ID

27269

Description

CATARACTS DATA COLLECTION Version 2.0.1 Revised: March 8th, 2017, International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Conditions: Symptomatic Cataract | Asymptomatic Cataract Treatment Approaches: Phacoemulsification | Sutured Extracapsular Cataract Extraction | Sutureless Extracapsular Cataract Extraction | Intracapsular Cataract Extraction Scores: Catquest-9SF - The Catquest-9SF is free for all health care organizations, and a license is not needed for use

Link

http://www.ichom.org/

Keywords

  1. 11/6/17 11/6/17 -
  2. 8/9/18 8/9/18 - Sarah Riepenhausen
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
  4. 9/20/21 9/20/21 -
Copyright Holder

ICHOM

Uploaded on

November 6, 2017

DOI

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License

Creative Commons BY-NC 3.0

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ICHOM Cataracts

ICHOM Cataracts

  1. StudyEvent: ODM
    1. ICHOM Cataracts
ICHOM Cataracts
Description

ICHOM Cataracts

Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Demographic factors
Description

Demographic factors

Please indicate patient's date of birth
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C0001779
DD/MM/YYYY
Please indicate patient's sex at birth
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0079399
Baseline visual status
Description

Baseline visual status

Indicate the distance visual acuity measured uncorrected in the right eye
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1637380
UMLS CUI [1,2]
C0229089
UMLS CUI [1,3]
C0445204
Indicate the distance visual acuity measured best corrected in the right eye
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1275679
UMLS CUI [1,2]
C0445204
Indicate the distance visual acuity measured uncorrected in the left eye
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1637380
UMLS CUI [1,2]
C0229090
UMLS CUI [1,3]
C0445204
Indicate the distance visual acuity measured best corrected in the left eye
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1301507
UMLS CUI [1,2]
C0445204
Indicate the distance visual acuity units
Description

INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Pre-operative period REPORTING SOURCE: Clinical TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0042812
UMLS CUI [1,2]
C0439148
UMLS CUI [1,3]
C0445204
Indicate the spherical target refraction, which has been agreed pre-operatively, in the right eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Spherical target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3166357
UMLS CUI [1,3]
C0229089
Indicate the spherical target refraction, which has been agreed pre-operatively, in the left eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Spherical target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3166357
UMLS CUI [1,3]
C0229090
Indicate the cylinder target refraction, which has been agreed pre-operatively, in the right eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Cylinder target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3176048
Indicate the cylinder target refraction, which has been agreed pre-operatively, in the left eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Cylinder target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3176053
Indicate the axis target refraction, which has been agreed pre-operatively, in the right eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Axis target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C0429590
UMLS CUI [1,3]
C0229089
Indicate the axis target refraction, which has been agreed pre-operatively, in the left eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Pre-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Axis target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C0429590
UMLS CUI [1,3]
C0229090
Ocular Comorbidities
Description

Ocular Comorbidities

Indicate if the diagnosis of glaucoma has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0017601
Indicate if the diagnosis of macular degeneration has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0024437
Indicate if the diagnosis of diabetic retinopathy and/or diabetic macular edema has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0011884
UMLS CUI [2]
C0154830
Indicate if the diagnosis of amblyopia has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0002418
Indicate if there is any other diagnosis documented in the patient’s clinical notes and not included in the list of baseline clinical status risk factors that is likely to significantly impact the outcome of surgery
Description

Other: e.g. uveitis, vitreous hemorrhage, optic nerve disease, and retinal detachment INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0009488
Prior ophthalmic interventions
Description

Prior ophthalmic interventions

Indicate if the patient has had previous cataract surgery on the fellow eye that has been documented in the patient’s clinical notes
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C2939459
UMLS CUI [1,3]
C3898900
UMLS CUI [1,4]
C0015392
Indicate if the patient has had previous corneal refractive surgery on the eye that will undergo cataract surgery that has been documented in the patient’s clinical notes
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0197402
Indicate if patient has had a previous vitrectomy in the eye undergoing cataract surgery, documented in patient’s clinical notes
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0042903
Indicate if the patient has had any other prior ophthalmic intervention that has been documented in the patient’s clinical notes that is likely to negatively impact the clinical outcome
Description

