure
Code List
Participation in heart failure school
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Tobacco - Smoking habits
integer
C0543414 (UMLS CUI [1])
Tobacco - Smoking habits
Code List
Tobacco - Smoking habits
CL Item
I have never been a smoker (1)
CL Item
I have quit smoking for more than 6 months (2)
CL Item
I have quit smoking for less than 6 months (3)
CL Item
I smoke, but not daily (4)
CL Item
I smoke daily (5)
CL Item
Unknown (6)
Item
Alcohol - How many standard glasses do you drink a regular week?
integer
C0001948 (UMLS CUI [1])
Alcohol - How many standard glasses do you drink a regular week?
Code List
Alcohol - How many standard glasses do you drink a regular week?
CL Item
Drinking <1 standard glass / week or not at all (1)
CL Item
1-4 standard glasses / week (2)
CL Item
5-9 standard glasses / week (3)
CL Item
10-14 standard glasses / week (4)
CL Item
15 or more standard glasses / week (5)
CL Item
Unknown (6)
Item
Alcohol - How often do you drink as a woman 4 standard glasses and you are 5 standard glasses or more at one and the same time?
integer
C0001948 (UMLS CUI [1])
Alcohol - How often do you drink as a woman 4 standard glasses and you are 5 standard glasses or more at one and the same time?
Code List
Alcohol - How often do you drink as a woman 4 standard glasses and you are 5 standard glasses or more at one and the same time?
CL Item
Never (1)
CL Item
Rarely than 1 time per month (2)
CL Item
Monthly (3)
CL Item
Weekly (4)
CL Item
Daily or almost daily (5)
CL Item
Unknown (6)
Item Group
FUNCTION CLASS - PATIENT ESTIMATED SYMPTOMS
C0018801 (UMLS CUI-1)
C1457887 (UMLS CUI-2)
Item
Fatigue
integer
C0015672 (UMLS CUI [1])
Fatigue
Code List
Fatigue
CL Item
Totally unaffected (1)
CL Item
Fatigue at more is moderate effort, e.g. in a fast walk or on a slope. (2)
CL Item
Fatigue for easier effort, eg. on flat ground or when you get dressed (3)
CL Item
Fatigue at rest (4)
CL Item
Unknown (5)
Item
Breathlessness
integer
C0013404 (UMLS CUI [1])
Breathlessness
Code List
Breathlessness
CL Item
Totally unaffected (1)
CL Item
Resilience to more is moderate effort, eg in a fast walk or on a slope. (2)
CL Item
Lack of effort at ease on flat ground or when you turn on / off. (3)
CL Item
Restlessness at rest (4)
CL Item
Unknown (5)
Item Group
Current medication
C0013227 (UMLS CUI-1)
C1553892 (UMLS CUI-2)
medication name
Item
medication name
text
C2360065 (UMLS CUI [1])
Dose
Item
Medication Dose mg
float
C3174092 (UMLS CUI [1])
Number of tablets morning
Item
Number of tablets morning
integer
C3174092 (UMLS CUI [1,1])
C0332170 (UMLS CUI [1,2])
Number of tablets midday
Item
Number of tablets midday
integer
C3174092 (UMLS CUI [1,1])
C0585020 (UMLS CUI [1,2])
Number of tablets evening
Item
Number of tablets evening
integer
C3174092 (UMLS CUI [1,1])
C0587117 (UMLS CUI [1,2])
Number of tablets night
Item
Number of tablets night
integer
C3174092 (UMLS CUI [1,1])
C0240526 (UMLS CUI [1,2])
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