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Neuroinflammatory demyelinating diseases CNS Common Data Elements

- 2021-09-17 - 1 Formulär, 13 Item-grupper, 46 Dataelement, 2 Språk

Item-grupper: Diagnosis Demyelinating disease of central nervous system, MS, NMOSD, Acute disseminated encephalomyelitis (ADEM), CSF, Current relapse, Previous relapses, EDSS, Current therapy, Risk stratification Natalizumab, Previous Therapy, MRI Results, Other medical information

Common Data Elements for Neuroinflammatory Demyelinating Diseases of the central nervous system (NID CDEs). The NID CDEs may be used in clinical routine, clinical trial and registry documentation of Multiple Sclerosis (MS), Neuromyelitis Optica Spectrum Disorders (NMOSD) and Acute Disseminated Encephalomyelitis (ADEM). The NID CDEs were developed by the Institute of Medical Informatics of the University Muenster in cooperation with the Department of Neurology of the University Hospital Muenster.

NINDS CDE Demographics Multiple Sclerosis - Demographics

- 2021-03-15 - 1 Formulär, 1 Item-grupp, 8 Dataelement, 1 Språk

Item-grupp: Demographics

NINDS Common Data Elements, Multiple Sclerosis Demographics Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE History Data Source and Reliability Multiple Sclerosis - History Data Source and Reliability

- 2016-06-26 - 1 Formulär, 1 Item-grupp, 7 Dataelement, 1 Språk

Item-grupp: Medical history

NINDS Common Data Elements, History Data Source and Reliability Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Vital Signs Multiple Sclerosis - Vital Signs

- 2021-09-20 - 1 Formulär, 2 Item-grupper, 14 Dataelement, 1 Språk

Item-grupper: Vital Signs, Pediatric

NINDS Common Data Elements, Multiple Sclerosis Vital Signs Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Non-Imaging Diagnostics Recommendations Multiple Sclerosis - Non-Imaging Diagnostics Recommendations

- 2021-04-13 - 1 Formulär, 6 Item-grupper, 52 Dataelement, 1 Språk

Item-grupper: ECG, Pulmonary Function Tests, Scalp Electroencephalogram, Immune Cell, Electrophysiology, Studies Nerve Conduction

NINDS Common Data Elements, Multiple Sclerosis Non-Imaging Diagnostics Recommendations Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Laboratory Test Recommendations Table 6 – Urinalysis Multiple Sclerosis - Laboratory Test Recommendations Table 6 – Urinalysis

- 2021-09-17 - 1 Formulär, 1 Item-grupp, 22 Dataelement, 1 Språk

Item-grupp: Urinalysis

NINDS Common Data Elements, Multiple Sclerosis Laboratory Test Recommendations Table 6 – Urinalysis Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE OCT Information Multiple Sclerosis - OCT Information

- 2016-06-30 - 1 Formulär, 1 Item-grupp, 14 Dataelement, 1 Språk

Item-grupp: Information OCT

NINDS Common Data Elements, Multiple Sclerosis OCT Information Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE MRI Multiple Sclerosis - MRI

- 2016-06-29 - 1 Formulär, 1 Item-grupp, 19 Dataelement, 1 Språk

Item-grupp: MRI

NINDS Common Data Elements, Multiple Sclerosis MRI Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Genetics Multiple Sclerosis - Genetics

- 2016-06-29 - 1 Formulär, 2 Item-grupper, 10 Dataelement, 1 Språk

Item-grupper: Genetics, Family history DNA Sample Banking

NINDS Common Data Elements, Multiple Sclerosis Genetics Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Exam Multiple Sclerosis - Physical Exam

- 2016-06-29 - 1 Formulär, 2 Item-grupper, 48 Dataelement, 1 Språk

Item-grupper: Physical Exam, Physical examination Results

NINDS Common Data Elements, Multiple Sclerosis Physical Exam Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDERelapse Multiple Sclerosis - Relapse

- 2016-06-28 - 1 Formulär, 1 Item-grupp, 23 Dataelement, 1 Språk

Item-grupp: Relapse

NINDS Common Data Elements, Multiple Sclerosis Relapse Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Social Status Multiple Sclerosis - Social Status

- 2016-06-28 - 1 Formulär, 1 Item-grupp, 8 Dataelement, 1 Språk

Item-grupp: Social Status

NINDS Common Data Elements, Multiple Sclerosis Social Status Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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