ID
13914
Beskrivning
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Länk
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Nyckelord
Versioner (2)
- 2016-03-15 2016-03-15 -
- 2016-03-16 2016-03-16 -
Uppladdad den
16 mars 2016
DOI
För en begäran logga in.
Licens
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Continuous Documentation
CRF Continuous Documentation
- StudyEvent: ODM
Beskrivning
Documentation of diseases
Beskrivning
no of diagnosis
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0011900
Beskrivning
Please regard the following diagnoses: Hypertension, diabetes mellitus, hypercholesterolemia, stroke, epilepsy, heart attack, recurrent depressive episode, neoplasms, thyroid disease, renal insufficiency. You can use the checklist pre-existing condition. In the database one can choose the ICD-Code after data entry.
Datatyp
text
Alias
- UMLS CUI [1]
- C0011900
Beskrivning
onset of disease
Datatyp
date
Alias
- UMLS CUI [1]
- C0277793
Beskrivning
end of disease
Datatyp
date
Alias
- UMLS CUI [1]
- C4019088
Beskrivning
enduring
Datatyp
boolean
Alias
- UMLS CUI [1]
- C1314677
Beskrivning
Checklist pre-existing conditions
Beskrivning
hypertension diagnosed
Datatyp
text
Alias
- UMLS CUI [1]
- C0020538
Beskrivning
date initial diagnosis hypertension
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0020538
- UMLS CUI [1,2]
- C2316983
Beskrivning
hypercholesterolemia
Datatyp
text
Alias
- UMLS CUI [1]
- C0020443
Beskrivning
date initial diagnosis hypercholesterolemia
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0020443
- UMLS CUI [1,2]
- C2316983
Beskrivning
hypertriglyceridemia
Datatyp
text
Alias
- UMLS CUI [1]
- C0020557
Beskrivning
date initial diagnosis hypertriglyceridemia
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0020557
- UMLS CUI [1,2]
- C2316983
Beskrivning
hyperlipedimia or dyslipidemia
Datatyp
text
Alias
- UMLS CUI [1]
- C0020473
- UMLS CUI [2]
- C0242339
Beskrivning
initial diagnosis of hyperlipedimia or dyslipedimia
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0020473
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0242339
- UMLS CUI [2,2]
- C2316983
Beskrivning
diabetes mellitus type 1
Datatyp
text
Alias
- UMLS CUI [1]
- C0011854
Beskrivning
initial diagnosis of diabetes type 1
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0011854
- UMLS CUI [1,2]
- C2316983
Beskrivning
diabetes mellitus type 2
Datatyp
text
Alias
- UMLS CUI [1]
- C0011860
Beskrivning
initial diagnosis of diabetes type 2
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0011860
- UMLS CUI [1,2]
- C2316983
Beskrivning
diabetic polyneuropathy
Datatyp
text
Alias
- UMLS CUI [1]
- C0271680
Beskrivning
initial diagnosis of diabetic polyneuropathy
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0271680
- UMLS CUI [1,2]
- C2316983
Beskrivning
cardiac infarction
Datatyp
text
Alias
- UMLS CUI [1]
- C0027051
Beskrivning
date of initial diagnosis cardiac infarction
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0027051
- UMLS CUI [1,2]
- C2316983
Beskrivning
transient ischemic attack
Datatyp
text
Alias
- UMLS CUI [1]
- C0007787
Beskrivning
date of initial diagnosis TIA
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0007787
- UMLS CUI [1,2]
- C2316983
Beskrivning
coronary heart disease
Datatyp
text
Alias
- UMLS CUI [1]
- C0010068
Beskrivning
date of initial diagnosis coronary heart disease
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0010068
- UMLS CUI [1,2]
- C2316983
Beskrivning
stroke
Datatyp
text
Alias
- UMLS CUI [1]
- C0038454
Beskrivning
date of initial diagnosis stroke
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0038454
- UMLS CUI [1,2]
- C2316983
Beskrivning
cerebral venous sinus thrombosis or cerebral thrombosis
Datatyp
text
Alias
- UMLS CUI [1]
- C0338573
- UMLS CUI [2]
- C0079102
Beskrivning
date of initial diagnosis cerebral venous sinus thrombosis
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0338573
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0079102
- UMLS CUI [2,2]
- C2316983
Beskrivning
subarachnoid hemorrhage
Datatyp
text
Alias
- UMLS CUI [1]
- C0038525
Beskrivning
date of initial diagnosis SAB
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0038525
- UMLS CUI [1,2]
- C2316983
Beskrivning
ICH
Datatyp
text
Alias
- UMLS CUI [1]
- C2937358
Beskrivning
date of initial diagnosis ICH
Datatyp