Other: e.g. filtering surgery and pterygium excision INCLUSION CRITERIA: All patients TIMING: Pre-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0184661
Technical Factors
Description

Technical Factors

Indicate if there was a clinical diagnosis of white or dense brown cataract made prior to cataract surgery and documented in patient’s clinical notes
Description

INCLUSION CRITERIA: All patients TIMING: Intra-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0086543
UMLS CUI [1,2]
C3841902
UMLS CUI [2,1]
C0086543
UMLS CUI [2,2]
C0220938
Indicate if there were corneal opacities observed and documented in patient’s clinical notes either prior to cataract surgery or during cataract surgery
Description

Non-significant: opacities present but not impairing view of surgical field Significant: impairing view of the surgical field (iris and lens capsule) INCLUSION CRITERIA: All patients TIMING: Intra-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0155098
Indicate if there was a clinical diagnosis of pseudoexfoliation made either prior to cataract surgery or during cataract surgery, and documented in patient’s clinical notes
Description

INCLUSION CRITERIA: All patients TIMING: Intra-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4022815
Indicate if there were pupillary problems (e.g. miosis, floppy iris syndrome) observed either prior to cataract surgery or during cataract surgery, and documented in patient’s clinical notes
Description

Non-severe: pupillary problems noted but not requiring a significant modification of surgical technique, and are unlikely to affect outcome Severe: pupillary problems (e.g. miosis, floppy iris syndrome) that require a significant modification of surgical technique and present a threat to surgical outcome INCLUSION CRITERIA: All patients TIMING: Intra-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0034121
UMLS CUI [1,2]
C0033213
TREATMENT VARIABLES
Description

TREATMENT VARIABLES

Indicate type of surgical procedure performed
Description

INCLUSION CRITERIA: All patients TIMING: Intra-operative period REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0543467
Intra-operative complications
Description

Intra-operative complications

Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically capsule breach
Description

INCLUSION CRITERIA: All cases of intra-operative communication between AC and vitreous, excluding cases in which communication between AC and vitreous existed prior to surgery TIMING: Intra-operative period REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0229232
UMLS CUI [1,2]
C0009566
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically zonular dehiscence
Description

INCLUSION CRITERIA: All cases of intra-operative communication between AC and vitreous, excluding cases in which communication between AC and vitreous existed prior to surgery TIMING: Intra-operative period REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1299683
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically vitreous prolapse
Description

INCLUSION CRITERIA: All cases of intra-operative communication between AC and vitreous, excluding cases in which communication between AC and vitreous existed prior to surgery TIMING: Intra-operative period REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0155369
Indicate if there was any instance in which part of lens material (clearly visible significant part of nucleus) enters the vitreous (regardless of whether removed or not)
Description

INCLUSION CRITERIA: All cases in which lens matter enters the vitreous intra-operatively TIMING: Intra-operative period REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0486805
UMLS CUI [1,2]
C0023317
UMLS CUI [1,3]
C0042905
Indicate if there was a significant complication that means prolonged time of surgery or change in surgical procedure or represents a threat to the visual outcome
Description

Other: e.g. extensive bleeding in the anterior segment, flat chamber with high IOP, etc. INCLUSION CRITERIA: Excluding harmless complications that do not affect surgery or are not a threat to the vision outcome, interrupted surgery (e.g. surgery that was not started) TIMING: Intra-operative period REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0750502
Post-operative visual status
Description

Post-operative visual status

Indicate the distance visual acuity measured uncorrected in the right eye between 7 days and 3 months post operatively
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1637380
UMLS CUI [1,2]
C0229089
UMLS CUI [1,3]
C2112579
Indicate the distance visual acuity measured best corrected in the right eye between 7 days and 3 months post operatively
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1275679
UMLS CUI [1,2]
C2112579
Indicate the distance visual acuity measured uncorrected in the left eye between 7 days and 3 months post operatively
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1637380
UMLS CUI [1,2]
C0229090
UMLS CUI [1,3]
C2112579
Indicate the distance visual acuity measured best corrected in the left eye between 7 days and 3 months post operatively
Description

