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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
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register Finish Cancer Registry cancer - register

- 3/15/21 - 1 form, 6 itemgroups, 49 items, 2 languages
Itemgroups: CancerRegistry, Previous cancer, Current Neoplasm, Treatment, surgery, radiotherapy
Data set from the Finish cancer registry, with friendly permission (http://www.cancer.fi/syoparekisteri/en/registration/forms-and-instructions/)

Pre-Study - NCI Standard Registration Template - 2745056v1.0 - NCI Standard Registration Template

- 9/20/12 - 1 form, 3 itemgroups, 18 items, 1 language
Itemgroups: Mandatory Registration Questions, Conditional Registration Questions, Optional Registration Questions
The collection of CDEs used in the registration module. Registration consists of the registering institution applying for entry of a consented participant into a specific research study by conveying designated registration information to a central facility that is in charge of accepting participants into the study. Source Form: NCI FormBuilder: https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=4C056DEC-99CB-35E0-E044-0003BA3F9857

dataset cancer conference cancer - dataset

- 9/20/21 - 1 form, 4 itemgroups, 36 items, 2 languages
Itemgroups: Patient data, -, Cancer conference Decision, Cancer conference Decision
clinical cancer registry used in Münster

HIS pathology documtation cancer conference breast cancer - HIS

- 8/7/13 - 1 form, 3 itemgroups, 35 items, 2 languages
Itemgroups: Admininstrative Daten, Pathologie-Dokumentation für FK Tumorboard, Pathologische TNM-Stadium
HIS form from Soarian. "Frauenklinik Erlangen" with friendly permission of the gynecology Erlangen (Prof. Beckmann) and the medical informatics department Erlangen (PD Dr. Bürkle)

HIS documentation cancer conference - gynecology breast cancer - HIS

- 8/7/13 - 1 form, 8 itemgroups, 86 items, 2 languages
Itemgroups: Admininstrative Daten, Dokumentation TB Mamma, klin. TNM-Stadium, vorh. path.TNM-Stadium, TNM-Stadium der Patho, endgültiges TNM-Stadium, Geplante Therapie, Weiteres
HIS form from Soarian. "Frauenklinik Erlangen" with friendly permission of the gynecology Erlangen (Prof. Beckmann) and the medical informatics department Erlangen (PD Dr. Bürkle)

quality management ADT-dataset breast cancer breast cancer - quality management

- 9/27/21 - 1 form, 7 itemgroups, 32 items, 2 languages
Itemgroups: Patientendaten, Patientenadresse, Breast, Hormonrezeptoren, MammaCa, Tumorproteasen, MammaCa
ADT - specific dataset for breast cancer, add for base-dataset, ODM derived from http://www.tumorzentren.de/tl_files/dokumente/Module%20zum%20Basisdatensatz/Anlage_2_Organspezifischer_DS_Mamma_Aufnahme%20BIRADS_24.04.2012.pdf

register epidemiogical cancer registry North-Rhine-Westphalia cancer - register

- 9/20/21 - 1 form, 10 itemgroups, 65 items, 2 languages
Itemgroups: MeldungDaten, Idenität, Tod, Diagnose, TNM, Klassifikation, TumorMarker, Therapie, Codes, Pathologie
register epidemiogical cancer registry North-Rhine-Westphalia cancer

register epidemiogical cancer registry North-Rhine-Westphalia cancer - register

- 9/20/21 - 1 form, 10 itemgroups, 65 items, 2 languages
Itemgroups: MeldungDaten, Idenität, Tod, Diagnose, TNM, Klassifikation, TumorMarker, Therapie, Codes, Pathologie
dataset epidemiogical cancer registry North-Rhine-Westphalia. With friendly permission

dataset Aftercare cancer - dataset

- 9/20/21 - 1 form, 13 itemgroups, 69 items, 2 languages
Itemgroups: Patient data, -, Aftercare, Finding, Medical History, Medical Examination , Medical Examination , Screening procedure, Tumor Status, Tumor Expansion , planned therapeutic procedure, planned therapeutic procedure, Chronic pain
clinical cancer registry used in Münster

dataset treatment cancer - dataset

- 9/20/21 - 1 form, 19 itemgroups, 175 items, 2 languages
Itemgroups: Patient data, -, Treatment, executed therapeutic procedure, Secondary diseases, Tumor site, Histopathology , Diagnostic Accuracy, -, distant metastasis , Tumor Status, Tumor Expansion , Tumor Expansion , Hormone Receptor , Hormone Receptor , planned therapeutic procedure, planned therapeutic procedure, Chronic pain , Prostate
clinical cancer registry used in Münster

dataset radiotherapy cancer - dataset

- 9/17/21 - 1 form, 2 itemgroups, 31 items, 2 languages
Itemgroups: Patient data, Therapeutic radiology procedure
clinical cancer registry used in Münster

dataset Surgery cancer - dataset

- 9/17/21 - 1 form, 2 itemgroups, 104 items, 2 languages
Itemgroups: Patient data, -
clinical cancer registry used in Münster

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