ID
13914
Description
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Lien
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Mots-clés
Versions (2)
- 15/03/2016 15/03/2016 -
- 16/03/2016 16/03/2016 -
Téléchargé le
16 mars 2016
DOI
Pour une demande vous connecter.
Licence
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Continuous Documentation
CRF Continuous Documentation
- StudyEvent: ODM
Description
Documentation of diseases
Description
no of diagnosis
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0011900
Description
Please regard the following diagnoses: Hypertension, diabetes mellitus, hypercholesterolemia, stroke, epilepsy, heart attack, recurrent depressive episode, neoplasms, thyroid disease, renal insufficiency. You can use the checklist pre-existing condition. In the database one can choose the ICD-Code after data entry.
Type de données
text
Alias
- UMLS CUI [1]
- C0011900
Description
onset of disease
Type de données
date
Alias
- UMLS CUI [1]
- C0277793
Description
end of disease
Type de données
date
Alias
- UMLS CUI [1]
- C4019088
Description
enduring
Type de données
boolean
Alias
- UMLS CUI [1]
- C1314677
Description
Checklist pre-existing conditions
Description
hypertension diagnosed
Type de données
text
Alias
- UMLS CUI [1]
- C0020538
Description
date initial diagnosis hypertension
Type de données
date
Alias
- UMLS CUI [1,1]
- C0020538
- UMLS CUI [1,2]
- C2316983
Description
hypercholesterolemia
Type de données
text
Alias
- UMLS CUI [1]
- C0020443
Description
date initial diagnosis hypercholesterolemia
Type de données
date
Alias
- UMLS CUI [1,1]
- C0020443
- UMLS CUI [1,2]
- C2316983
Description
hypertriglyceridemia
Type de données
text
Alias
- UMLS CUI [1]
- C0020557
Description
date initial diagnosis hypertriglyceridemia
Type de données
date
Alias
- UMLS CUI [1,1]
- C0020557
- UMLS CUI [1,2]
- C2316983
Description
hyperlipedimia or dyslipidemia
Type de données
text
Alias
- UMLS CUI [1]
- C0020473
- UMLS CUI [2]
- C0242339
Description
initial diagnosis of hyperlipedimia or dyslipedimia
Type de données
date
Alias
- UMLS CUI [1,1]
- C0020473
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0242339
- UMLS CUI [2,2]
- C2316983
Description
diabetes mellitus type 1
Type de données
text
Alias
- UMLS CUI [1]
- C0011854
Description
initial diagnosis of diabetes type 1
Type de données
date
Alias
- UMLS CUI [1,1]
- C0011854
- UMLS CUI [1,2]
- C2316983
Description
diabetes mellitus type 2
Type de données
text
Alias
- UMLS CUI [1]
- C0011860
Description
initial diagnosis of diabetes type 2
Type de données
date
Alias
- UMLS CUI [1,1]
- C0011860
- UMLS CUI [1,2]
- C2316983
Description
diabetic polyneuropathy
Type de données
text
Alias
- UMLS CUI [1]
- C0271680
Description
initial diagnosis of diabetic polyneuropathy
Type de données
date
Alias
- UMLS CUI [1,1]
- C0271680
- UMLS CUI [1,2]
- C2316983
Description
cardiac infarction
Type de données
text
Alias
- UMLS CUI [1]
- C0027051
Description
date of initial diagnosis cardiac infarction
Type de données
date
Alias
- UMLS CUI [1,1]
- C0027051
- UMLS CUI [1,2]
- C2316983
Description
transient ischemic attack
Type de données
text
Alias
- UMLS CUI [1]
- C0007787
Description
date of initial diagnosis TIA
Type de données
date
Alias
- UMLS CUI [1,1]
- C0007787
- UMLS CUI [1,2]
- C2316983
Description
coronary heart disease
Type de données
text
Alias
- UMLS CUI [1]
- C0010068
Description
date of initial diagnosis coronary heart disease
Type de données
date
Alias
- UMLS CUI [1,1]
- C0010068
- UMLS CUI [1,2]
- C2316983
Description
stroke
Type de données
text
Alias
- UMLS CUI [1]
- C0038454
Description
date of initial diagnosis stroke
Type de données
date
Alias
- UMLS CUI [1,1]
- C0038454
- UMLS CUI [1,2]
- C2316983
Description
cerebral venous sinus thrombosis or cerebral thrombosis
Type de données
text
Alias
- UMLS CUI [1]
- C0338573
- UMLS CUI [2]
- C0079102
Description
date of initial diagnosis cerebral venous sinus thrombosis
Type de données
date
Alias
- UMLS CUI [1,1]
- C0338573
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0079102
- UMLS CUI [2,2]
- C2316983
Description
subarachnoid hemorrhage
Type de données
text
Alias
- UMLS CUI [1]
- C0038525
Description
date of initial diagnosis SAB
Type de données
date
Alias
- UMLS CUI [1,1]
- C0038525
- UMLS CUI [1,2]
- C2316983
Description
ICH
Type de données
text
Alias
- UMLS CUI [1]
- C2937358
Description
date of initial diagnosis ICH
Type de données
date
Alias
- UMLS CUI [1,1]
- C2937358
- UMLS CUI [1,2]
- C2316983
Description
subdural hematoma
Type de données
text
Alias
- UMLS CUI [1]
- C0018946
Description
date of initial diagnosis subdural hematoma
Type de données
date
