ID
16285
Description
ODM form derived from 16pp EBMT Multiple Myeloma 10PCD. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx
Link
Keywords
Versions (2)
- 4/25/16 4/25/16 -
- 7/9/16 7/9/16 -
Uploaded on
July 9, 2016
DOI
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License
Creative Commons BY-NC 3.0
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EBMT Inherited Disorders General Information
EBMT Inherited Disorders
- StudyEvent: ODM
Description
PATIENT
Description
Unique Identification Code (UIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number or Code
Data type
text
Alias
- UMLS CUI [1]
- C1827636
Description
Initials
Data type
text
Alias
- UMLS CUI [1]
- C2986440
Description
Date of birth
Data type
date
Alias
- UMLS CUI [1]
- C0421451
Description
Sex
Data type
text
Alias
- UMLS CUI [1]
- C0079399
Description
ABO Group
Data type
integer
Alias
- UMLS CUI [1]
- C0000778
Description
Rh factor
Data type
integer
Alias
- UMLS CUI [1]
- C0035403
Description
DISEASE
Description
Date of Diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Check the disease for which this transplant was performed
Data type
integer
Alias
- UMLS CUI [1]
- C0277554
Description
Primary Disease Diagnosis
Data type
text
Alias
- UMLS CUI [1]
- C0277554
Description
SPECIFICATIONS OF THE DISEASE
Description
Previous HSCT registration
Data type
integer
Alias
- UMLS CUI [1]
- C1514821
Description
CLASSIFICATION and SPECIFICATIONS OF THE DISEASE
Data type
integer
Alias
- UMLS CUI [1]
- C0008902
Description
SCID (Severe Combined Immune Deficiency)
Data type
integer
Alias
- UMLS CUI [1,1]
- C0085110
- UMLS CUI [1,2]
- C0039194
- UMLS CUI [2,1]
- C0004561
- UMLS CUI [2,2]
- C0085110
Description
SCID (Severe Combined Immune Deficiency)
Data type
integer
Alias
- UMLS CUI [1,1]
- C0085110
- UMLS CUI [1,2]
- C0205394
Description
CID (Combined Immune Deficiency)
Data type
integer
Alias
- UMLS CUI [1]
- C0085110
Description
CID (Combined Immune Deficiency)
Data type
integer
Alias
- UMLS CUI [1,1]
- C0085110
- UMLS CUI [1,2]
- C0205394
Description
Other primary immune deficiencies
Data type
integer
Alias
- UMLS CUI [1]
- C0001175
Description
Inherited disorders of metabolism
Data type
integer
Alias
- UMLS CUI [1]
- C0025517
Description
Other inherited disorders
Data type
integer
Alias
- UMLS CUI [1,1]
- C0019247
- UMLS CUI [1,2]
- C0205394
Description
Stored material
Data type
integer
Alias
- UMLS CUI [1]
- C0370003
Description
Stored material
Data type
integer
Alias
- UMLS CUI [1,1]
- C0370003
- UMLS CUI [1,2]
- C1698986
Description
Tick only one
Data type
text
Alias
- UMLS CUI [1]
- C0242538
Description
CYTOGENETICS
Data type
integer
Alias
- UMLS CUI [1]
- C0010802
Description
Complete only for SCID patients
Data type
integer
Alias
- UMLS CUI [1]
- C0026882
Description
(in clear text)
Data type
integer
Alias
- UMLS CUI [1]
- C0028630
Description
(in clear text), For Alpha c, use Allele 1 only
Data type
text
Alias
- UMLS CUI [1]
- C0555903
Description
STATUS OF DISEASE AT HSCT
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
HAEMATOLOGICAL VALUES
Data type
integer
Alias
- UMLS CUI [1]
- C0018941
Description
T-CELL FUNCTION
Data type
integer
Alias
- UMLS CUI [1]
- C0023509
Description
T-CELL FUNCTION
Data type
integer
Alias
- UMLS CUI [1]
- C0373865
Description
T-CELL FUNCTION
Data type
integer
Alias
- UMLS CUI [1]
- C3890371
Description
IMMUNOGLOBULINS (B-CELL FUNCTION)
Data type
integer
Alias
- UMLS CUI [1]
- C1859183
Description
Antibody response
Data type
integer
Alias
- UMLS CUI [1]
- C0235914
Description
CLINICAL STATUS GENERAL MANIFESTATIONS
Data type
integer
Alias
- UMLS CUI [1]
- C1565489
Description
CLINICAL STATUS GENERAL MANIFESTATIONS
Data type
integer
Alias
- UMLS CUI [1]
- C0162429
Description
CLINICAL STATUS GENERAL MANIFESTATIONS
Data type
integer
Alias
- UMLS CUI [1]
- C0473133
Description
CLINICAL STATUS GENERAL MANIFESTATIONS
Data type
integer
Alias
- UMLS CUI [1]
- C0035229
Description
CLINICAL STATUS GENERAL MANIFESTATIONS
Data type
integer
Alias
- UMLS CUI [1]
- C0023895
Description
Infections
Data type
integer
Alias
- UMLS CUI [1]
- C0009450
Description
Septicemia
Data type
integer
Alias
- UMLS CUI [1]
- C0036690
Description
Septicemia
Data type
integer
Alias
- UMLS CUI [1,1]
- C0036690
- UMLS CUI [1,2]
- C0205394
Description
Pulmonary
Data type
integer
Alias
- UMLS CUI [1]
- C2709248
Description
Meningeal
Data type
integer
Alias
