Informazione:
Errore:
ID
14819
Descrizione
Self-administered questionnaire contains 50 items and 76 weighted responses divided into three components: Symptoms (frequency and severity); Activity (activities that cause or are limited by breathlessness); and Impacts (social unctioning, psychological disturbances resulting from airways disease). The protocol is designed to measure health impairment in patients with asthma and chronic obstructive pulmonary disease (COPD). It is also valid for use in bronchiectasis and has been used successfully in patients with kyphoscoliosis and sarcoidosis. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.
collegamento
Keywords
versioni (2)
- 29/04/16 29/04/16 -
- 29/04/16 29/04/16 -
Caricato su
29 aprile 2016
DOI
Per favore, per richiedere un accesso.
Licenza
Creative Commons BY-NC 3.0
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Quality of Life as Affected by Respiratory Disease Protocol PhenX Toolkit
Quality of Life as Affected by Respiratory Disease Protocol PhenX Toolkit
Similar models
Quality of Life as Affected by Respiratory Disease Protocol PhenX Toolkit
Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
PhenX - respiratory - quality of life protocol
C3169710 (UMLS CUI-1)
Item
How do you describe your current health?
text
C0018759 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
C0521116 (UMLS CUI [1,2])
CL Item
Very Good (Very Good)
C3641222 (UMLS CUI-1)
CL Item
Good (Good)
C0205170 (UMLS CUI-1)
CL Item
Fair (Fair)
C2911689 (UMLS CUI-1)
CL Item
Poor (Poor)
C2700379 (UMLS CUI-1)
CL Item
Very poor (Very poor)
C3641766 (UMLS CUI-1)
Item
Over the past 3 months, I have coughed:
text
C0010200 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
CL Item
More than 3 attacks (More than 3 attacks )
CL Item
3 attacks (3 attacks)
CL Item
2 attacks (2 attacks )
CL Item
1 attack (1 attack )
CL Item
No attacks (No attacks)
CL Item
More than 3 attacks (More than 3 attacks )
CL Item
3 attacks (3 attacks)
CL Item
2 attacks (2 attacks )
CL Item
1 attack (1 attack )
CL Item
No attacks (No attacks)
Item
Over the past 3 months, I have had shortness of breath:
text
C0013404 (UMLS CUI [1])
CL Item
More than 3 attacks (More than 3 attacks )
CL Item
3 attacks (3 attacks)
CL Item
2 attacks (2 attacks )
CL Item
1 attack (1 attack )
CL Item
No attacks (No attacks)
Item
Over the past 3 months, I have had attacks of wheezing:
text
C0043144 (UMLS CUI [1])
CL Item
More than 3 attacks (More than 3 attacks )
CL Item
3 attacks (3 attacks)
CL Item
2 attacks (2 attacks )
CL Item
1 attack (1 attack )
CL Item
No attacks (No attacks)
Item
During the past 3 months, how many severe or very unpleasant attacks of chest trouble have you had?
text
C0008031 (UMLS CUI [1,1])
C0205082 (UMLS CUI [1,2])
C0205082 (UMLS CUI [1,2])
Code List
During the past 3 months, how many severe or very unpleasant attacks of chest trouble have you had?
CL Item
More than 3 attacks (More than 3 attacks )
CL Item
3 attacks (3 attacks)
CL Item
2 attacks (2 attacks )
CL Item
1 attack (1 attack )
CL Item
No attacks (No attacks)
Item
How long did the worst attack of chest trouble last?
text
C0008031 (UMLS CUI [1,1])
C1522166 (UMLS CUI [1,2])
C0449238 (UMLS CUI [1,3])
C1522166 (UMLS CUI [1,2])
C0449238 (UMLS CUI [1,3])
Code List
How long did the worst attack of chest trouble last?
CL Item
A week or more (A week or more )
CL Item
3 or more days (3 or more days)
CL Item
1 or 2 days (1 or 2 days )
CL Item
Less than a day (Less than a day)
Item
Over the past 3 months, in an average week, how many good days (with little chest trouble) have you had?
text
C3173994 (UMLS CUI [1])
Code List
Over the past 3 months, in an average week, how many good days (with little chest trouble) have you had?