date
Alias
- UMLS CUI [1,1]
- C2937358
- UMLS CUI [1,2]
- C2316983
Beskrivning
subdural hematoma
Datatyp
text
Alias
- UMLS CUI [1]
- C0018946
Beskrivning
date of initial diagnosis subdural hematoma
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0018946
- UMLS CUI [1,2]
- C2316983
Beskrivning
concussion
Datatyp
text
Alias
- UMLS CUI [1]
- C0006107
Beskrivning
date of initial diagnosis concussion
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0006107
- UMLS CUI [1,2]
- C2316983
Beskrivning
other pre-existing brain condition
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
Beskrivning
date of initial diagnosis other pre-existing brain condition
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C2316983
Beskrivning
peripheral arterial disease
Datatyp
text
Alias
- UMLS CUI [1]
- C1704436
Beskrivning
date of initial diagnosis PAD
Datatyp
date
Alias
- UMLS CUI [1,1]
- C1704436
- UMLS CUI [1,2]
- C2316983
Beskrivning
atrial fibrillation
Datatyp
text
Alias
- UMLS CUI [1]
- C0004238
Beskrivning
date of initial diagnosis atrial fillibration
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C2316983
Beskrivning
hemophilia
Datatyp
text
Alias
- UMLS CUI [1]
- C0684275
Beskrivning
date of initial diagnosis hemophilia
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0684275
- UMLS CUI [1,2]
- C2316983
Beskrivning
parkinsons disease
Datatyp
text
Alias
- UMLS CUI [1]
- C0030567
Beskrivning
date of initial diagnosis PD
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0030567
- UMLS CUI [1,2]
- C2316983
Beskrivning
rheumatism or arthritis
Datatyp
text
Alias
- UMLS CUI [1]
- C0035435
- UMLS CUI [2]
- C0003864
Beskrivning
date of initial diagnosis rheumatism or arthritis
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0035435
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0003864
- UMLS CUI [2,2]
- C2316983
Beskrivning
allergies
Datatyp
text
Alias
- UMLS CUI [1]
- C0020517
Beskrivning
date of initial diagnosis hypersensitivity
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0020517
- UMLS CUI [1,2]
- C2316983
Beskrivning
Procedures
Alias
- UMLS CUI-1
- C0087111
Beskrivning
Documentation of procedures
Beskrivning
number of procedure
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0087111
Beskrivning
Please regard implantation of cardiac pacemaker, tissue transplantation, blood transfusion, giving birth and joint replacement.
Datatyp
text
Alias
- UMLS CUI [1]
- C0087111
Beskrivning
indication of procedure
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Beskrivning
Date of procedure
Datatyp
date
Alias
- UMLS CUI [1]
- C2584899
Beskrivning
Medication
Alias
- UMLS CUI-1
- C0013227
Beskrivning
Documentation of medication
Beskrivning
number of medication
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0013227
Beskrivning
medical drug
Datatyp
text
Alias
- UMLS CUI [1]
- C0013227
Beskrivning
daily dose
Datatyp
float
Alias
- UMLS CUI [1]
- C2348070
Beskrivning
daily dose unit
Datatyp
text
Alias
- UMLS CUI [1]
- C0869039
Beskrivning
type of application
Datatyp
integer
Alias
- UMLS CUI [1]
- C0185125
Beskrivning
route of application
Datatyp
integer
Alias
- UMLS CUI [1]
- C0013153
Beskrivning
indication of procedure
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Beskrivning
start of precedure
Datatyp
date
Alias
- UMLS CUI [1]
- C3897826
Beskrivning
end of procedure
Datatyp
date
Alias
- UMLS CUI [1]
- C3897842
Beskrivning
procedure enduring
Datatyp
boolean
Alias
- UMLS CUI [1]
- C1314677
Beskrivning
Family history - family tree
Alias
- UMLS CUI-1
- C1148543
Beskrivning
Family history - parents
Alias
- UMLS CUI-1
- C0241889
Beskrivning
year of birth mother
Datatyp
integer
Alias
- UMLS CUI [1]
- C2319404
Beskrivning
screened diseases
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beskrivning
mother alive
Datatyp
text
Alias
- UMLS CUI [1]
- C2321272
Beskrivning
if dead
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
Beskrivning
year of death mother unknown
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beskrivning
year of birth father
Datatyp
integer
Alias
- UMLS CUI [1]
- C2136977
Beskrivning
screened disease father
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beskrivning
father alive
Datatyp
text
Alias
- UMLS CUI [1]
- C2321271
Beskrivning
year of death father
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
Beskrivning
