ID
13914
Beschreibung
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Stichworte
Versionen (2)
- 15.03.16 15.03.16 -
- 16.03.16 16.03.16 -
Hochgeladen am
16. März 2016
DOI
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Lizenz
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Continuous Documentation
CRF Continuous Documentation
- StudyEvent: ODM
Beschreibung
Documentation of diseases
Beschreibung
no of diagnosis
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0011900
Beschreibung
Please regard the following diagnoses: Hypertension, diabetes mellitus, hypercholesterolemia, stroke, epilepsy, heart attack, recurrent depressive episode, neoplasms, thyroid disease, renal insufficiency. You can use the checklist pre-existing condition. In the database one can choose the ICD-Code after data entry.
Datentyp
text
Alias
- UMLS CUI [1]
- C0011900
Beschreibung
onset of disease
Datentyp
date
Alias
- UMLS CUI [1]
- C0277793
Beschreibung
end of disease
Datentyp
date
Alias
- UMLS CUI [1]
- C4019088
Beschreibung
enduring
Datentyp
boolean
Alias
- UMLS CUI [1]
- C1314677
Beschreibung
Checklist pre-existing conditions
Beschreibung
hypertension diagnosed
Datentyp
text
Alias
- UMLS CUI [1]
- C0020538
Beschreibung
date initial diagnosis hypertension
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0020538
- UMLS CUI [1,2]
- C2316983
Beschreibung
hypercholesterolemia
Datentyp
text
Alias
- UMLS CUI [1]
- C0020443
Beschreibung
date initial diagnosis hypercholesterolemia
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0020443
- UMLS CUI [1,2]
- C2316983
Beschreibung
hypertriglyceridemia
Datentyp
text
Alias
- UMLS CUI [1]
- C0020557
Beschreibung
date initial diagnosis hypertriglyceridemia
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0020557
- UMLS CUI [1,2]
- C2316983
Beschreibung
hyperlipedimia or dyslipidemia
Datentyp
text
Alias
- UMLS CUI [1]
- C0020473
- UMLS CUI [2]
- C0242339
Beschreibung
initial diagnosis of hyperlipedimia or dyslipedimia
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0020473
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0242339
- UMLS CUI [2,2]
- C2316983
Beschreibung
diabetes mellitus type 1
Datentyp
text
Alias
- UMLS CUI [1]
- C0011854
Beschreibung
initial diagnosis of diabetes type 1
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0011854
- UMLS CUI [1,2]
- C2316983
Beschreibung
diabetes mellitus type 2
Datentyp
text
Alias
- UMLS CUI [1]
- C0011860
Beschreibung
initial diagnosis of diabetes type 2
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0011860
- UMLS CUI [1,2]
- C2316983
Beschreibung
diabetic polyneuropathy
Datentyp
text
Alias
- UMLS CUI [1]
- C0271680
Beschreibung
initial diagnosis of diabetic polyneuropathy
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0271680
- UMLS CUI [1,2]
- C2316983
Beschreibung
cardiac infarction
Datentyp
text
Alias
- UMLS CUI [1]
- C0027051
Beschreibung
date of initial diagnosis cardiac infarction
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0027051
- UMLS CUI [1,2]
- C2316983
Beschreibung
transient ischemic attack
Datentyp
text
Alias
- UMLS CUI [1]
- C0007787
Beschreibung
date of initial diagnosis TIA
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0007787
- UMLS CUI [1,2]
- C2316983
Beschreibung
coronary heart disease
Datentyp
text
Alias
- UMLS CUI [1]
- C0010068
Beschreibung
date of initial diagnosis coronary heart disease
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0010068
- UMLS CUI [1,2]
- C2316983
Beschreibung
stroke
Datentyp
text
Alias
- UMLS CUI [1]
- C0038454
Beschreibung
date of initial diagnosis stroke
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0038454
- UMLS CUI [1,2]
- C2316983
Beschreibung
cerebral venous sinus thrombosis or cerebral thrombosis
Datentyp
text
Alias
- UMLS CUI [1]
- C0338573
- UMLS CUI [2]
- C0079102
Beschreibung
date of initial diagnosis cerebral venous sinus thrombosis
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0338573
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0079102
- UMLS CUI [2,2]
- C2316983
Beschreibung
subarachnoid hemorrhage
Datentyp
text
Alias
- UMLS CUI [1]
- C0038525
Beschreibung
date of initial diagnosis SAB
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0038525
- UMLS CUI [1,2]
- C2316983
Beschreibung
ICH
Datentyp
text
Alias
- UMLS CUI [1]
- C2937358
Beschreibung
date of initial diagnosis ICH
Datentyp
date
Alias