Details such as distance, chart type, and specific equipment will be left to each institution INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Results reported in format chosen by institution

Data type

text

Alias
UMLS CUI [1,1]
C1301507
UMLS CUI [1,2]
C2112579
Indicate the distance visual acuity units
Description

INCLUSION CRITERIA: All patients undergoing cataract surgery (independent of method of surgery), excluding patients that cannot cooperate TIMING: Post-operative period REPORTING SOURCE: Clinical TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0042812
UMLS CUI [1,2]
C0439148
UMLS CUI [1,3]
C2112579
Indicate the record, within 3 months post operatively, of the spherical target refraction, which has been agreed pre-operatively, in the right eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Spherical target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3166357
UMLS CUI [1,3]
C0229089
Indicate the record, within 3 months post operatively, of the spherical target refraction, which has been agreed pre-operatively, in the left eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Spherical target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3166357
UMLS CUI [1,3]
C0229090
Indicate the record, within 3 months post operatively, of the cylinder target refraction, which has been agreed pre-operatively, in the right eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Cylinder target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3176048
Indicate the record, within 3 months post operatively, of the cylinder target refraction, which has been agreed pre-operatively, in the left eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Cylinder target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C3176053
Indicate the record, within 3 months post operatively, of the axis target refraction, which has been agreed pre-operatively, in the right eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Axis target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C0429590
UMLS CUI [1,3]
C0229089
Indicate the record, within 3 months post operatively, of the axis target refraction, which has been agreed pre-operatively, in the left eye
Description

For surgical eye INCLUSION CRITERIA:All patients undergoing cataract surgery (independent of method of surgery) TIMING: Post-operative period REPORTING SOURCE: Clinical RESPONSE OPTIONS: Axis target refraction

Data type

text

Alias
UMLS CUI [1,1]
C0034949
UMLS CUI [1,2]
C0429590
UMLS CUI [1,3]
C0229090
Post-operative complications
Description

Post-operative complications

Indicate if there was any return to an operating theater within 3 months of initial cataract surgery date
Description

Only include those cases caused by either an intra-operative or post-operative complication following cataract surgery INCLUSION CRITERIA: Excluding cases when the reason for return to theater is not related to either an intra-operative or post-operative complication of initial cataract surgery TIMING: Post-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0035110
Indicate if there was post-operative severe intra-ocular inflammation within 3 months of initial cataract surgery date
Description

Due to suspected or proven intra-ocular infection attributed to the surgery INCLUSION CRITERIA: All cases of suspected endophthalmitis, whether culture-proven (e.g. positive culture) or those with a negative culture that behave clinically like infection (e.g. respond to antibiotics) TIMING: Post-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0014236
Indicate if there was a corneal edema starting immediately after surgery that does not completely resolve during the 3 month follow-up period
Description

INCLUSION CRITERIA: All cases of persistent corneal edema post-operatively TIMING: Post-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0010037
Indicate if there was a significant post-operative complication within 3 months of initial cataract surgery date that means on-going treatment or poorer vision
Description

Such as persistent elevated IOP with need for medication, uveitis with need for medication, wound problems that mean repeated visits to the clinic, etc. INCLUSION CRITERIA: Excluding complications that cause return to operating theater TIMING: Post-operative period REPORTING SOURCE: Clinical or administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0032787
Patient-reported visual function
Description