Alias
- UMLS CUI [1,1]
- C0018946
- UMLS CUI [1,2]
- C2316983
Description
concussion
Type de données
text
Alias
- UMLS CUI [1]
- C0006107
Description
date of initial diagnosis concussion
Type de données
date
Alias
- UMLS CUI [1,1]
- C0006107
- UMLS CUI [1,2]
- C2316983
Description
other pre-existing brain condition
Type de données
text
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
Description
date of initial diagnosis other pre-existing brain condition
Type de données
date
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C2316983
Description
peripheral arterial disease
Type de données
text
Alias
- UMLS CUI [1]
- C1704436
Description
date of initial diagnosis PAD
Type de données
date
Alias
- UMLS CUI [1,1]
- C1704436
- UMLS CUI [1,2]
- C2316983
Description
atrial fibrillation
Type de données
text
Alias
- UMLS CUI [1]
- C0004238
Description
date of initial diagnosis atrial fillibration
Type de données
date
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C2316983
Description
hemophilia
Type de données
text
Alias
- UMLS CUI [1]
- C0684275
Description
date of initial diagnosis hemophilia
Type de données
date
Alias
- UMLS CUI [1,1]
- C0684275
- UMLS CUI [1,2]
- C2316983
Description
parkinsons disease
Type de données
text
Alias
- UMLS CUI [1]
- C0030567
Description
date of initial diagnosis PD
Type de données
date
Alias
- UMLS CUI [1,1]
- C0030567
- UMLS CUI [1,2]
- C2316983
Description
rheumatism or arthritis
Type de données
text
Alias
- UMLS CUI [1]
- C0035435
- UMLS CUI [2]
- C0003864
Description
date of initial diagnosis rheumatism or arthritis
Type de données
date
Alias
- UMLS CUI [1,1]
- C0035435
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0003864
- UMLS CUI [2,2]
- C2316983
Description
allergies
Type de données
text
Alias
- UMLS CUI [1]
- C0020517
Description
date of initial diagnosis hypersensitivity
Type de données
date
Alias
- UMLS CUI [1,1]
- C0020517
- UMLS CUI [1,2]
- C2316983
Description
Procedures
Alias
- UMLS CUI-1
- C0087111
Description
Documentation of procedures
Description
number of procedure
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0087111
Description
Please regard implantation of cardiac pacemaker, tissue transplantation, blood transfusion, giving birth and joint replacement.
Type de données
text
Alias
- UMLS CUI [1]
- C0087111
Description
indication of procedure
Type de données
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Description
Date of procedure
Type de données
date
Alias
- UMLS CUI [1]
- C2584899
Description
Medication
Alias
- UMLS CUI-1
- C0013227
Description
Documentation of medication
Description
number of medication
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0013227
Description
medical drug
Type de données
text
Alias
- UMLS CUI [1]
- C0013227
Description
daily dose
Type de données
float
Alias
- UMLS CUI [1]
- C2348070
Description
daily dose unit
Type de données
text
Alias
- UMLS CUI [1]
- C0869039
Description
type of application
Type de données
integer
Alias
- UMLS CUI [1]
- C0185125
Description
route of application
Type de données
integer
Alias
- UMLS CUI [1]
- C0013153
Description
indication of procedure
Type de données
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Description
start of precedure
Type de données
date
Alias
- UMLS CUI [1]
- C3897826
Description
end of procedure
Type de données
date
Alias
- UMLS CUI [1]
- C3897842
Description
procedure enduring
Type de données
boolean
Alias
- UMLS CUI [1]
- C1314677
Description
Family history - family tree
Alias
- UMLS CUI-1
- C1148543
Description
Family history - parents
Alias
- UMLS CUI-1
- C0241889
Description
year of birth mother
Type de données
integer
Alias
- UMLS CUI [1]
- C2319404
Description
screened diseases
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Description
mother alive
Type de données
text
Alias
- UMLS CUI [1]
- C2321272
Description
if dead
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
Description
year of death mother unknown
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Description
year of birth father
Type de données
integer
Alias
- UMLS CUI [1]
- C2136977
Description
screened disease father
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Description
father alive
Type de données
text
Alias
- UMLS CUI [1]
- C2321271
Description
year of death father
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
Description
year of death father unknown
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Description
Family history - siblings
Description
sibling gender
Type de données
text
Alias
- UMLS CUI [1,1]
- C0037047
- UMLS CUI [1,2]
- C0079399
Description
year of birth sibling
Type de données
integer
Alias