- UMLS CUI [1,1]
- C2937358
- UMLS CUI [1,2]
- C2316983
Beschreibung
subdural hematoma
Datentyp
text
Alias
- UMLS CUI [1]
- C0018946
Beschreibung
date of initial diagnosis subdural hematoma
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0018946
- UMLS CUI [1,2]
- C2316983
Beschreibung
concussion
Datentyp
text
Alias
- UMLS CUI [1]
- C0006107
Beschreibung
date of initial diagnosis concussion
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0006107
- UMLS CUI [1,2]
- C2316983
Beschreibung
other pre-existing brain condition
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
Beschreibung
date of initial diagnosis other pre-existing brain condition
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C2316983
Beschreibung
peripheral arterial disease
Datentyp
text
Alias
- UMLS CUI [1]
- C1704436
Beschreibung
date of initial diagnosis PAD
Datentyp
date
Alias
- UMLS CUI [1,1]
- C1704436
- UMLS CUI [1,2]
- C2316983
Beschreibung
atrial fibrillation
Datentyp
text
Alias
- UMLS CUI [1]
- C0004238
Beschreibung
date of initial diagnosis atrial fillibration
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C2316983
Beschreibung
hemophilia
Datentyp
text
Alias
- UMLS CUI [1]
- C0684275
Beschreibung
date of initial diagnosis hemophilia
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0684275
- UMLS CUI [1,2]
- C2316983
Beschreibung
parkinsons disease
Datentyp
text
Alias
- UMLS CUI [1]
- C0030567
Beschreibung
date of initial diagnosis PD
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0030567
- UMLS CUI [1,2]
- C2316983
Beschreibung
rheumatism or arthritis
Datentyp
text
Alias
- UMLS CUI [1]
- C0035435
- UMLS CUI [2]
- C0003864
Beschreibung
date of initial diagnosis rheumatism or arthritis
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0035435
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0003864
- UMLS CUI [2,2]
- C2316983
Beschreibung
allergies
Datentyp
text
Alias
- UMLS CUI [1]
- C0020517
Beschreibung
date of initial diagnosis hypersensitivity
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0020517
- UMLS CUI [1,2]
- C2316983
Beschreibung
Procedures
Alias
- UMLS CUI-1
- C0087111
Beschreibung
Documentation of procedures
Beschreibung
number of procedure
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0087111
Beschreibung
Please regard implantation of cardiac pacemaker, tissue transplantation, blood transfusion, giving birth and joint replacement.
Datentyp
text
Alias
- UMLS CUI [1]
- C0087111
Beschreibung
indication of procedure
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Beschreibung
Date of procedure
Datentyp
date
Alias
- UMLS CUI [1]
- C2584899
Beschreibung
Medication
Alias
- UMLS CUI-1
- C0013227
Beschreibung
Documentation of medication
Beschreibung
number of medication
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0013227
Beschreibung
medical drug
Datentyp
text
Alias
- UMLS CUI [1]
- C0013227
Beschreibung
daily dose
Datentyp
float
Alias
- UMLS CUI [1]
- C2348070
Beschreibung
daily dose unit
Datentyp
text
Alias
- UMLS CUI [1]
- C0869039
Beschreibung
type of application
Datentyp
integer
Alias
- UMLS CUI [1]
- C0185125
Beschreibung
route of application
Datentyp
integer
Alias
- UMLS CUI [1]
- C0013153
Beschreibung
indication of procedure
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Beschreibung
start of precedure
Datentyp
date
Alias
- UMLS CUI [1]
- C3897826
Beschreibung
end of procedure
Datentyp
date
Alias
- UMLS CUI [1]
- C3897842
Beschreibung
procedure enduring
Datentyp
boolean
Alias
- UMLS CUI [1]
- C1314677
Beschreibung
Family history - family tree
Alias
- UMLS CUI-1
- C1148543
Beschreibung
Family history - parents
Alias
- UMLS CUI-1
- C0241889
Beschreibung
year of birth mother
Datentyp
integer
Alias
- UMLS CUI [1]
- C2319404
Beschreibung
screened diseases
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschreibung
mother alive
Datentyp
text
Alias
- UMLS CUI [1]
- C2321272
Beschreibung
if dead
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
Beschreibung
year of death mother unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschreibung
year of birth father
Datentyp
integer
Alias
- UMLS CUI [1]
- C2136977
Beschreibung
screened disease father
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschreibung
father alive
Datentyp
text
Alias
- UMLS CUI [1]
- C2321271
Beschreibung
year of death father
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
Beschreibung