Patient-reported visual function

The aim of this questionnaire is to establish what difficulties you have in your daily life due to impaired sight. So that we can develop our healthcare as well as possible we are keen for you to answer the questions in the questionnaire as honestly as you can. The questionnaire contains questions about your difficulties due to impaired sight in connection with certain everyday tasks. If you use glasses for distance and/or close-up purposes, the questions are about what it is like when you use your best glasses. The questions in this questionnaire apply to your situation during the past 4 weeks. When you answer the questions you must try to think only of the difficulties that your sight may be causing you. We appreciate that it may be difficult to decide just what your sight means to you if you also have other problems such as joint pains or dizziness for example. We would still ask you to try to answer how important you think your sight is in your ability to perform the following tasks. When you are asked to state your difficulties, we have given three response options. We call them very great difficulty, great difficulty and some difficulty. Different people may put things differently. Try to see the three response options as three equal size parts of a scale ranging from the greatest to the least difficulty caused by your sight in performing various activities. An example of how we envisage the scale with the three different response options: Greatest ________________ / ________________ / ________________ least very great difficulty great difficulty some difficulty 1. Do you find that your sight at present in some way causes you difficulty in your everyday life?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0042812
UMLS CUI [1,2]
C0001288
UMLS CUI [1,3]
C0033213
2. Are you satisfied or dissatisfied with your sight at present?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0042812
UMLS CUI [1,2]
C0242428
3. Do you have difficulty reading text in newspapers because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0586742
4. Do you have difficulty recognizing the faces of people you meet?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0870537
UMLS CUI [1,2]
C0332218
5. Do you have difficulty seeing the prices of goods when shopping because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0080045
UMLS CUI [1,2]
C0599621
UMLS CUI [1,3]
C0332218
6. Do you have difficulty seeing to walk on uneven surfaces (for example cobblestones) because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C4074937
7. Do you have difficulty seeing to do handicrafts, woodwork, etc. because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0599621
UMLS CUI [1,2]
C0332218
8. Do you have difficulty reading subtitles on TV because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0039461
UMLS CUI [1,2]
C0332218
9. Do you have difficulty seeing to engage in activity/hobby that you are interested in because of your sight?
Description

INCLUSION CRITERIA: All patients TIMING: Pre-operative period Post-operative period REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0441655
UMLS CUI [1,2]
C0332218