CL Item
No good days (No good days )
CL Item
1 or 2 good days (1 or 2 good days )
CL Item
3 or 4 good days (3 or 4 good days )
CL Item
Nearly every day is good (Nearly every day is good )
CL Item
Every day is good (Every day is good)
wheeze worse in the morning
Item
If you have a wheeze, is it worse in the morning?
boolean
C3173996 (UMLS CUI [1])
CL Item
The most important problem I have (The most important problem I have )
CL Item
Causes me quite a lot of problems (Causes me quite a lot of problems )
CL Item
Causes me a few problems (Causes me a few problems )
CL Item
Causes me no problems (Causes me no problems)
Item
If you have ever had paid employment.
text
C0549646 (UMLS CUI [1,1])
C1320371 (UMLS CUI [1,2])
C1320371 (UMLS CUI [1,2])
CL Item
My chest trouble made me stop work altogether (My chest trouble made me stop work altogether )
CL Item
My chest trouble interferes with my work or made me change my work (My chest trouble interferes with my work or made me change my work )
CL Item
My chest trouble does not affect my work (My chest trouble does not affect my work)
Item
Activity that usually makes you feel breathless these days [PhenX]
text
C3176097 (UMLS CUI [1])
Code List
Activity that usually makes you feel breathless these days [PhenX]
CL Item
Sitting or lying still (Sitting or lying still )
CL Item
Getting washed or dressed (Getting washed or dressed )
CL Item
Walking around the home (Walking around the home )
CL Item
Walking outside on the level (Walking outside on the level )
CL Item
Walking up a flight of stairs (Walking up a flight of stairs )
CL Item
Walking up hills (Walking up hills )
CL Item
Playing sports or games (Playing sports or games)
Item
This activity usually makes you feel breathless these days [PhenX]
text
C3176099 (UMLS CUI [1])
Code List
This activity usually makes you feel breathless these days [PhenX]
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I am breathless when I bend over.
text
C3174008 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My cough or breathing disturbs my sleep.
text
C3174010 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My cough or breathing is embarrassing in public.
text
C3174014 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My chest trouble is a nuisance to my family, friends or neighbors.
text
C3174016 (UMLS CUI [1])
Code List
My chest trouble is a nuisance to my family, friends or neighbors.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I get afraid or panic when I cannot get my breath.
text
C3174018 (UMLS CUI [1])
Code List
I get afraid or panic when I cannot get my breath.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I feel that I am not in control of my chest problem.
text
C3174020 (UMLS CUI [1])
Code List
I feel that I am not in control of my chest problem.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I do not expect my chest to get any better
text
C3174022 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I have become frail or an invalid because of my chest.
text
C3174024 (UMLS CUI [1])
Code List
I have become frail or an invalid because of my chest.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
Everything seems too much of an effort.
text
C3174028 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My medication does not help me very much.
text
C3174030 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I get embarrassed using my medication in public.
text
C3174032 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I have unpleasant side effects from my medication.
text
C3174034 (UMLS CUI [1])
Code List
I have unpleasant side effects from my medication.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My medication interferes with my life a lot.
text
C3174036 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I take a long time to get washed or dressed.
text
C3174038 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I cannot take a bath or shower, or I take a long time.
text
C3174040 (UMLS CUI [1])
Code List
I cannot take a bath or shower, or I take a long time.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I walk slower than other people, or I stop for rests.
text
C3174042 (UMLS CUI [1])
Code List
I walk slower than other people, or I stop for rests.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
Jobs such as housework take a long time, or I have to stop for rests.
text
C3174044 (UMLS CUI [1])
Code List
Jobs such as housework take a long time, or I have to stop for rests.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
If I walk up one flight of stairs, I have to go slowly or stop.
text
C3174046 (UMLS CUI [1])
Code List
If I walk up one flight of stairs, I have to go slowly or stop.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
If I hurry or walk fast, I have to stop or slow down.
text
C3174048 (UMLS CUI [1])
Code List
If I hurry or walk fast, I have to stop or slow down.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My breathing makes it difficult to do things such as walk up hills, carrying things up stairs, light gardening such as weeding, dance, play bowls or play golf.
text
C3174050 (UMLS CUI [1])
Code List
My breathing makes it difficult to do things such as walk up hills, carrying things up stairs, light gardening such as weeding, dance, play bowls or play golf.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My breathing makes it difficult to do things such as carry heavy loads, dig the garden or shovel snow, jog or walk at 5 miles per hour, play tennis or swim.
text
C3174052 (UMLS CUI [1])
Code List
My breathing makes it difficult to do things such as carry heavy loads, dig the garden or shovel snow, jog or walk at 5 miles per hour, play tennis or swim.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
My breathing makes it difficult to do things such as very heavy manual work, run, cycle, swim fast or play competitive sport.
text
C3174054 (UMLS CUI [1])
Code List
My breathing makes it difficult to do things such as very heavy manual work, run, cycle, swim fast or play competitive sport.
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I cannot go out for entertainment or recreation.
text
C3174058 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I cannot go out of the house to do the shopping.
text
C3174060 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
other important activities that your chest trouble
Item
Please write in any other important activities that your chest trouble may stop you doing.
text
C3174066 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
Item
I cannot move far from my bed or chair.
text
C3174064 (UMLS CUI [1])
CL Item
True (True)
C0205238 (UMLS CUI-1)
CL Item
False (False)
C0205237 (UMLS CUI-1)
think best describes how your chest affects you
Item
Which you think best describes how your chest affects you?
text
C3174067 (UMLS CUI [1])