ID
43597
Description
The European Society for Blood and Marrow Transplantation maintains a huge registry and delivers data collection forms. The original forms for submitting data to the EBMT can be found under: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx#HSCTMedB This ODM form is derived from the AML-disease specific form of the section MED-B. http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Documents/05AL.pdf
Link
Keywords
Versions (4)
- 11/18/15 11/18/15 -
- 11/30/15 11/30/15 -
- 2/11/16 2/11/16 -
- 9/20/21 9/20/21 -
Uploaded on
September 20, 2021
DOI
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License
Creative Commons BY-NC 3.0
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Acute Leukaemia AML EBMT HSCT Registry MED-B Disease Specific Form
Acute Leukaemia AML EBMT HSCT Registry MED-B Disease Specific Form
Description
Patient
Alias
- UMLS CUI-1
- C0030705
Description
Identification code
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Patient code
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Initials (first name(s) - surname(s))
Data type
text
Alias
- UMLS CUI [1]
- C2986440
Description
Patient date of birth
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C0421451
Description
Sex
Data type
text
Alias
- UMLS CUI [1]
- C0079399
Description
AB0 Group
Data type
text
Alias
- UMLS CUI [1]
- C0000778
Description
Rh factor
Data type
text
Alias
- UMLS CUI [1]
- C0035403
Description
Disease
Alias
- UMLS CUI-1
- C0012634
Description
Date of diagnosis
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
Description
Primary disease diagnosis
Data type
integer
Alias
- UMLS CUI [1]
- C0011900
Description
Specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
Initial Diagnosis
Alias
- UMLS CUI-1
- C0011900
Description
SubmittedPreviously
Data type
integer
Description
Diagnosis
Data type
integer
Alias
- UMLS CUI [1]
- C0011900
Description
Specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
WHO Classification AML
Data type
integer
Alias
- UMLS CUI [1]
- C1301142
Description
Acute myeloid leukaemia, not otherwise categorized, classify as
Data type
integer
Alias
- UMLS CUI [1]
- C1533066
Description
Specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
WHO Classification at diagnosis of de novo Precursor Lymphoid Neoplasms (old ALL)
Data type
integer
Alias
- UMLS CUI [1]
- C1301142
- UMLS CUI [2]
- C1335469
- UMLS CUI [3]
- C0023449
Description
Specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
Secondary origin
Data type
integer
Alias
- UMLS CUI [1]
- C3266877
Description
Cytgenetics
Alias
- UMLS CUI-1
- C0010802
Description
Chromosome analysis
Data type
integer
Alias
- UMLS CUI [1]
- C0200867
Description
If abnormal: Are there 3 or more abnormalities (complex kariotype)?
Data type
integer
Alias
- UMLS CUI [1]
- C3273253
Description
If done: number of metaphases with abnormalites
Data type
float
Alias
- UMLS CUI [1,1]
- C1621812
- UMLS CUI [1,2]
- C0008625
- UMLS CUI [1,3]
- C0750480
Description
number of metaphases examined
Data type
float
Alias
- UMLS CUI [1]
- C1621812
Description
Indicate which abnormalities found
Data type
integer
Alias
- UMLS CUI [1]
- C0008625
Description
Number of chromosomes
Data type
integer
Alias
- UMLS CUI [1]
- C1953343
Description
Other or associated abnormalities (specify, including whether absent or present)
Data type
text
Alias
- UMLS CUI [1]
- C0008625
Description
Molecular Biology
Alias
- UMLS CUI-1
- C0026376
Description
Molecular markers
Data type
integer
Alias
- UMLS CUI [1]
- C0005516
Description
BCR-ABL
Data type
integer
Alias
- UMLS CUI [1]
- C1835417
Description
PML-RAR
Data type
integer
Description
AML1-ETO
Data type
integer
Alias
- UMLS CUI [1]
- C0665119
Description
FLT3-ITD
Data type
integer
Alias
- UMLS CUI [1]
- C2348499
Description
CEBPA mutation
Data type
integer
Alias
- UMLS CUI [1]
- C1511473
Description
NPM1 mutation
Data type
integer
Alias
- UMLS CUI [1]
- C2826175
Description
MLL-PTD
Data type
integer
Alias
- UMLS CUI [1]
- C3829001
Description
Other
Data type
integer
Alias
- UMLS CUI [1]
- C0205394
Description
Specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
WBC
Data type
float
Measurement units
- 10^9/l
Alias
- UMLS CUI [1]
- C0023508
Description
WBC not available/unknown
Data type
integer
Description
Involvement at Diagnosis
Alias
- UMLS CUI-1
- C0027646
Description
BM
Data type
integer
Description
CNS
Data type
integer
Alias
- UMLS CUI [1]
- C0686377
Description
Testis/ovary
Data type
integer
Alias
- UMLS CUI [1]
- C0039597
- UMLS CUI [2]
- C0029939
Description
Chloroma
Data type
integer
Alias
- UMLS CUI [1]
- C0152276
Description
Other
Data type
integer
Alias
- UMLS CUI [1]
- C0205394
Description
Type of HSCT
Alias
- UMLS CUI-1
- C0472699
Description
Treatment and Status of Disease at Stem Cell Collection
Alias
- UMLS CUI-1
- C0457411
Description
Date of Collection
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C3827940
- UMLS CUI [1,2]
- C0011008
Description
Treatment Number Chemotherapy
Data type
float
Alias
- UMLS CUI [1]
- C0392920
- UMLS CUI [2,1]
- C1302181
- UMLS CUI [2,2]
- C0750480
Description
Number of chemotherapy course(s) from collection to HSCT
Data type
text
Alias
- UMLS CUI [1]
- C0392920
Description
Disease Hematological Status
Data type
integer
Alias
- UMLS CUI [1]
- C1704632
Description
Complete cytogenetic remission
Data type
integer
Alias
- UMLS CUI [1,1]
- C0010802
- UMLS CUI [1,2]
- C0677874
Description
Complete molecular remission
Data type
integer
Alias
- UMLS CUI [1,1]
- C0026376
- UMLS CUI [1,2]
- C0677874
Description
Status of Disease at HSCT
Alias
- UMLS CUI-1
- C1704632
- UMLS CUI-2
- C0472699
Description
Hematological status
Data type
integer
Alias
- UMLS CUI [1]
- C1704632
Description
Complete cytogenetic remission
Data type
integer
Alias
- UMLS CUI [1,1]
- C0010802
- UMLS CUI [1,2]
- C0677874
Description
Complete molecular remission
Data type
integer
Alias
- UMLS CUI [1,1]
- C0026376
- UMLS CUI [1,2]
- C0677874
Description
Additional Treatment Post-HSCT
Alias
- UMLS CUI-1
- C1706712
Description
Best disease response at 100 days post-HSCT
Alias
- UMLS CUI-1
- C1704632
Description
Forms to be filled in
Alias
- UMLS CUI-1
- C2985594
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