Similar models

ICHOM Cataracts

  1. StudyEvent: ODM
    1. ICHOM Cataracts
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
ICHOM Cataracts
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Item Group
Demographic factors
Age
Item
Please indicate patient's date of birth
date
C0001779 (UMLS CUI [1])
Item
Please indicate patient's sex at birth
integer
C0079399 (UMLS CUI [1])
Code List
Please indicate patient's sex at birth
CL Item
No (0)
CL Item
Yes (1)
Item Group
Baseline visual status
Pre-operative distance visual acuity: Uncorrected, right
Item
Indicate the distance visual acuity measured uncorrected in the right eye
text
C1637380 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
C0445204 (UMLS CUI [1,3])
Pre-operative distance visual acuity: Corrected, right
Item
Indicate the distance visual acuity measured best corrected in the right eye
text
C1275679 (UMLS CUI [1,1])
C0445204 (UMLS CUI [1,2])
Pre-operative distance visual acuity: Uncorrected, left
Item
Indicate the distance visual acuity measured uncorrected in the left eye
text
C1637380 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
C0445204 (UMLS CUI [1,3])
Pre-operative distance visual acuity: Corrected, left
Item
Indicate the distance visual acuity measured best corrected in the left eye
text
C1301507 (UMLS CUI [1,1])
C0445204 (UMLS CUI [1,2])
Item
Indicate the distance visual acuity units
integer
C0042812 (UMLS CUI [1,1])
C0439148 (UMLS CUI [1,2])
C0445204 (UMLS CUI [1,3])
Code List
Indicate the distance visual acuity units
CL Item
No (0)
CL Item
Yes (1)
Target refraction: Spherical, right
Item
Indicate the spherical target refraction, which has been agreed pre-operatively, in the right eye
text
C0034949 (UMLS CUI [1,1])
C3166357 (UMLS CUI [1,2])
C0229089 (UMLS CUI [1,3])
Target refraction: Spherical, left
Item
Indicate the spherical target refraction, which has been agreed pre-operatively, in the left eye
text
C0034949 (UMLS CUI [1,1])
C3166357 (UMLS CUI [1,2])
C0229090 (UMLS CUI [1,3])
Target refraction: Cylinder, right
Item
Indicate the cylinder target refraction, which has been agreed pre-operatively, in the right eye
text
C0034949 (UMLS CUI [1,1])
C3176048 (UMLS CUI [1,2])
Target refraction: Cylinder, left
Item
Indicate the cylinder target refraction, which has been agreed pre-operatively, in the left eye
text
C0034949 (UMLS CUI [1,1])
C3176053 (UMLS CUI [1,2])
Target refraction: Axis, right
Item
Indicate the axis target refraction, which has been agreed pre-operatively, in the right eye
text
C0034949 (UMLS CUI [1,1])
C0429590 (UMLS CUI [1,2])
C0229089 (UMLS CUI [1,3])
Target refraction: Axis, left
Item
Indicate the axis target refraction, which has been agreed pre-operatively, in the left eye
text
C0034949 (UMLS CUI [1,1])
C0429590 (UMLS CUI [1,2])
C0229090 (UMLS CUI [1,3])
Item Group
Ocular Comorbidities
Item
Indicate if the diagnosis of glaucoma has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
integer
C0017601 (UMLS CUI [1])
Code List
Indicate if the diagnosis of glaucoma has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if the diagnosis of macular degeneration has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
integer
C0024437 (UMLS CUI [1])
Code List
Indicate if the diagnosis of macular degeneration has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
CL Item
None (0)
CL Item
Non-significant (1)
CL Item
Significant (2)
Item
Indicate if the diagnosis of diabetic retinopathy and/or diabetic macular edema has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
integer
C0011884 (UMLS CUI [1])
C0154830 (UMLS CUI [2])
Code List
Indicate if the diagnosis of diabetic retinopathy and/or diabetic macular edema has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if the diagnosis of amblyopia has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
integer
C0002418 (UMLS CUI [1])
Code List
Indicate if the diagnosis of amblyopia has been made and documented in the patient’s clinical notes prior to the time of surgery or immediately after surgery
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there is any other diagnosis documented in the patient’s clinical notes and not included in the list of baseline clinical status risk factors that is likely to significantly impact the outcome of surgery
integer
C0009488 (UMLS CUI [1])
Code List
Indicate if there is any other diagnosis documented in the patient’s clinical notes and not included in the list of baseline clinical status risk factors that is likely to significantly impact the outcome of surgery
CL Item
No (0)
CL Item
Yes (1)
Item Group
Prior ophthalmic interventions
Item
Indicate if the patient has had previous cataract surgery on the fellow eye that has been documented in the patient’s clinical notes
integer
C0262926 (UMLS CUI [1,1])
C2939459 (UMLS CUI [1,2])
C3898900 (UMLS CUI [1,3])
C0015392 (UMLS CUI [1,4])
Code List
Indicate if the patient has had previous cataract surgery on the fellow eye that has been documented in the patient’s clinical notes
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if the patient has had previous corneal refractive surgery on the eye that will undergo cataract surgery that has been documented in the patient’s clinical notes
