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ID
14878
Beschrijving
NINDS Common Data Elements (Imaging and Non-Imaging Diagnostics; Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.
Link
https://www.commondataelements.ninds.nih.gov/
Trefwoorden
Versies (1)
- 03-05-16 03-05-16 -
Geüploaded op
3 mei 2016
DOI
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Creative Commons BY-NC 3.0
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NINDS CDE Imaging and Non-Imaging Diagnostics Friedreich´s Ataxia
Imaging and Non-Imaging Diagnostics
- StudyEvent: ODM
Similar models
Imaging and Non-Imaging Diagnostics
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Study ID
Item
Study ID
text
C2826693 (UMLS CUI [1])
Study site
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Echocardiography date
Item
If echocardiography was performed, please indicate date of echocardiogram
date
C0013516 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Left ventricular end-diastolic posterior wall thickness
Item
Left ventricular end-diastolic posterior wall thickness (cm)
integer
C2059479 (UMLS CUI [1])
Left ventricular end-diastolic posterior wall thickness
Item
Left ventricular end-diastolic posterior wall thickness (Z-score)
integer
C2059479 (UMLS CUI [1])
Left ventricular end-diastolic septal thickness
Item
Left ventricular end-diastolic septal thickness (cm)
integer
C2059498 (UMLS CUI [1])
Left ventricular end-diastolic septal thickness
Item
Left ventricular end-diastolic septal thickness (z-score)
integer
C2059498 (UMLS CUI [1])
Left ventricular end-diastolic internal dimension
Item
Left ventricular end-diastolic internal dimension (cm)
integer
C1142231 (UMLS CUI [1])
Left ventricular end-diastolic internal dimension
Item
Left ventricular end-diastolic internal dimension (z-score)
integer
C1142231 (UMLS CUI [1])
Left ventricular end-systolic internal dimension
Item
Left ventricular end-systolic internal dimension (cm)
integer
C1142505 (UMLS CUI [1])
Left ventricular end-systolic internal dimension
Item
Left ventricular end-systolic internal dimension (z-score)
integer
C1142505 (UMLS CUI [1])
Left atrial antero-posterior dimension
Item
Left atrial antero-posterior dimension (cm)
integer
C3275097 (UMLS CUI [1])
Left atrial antero-posterior dimension
Item
Left atrial antero-posterior dimension (z-score)
integer
C3275097 (UMLS CUI [1])
Right Ventricular Wall Thickness in diastole
Item
Right Ventricular Wall Thickness in diastole (cm)
integer
C0455863 (UMLS CUI [1])
Right Ventricular Wall Thickness in diastole
Item
Right Ventricular Wall Thickness in diastole (z-score)
integer
C0455863 (UMLS CUI [1])
CL Item
Present (1)
CL Item
Absent (2)
CL Item
Present (1)
CL Item
Absent (2)
Item
Right ventricular systolic dysfunction
integer
C1562095 (UMLS CUI [1])
CL Item
Present (1)
CL Item
Absent (2)
Left Ventricle Mass (index)
Item
Left Ventricle Mass index (grams)
integer
C2059474 (UMLS CUI [1])
Left ventricle mass index
Item
Left ventricle mass index (z-score)
integer
C2059474 (UMLS CUI [1])
Item
Does subject have left ventricular hypertrophy?
integer
C0149721 (UMLS CUI [1])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
LVOT obstruction peak systolic pressure gradient
Item
LVOT obstruction:if yes, please specify peak systolic pressure gradient
text
C2040065 (UMLS CUI [1])
C2007707 (UMLS CUI [2])
C2007707 (UMLS CUI [2])
LVOT obstruction mean pressure gradient
Item
LVOT obstruction: if yes, please specify mean pressure gradient
integer
C2040065 (UMLS CUI [1])
C2007706 (UMLS CUI [2])
C2007706 (UMLS CUI [2])
LVEF
Item
Left Ventricular Ejection Fraction
float
C0428772 (UMLS CUI [1])
Item
Degree of Aortic Regurgitation
integer
C0003504 (UMLS CUI [1,1])
C0449286 (UMLS CUI [1,2])
C0449286 (UMLS CUI [1,2])
CL Item
None (1)
CL Item
Mild (2)
CL Item
Moderate (3)
CL Item
Severe (4)
Item
Degree of Mitral Regurgitation
integer
C0026266 (UMLS CUI [1,1])
C0449286 (UMLS CUI [1,2])
C0449286 (UMLS CUI [1,2])
CL Item
None (1)
CL Item
Mild (2)
CL Item
Moderate (3)
CL Item
Severe (4)
Item
Degree of Tricuspid Regurgitation
integer
C0040961 (UMLS CUI [1,1])
C0449286 (UMLS CUI [1,2])
C0449286 (UMLS CUI [1,2])
CL Item
None (1)
CL Item
Mild (2)
CL Item
Moderate (3)
CL Item
Severe (4)
Fractional shortening
Item
Fractional shortening
float
C2599768 (UMLS CUI [1])
Early mitral inflow velocity
Item
Early mitral inflow velocity
integer
C2060568 (UMLS CUI [1])
Late Mitral Inflow Velocity
Item
Late Mitral Inflow Velocity
integer
C2060568 (UMLS CUI [1])
Mitral Inflow (E) deceleration time
Item
Mitral Inflow (E) deceleration time
float
C1302337 (UMLS CUI [1])
Septum E velocity
Item
Tissue doppler: Septum E velocity
integer
C2585212 (UMLS CUI [1,1])
C0018819 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
C0018819 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
Septum A velocity
Item
Tissue doppler: Septum A velocity
integer
C2585212 (UMLS CUI [1,1])
C0018819 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
C0018819 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
Septum S velocity
Item
Tissue doppler: Septum S velocity
integer
C2585212 (UMLS CUI [1,1])
C0018819 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
C0018819 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
Mitral annulus E velocity
Item
Tissue doppler: Mitral annulus E velocity
integer
C2585212 (UMLS CUI [1,1])
C0225947 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
C0225947 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
Mitral annulus A velocity
Item
Tissue doppler: Mitral annulus A velocity
integer
C2585212 (UMLS CUI [1,1])
C0225947 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
C0225947 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
Mitral annulus S velocity
Item
Tissue doppler: Mitral annulus S velocity
integer
C2585212 (UMLS CUI [1,1])
C0225947 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
C0225947 (UMLS CUI [1,2])
C0439830 (UMLS CUI [1,3])
Ejection fraction
Item
Ejection fraction
integer
C0232174 (UMLS CUI [1])
Left ventricle mass
Item
Left ventricle mass
integer
C0225897 (UMLS CUI [1,1])
C3670832 (UMLS CUI [1,2])
C3670832 (UMLS CUI [1,2])
Relative wall thickness
Item
Relative wall thickness
integer
C2024242 (UMLS CUI [1])
Item
Was myocardial hyper-enhancement by LGE present?