- UMLS CUI [1]
- C2317653
- UMLS CUI [2]
- C2317746
Description
screened diseases sibling
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Description
sibling alive
Type de données
text
Alias
- UMLS CUI [1]
- C2321274
- UMLS CUI [2]
- C2321284
Description
year of death sibling
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
Description
year of death sibling unknown
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Description
Family history - children
Description
child gender
Type de données
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C0079399
Description
year of birth child
Type de données
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0008059
Description
screened diseases child
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Description
child alive
Type de données
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C2584946
Description
year of death child
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
Description
year of death child unknown
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Description
Family history - further relatives
Description
degree of affinity
Type de données
integer
Alias
- UMLS CUI [1]
- C0680204
Description
degree of affinity side
Type de données
text
Alias
- UMLS CUI [1]
- C0680204
Description
relative gender
Type de données
text
Alias
- UMLS CUI [1]
- C3172261
Description
year of birth relative
Type de données
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Description
screened diseases relative
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Description
relative alive
Type de données
text
Alias
- UMLS CUI [1]
- C3172264
Description
year of death relative
Type de données
integer
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
Description
year of relative unknown
Type de données
boolean
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Description
Family history - relatives with screened diseases
Description
degree of affinity
Type de données
integer
Alias
- UMLS CUI [1]
- C0680204
Description
degree of affinity side
Type de données
text
Alias
- UMLS CUI [1]
- C0680204
Description
gender relative
Type de données
text
Alias
- UMLS CUI [1]
- C3172261
Description
relative year of birth
Type de données
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Description
diagnosis
Type de données
integer
Alias
- UMLS CUI [1]
- C0011900
Description
verified
Type de données
integer
Alias
- UMLS CUI [1]
- C1711411
Description
age at onset of symptoms
Type de données
integer
Alias
- UMLS CUI [1]
- C0150907
Description
register
Type de données
boolean
Alias
- UMLS CUI [1]
- C0585825
Description
If 'registered'
Type de données
text
Alias
- UMLS CUI [1]
- C1300638
Description
Handedness
Description
hand to write letter
Type de données
text
Alias
- UMLS CUI [1]
- C2734042
Description
hand to throw a ball
Type de données
text
Alias
- UMLS CUI [1]
- C2734034
Description
hand to play
Type de données
text
Alias
- UMLS CUI [1]
- C2734048
Description
hand to use broom
Type de données
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C3843854
Description
hand snow shoveling
Type de données
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C2712668
Description
hand to strike a match
Type de données
text
Alias
- UMLS CUI [1]
- C2734054
Description
hand to hold scissors
Type de données
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0175735
Description
hand to thread a needle
Type de données
text
Alias
- UMLS CUI [1]
- C2734060
Description
hand to deal cards
Type de données
text
Alias
- UMLS CUI [1]
- C2734058
Description
hand to hold hammer
Type de données
text
Alias
- UMLS CUI [1]
- C2734052
Description
hand to hold toothbrush
Type de données
text
Alias
- UMLS CUI [1]
- C2734038
Description
hand to open bottle
Type de données
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0179376
Description
eye dominance
Type de données
text
Alias
- UMLS CUI [1]
- C0422883
Description
Overview - Study participation
Description
e.g. DELCODE (BN012)
Type de données
text
Alias
- UMLS CUI [1]
- C2826693
Description
date of consent
Type de données
date
Alias
- UMLS CUI [1]
- C2985782
Description
date end of study
Type de données
date
Alias
- UMLS CUI [1]
- C2983670
Similar models
CRF Continuous Documentation
- StudyEvent: ODM
C0009488 (UMLS CUI [2])
C0011900 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2316983 (UMLS CUI [1,4])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C2317746 (UMLS CUI [2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0008059 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C3843854 (UMLS CUI [1,2])
C2712668 (UMLS CUI [1,2])
C0175735 (UMLS CUI [1,2])
C0179376 (UMLS CUI [1,2])