integer
C0262926 (UMLS CUI [1,1])
C0197402 (UMLS CUI [1,2])
Code List
Indicate if the patient has had previous corneal refractive surgery on the eye that will undergo cataract surgery that has been documented in the patient’s clinical notes
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if patient has had a previous vitrectomy in the eye undergoing cataract surgery, documented in patient’s clinical notes
integer
C0262926 (UMLS CUI [1,1])
C0042903 (UMLS CUI [1,2])
Code List
Indicate if patient has had a previous vitrectomy in the eye undergoing cataract surgery, documented in patient’s clinical notes
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if the patient has had any other prior ophthalmic intervention that has been documented in the patient’s clinical notes that is likely to negatively impact the clinical outcome
integer
C0262926 (UMLS CUI [1,1])
C0184661 (UMLS CUI [1,2])
Code List
Indicate if the patient has had any other prior ophthalmic intervention that has been documented in the patient’s clinical notes that is likely to negatively impact the clinical outcome
CL Item
No (0)
CL Item
Yes (1)
Item Group
Technical Factors
Item
Indicate if there was a clinical diagnosis of white or dense brown cataract made prior to cataract surgery and documented in patient’s clinical notes
integer
C0086543 (UMLS CUI [1,1])
C3841902 (UMLS CUI [1,2])
C0086543 (UMLS CUI [2,1])
C0220938 (UMLS CUI [2,2])
Code List
Indicate if there was a clinical diagnosis of white or dense brown cataract made prior to cataract surgery and documented in patient’s clinical notes
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there were corneal opacities observed and documented in patient’s clinical notes either prior to cataract surgery or during cataract surgery
integer
C0155098 (UMLS CUI [1])
Code List
Indicate if there were corneal opacities observed and documented in patient’s clinical notes either prior to cataract surgery or during cataract surgery
CL Item
None (0)
CL Item
Non-significant (1)
CL Item
Significant (2)
Item
Indicate if there was a clinical diagnosis of pseudoexfoliation made either prior to cataract surgery or during cataract surgery, and documented in patient’s clinical notes
integer
C4022815 (UMLS CUI [1])
Code List
Indicate if there was a clinical diagnosis of pseudoexfoliation made either prior to cataract surgery or during cataract surgery, and documented in patient’s clinical notes
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there were pupillary problems (e.g. miosis, floppy iris syndrome) observed either prior to cataract surgery or during cataract surgery, and documented in patient’s clinical notes
integer
C0034121 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
Code List
Indicate if there were pupillary problems (e.g. miosis, floppy iris syndrome) observed either prior to cataract surgery or during cataract surgery, and documented in patient’s clinical notes
CL Item
None (0)
CL Item
Non-significant (1)
CL Item
Significant (2)
Item Group
TREATMENT VARIABLES
Item
Indicate type of surgical procedure performed
integer
C0543467 (UMLS CUI [1])
Code List
Indicate type of surgical procedure performed
CL Item
Phacoemulsification  (1)
CL Item
Sutured extracapsular cataract extraction  (2)
CL Item
Sutureless extracapsular cataract extraction  (3)
CL Item
Intracapsular cataract extraction (4)
Item Group
Intra-operative complications
Item
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically capsule breach
integer
C0229232 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
Code List
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically capsule breach
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically zonular dehiscence
integer
C1299683 (UMLS CUI [1])
Code List
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically zonular dehiscence
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically vitreous prolapse
integer
C0155369 (UMLS CUI [1])
Code List
Indicate if there was any surgically caused communication between anterior segment and vitreous, specifically vitreous prolapse
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there was any instance in which part of lens material (clearly visible significant part of nucleus) enters the vitreous (regardless of whether removed or not)
integer
C0486805 (UMLS CUI [1,1])
C0023317 (UMLS CUI [1,2])
C0042905 (UMLS CUI [1,3])
Code List
Indicate if there was any instance in which part of lens material (clearly visible significant part of nucleus) enters the vitreous (regardless of whether removed or not)
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there was a significant complication that means prolonged time of surgery or change in surgical procedure or represents a threat to the visual outcome
integer
C0009566 (UMLS CUI [1,1])
C0750502 (UMLS CUI [1,2])
Code List
Indicate if there was a significant complication that means prolonged time of surgery or change in surgical procedure or represents a threat to the visual outcome
CL Item
No (0)
CL Item
Yes (1)
Item Group
Post-operative visual status
Post-operative distance visual acuity: Uncorrected, right