integer
C0855566 (UMLS CUI [1,1])
C0412692 (UMLS CUI [1,2])
C0412692 (UMLS CUI [1,2])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Further comments
Item
Further comments on Cardiac Magnetic Resonance Imaging results
text
C1830770 (UMLS CUI [1,1])
C0412692 (UMLS CUI [1,2])
C0412692 (UMLS CUI [1,2])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
ECG Date
Item
ECG:If Yes, indicate date of ECG
date
C2826640 (UMLS CUI [1])
Heart rate
Item
Heart rate
integer
C0018810 (UMLS CUI [1])
PR interval
Item
PR interval
integer
C0429087 (UMLS CUI [1])
QRS duration
Item
QRS duration
integer
C0429025 (UMLS CUI [1])
QT Interval
Item
QT Interval
integer
C0429028 (UMLS CUI [1])
QTC interval
Item
QTC interval
integer
C0489625 (UMLS CUI [1])
CL Item
Normal (1)
CL Item
Abnormal, not clinically significant (2)
CL Item
Abnormal, clinically significant (3)
CL Item
Non-specific STT changes (4)
CL Item
Normal sinus rhythm (1)
CL Item
Sinus tachycardia (2)
CL Item
Sinus bradycardia (3)
CL Item
Atrial arrhythmia (4)
CL Item
Atrial fibrillation (5)
CL Item
Atrial flutter (6)
CL Item
Atrial Other (7)
CL Item
Ventricular arrhythmia (8)
CL Item
Ventricular fibrillation (9)
CL Item
Ventricular tachycardia (10)
CL Item
Ventricular Other (11)
CL Item
Other, specify (12)
Heart rhythm
Item
Heart Rhythm:if other,please specify
text
C0232187 (UMLS CUI [1])
CL Item
Present (1)
CL Item
Absent (2)
CL Item
Present (1)
CL Item
Absent (2)
CL Item
Present (1)
CL Item
Absent (2)
CL Item
Present (1)
CL Item
Absent (2)
Item
Patterns of previous myocardial infarction
integer
C0264711 (UMLS CUI [1])
CL Item
Present (1)
CL Item
Absent (2)
Item
Patterns of complete bundle branch block
integer
C3544314 (UMLS CUI [1])
CL Item
Present (1)
CL Item
Absent (2)
CL Item
Present (1)
CL Item
Absent (2)
Item
Paroxysmal supraventricular tachycardia
integer
C0030590 (UMLS CUI [1])
CL Item
Present (1)
CL Item
Absent (2)
CL Item
Present (1)
CL Item
Absent (2)
Item
Premature ventricular contractions
integer
C0151636 (UMLS CUI [1])
CL Item
Present (1)
CL Item
Absent (2)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
CL Item
R or S in limb leads ≥ 20 mm; (1)
CL Item
S in V1 or V2 ≥ 30 mm; (2)
CL Item
R in V5 or V6 ≥ 30 mm (3)
Date
Item
Date of Holter exam
date
C0011008 (UMLS CUI [1])
Heart rate
Item
Maximum Heart rate
integer
C0018810 (UMLS CUI [1])
Heart rate
Item
Minimum Heart rate
integer
C0018810 (UMLS CUI [1])
Heart rate
Item
Mean Heart rate
integer
C0018810 (UMLS CUI [1])
CL Item
None (1)
CL Item
First degree (2)
CL Item
Second degree (3)
CL Item
Third degree (4)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Arrhythmia
Item
Arrhythmia:if yes ventricular tachycardia present?
boolean
C0003811 (UMLS CUI [1])
Arrhythmia
Item
Arrhythmia:if yes Atrial Dysrhythmias present?
boolean
C0003811 (UMLS CUI [1])
Arrhythmia
Item
Arrhythmia:if yes, Premature ventricular contractions present?
boolean
C0003811 (UMLS CUI [1])
Arrhythmia
Item
Arrhythmia:if yes, Premature atrial contractions present?
boolean
C0003811 (UMLS CUI [1])