- UMLS CUI [1]
- C0948840
Description
Skin infection
Data type
integer
Alias
- UMLS CUI [1]
- C0037278
Description
Skin infection
Data type
text
Alias
- UMLS CUI [1,1]
- C0037278
- UMLS CUI [1,2]
- C0205394
Description
Liver
Data type
integer
Alias
- UMLS CUI [1]
- C0023884
Description
Liver
Data type
integer
Alias
- UMLS CUI [1,1]
- C0023884
- UMLS CUI [1,2]
- C0205394
Description
Bone or joints
Data type
integer
Alias
- UMLS CUI [1]
- C0545594
Description
Bone or joints
Data type
integer
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0545594
Description
Gut infection
Data type
integer
Alias
- UMLS CUI [1]
- C0178238
Description
Gut infection
Data type
text
Alias
- UMLS CUI [1]
- C0205394
Description
Undetermined
Data type
integer
Description
Undetermined
Data type
text
Alias
- UMLS CUI [1]
- C0205394
Description
Other infections
Data type
integer
Alias
- UMLS CUI [1]
- C0009450
Description
Other infections
Data type
integer
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0205394
Description
GVHD STATUS PRIOR TO HSCT
Data type
integer
Alias
- UMLS CUI [1,1]
- C0018133
- UMLS CUI [1,2]
- C0472699
Description
Manifestation
Data type
integer
Alias
- UMLS CUI [1]
- C0018133
Description
Lymphadenopathy acute GVH disease
Data type
text
Alias
- UMLS CUI [1]
- C0497156
Description
Cause of the GvHD
Data type
integer
Alias
- UMLS CUI [1]
- C0018133
Description
Maternal engraftment
Data type
float
Alias
- UMLS CUI [1]
- C3494678
Description
Test used
Data type
integer
Alias
- UMLS CUI [1]
- C0022885
Description
Treatment
Data type
integer
Alias
- UMLS CUI [1]
- C0087111
Description
NUMBER OF TRANSFUSIONS BEFORE HSCT
Data type
integer
Alias
- UMLS CUI [1]
- C0014772
Description
Platelets
Data type
integer
Alias
- UMLS CUI [1]
- C0005821
Description
ADDITIONAL TREATMENT POST-HSCT
Description
BEST DISEASE RESPONSE AT 100 DAYS POST-HSCT
Description
DISEASE STATUS AT 100 DAYS AFTER HSCT
Data type
integer
Description
Date of assessment
Data type
date
Description
RECONSTITUTION CHIMAERISM (ENGRAFTMENT)
Data type
integer
Alias
- UMLS CUI [1]
- C0039194
Description
T-cell Full
Data type
date
Description
RECONSTITUTION CHIMAERISM (ENGRAFTMENT)
Data type
integer
Alias
- UMLS CUI [1]
- C0004561
Description
RECONSTITUTION CHIMAERISM (ENGRAFTMENT)
Data type
integer
Alias
- UMLS CUI [1]
- C0857490
Description
RECONSTITUTION CHIMAERISM (ENGRAFTMENT)
Data type
integer
Alias
- UMLS CUI [1]
- C0942447
Description
RECONSTITUTION CHIMAERISM (ENGRAFTMENT)
Data type
integer
Alias
- UMLS CUI [1]
- C0014772
Description
RECONSTITUTION CHIMAERISM (ENGRAFTMENT)
Data type
integer
Alias
- UMLS CUI [1]
- C0005821
Description
RECONSTITUTION CHIMAERISM (ENGRAFTMENT)
Data type
integer
Alias
- UMLS CUI [1]
- C0301944
Description
HAEMATOLOGICAL RECONSTITUTION
Data type
float
Measurement units
- g/dL
Alias
- UMLS CUI [1]
- C0019046
Description
HAEMATOLOGICAL RECONSTITUTION
Data type
float
Measurement units
- 109/L
Alias
- UMLS CUI [1]
- C0032181
Description
HAEMATOLOGICAL RECONSTITUTION
Data type
float
Alias
- UMLS CUI [1]
- C2025558
Description
HAEMATOLOGICAL RECONSTITUTION
Data type
float
Alias
- UMLS CUI [1]
- C0004561
Description
HAEMATOLOGICAL RECONSTITUTION
Data type
float
Alias
- UMLS CUI [1]
- C0857490
Description
IMMUNOLOGICAL RECONSTITUTION T-cells
Data type
integer
Alias
- UMLS CUI [1]
- C0023509
Description
IMMUNOLOGICAL RECONSTITUTION T-cells
Data type
integer
Alias
- UMLS CUI [1]
- C0430308
Description
B-cells
Data type
integer
Alias
- UMLS CUI [1]
- C0004561
Description
Antibody production after vaccination
Data type
integer
Alias
- UMLS CUI [1]
- C3809390
Description
ON-GOING TREATMENT FOR RECONSTITUTION AT 100 DAYS
Data type
integer
Alias
- UMLS CUI [1]
- C0301944
Description
ON-GOING TREATMENT FOR RECONSTITUTION AT 100 DAYS
Data type
text
Alias
- UMLS CUI [1]
- C0039798
Description
Patient still receiving IV Immunoglobulins
Data type
integer
Alias
- UMLS CUI [1]
- C0085297
Description
Growth factors (cytokines) administered to the patient?
Data type
integer
Alias
- UMLS CUI [1]
- C0018284
Description
FORMS TO BE FILLED IN
Similar models
EBMT Inherited Disorders
- StudyEvent: ODM
C0039194 (UMLS CUI [1,2])
C0004561 (UMLS CUI [2,1])
C0085110 (UMLS CUI [2,2])
C0085110 (UMLS CUI-2)
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C1698986 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0545594 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])