Item
Indicate the distance visual acuity measured uncorrected in the right eye between 7 days and 3 months post operatively
text
C1637380 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
C2112579 (UMLS CUI [1,3])
Post-operative distance visual acuity: Corrected, right
Item
Indicate the distance visual acuity measured best corrected in the right eye between 7 days and 3 months post operatively
text
C1275679 (UMLS CUI [1,1])
C2112579 (UMLS CUI [1,2])
Post-operative distance visual acuity: Uncorrected, left
Item
Indicate the distance visual acuity measured uncorrected in the left eye between 7 days and 3 months post operatively
text
C1637380 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
C2112579 (UMLS CUI [1,3])
Post-operative distance visual acuity: Corrected, left
Item
Indicate the distance visual acuity measured best corrected in the left eye between 7 days and 3 months post operatively
text
C1301507 (UMLS CUI [1,1])
C2112579 (UMLS CUI [1,2])
Item
Indicate the distance visual acuity units
integer
C0042812 (UMLS CUI [1,1])
C0439148 (UMLS CUI [1,2])
C2112579 (UMLS CUI [1,3])
Code List
Indicate the distance visual acuity units
CL Item
Snellen (1)
CL Item
Decimal (2)
CL Item
LogMAR (3)
Actual refraction: Spherical, right
Item
Indicate the record, within 3 months post operatively, of the spherical target refraction, which has been agreed pre-operatively, in the right eye
text
C0034949 (UMLS CUI [1,1])
C3166357 (UMLS CUI [1,2])
C0229089 (UMLS CUI [1,3])
Actual refraction: Spherical, left
Item
Indicate the record, within 3 months post operatively, of the spherical target refraction, which has been agreed pre-operatively, in the left eye
text
C0034949 (UMLS CUI [1,1])
C3166357 (UMLS CUI [1,2])
C0229090 (UMLS CUI [1,3])
Actual refraction: Cylinder, right
Item
Indicate the record, within 3 months post operatively, of the cylinder target refraction, which has been agreed pre-operatively, in the right eye
text
C0034949 (UMLS CUI [1,1])
C3176048 (UMLS CUI [1,2])
Actual refraction: Cylinder, left
Item
Indicate the record, within 3 months post operatively, of the cylinder target refraction, which has been agreed pre-operatively, in the left eye
text
C0034949 (UMLS CUI [1,1])
C3176053 (UMLS CUI [1,2])
Actual refraction: Axis, right
Item
Indicate the record, within 3 months post operatively, of the axis target refraction, which has been agreed pre-operatively, in the right eye
text
C0034949 (UMLS CUI [1,1])
C0429590 (UMLS CUI [1,2])
C0229089 (UMLS CUI [1,3])
Actual refraction: Axis, left
Item
Indicate the record, within 3 months post operatively, of the axis target refraction, which has been agreed pre-operatively, in the left eye
text
C0034949 (UMLS CUI [1,1])
C0429590 (UMLS CUI [1,2])
C0229090 (UMLS CUI [1,3])
Item Group
Post-operative complications
Item
Indicate if there was any return to an operating theater within 3 months of initial cataract surgery date
integer
C0035110 (UMLS CUI [1])
Code List
Indicate if there was any return to an operating theater within 3 months of initial cataract surgery date
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there was post-operative severe intra-ocular inflammation within 3 months of initial cataract surgery date
integer
C0014236 (UMLS CUI [1])
Code List
Indicate if there was post-operative severe intra-ocular inflammation within 3 months of initial cataract surgery date
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there was a corneal edema starting immediately after surgery that does not completely resolve during the 3 month follow-up period
integer
C0010037 (UMLS CUI [1])
Code List
Indicate if there was a corneal edema starting immediately after surgery that does not completely resolve during the 3 month follow-up period
CL Item
No (0)
CL Item
Yes (1)
Item
Indicate if there was a significant post-operative complication within 3 months of initial cataract surgery date that means on-going treatment or poorer vision
integer
C0032787 (UMLS CUI [1])
Code List
Indicate if there was a significant post-operative complication within 3 months of initial cataract surgery date that means on-going treatment or poorer vision
CL Item
No (0)
CL Item
Yes (1)
Item Group
Patient-reported visual function
Item
The aim of this questionnaire is to establish what difficulties you have in your daily life due to impaired sight. So that we can develop our healthcare as well as possible we are keen for you to answer the questions in the questionnaire as honestly as you can. The questionnaire contains questions about your difficulties due to impaired sight in connection with certain everyday tasks. If you use glasses for distance and/or close-up purposes, the questions are about what it is like when you use your best glasses. The questions in this questionnaire apply to your situation during the past 4 weeks. When you answer the questions you must try to think only of the difficulties that your sight may be causing you. We appreciate that it may be difficult to decide just what your sight means to you if you also have other problems such as joint pains or dizziness for example. We would still ask you to try to answer how important you think your sight is in your ability to perform the following tasks. When you are asked to state your difficulties, we have given three response options. We call them very great difficulty, great difficulty and some difficulty. Different people may put things differently. Try to see the three response options as three equal size parts of a scale ranging from the greatest to the least difficulty caused by your sight in performing various activities. An example of how we envisage the scale with the three different response options: Greatest ________________ / ________________ / ________________ least very great difficulty great difficulty some difficulty 1. Do you find that your sight at present in some way causes you difficulty in your everyday life?