year of death father unknown
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beskrivning
Family history - siblings
Beskrivning
sibling gender
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0037047
- UMLS CUI [1,2]
- C0079399
Beskrivning
year of birth sibling
Datatyp
integer
Alias
- UMLS CUI [1]
- C2317653
- UMLS CUI [2]
- C2317746
Beskrivning
screened diseases sibling
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beskrivning
sibling alive
Datatyp
text
Alias
- UMLS CUI [1]
- C2321274
- UMLS CUI [2]
- C2321284
Beskrivning
year of death sibling
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
Beskrivning
year of death sibling unknown
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beskrivning
Family history - children
Beskrivning
child gender
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C0079399
Beskrivning
year of birth child
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0008059
Beskrivning
screened diseases child
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beskrivning
child alive
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C2584946
Beskrivning
year of death child
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
Beskrivning
year of death child unknown
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beskrivning
Family history - further relatives
Beskrivning
degree of affinity
Datatyp
integer
Alias
- UMLS CUI [1]
- C0680204
Beskrivning
degree of affinity side
Datatyp
text
Alias
- UMLS CUI [1]
- C0680204
Beskrivning
relative gender
Datatyp
text
Alias
- UMLS CUI [1]
- C3172261
Beskrivning
year of birth relative
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Beskrivning
screened diseases relative
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beskrivning
relative alive
Datatyp
text
Alias
- UMLS CUI [1]
- C3172264
Beskrivning
year of death relative
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
Beskrivning
year of relative unknown
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beskrivning
Family history - relatives with screened diseases
Beskrivning
degree of affinity
Datatyp
integer
Alias
- UMLS CUI [1]
- C0680204
Beskrivning
degree of affinity side
Datatyp
text
Alias
- UMLS CUI [1]
- C0680204
Beskrivning
gender relative
Datatyp
text
Alias
- UMLS CUI [1]
- C3172261
Beskrivning
relative year of birth
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Beskrivning
diagnosis
Datatyp
integer
Alias
- UMLS CUI [1]
- C0011900
Beskrivning
verified
Datatyp
integer
Alias
- UMLS CUI [1]
- C1711411
Beskrivning
age at onset of symptoms
Datatyp
integer
Alias
- UMLS CUI [1]
- C0150907
Beskrivning
register
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0585825
Beskrivning
If 'registered'
Datatyp
text
Alias
- UMLS CUI [1]
- C1300638
Beskrivning
Handedness
Beskrivning
hand to write letter
Datatyp
text
Alias
- UMLS CUI [1]
- C2734042
Beskrivning
hand to throw a ball
Datatyp
text
Alias
- UMLS CUI [1]
- C2734034
Beskrivning
hand to play
Datatyp
text
Alias
- UMLS CUI [1]
- C2734048
Beskrivning
hand to use broom
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C3843854
Beskrivning
hand snow shoveling
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C2712668
Beskrivning
hand to strike a match
Datatyp
text
Alias
- UMLS CUI [1]
- C2734054
Beskrivning
hand to hold scissors
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0175735
Beskrivning
hand to thread a needle
Datatyp
text
Alias
- UMLS CUI [1]
- C2734060
Beskrivning
hand to deal cards
Datatyp
text
Alias
- UMLS CUI [1]
- C2734058
Beskrivning
hand to hold hammer
Datatyp
text
Alias
- UMLS CUI [1]
- C2734052
Beskrivning
hand to hold toothbrush
Datatyp
text
Alias
- UMLS CUI [1]
- C2734038
Beskrivning
hand to open bottle
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0179376
Beskrivning
eye dominance
Datatyp
text
Alias
- UMLS CUI [1]
- C0422883
Beskrivning
Overview - Study participation
Similar models
CRF Continuous Documentation
- StudyEvent: ODM
C0009488 (UMLS CUI [2])
C0011900 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2316983 (UMLS CUI [1,4])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C2317746 (UMLS CUI [2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0008059 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C3843854 (UMLS CUI [1,2])
C2712668 (UMLS CUI [1,2])
C0175735 (UMLS CUI [1,2])
C0179376 (UMLS CUI [1,2])