year of death father unknown
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschreibung
Family history - siblings
Beschreibung
sibling gender
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0037047
- UMLS CUI [1,2]
- C0079399
Beschreibung
year of birth sibling
Datentyp
integer
Alias
- UMLS CUI [1]
- C2317653
- UMLS CUI [2]
- C2317746
Beschreibung
screened diseases sibling
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschreibung
sibling alive
Datentyp
text
Alias
- UMLS CUI [1]
- C2321274
- UMLS CUI [2]
- C2321284
Beschreibung
year of death sibling
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
Beschreibung
year of death sibling unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschreibung
Family history - children
Beschreibung
child gender
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C0079399
Beschreibung
year of birth child
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0008059
Beschreibung
screened diseases child
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschreibung
child alive
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C2584946
Beschreibung
year of death child
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
Beschreibung
year of death child unknown
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschreibung
Family history - further relatives
Beschreibung
degree of affinity
Datentyp
integer
Alias
- UMLS CUI [1]
- C0680204
Beschreibung
degree of affinity side
Datentyp
text
Alias
- UMLS CUI [1]
- C0680204
Beschreibung
relative gender
Datentyp
text
Alias
- UMLS CUI [1]
- C3172261
Beschreibung
year of birth relative
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Beschreibung
screened diseases relative
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschreibung
relative alive
Datentyp
text
Alias
- UMLS CUI [1]
- C3172264
Beschreibung
year of death relative
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
Beschreibung
year of relative unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschreibung
Family history - relatives with screened diseases
Beschreibung
degree of affinity
Datentyp
integer
Alias
- UMLS CUI [1]
- C0680204
Beschreibung
degree of affinity side
Datentyp
text
Alias
- UMLS CUI [1]
- C0680204
Beschreibung
gender relative
Datentyp
text
Alias
- UMLS CUI [1]
- C3172261
Beschreibung
relative year of birth
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Beschreibung
diagnosis
Datentyp
integer
Alias
- UMLS CUI [1]
- C0011900
Beschreibung
verified
Datentyp
integer
Alias
- UMLS CUI [1]
- C1711411
Beschreibung
age at onset of symptoms
Datentyp
integer
Alias
- UMLS CUI [1]
- C0150907
Beschreibung
register
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0585825
Beschreibung
If 'registered'
Datentyp
text
Alias
- UMLS CUI [1]
- C1300638
Beschreibung
Handedness
Beschreibung
hand to write letter
Datentyp
text
Alias
- UMLS CUI [1]
- C2734042
Beschreibung
hand to throw a ball
Datentyp
text
Alias
- UMLS CUI [1]
- C2734034
Beschreibung
hand to play
Datentyp
text
Alias
- UMLS CUI [1]
- C2734048
Beschreibung
hand to use broom
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C3843854
Beschreibung
hand snow shoveling
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C2712668
Beschreibung
hand to strike a match
Datentyp
text
Alias
- UMLS CUI [1]
- C2734054
Beschreibung
hand to hold scissors
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0175735
Beschreibung
hand to thread a needle
Datentyp
text
Alias
- UMLS CUI [1]
- C2734060
Beschreibung
hand to deal cards
Datentyp
text
Alias
- UMLS CUI [1]
- C2734058
Beschreibung
hand to hold hammer
Datentyp
text
Alias
- UMLS CUI [1]
- C2734052
Beschreibung
hand to hold toothbrush
Datentyp
text
Alias
- UMLS CUI [1]
- C2734038
Beschreibung
hand to open bottle
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0179376
Beschreibung
eye dominance
Datentyp
text
Alias
- UMLS CUI [1]
- C0422883
Beschreibung
Overview - Study participation
Ähnliche Modelle
CRF Continuous Documentation
- StudyEvent: ODM
C0009488 (UMLS CUI [2])
C0011900 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2316983 (UMLS CUI [1,4])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C2317746 (UMLS CUI [2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0008059 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C3843854 (UMLS CUI [1,2])
C2712668 (UMLS CUI [1,2])
C0175735 (UMLS CUI [1,2])
C0179376 (UMLS CUI [1,2])