integer
C0042812 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
C0033213 (UMLS CUI [1,3])
Code List
The aim of this questionnaire is to establish what difficulties you have in your daily life due to impaired sight. So that we can develop our healthcare as well as possible we are keen for you to answer the questions in the questionnaire as honestly as you can. The questionnaire contains questions about your difficulties due to impaired sight in connection with certain everyday tasks. If you use glasses for distance and/or close-up purposes, the questions are about what it is like when you use your best glasses. The questions in this questionnaire apply to your situation during the past 4 weeks. When you answer the questions you must try to think only of the difficulties that your sight may be causing you. We appreciate that it may be difficult to decide just what your sight means to you if you also have other problems such as joint pains or dizziness for example. We would still ask you to try to answer how important you think your sight is in your ability to perform the following tasks. When you are asked to state your difficulties, we have given three response options. We call them very great difficulty, great difficulty and some difficulty. Different people may put things differently. Try to see the three response options as three equal size parts of a scale ranging from the greatest to the least difficulty caused by your sight in performing various activities. An example of how we envisage the scale with the three different response options: Greatest ________________ / ________________ / ________________ least very great difficulty great difficulty some difficulty 1. Do you find that your sight at present in some way causes you difficulty in your everyday life?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
2. Are you satisfied or dissatisfied with your sight at present?
integer
C0042812 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
Code List
2. Are you satisfied or dissatisfied with your sight at present?
CL Item
Very dissatisfied (1)
CL Item
Fairly dissatisfied (2)
CL Item
Fairly satisfied (3)
CL Item
Very satisfied (4)
CL Item
Cannot decide (5)
Item
3. Do you have difficulty reading text in newspapers because of your sight?
integer
C0586742 (UMLS CUI [1])
Code List
3. Do you have difficulty reading text in newspapers because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
4. Do you have difficulty recognizing the faces of people you meet?
integer
C0870537 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
Code List
4. Do you have difficulty recognizing the faces of people you meet?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
5. Do you have difficulty seeing the prices of goods when shopping because of your sight?
integer
C0080045 (UMLS CUI [1,1])
C0599621 (UMLS CUI [1,2])
C0332218 (UMLS CUI [1,3])
Code List
5. Do you have difficulty seeing the prices of goods when shopping because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
6. Do you have difficulty seeing to walk on uneven surfaces (for example cobblestones) because of your sight?
integer
C4074937 (UMLS CUI [1])
Code List
6. Do you have difficulty seeing to walk on uneven surfaces (for example cobblestones) because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
7. Do you have difficulty seeing to do handicrafts, woodwork, etc. because of your sight?
integer
C0599621 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
Code List
7. Do you have difficulty seeing to do handicrafts, woodwork, etc. because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
8. Do you have difficulty reading subtitles on TV because of your sight?
integer
C0039461 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
Code List
8. Do you have difficulty reading subtitles on TV because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)
Item
9. Do you have difficulty seeing to engage in activity/hobby that you are interested in because of your sight?
integer
C0441655 (UMLS CUI [1,1])
C0332218 (UMLS CUI [1,2])
Code List
9. Do you have difficulty seeing to engage in activity/hobby that you are interested in because of your sight?
CL Item
Yes, very great difficulty (1)
CL Item
Yes, great difficulty (2)
CL Item
Yes, some difficulty (3)
CL Item
No, no difficulty (4)
CL Item
Cannot decide (5)

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